Suzanne Somors hormone replacement???

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  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited February 2009
  • anondenet
    anondenet Member Posts: 715
    edited February 2009

    Vivre,

    That's interesting that the doc mentiond bioidentical testosterone. That was one of the original therapies for breast cancer. You seem to have lucked into getting some knowledgable contacts - the pharmacy and the doctor- quite fast. It often takes much longer. Maybe some communities are more progressive than others. 

    Maybe it is because the information about bioidenticals is finally getting out there so things are moving.

    Keep up the good work! We love hearing how you are putting your research mission together.

    Anom

  • desdemona222b
    desdemona222b Member Posts: 776
    edited February 2009

    Vivre's "doctor" is a chiropractor with a Bachelor's in biology who is not qualified to treat her with HRT.  My guess is that Dr. Nick is  going to charge her out the wazoo for something that has nothing to do with hormones. 

  • desdemona222b
    desdemona222b Member Posts: 776
    edited February 2009

    Vivre,  Dr. Nick is a chiropractor, not an MD.  What are the credentials of this doctor who is going to give you HRT?

  • anondenet
    anondenet Member Posts: 715
    edited February 2009

    Barry and Vivre,

    There was some research done at Mayo clinic about some fibrocystic breast disease (atypia) turning into breast cancer a third of the time over ten years. It's not clear what the exact hormonal connection is. But if you google iodine and fibrocystic breast disease, you will find info on how iodine can arrest fibrocystic disease so it doesn't progress to breast cancer.

    In Suzanne Somers' book several of the doctors she interviewed recommended iodine. Dr. Jonathan Wright said it was the most important thing she could do to prevent recurrence. And Somers' oncologist put her on Iodoral iodine along with the bioidenticals.  I can't remember the iodine dosage but it's in the book.

    Anom

  • desdemona222b
    desdemona222b Member Posts: 776
    edited February 2009

    I thought we were only allowed to talk about hormone issues now.  Guess I was wrong. 

    Okay, since vivre is relying on Dr. Nick, the chiropractor, to do her breast cancer screenings with thermography, thought this article might be of some interest:

     http://health.yahoo.com/experts/breastcancer/1489/is-thermography-replacing-mammography/

  • vivre
    vivre Member Posts: 2,167
    edited February 2009

    Yeah, anon when she mentioned the testosterone to me, she said that it was shown to be preventive in a study in the 1930's. Of course this made me livid, that something protective was not being approved. She then talked about the funding of the FDA being done by drug companies just as we have discussed here. I can't wait to meet with her so I can learn more. I have an appt. for next week. I am so happy to have found an MD who thinks out side of the box. She was an ob gyn for over 20 years and now specializes in treating women and men with hormone treatment. I feel like I hit the jackpot today.

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited February 2009

    anomdenet, I asked about fibrocystic breast tissue because I wonder if estrogen is causing the changes.

     I'm going to look up Dr. Jonathan Wright, and a few other suggested sites. Thanks

     I just read from Green Willow Tree..very interesting!

    .http://www.greenwillowtree.com/Page.bok?file=goodnews.html

  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited February 2009

    Vivre,

    I'm sure you'll have a thousand questions for her.  I'm interested in everything you learn, are you bringing a tape recorder?

  • Deirdre1
    Deirdre1 Member Posts: 1,461
    edited February 2009

    Vivre:  Wow that was fast - good for you!  I hope the Doc can be of some help and I hope you will report back here because SO many women don't have access to an "open" doctor about this subject!!!  Best of luck - Looking forward to all the new info!

  • fairy49
    fairy49 Member Posts: 1,245
    edited February 2009

    I had fibrocystic disease for 10+ years prior to being dx'd with BC, I am 100%ER&PR+, no one ever suggested it could turn into BC, I never had my hormone levels tested, no one bothered to do that as its not standard protocol, just mammograms and ultrasounds every 6 months!

    Today I found 3 compounding pharmacies here in Huntington Beach and Newport Beach CA, I am in the process of making appointments!

    Lorraine

  • charis
    charis Member Posts: 37
    edited February 2009

    Wow .. putting testosterone in? hmm will have to go to that website.

