Anyone starting Chemo in August 07?

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  • wackyjackie
    wackyjackie Member Posts: 669
    edited February 2009

    De Ann,

    Of course my prayers are with your dear husband and son, who will watch a second person they love go through this horrible experience. 

    Hugs, Jackie

  • DGHoff
    DGHoff Member Posts: 624
    edited February 2009

    OK. I'm back now that I can think clearly again. Here is what I've been finding in my research lately in terms of causes. I've been reading a very provocative book called "Cancer is Not a Disease, It's a Survival Mechanism". It honestly makes more sense than anything I've ever read. The book says that cancer is a crisis of toxicity. Our bodies do not want to kill us. Our bodies are designed to filter out daily toxins and our immune cells quickly take care of the few rogue cells that happen all the time.  However, our world is far more toxic that it ever was. Our lower-quality food doesn't give us the nutrients we need, and our bodies have to work harder to digest it. Our air is polluted with all kinds of chemicals. We don't get enough sleep at the right times, which regulates our hormones in a big way, we get too many hormones from pesticides and animal products, and we don't get anywhere near enough sunshine to produce the hormones we need for cell regulation. Hormones are big in terms of cells dying at the right time. That's the problem with cancer cells. They don't die.   So, our liver and kidneys and lymph system are working like mad to detoxify us, but they get overwhelmed, and those toxins have to go somewhere.  Cancer is the bodies attempt to sequester those toxins someplace so that the main organs can function and not shut down completely. Fatty tissue, like breasts, are "safer" places for it to go as the body tries to keep the toxins away from our main organs. Of course, if the toxicity overload never stops, the cancer must keep going.

    It's all making my head spin a bit, and I'm probably not describing it all correctly, but it is making so much sense to me.

  • DGHoff
    DGHoff Member Posts: 624
    edited February 2009

    Jackie - thank you so much! That is just what I needed to hear! You're so right that by helping her I will feel better. It all comes full circle.

    Hugs. 

    DeAnn

  • katoMato
    katoMato Member Posts: 645
    edited February 2009

    Boy DeAnn, that book's theories sound pretty reasonable (in a somewhat crazy, yet basic way).

    And Nash, I've heard the line of thinking  your dh has before, but  I wonder about it.  Does that mean that before newer treatments one in 8 women DIED when they got breast cancer? I can believe that the women who got it died before surgery and chemo was the standard of care, but the numbers just don't make sense. One in 8 women died? That's a lot. (Well, wait. 100 % of everyone dies. But 50 years ago, did one in 8 women die of breast cancer? ) And that doesn't explain why in Asia the ratio is one in 20 like it was in the US some time ago. (1950's - 1970's) And it also doesn't explain why when those Asian women come to the States the rate goes up to what ours is. I believe the SURVIVAL rate is better because of earlier detection, but I'm suspecting we're developing it more frequently. Hormones in beef? Some environmental situation such as cleaning solutions used or our mothers used when we were growing up? Hormone Replacement Therapy? Degrading plastics? All those things are relatively recent, and seem to corrolate on the same time-line with the rise in diagnosees. (sp?) I don't know, it's darn spooky.  Maybe the rates were that high 50 and 70 years ago, they just didn't recognize it as BREAST cancer...because by the time they discovered it it had metasticized. So 1 in 8 women died of cancer back then?

    I'm rambling. It's midnight. I just finished cleaning up after a birthday party for my DH, his Brother, and his Mom (yes, all within 10 days of each other!) Fun. Exausting. overeating.

    Jackie, your new avatar is really cute. Is that your sister? (Have you already said it is and I missed it? sorry....I've been too busy eating...uh..planning this party-thing.)

  • nash
    nash Member Posts: 2,600
    edited February 2009

    DeAnn, Jackie is right--you are going to be such an enourmous support to your MIL. Life works in funny ways--maybe you were meant to go through the chemo first so you could know how to help her now. Keep us posted on how she does on Monday.

    And interesting theory from that book. Sounds plausible to me. I really do think there is more cancer--it's everywhere you turn, and in younger and younger people. It can't be that we're just more aware of it. I just don't see how.

    Kaye, sounds like the party was fun--sort of nice to get the celebration done in one swoop, too. 

    We're off today to see the last leg of the Tour de California bike race. Lance Armstrong is going to be pedaling by about ten minutes from our house. How cool is that? There's also a festival at the finish line, and there will be booth for cancer survivor support, so I will be interested to see what they're offering.

