Starting Chemo May 2008

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  • KristyAnn
    KristyAnn Member Posts: 793
    edited March 2009

    I have a green clip clipped to my company nametag because yes- I forgot to wear green. Hubby called me on the way to work - meaning I was already on the way- to remind me and I said "Well what if I want to get pinched by someone LOL". I think I will pinch him tonight even if he is wearing green just because he wont mess with me and I will blame it on the chemo!

    Kristy

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  • angelsaboveus
    angelsaboveus Member Posts: 298
    edited March 2009

    Happy St pattys day ladies,

    Julie sending angel hugs your way, have a safe journey and know we will be with you at the funeral holding out our hands if you need us.

    Randie....hope you are breathing easy ,   about the photo I thought the crowd might get ugly if i went in front of the little kids to get a photo with pluto or Minnie.

    It is snowing again..this is getting rather old!  Getting caught up on my housework and my moms today and better do another load of laundry......yawn !!!

    Have a great day 

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  • MsKarin
    MsKarin Member Posts: 647
    edited March 2009

    Thanks to my cut and new look I can once again sing "I Feel Pretty". Move over Maria (in Westside Story). Excuse me a minute...clearing throat,

    ♪ ♫ See the pretty girl in that mirror there?
    Who can that attractive girl be?
    Such a pretty face
    Such a pretty dress
    Such a pretty smile
    Such a pretty me! ♪ ♫

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  • MsKarin
    MsKarin Member Posts: 647
    edited March 2009

    Look! angelsabove... has a face, LOL. Love your new avatar.

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  • MsKarin
    MsKarin Member Posts: 647
    edited March 2009

    Is jumping Up AnD dOwN with joy. Just found out my Mammo which I thought would come out of pocket because of deductible is covered 100%. Go ahead and squish my boob. It will hurt less then tightening my belt to pay for it. Doing Happy Dance!

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  • familyroks
    familyroks Member Posts: 575
    edited March 2009

    Karin - You always bring a smile to my face.

    I may not speak up much but my thoughts are with every single one of you each and every day.  Special thoughts to the little ones.

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  • otter
    otter Member Posts: 6,099
    edited March 2009

    Hi, everybody!  I don't have much to say, but I wanted to stop in. 

    RanD, do what makes you feel good.  You've earned it.  If you don't want them stickin' those needles in you, well, don't let 'em do it.

    I'm loving all the new pics.  I still look like I did a month ago, with curly-curly hair; but I think I'm getting used to it.  I sure like not having to mess with it every day.

    It's spring here--everything is in bloom.  I sure hope y'all can shake off the snow and get some of this nice weather.

    Big hugs...

    otter 

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  • Sable
    Sable Member Posts: 738
    edited March 2009

    Gorgeous day here as well. Got outside and soaked up some of that good vitamin D for a bit while planting my dahlias. Played soccer with the little one for a bit, then my new meds knocked me down. Made me feel all weird. Ended up laying on the bed for a bit and took a catnap. Feel a tad better now. Dropped a few text messages and just relaxed the rest of the evening. Fresh air felt sooooo good! I'm ready to make up that year I lost!



    Still waiting on my hair to lay down in the front... who knew I had such a HUGE frickin cowlick?!?!?!?! It was neat to feel the wind blow my hair around while driving home though. New sensation ahhhhhhh

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  • Sable
    Sable Member Posts: 738
    edited March 2009

    OHHHHH gracie and angels have new avs!!!! Love the new pics ladies :O)

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  • robink
    robink Member Posts: 336
    edited March 2009

    Good morning All,

    My appt. with my onco went well, don't have to return for 4 months. He said the good news about muscular and joint pain caused by Femara is research indications decreased risk of recurrance for those with higher side effects. For now the Femara stays in my daily routine and Ativan at bed time.

    The yoga DVDs were delivered yesterday but I didn't have time to preview any of them.  I worked the 5-10 shift, left the clinic at 11:30 pm, got home after midnight. Too tired to give a rip.  Later today I'll put one in the DVD player.

    So I asked my onco about what he considers the one year mark.  He counts from the date of invertention (surgery).  Based on that thinking today is my one year point.  March 18, 2007 I had my lumpectomy/breast reduction.  Of course, had I know what was to come in the final pathology report I would have gone for the mastectomy and not messed with the other. 

    No celebrations here, just the recognition of what has past.  I will celebrate at the 5 year point.

    Those of you who drink the purple juice, do you get the original or the active?

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  • ranD
    ranD Member Posts: 373
    edited March 2009

    I use the original...yum...congrats on the news...yippeee to you!!

    randie

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  • MsKarin
    MsKarin Member Posts: 647
    edited March 2009

    I have heard this before (good news about muscular and joint pain caused by Femara is research indications decreased risk of recurrence for those with higher side effects.) I choose to look at me and my SE's (or lack of) as being blessed and I have a high tolerance and am not a winer.