    Thank you.

  • wahine
    wahine Member Posts: 8,231
    edited February 2009

    Yes vivre, I am also anxious to hear what you learn from your doc---how wonderful you found her! I was on testerone for years, as it was in the estratest I was taking, but I don't know what amount was involved. I've been off estratest almost a year (since DCIS dx), but would be glad to take testerone again, just unsure what dose would be good. This thread has had some good information, and I also want to read Dr. Susan Love's Hormone book, and see what she recommends. Thanks!!!

  • Yazmin
    Yazmin Member Posts: 840
    edited February 2009

    LJ13 wrote:

    Those are interesting statistics Yazmin. However they would only be applicable when one does surgery first.

    Indeed, this is yet another aspect of the question I had not been carefully considering. What happens in my case is that I am probably biased against any kind of chemotherapy/radiation, because my first oncologist had chosen to not inform me of the fact that it had just become official that my type of tumor doesn't benefit from chemo at all. Instead, she went on and on with aggressive chemotherapy WITHOUT giving me my Onco-DX test result (which placed me in the low-recurrence group), until I sought a second opinion after 5 rounds of chemotherapy. I then fired her unceremoniously (she made no attempts to defend her decision, beyond saying that she doesn't believe this new trend [i.e, no benefit from chemo for ER+] is correct!).

    I can see how statistics could be different if neoadjuvant chemo is applied first, although I remain convinced that we have to aim at going past this 100-some years old chemotherapy. I feel we should be much more advanced than chemo/radiation after billions and billions of dollars have been poured into research. I am sure that a more open mind would help research make bigger strides.

    As for the statistical aspect, I have mentioned elsewhere that I work for an organization which business it is to establish development and growth statistics to monitor economics in all countries in the world. That's why I see on a daily basis how easy it is to present statistics in a way that is favorable to whatever political agenda a leader might have.

    Therefore, when Desdemona says that radiation reduces recurrence by 16 percent, while my color-coded chart says that the total benefit from treatments added to surgery is in the order of 5 percent, I suspect that there might be no disagreement at all, here: the only difference could very well be in HOW the calculations where done (and I am saying COULD, because I am in no way an expert in medical statistics).

  • StaceyR
    StaceyR Member Posts: 136
    edited February 2009

    [continuing off-topic of hormones for a sec] 

    Not sure if you've seen this site before, it's like Adjuvantonline to calculate recurrence and mortality rates based on different treatments.

  • Yazmin
    Yazmin Member Posts: 840
    edited February 2009

    And Dear Ladies:

    What pills will they come up with, next?

    .....Hope I am not digressing too, too much from this interesting discussion, here. If I am, please forgive me, I saw this other thread, and I just could not resist.

    Here it is, on how "Drugs offer Promise of Fitness without Effort"

     http://community.breastcancer.org/forum/7/topic/718856?page=1#idx_2

    This sounds good to me!! If, indeed, it is going to be possible to trick one's body into thinking that you've been working out a storm........................without even leaving the couch..... [so now we could also reduce our risk while watching a future Oprah-show-on-hormones, instead of sweating and sweating in the gym???]      :=)

    Someone, please let me know immediately when they also come up with a drug to trick one's body into feeling like you've been having absolutely stormy sex, but without the inconvenience of enduring some stupid man the rest of the time, and despite libido-killing cancer treatments.

    Although I am completely opposed to the idea of "little-pills-for-this, little-pills-for-that", I will most definitely start lining up at 3:00AM to get that one. Smile

  • vivre
    vivre Member Posts: 2,167
    edited February 2009

    Yaz, you are so funny! I do not need the exercise pill, because I love to exercise, but as for the other one, count me in! LOL

  • Yazmin
    Yazmin Member Posts: 840
    edited February 2009

    I hear you, vivre.

    And on a more serious note, I have decided to make an appointment to go listen to a Doc who is interested in bioidentical hormones. Perhaps discussing face to face will help me make a decision, along with this thread here.

