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ikat
ikat Member Posts: 128

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  • ikat
    ikat Member Posts: 128
    edited February 2009

    I received my results from my biospy on January 30, 2009. I had a mammogram with ultra sound a week prior. (pretty much I think I knew then) The Drs. want a MRI, and I just want the cancer gone. I just really want the waiting to be over, every little pain I feel I am afraid it might be cancer someplace else in my body.

    I'm not sleeping and I really need some sleep. I tried reading before I go to bed, and it's not working. Drinking something warm.  What ends up happening is I sleep for two hours then wake up for the rest of the night. Then go to work exhausted. I don't want to be totally run down when I go in for surgery. Any suggestions would be greatly appreciated.

     kat

  • Estepp
    Estepp Member Posts: 6,416
    edited February 2009

    Kat, I am so sorry you are here. No one wants to be where we are. You have found a fantastic site to help you through it all. The women here are UNBELIEVABLE! The will help you with anything you ask!

    I was the same way with sleep. Most of us are. The waiting the is WORST! I have been through chemo.. surgery... expanders... fills... and still have rad to go. This is a LONG journey.. but it is doable. I can tell you, I feel 90% better today...7 months later.. and I am not done with treatment or final implants... all that will be the end of 09...

    I had NEVER taken pills un till this DX. I cold not sleep and during the day.. I would cry or be sooooo anxiety ridden. For the first month.. I was given Ativan to take to help me relax. This really did help me. I would take 1 in the day.. to help me think clearly.. and 1 at night with an OTC sleeping pill. This really worked for me. I just did this for about a month or two. I honestly am not sure how long... but I did not care how long either. I knew I need some help to get through the beginning part. Ask your doctor for some help if you need it.. do NOT try to be tough. You already are tough just by having to do all this.

    We are here for you.. stick with the sisters here as you go through this.. they are awesome and soooooooooooo willing to be your friend!

    Your friend,

    Laura

    Gods Love

  • samiam40
    samiam40 Member Posts: 416
    edited February 2009

    I am also sorry you have to join this crappy club that no one wants to belong to. 

    I would also recommend asking your doctor for an anti-anxiety scrip just to get you through the difficult days of waiting and worrying.  I was never a pill taker--just vitamins and the occasional tylenol.  However, I must say, taking the occasional Xanax has been a lifesaver.  It really helped me sleep and banish the horrible "what ifs" that tend to creep up late at night when you are lying awake worrying.

    You will get through this, and we will all be here to support you.

    Peace, love & healing.

  • ikat
    ikat Member Posts: 128
    edited February 2009

    Thank you ladies, had not thought of taking anything,(I don't even take asprin) but I am seeing my dr on tuesday for pre op testing. so I will ask her.

    kat 

  • Valjean
    Valjean Member Posts: 1,898
    edited February 2009

    Dear Kat,

    Try to have someone go with you to all your doctor appointments. Believe me, you will not hear everything the doctors tell you; someone with you will & can take notes for you. I can remember seeing my surgeon standing in front of me, but I can only tell you half or less of what he said. I do remember me telling him I wanted surgery right away & crying....

    Ask anything of the gals here at any time; there will ALWAYS be someone here to help you.

    Sending you a hug,

    Val 

  • Jellydonut
    Jellydonut Member Posts: 1,043
    edited February 2009

    Ikat,

    A few suggestions:

    Try your best to engage in something pleasurable - a hobby; shopping spree Smile; out to dinner with friends; watching comedies; etc.

    Take one day at a time.  Surgery will be here before you know it so try your best to stay calm.

    For some, reading everything about BC helps but for others it makes matter worse.  Do what helps you!

    What I've learned to do is only believe what benefits me! 

    You surely can ask the doc for help with sleeping.

    Should you need us, we're here to help you in any way we can.

    So sorry you're one of way too many to join us!

    Sending you a big hug and lots of good wishes,

    Jelly

  • Renia
    Renia Member Posts: 15
    edited February 2009

    God, your story sounds just like what I went through when my mom was diagnosed until we got the test and the plan of fight in place. I actually think that somebody should write a book ( if it has not been written yet) on the emotional and mental process that takes place when you are diagnosed ( partially, as the full diagnosis comes in steps, which brings me to my next argument)... What you are going through is what I believe all in this club went through in the beginning. You can't sleep, wake up in the middle of the night thinking worst case scenarios, etc. I was close to getting xanax or prescription sleep aids from my doc, as I thought I was not going to be able to function longer like this. Then you hook up with this crowd on this website, and they have advice, information, hopes and hugs for you, as some of them " graduated" from the step you are still on.They will comfort you in many ways.

     I can not say it loud enough, you have to try to take one step at a time, it all passes, you get results back, and once you know the plan of action, you feel different, you are active, you are doing something to get this disease out of your body and mind.But the full diagnosis does not come right away after one test. Give yourself and your doctor a time to do what is necessary to get the full picture, before you do anything. I was petrified that we waited too long, asking what is reasonable time to wait from one thing to another is helpful. 

    The reason why you can not sleep is because you are probably scared, lonely in the diagnosis( I felt I was the only one affected by this disease, nobody else in the world including my husband could share the anxiety), and overwhelmed by it.

    I do not know what will work for you, but what worked for me, was support from others, (that is why this site is amazing), my friends, my family, refusing to think worst case scenarios, refusing to think too far ahead, etc. For example now, we are in a stage of waiting for the surgery, I do not read, think, or talk about chemo or radiation. Once we are done with surgery we will move to that. And I have planned our vacations once this is over ( something great to look forward).

    I hope this helps. 

    Renia

  • lovinmomma
    lovinmomma Member Posts: 1,879
    edited February 2009

    I agree with what the others have said.  take someone with you. Write down questions you might have and ask for something to help you. I would even call in today and ask for something.  It is hard waiting for answers.

  • ikat
    ikat Member Posts: 128
    edited February 2009

    I wish to thank all of you for your thoughts. I really not sure that I am waking up because of the cancer, but rather from pain.  I will speak to my Dr. on tuesday, and yes I have been bringing my husband with me. My girl friend is a nurse and she offered to come with me. She is great, alway worked in intensive care/critical care. So I might take her up on her offer, so that I can give my husband a break.

    I found a cat picture on the cheeseburger site....I really can't believe they dyed that cat pink, and I like his tag line. (I hope that who ever took it dosen't mind me using it...but I can fight cancer too! Hope you all enjoy it. 

  • ikat
    ikat Member Posts: 128
    edited February 2009

    Another question, So I had my MRI it says the tumor is over 2 times the size that I had been told from the mammogram. from.9 now to 1.9. They said that they would still do the lumpectmy  with reconstruction = breast reduction (I am bearly a B) so i was not happy with this. the reason for the reconstruction/reduction is the location of the tumor.10 o'clock on the left breast. And I will have rad. I am currently sick with a cold or the flue (had the flue shot) I still haven't done my cbc because of being sick.  my surgery is scheduled for mar 9 and I really want to get this over with I was given the DX in January. How long will it take to get the results of the cbc, I really don't want to reschedule.

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