    I do feel like my mom when first waking up or getting up after sitting for awhile. My joints are stiff and take awhile to get back to normal but I wouldn't classify it as pain. Hot flashes are not a problem but I think the Lexapro 5mg is the reason for that. On days I forget to take it I do seem to have them. I also have nights that I can't fall asleep (is that a Femara SE?) I take an Ambien. I have been taking it since Oct. 17th. Other then that I feel like my oldself.

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  • sueper13
    sueper13 Member Posts: 1,224
    edited March 2009

    Hello everyone.  I know I'll forget someone so I apologize in advance.  I have Tamoxifen side effects, does that count? Hot flashes, can't get to sleep, can't stay asleep...knees hurt...I just try to tell myself how lucky I am to be here to experience these side effects and most of the time it works.

    Only two weeks until I retire!   TEN more work days....then surgery Aprill 15th (right prophy mast w. bilat DIEP recon)....

    Cris, sorry 'bout Kelly's head.  I remember that feeliing of seeing it happen and not being able to stop it...one of the hard things about being Mom is you can see it coming!!1

    Karin, I'm so glad you feel pretty.

    RanD, I agree, listen to your instincts.

    Noelle, is Austin happening?  

    Rock, I miss you.  Really.   I miss you a lot.

    Julie, so sorry about your uncle.

    Gracie, my heart breaks for the abuse of Karli.  I am glad she has you to tell her it's not her fault.  Been there, been that kid, still recovering---but in my case it was handled all wrong, kept a secret we never talked about so I felt like it must be my fault.

    Adrienne, I see you lurking there....

    RobinK, welcome back...

    Eddie!  So good to hear (read?) your voice !!!!

    LOVE ALL OF YOU

    Sue

    P.S. A year ago yesterday I was diagnosed....my surgery was April 2nd so I am almost a 1  year survivor....love you guys (again--still)

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  • MsKarin
    MsKarin Member Posts: 647
    edited March 2009

    Sue that was yesterday. No longer feeling pretty, just feeling my age, LOL

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  • robink
    robink Member Posts: 336
    edited March 2009

    Sue - where are you getting your diep done?  that's what I want. My PS does the TRAM.  I think I'd have to go to denver for DIEP.

    RK

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  • familyroks
    familyroks Member Posts: 575
    edited March 2009

    Busted by Sue Surprised

    I noticed yesterday that my hot flashes have pretty much disappeared.  Not that I'm complaining, mind you, but should I worry?  I'm on Arimidex and have been since Sept.  I don't know when they dropped off.  I just realized it yesterday.  Still will toss off the blankets sometimes at night but nothing significant.  Has anyone else noticed a significant drop in their hotflashes?

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  • MsKarin
    MsKarin Member Posts: 647
    edited March 2009

    I think I've got it. They pulled me twice this week to sub in two different fourth grade classes. I used to avoid that age group because I would have a really bad day. Both days this week I had a great day. I think I owe the credit to the teacher I work with this year. I have learned a lot from her. And to think I was hesitant about working with her.

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  • ranD
    ranD Member Posts: 373
    edited March 2009

    Hey all.

    Just got back from the er///they drained 1.1 liters from the right side.  which is awesome since it hasn't been drained in over 2 months and they were worried that it would slurry and be unremovable...doc said there was less then 100 ml left, too little to try and get out.  Scheduled the left lung for next tuesday...

    going to take a tylenol with codeine, my ribs are killing me.....

    randie

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  • ranD
    ranD Member Posts: 373
    edited March 2009

    BTW, Iopted for no recon becuase I didn't want to go in for retreads every 10 years or every airbag deployment....I love the flatsies I have now....lol...

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  • robink
    robink Member Posts: 336
    edited March 2009

    rand- for the longest time since my mastectomy last April I was certain I did not want to go through the reconstructive process.  Over the past 2 months my mind set has changed and I want to be equalized.  One mile stone for me was having my mammo in January and learning my right breast was OK.  There is no sense of urgency here, just the knowledge of wanting to get it done.  Simply don't have the time for an 8 week recovery so maybe in the fall.

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  • Gracie713
    Gracie713 Member Posts: 302
    edited March 2009

    Adrienne-my hot flashes have eased up some too, but it seems to go in cycles.  Been wondering if they correlate with what used to be my menstrual cycle.  I'll go for about 10 days with very few, then, WHAM, they come back full force.  (By the way--no Bristol tix-he had already sold them the next morn., which is okay because I found out today that it may be up to 2 weeks before I get my check.) 

    Found out today that my insurance has approved my BM, so all is set for Mar. 30.  Insurance is paying 100%, no recon for now, if ever.  I'm like Randie, not crazy about the retreads etc.  I figure I can be whatever size I want, whenever I want.   Randie--I hope that you are resting!

    Went fishing with DH today and had a wonderful day on the lake.  Caught 6 fish--limit on stripers is 2 per person, so I reeled in everyone's limit!  Posted a couple of pics on FB.  I will probably feel it tomorrow!

    Hugs to all!