  • anondenet
    anondenet Member Posts: 715
    edited February 2009

    Barry,

    In Somers' book, Dr. Wright talks about how they got fibrocystic breast patients in Washington State and applied iodine to the cervix. For some reason, the iodine shot directly to the painful breasts and eliminated the pain within an hour or two. I seem to recall in some of the original research Dr. Myers (1930s?) this method was used in beagles with fibrocystic breasts. Dr. Wright uses iodine by mouth now but it was enlightening to see how the research evolved.

    Another doctor, Dr. Eskin, who has been researching this for 50 years, says iodine down-regulates the estrogen receptors in the breast. This may account for why the pain diminishes.

    <

  • AllieM22
    AllieM22 Member Posts: 464
    edited February 2009

    Just saw this and thought I would post it...article on results of HRT.

    http://www.breastcancer.org/tips/menopausal/new_research/20090202b.jsp 

  • desdemona222b
    desdemona222b Member Posts: 776
    edited February 2009

    Newsweek had the termerity to publish an article criticle of Oprah's show last week - predictably enough, they have been accused of being in the hip pocket of the pharmaceutical companies.  Thought this was a very interesting comment in their response to that criticism - it confirms that any hormone not produced by your body is "synthetic", including bio-identicals:

    Secondly, there seems to be a lot of confusion about what constitutes a "natural" hormone. Natural hormones are those produced by the human body. Period. Any other type of hormone product, including those used in hormone creams, sprays, rings, pills and patches, are synthesized from plants or animal products. That means they are all synthetics, even if they are chemically identical to those produced by the human body.

    Those who insist that all hormones made by drug companies are "synthetics" and those produced by compounding pharmacies are "natural" are creating a false distinction. The same can be said about presumed risk. Since all these products have similar effects on the body, the presumption by the scientific community is that they likely all have the same risks, unless proof emerges to the contrary. So far, we don't have that proof.

    http://blog.newsweek.com/blogs/readback/archive/2009/02/12/challenging-oprah-on-hormone-therapy.aspx

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    That's interesting info Desdemona and Allie. Thanks for posting it.

  • sarabhealed
    sarabhealed Member Posts: 179
    edited February 2009

    I am forwarding below another perspctive I just came across--I agree it's too bad that there can't be consistency about language--bio-identicals certainly ARE synthetic. But they are structurally identical to what we produce in our bodies and are NOT the same as what has been altered and patented by drug companies. That is why BHRT practitioners dispute that they have the same impact on our bodies. I met a woman last night that had multiple estrogen positive tumors removed in the 80's--she was treated in Europe at the time and has been balancing her hormones with biodentical's for over 20 years with no problems...she thinks American's are totally backward on this and has found a very respected MD here that is monitoring her care. I am not recommending them to anyone as I remain conflicted...But, the medical community is not at all unanimous in their villification of this. My oncologist said he has patients that has benefited from progesterone.  

    RE:  Transdermal Hormones Yield CV Benefits in Menopause
                     BRUCE JANCIN
                     Family Practice News 
                     1January 2009 (Vol. 39, Issue 1, Page
    23     COMMENTARY ON TRANSDERMAL HORMONES YIELD CV BENEFITS IN MENOPAUSE                     http://www.drbrownstein.com/                     Bioidentical Hormones Safer Than Synthetic Hormones               By: Dr. David Brownstein   "The FDA wants to ban bioidentical hormones prepared by compounding pharmacists.  What is their rationale?  The FDA claims that bioidentical hormones are not regulated by the FDA.    This mess all started when Wyeth Pharmaceuticals, the manufacturer of synthetic hormones filed a citizen's petition with the FDA to eliminate compounded, bioidentical, natural hormones.  Wyeth was feeling threatened after the Women's Health Initiative was released which showed that their synthetic hormones (Prempro) was responsible for causing a  significantly increased risk of breast cancer, stroke, and heart attack in those women who took the drug as compared to women who took a placebo.  Wyeth was marketing a flawed product and became angry when their market share declined. 
    So, what do you do when your market share declines?  If you are Big Pharma, you try to get rid of safe and effective natural substances that truly work.