  • wackyjackie
    wackyjackie Member Posts: 669
    edited February 2009

    Hi Ladies,

    Yes.  That's my sister.  Nash, that is exciting!!! Have fun.

    DeAnn, that book sounds very interesting to me.  It makes a lot of sense.

    Hugs to all,

    Jackie

  • lilith
    lilith Member Posts: 543
    edited February 2009

    Girls, we are really a bit in the gloom huh...

    The book theory sounds interesting, and it probably holds a part of truth - I believe that if we look at all combinations, that is where truth is.

    Also, yes, better diagnostic tools are here - and Kaye, they are not only allowing an earlier DX, they are allowing a DX at all!!! how often in the past decades a woman would die of "feminine problems", without ever even having a DX of breast cancer, let alone a treatment? that would in part explain the lower numbers.

    Now for the regional geographical differences, I guess it is lifestyle in part, and genetics. All of us carriers (how lucky) of the BRCA genes know that it is more frequent in a specific cut of the population, namely in the Jewish ashkenazim heritage, and a bit in the sefarade as well. WHY? it appears it has to do with some inbreeding; during the w-e I was chatting with a friend of mine... his mom had the same BRCA 2 pos, and we were thinking - thanks heaven our moms were not allowed to marry us off (not that we ever wanted), imagine the genetic nightmare for eventual off-springs! so who knows, maybe my daughter will be spared. She stands a 50/50% chance.

    On to a happier note. I just spent a week skiing, it was absolutely delightful. Never seen that much snow and sun (or at least, not in the longest time), and I realized I can still ski. Good. Not really well, but I was never that good anyway - I just like to have fun.

    My mom has done her second chemo, and she seems a lot better. Tomorrow morning I have my last 3-months check up, and as long as everything will come up fine, next appointement will be in 6 months. AND - I am getting tattooos!!! :))

    Hugs to all.

  • nash
    nash Member Posts: 2,600
    edited February 2009

    Lilith, I'm glad to hear your mom did well with her 2nd chemo. Good luck with the doc appointment and tattoos (you wild woman). And with the BRCA2 and your dd, perhaps she will get lucky. I'm fairly sure (and so are my docs) that my dad was BRCA2 (Ashkenazi Jew, pancreatic cancer), but I'm not BRCA +. There's no way to ever know, I suppose, but there is a good chance that I was on the lucky side of the BRCA gene game.

    And the ski trip sounds like it was awesome!

  • nash
    nash Member Posts: 2,600
    edited February 2009

    BTW, totally random--how many of you are on Facebook? That's a fun way to keep in touch, too.

  • lilith
    lilith Member Posts: 543
    edited February 2009

    Nash, I am on FB... with my real name. I'll PM you. 

    I've seen my onc this morning, and discussed Zometa. I'll switch to Arimidex next month, and I am having a base-line bone densiometry, plus she says she is going to a BC conference next month where she hopes to get some of the study results; so based on all that, we will re-discuss Zometa. 

  • katoMato
    katoMato Member Posts: 645
    edited February 2009

    Anyone else see this? http://www.breastcancer.org/risk/new_research/20081217.jsp

    It's here on the board, in Research News, and it just came in within the last month. Interesting.

    I'm on FB also - see ya there, too!

  • wackyjackie
    wackyjackie Member Posts: 669
    edited February 2009

    Hi Girls,

    Went with my sister yesterday for MRI so they could place clip on surgical biopsy side for day of surgery (March 17th).  Then they took us up to get a mammo so the surgeon could have a visual of the clip and where to place wire on the day of surgery.  It took them 5, yes 5, hours to find the freaking clip that they just put in.  My poor sister really got inducted into the club of torture yesterday.  The nurse kept coming out and telling me that my sister was worried about me!!! Could you imagine?  I was so darn worried about her.  I crocheted enough squares for my afghan group to make a whole afghan.  Anyway, we then went straight to her neurologist and the good news was he doesn't think that breast cancer and treatments will interfere with her MS.  Hopefully, he's correct.

    Thanks for listening.

    Hugs, Jackie

    P.S.....I'm getting my fipples on March 10th.  I'm not thrilled, but I'm going to do it!!!!!