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  • ellenoire
    ellenoire Member Posts: 674
    edited March 2009

    too tired to write. More tomorrow.

     xo N

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  • kerry_lamb
    kerry_lamb Member Posts: 778
    edited March 2009

    Hey girls! I've been having a bit of a crap run this week..I feel really run down, the UTI is almost under control but I'm not sleeping and the GET BACK!!! flashes come every half hour, I shit you not. If it's true about the relationship between SEs of Femara and recurrence, then I will never have a recurrence, and no-one within 120 miles will either. I'm over it. I've been scouring the boards to find some help and today had some Calm's Forte delivered in the post from a company called Trippypossum...sigh....I'm going to try it in about half an hour. I've also got an appointment with a GP tomorrow to talk anti-depressants..I have confidence in this this guy; his wife and I are just about BC twins. I've read a bit on the boards about effexor. Any advice, girls? And Noelle my hand is up for the juice.  Love y'all!

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  • Gracie713
    Gracie713 Member Posts: 302
    edited March 2009

    Mornig Ladies!

    Kerry-I hope that you feel better soon.  Those UTI's can be nasty buggers!

    I had thought that I'd wake up really sore this morning after my day on the lake, but I feel really good, just tired.  I do have a sore area on my stomach from holding the fishing rods, but not bad.  DD is on her way here to get a mess of fish for her crew!

    Happy Thursday!

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  • robink
    robink Member Posts: 336
    edited March 2009

    Gracie - Sounds like a lovely day of fishing.  Makes me hungry for some Rainbow Trout. DH and I go to some of the mountain streams about an hour from our place.  It is so relaxing to me. Last year I didn't have the strength and am looking forward to getting my 2009 fishing permit and heading out.

    Kerry - GoGoGoAway UTI Be Gone.  My onco tried me on Effexor for the hot flashes, the med made me nauseous. Accunpuncture made a big difference - the heat waves are almost gone!  I am still on Lexapro, the med he switched me to after failure on Effexor. 

    Today is our appt. with the CPA.  Used Turbo Tax for DD/DS but ours is a bit too complex for us to deal with.

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  • MsKarin
    MsKarin Member Posts: 647
    edited March 2009

    Robin - What dosage of Lexapro are you taking? When my onco first put me on it, 10 mg I was taking for anxiety/depression. When I no longer needed it for that (hot flashes only) we cut it back to 5 mg. I know it is working because sometimes on the weekends I forget to take it. Sure enough I remember I forgot when the hot flashes or night sweats remind me.

    Kerry my onco prefers the Lexapro over Effexor, it's less addictive.

    I remember going in for my pre-op appointment at the hospital one year ago this week. When the nurse asked me what meds I was taking I said none. She seemed surprised that at 54 I wasn't taking any meds or over the counter stuff. Different story this year. I take 5 pills a day. 1 Femara, 1/2 Lexapro, 2 Os-Cal 500 + D, and 1 B100 B-Complex. Maybe I should change that to 7-9 a day. Now that allergy season has started for me I've also been taking 2-4 Advil a day for sinus headaches. Drug Free no more.

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  • otter
    otter Member Posts: 6,099
    edited March 2009

    ALERT ALERT ALERT!

    EyesOTex posted on rock's "Laughter" thread.  I sent her a pm to find out how she's doing.

    otter 

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  • robink
    robink Member Posts: 336
    edited March 2009

    Karin - 20 mg Lexapro.  For the past 2 weeks I cut myself back to 10mg.  Realized the past few days I have been weepy, sad, brain scatter and now that I think back on it an mild increase in the heat waves..  The self weaning process was the only change to I went back to 20 mg today.  Think I'll try again when I can be busier outside and enjoying spring/summer.

    Otter - good news about EyesOTex.

    Gotta go get our taxes done.

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  • JulieC
    JulieC Member Posts: 324
    edited March 2009

    I'm back.  Services were nice, still seems surreal.  Was nice to see relatives that I haven't seen since last March at my grandma's funeral.  March is not turning into a good month for our family.  But it all depends on how you look at it.  A cousin's little boy turned 1 last year on the same day my grandma died.  I have my lumpa-outta-der-versary on Saturday so we are trying to see the positives.  My uncle was buried in a Scooby Doo tie and jammy pants (which couldn't be seen).  My aunt will go back to Maryland with one of her sons and his two little girls for a few weeks.  It's almost time for her spring break.  Thanks again for all of the warm thoughts sent out way.  I just find it amazing that she could comfort us at the awful time.

    It is nice to see new avatars Gracie and Angels.  So glad you had a great trip.

    Sue - I can't believe this month is almost over and you are going to be DONE.  That is so exciting.

    Karin - you are beautiful all the time - inside and out.

    Robin - can't wait to hear about the yoga DVD's.  Which ones did you order?

    Kerry - any improvement in the plumbing yet?

    Otter - I have my daffodils now - spring is here - well at least it will be official tomorrow.

    RanD - glad you are doing okay this week.  You are strong!

    Noelle - sounds like you need some rest - take it easy sweetie!

    Hi to everyone else.  Will be back tomorrow.

    Julie

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  • robink
    robink Member Posts: 336
    edited March 2009

    Hi Girls,

    Today I bought myself the pair of slippers that didn't get checked off on my presurgical check list last year. They are cummfy.

    RK

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