    My friend and researcher, Kenna Stephenson, just released a study which found that the use of compounded transdermal hormone therapy for treating menopausal symptoms is not only effective for treating menopausal symptoms it also improved cardiovascular risk factors as well as inflammatory and blood-clotting biomarkers  (FP News.  1.1.09).

    Folks, this is huge.  Synthetic hormones may relieve the symptoms of menopause, but, most of their benefits stops right there.  Synthetic hormones have been shown to increase the risk of heart attacks, strokes and cancer.  Bioidentical, natural hormones have never been shown to increase the risk of cancer, strokes or heart attacks.

    Dr. Stephenson's study showed women who took bioidentical, natural hormones had lowered: blood pressure, c-reactive protein, triglycerides, fasting blood glucose, fibrinogen (a clotting marker), depression scores, anxiety scores, and  pain ratings.  I guarantee you that if a drug was shown to have this many positive factors, Dr. Stephenson's study would be on the front page of every newspaper in the country.   Did you see this study on the front page of any newspaper?  I didn't.

    However, don't forget about the FDA.  Remember, they are there to protect us from unsafe drugs.  What do they want to do?  Ban bioidentical, natural hormones as prepared by a compounding pharmacist even though are no studies that show bioidentical, natural hormones have anywhere near the deadly, adverse effects that FDA-approved synthetic hormones have.   What can we do?  We can make our voice heard!  Remember, the FDA is supposed to work for US, the citizens of this country, not Big Pharma.  I am a founding member of a group of professionals and lay people designed to educate and inform the media and the public the truth about bioidentical, natural hormones. Please join us at:  http://www.bioidenticalhormoneinitiative.com/ to make your voice heard.  We have power in numbers.

    Finally, let's get the FDA to do its job.  It is supposed to ensure that the prescription medications we take are safe and effective.  Anyone reading the newspapers over the past few years can see that the FDA has miserably failed in its job.  Make your views heard to your senators and representatives."

  • vivre
    vivre Member Posts: 2,167
    edited February 2009

    Sara-Thanks for posting that article. There are many others that back this us. My new doctor, who was an ob/gyn until she decided to specialize in women's issues with aging said the same thing-doctors are so confused by the studies because they continue to think that HRT and BHRT are the same thing. She is very involved in speaking at seminars with other doctors. She says more and more doctors are coming around as they learn the true facts. I can't wait to meet with her next, show her my blood tests, and hear what she has to say.  It was great to hear that your European friend has had great success with BHRT. My new doctor says she does a not of speaking in europe because they are so much more open to this because they do not have an FDA that is funded by drug companies.

  • anondenet
    anondenet Member Posts: 715
    edited February 2009

    Here is the Dr. Kenna Stephenson Dr. Brownstein refers to in his article.

    http://www.youtube.com/watch?v=zBkE_J7BB_U

  • desdemona222b
    desdemona222b Member Posts: 776
    edited February 2009

    Wow - I'd love to see a reliable reference citation that backs up the claim that the FDA, a government agency, is funded by drug companies.  Amazing.

  • desdemona222b
    desdemona222b Member Posts: 776
    edited February 2009
    That youtube video is on compounded topical hormone therapy.  I take that to mean hormonal creams that are applied topically and do not go systemic..
  • Yazmin
    Yazmin Member Posts: 840
    edited February 2009

    Talking about TOPICAL hormonal therapy (using bioidential hormones or synthetic hormones). Does anybody know whether that's effective or safer; or both?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    I thought FDA was funded by us. The taxpayers. Pretty sure you'll see them in the Federal budget.

    If there is evidence of FDA being paid off by drug companies, someone should forward the evidence to the GAO. They would be quite interested. Or do the drug companies fund the GAO too?

    Otherwise, I'd file that one under the same heading as Roswell and Bigfoot.

  • desdemona222b
    desdemona222b Member Posts: 776
    edited February 2009

    This link is the website of one of the founders of http://www.bioidenticalhormoneinitiative.com/.  Notice she has a myriad of products she is selling that are certainly not bio-identical by any means.

    What's really interesting is the fact that on her blog, they published the Web MD article I cited the other day that points out the pitfalls of so-called bio-identicals.  Guess they must not have read it?  http://www.drerika.com/blog

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