  • wackyjackie
    wackyjackie Member Posts: 669
    edited February 2009

    Oh.  And just so you girls laugh a little, I have to wear this bra with crazy cups sewn in to protect the nipple.  I might look like Madonna!!!!! I'm doing it now because the weather is cold and I'll be staying with my sister after her surgery so I could wear big shirts!!!! I don't know why but this fipple thing is freaking me out.  I feel like, is it necessary?  But I want to finish what I started.  Have any of you gotten nipples?  I think DeAnn did?  Maybe?  If anyone has please let me know if you're happy.  Lilith?  I can't remember.  Sorry

  • nash
    nash Member Posts: 2,600
    edited February 2009

    LOL, Jackie, on the Madonna bra. I think Lilith is getting fipples this week.

    Your poor sister! Five hours? Good heavens. I'm not too thrilled about the post-MRI mammo clip finding expedition that I'll be having, either, and now I'm wondering if I should tell my ride I'll just call her when I'm done. A girlfriend is driving me to the biopsy, and was going to wait there for me, but it appears there will be the possibility of having to set up camp. Yikes. At least you got a lot of crocheting done, but jeez! But good news from the neuro--that's encouraging.

  • wackyjackie
    wackyjackie Member Posts: 669
    edited February 2009

    Nash,

    I'm so stupidYell.  I should never have posted all that.  I forgot you're going soon.  What an idiot I am.  I realy do apologize.  I would have the friend wait because I think it's comforting to know that someone is there. She can possibly come in and see you.  I'm sure not everyone's is like that.  My sister really insisted on going alone and I insisted on going with her.  When she got out she said "Thank God you're here with me."  Remember, don't be a hero.  Let your friend stay.  And.... if she crochets she can make some 7X9 squaresSurprised LOL

    Hugs to you and a kick in the a-- to me!!!, Jackie

  • nash
    nash Member Posts: 2,600
    edited February 2009

    You don't need to apologize!!!!

    I'm actually glad that you posted about Ann's ordeal, b/c it didn't even occur to me that they might not be able to find the clip right off the bat. And it reinforces my decision not to drive myself (I'd driven to my initial biopsy, but I'd had my mom with me at the time, and I only had to go 10 minutes on the streets. This new place is 35 minutes on the freeway).

    So, see, it was actually helpful that you shared it, plus, if you can't tell us, who can you tell? Kiss

  • wackyjackie
    wackyjackie Member Posts: 669
    edited February 2009

    Thanks so much.  You always make me feel better!!  I pray yours is much easier.

    Hugs, Jackie

  • katoMato
    katoMato Member Posts: 645
    edited February 2009

    Oh Jackie - what a nightmare. And don't worry about that happening to Nash - It sounds pretty freaky to me. (It will be something else.) But Nash - please - don't go alone.

    Also, Jackie - I heartily believe it's worth it to "finish the task". You've come this far. Besides,  No nipples is like a face without eyes. Wink

  • DGHoff
    DGHoff Member Posts: 624
    edited February 2009

    Jackie - Go for the fipples! I did get the nipple reconstruction and it doesn't project as much as my real breast, but under clothes they look pretty much the same. It really does make you feel more complete somehow. Especially if you do the tattoo.  I will warn you that you might have a scab for a really long time. Mine lasted about two months!

  • lilith
    lilith Member Posts: 543
    edited February 2009

    Jackie, I am so sorry your sister had to go through such an ordeal at the very start... 5 hours of squishing and squashing - yuck. It makes one glad to have a mastectomy, only for not having to go through that ever again.

    About fipples: I got them last december, and yesterday the tattoo. The fipples op was really a walk in the park... and strangely enough, docs here don't ask you to wear "non-compression" cups. Of course they got smaller in the last 3 months, but they are - ahem - cute, if I say so myself. The tattoo was unpleasant (picture a doc sawing color into your skin), but nothing dramatic - and it does wonders in hiding the scars!!! :) for the time it will take to finish healing... we'll see, I'll keep you posted.

    I had today my bone densiometry, totally un-eventful, it is good to go to a hospital for something easy, not scary, totally painless, and to leave 20 mn after.

  • wackyjackie
    wackyjackie Member Posts: 669
    edited February 2009

    Thanks girls. 

    Kaye..you are too funny.  I am taking all your advice and moving forward. 

    I spoke to my sister last night and she went to work yesterday and she's fine.  A little sore but she's tough...like you have to be, right?

    Okay, I'm off the weight watchers today to get weighed.  I hate digital scales.  LOL

    Hugs, Jackie

  • katoMato
    katoMato Member Posts: 645
    edited February 2009

    AAARRRRGGHHHH! I'd rather have them look for a lost clip than put me on a DIGITAL SCALE! AAAAAAARRRRrrrrrrrggggghhhhh........ (that's me. I'm the one running down the hallway.)

  • nash
    nash Member Posts: 2,600
    edited February 2009

    Come back, Kaye, LOL!.

    Jackie, I had lunch with my girlfriend who is taking me to the biopsy, and guess what--she crochets. I told her of your five hour marathon afghan production. She's all ready, just in case she has to hunker down, LOL. Anyhow, I'm so glad your sis is doing fine after her ordeal. 

  • chemomom
    chemomom Member Posts: 171
    edited February 2009

    Hey girls!  long time no see.  Or post, or whatever.  I haven't had a lot of free time lately.  Still working way too much.  And nothing much to report on this front.  But i gotta say, there is still SOOOOOO much cancer stuff going on with us!  Our in-laws, sisters, parents.  WTH?  I often find myself wondering what combination of things it is that is causing all this cancer.  Microwaves?  Plastic?  The water?  What is it?  It's scary, really.  I suppose we'll never really know.  I keep having to remind myseld that dx was almost 2 years ago.  Not last year.  It's so far away but still it all mixes together.  Weird.

  • DGHoff
    DGHoff Member Posts: 624
    edited February 2009

    Hi Angie! So glad to hear from you! I just found you on Facebook via your email so I friended you!I know what you mean about the time. I keep thinking it was just last year, but it was actually 2007. So strange.

    Hey all, my MIL is tolerating her chemo really well so far. She's tired, but she's getting chemo and rads all at one time so that's enough to make anybody pooped. They did a brain MRI and found 3 very small lesions so she is now getting radiation to her head too. Good grief. 

    Hope everyone is good!

    DeAnn

  • nash
    nash Member Posts: 2,600
    edited February 2009

    Hey, Angie! I just sent you a FB friend request, as DeAnn alerted me that you're over there. Smile Whoo hoo! It's so much fun having my bc.org friends over on FB--I'm loving it!

    But DeAnn, I am SO sorry to hear of your MIL's brain mets. That sucks, sucks, sucks. Are they giving her whole brain radiation or can the lesions be gamma knifed out? But I'm glad to hear she's tolerating the chemo/rads well.

  • katoMato
    katoMato Member Posts: 645
    edited February 2009

    ANGIE! I miss you when you disappear like that! I'm glad to hear everything is ok. I know what you mean about the time lapse, yet everything mixing together...it's so strange, I keep thinking it was "last year" but it wasn't...it was the year BEFORE last. Funny, isn't it? I guess time just keeps tickin' away. (It's a good thing I remain the same age. Otherwise i'd be getting old.)

     DeAnn - my heart goes out to your MIL. This stuff is just awful. - I'm glad she's tolerating things well. Radiation seemed a breeze after chemo, but as time went on, I realize it had it's price also. I still wonder if some things I experience today are from the rads back then. I guess it doesn't really matter, though...they're minor, and they ("it?") worked. She's sure got alot on her plate, that's for sure. Are you guys confident in her medical team?

    On a happy note, it's Friday. Aaaaahhhhh. Have a good day, ladies.

  • nash
    nash Member Posts: 2,600
    edited February 2009

    I keep thinking chemo and all that was last year, too. Glad it's not just me.

    Well, my biopsy has been moved from 3/16 to 3/5. Remember how it has to be around my period? Well, I've always been like clockwork with my cycle, except for this month. For some reason I randomly had a 24 day cycle, which hasn't happened since I was 13 or something like that. But really, it's good, b/c I can get the stupid thing over with sooner.

  • katoMato
    katoMato Member Posts: 645
    edited February 2009

    How Convenient!! It's odd - I'd never heard about the MRI having anything to do with a period - what is going on that is different at that time and that would affect imaging? It's probably common knowledge - but being post-meno at dx, no one ever discussed it with me.

  • nash
    nash Member Posts: 2,600
    edited February 2009

    Hormones. It's all about the hormones. Apparently false positives are more common between ovulation and menstration, so they try to do it early in the cycle. Some facilites say between days 5 and 15. My facility is uber-anal and says between days 7 and 10. Which makes it a bit of a trick for scheduling, but I was lucky to get an appointment for next week. I had visions of having to wait until April.

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