I have to share my good news TN ladies!

FloridaLady
FloridaLady Member Posts: 2,155
edited June 2014 in Triple-Negative Breast Cancer
I got my Pet results yesterday.  I ONLY have one small place under my scar on the right side.  This is from open wounds and total coverage of my chest wall and cancer under my back muscles, small nodes near liver and lung.  Yes! God has been so good to me.  I will do one more round of chemo.  (three weeks for me because I'm doing low dose) My Tumor markers is 52 and we want it below 40.

This low dose stuff is great.  I this will be my fifth month and I still have my hair and I actual feel better now that I did to months ago.  ( I went back to my diet and supplements that helped me with fatigue.)

I hope you all are bless with this chemo.  I just hope it holds me for a while. I will be stopping soon do to neuropathy that I got from previous chemos.  (This is number 9 for me.) I will go back on Ixempra in a few months.

Flalady

PS Early stage ladies good news is coming.  My oncologist told me that they will start trials for early stage bc and Ixempra in the next few month.  Some of us did great with this drug.  They hope to soon drop Adrain. and replace it with Ixempra as first line of treatment.(this would not be the early trials)  But we still have ladies looking for the right chemo.  I pray for VickiG and Pinehouse and all the other that are looking for there chemo that will knock this disease on it butt.

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Comments

  • Frenchie
    Frenchie Member Posts: 37
    edited February 2009

    Flalady, that's wonderful news.  Really really pleased for you.

    Could I ask what Adrain and lxempra are?

    James Smile

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  • tibet
    tibet Member Posts: 545
    edited February 2009

    Floridalady

    That's good news! Congrates.

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  • bourscheid
    bourscheid Member Posts: 718
    edited February 2009

    Hooray!  I am so happy for you Flalady!  God is still in the miracle business!

     Hugs and blessings!

    Lori

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  • carolynf
    carolynf Member Posts: 262
    edited February 2009

    Here's to you for never giving up!  You are an inspiration. Congrats on the news. I hope your neuropathy goes away next!

    Carolyn

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  • cmb35
    cmb35 Member Posts: 1,106
    edited February 2009

    I'm thrilled for you!

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  • everyminute
    everyminute Member Posts: 1,805
    edited February 2009

    That is wonderful! 

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited February 2009

    Frenchie,

    Adriamycin is a tough chemo that most ladies get for their first line of treatment. Ixempra is a newer chemo that was designed for bc from what I understand.  Research is showing that it works really good for TN ladies.  So is kind of the first drug that is geared to us.  I think the trials will be starting off that you will still have to do Adriam. first before surgery and do Ixempra as the last part of your treatment.  But I'm not sure.

    Flalady

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  • cmb35
    cmb35 Member Posts: 1,106
    edited February 2009

    Yes, adriamycin is the one we call "the red devil", but I just tried to look at it as it was killing those cancer cells (along with all those nasty side effects!)

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited February 2009

    Well...Ixempra in full dose once a month is really bad per the ladies on the Ixempra thread under mets section.  My oncologist really feels they will try low dose weekly in the trial.  I hope so much this is true.  Being slammed with Adriam. right after dx is not a good way to start your cancer journey.  I did not ask if you will still get any other chemo's on this trial.  Must of us that do Ixempra only do Xeloda with it, because the drug is so bad for so many.

    Flalady

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  • VickiG
    VickiG Member Posts: 536
    edited February 2009

    So thrilled for you FlaLady ~ you so deserve this!!!!!  I actually did not have much trouble w/ Ixempra, altho the Xeloda gave me major issues w/ hands/feet... I know SEs are not supposed to correlate to the efficacy, but looking back I can honestly say that the ones I had SEs w/ I had response w/, and the ones where "gee, it doesn't even seem like I'm on chemo" didn't seem to do anything.  But my good news is that I swear my skin mets seem to be lightening ~ just in the past few days.  I have upped my Turmeric & I wonder how much of it is the Gemzar & how much is the Turmeric... but I'm sticking /w the Turmeric!!!!!!

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited February 2009

    Great news for you VickiG! I did first part of my treatment with Gemzar,Avastin & Carbo and was not really getting a response and than started hitting the Turmeric and felt it started working??? (for other who may not know Turmeric is a herb) I did see were their back to researching this again to add into are chemos.  I had to back off my Xeloda because my feet started blistering also. This dry heat is not helping it.  I'm now only doing four pills a day for one week and off the next week.

    I also blow my doctor away that after 11 months of chemo this round...my blood work was completely normal!  I was even shocked. Liked I motioned before I started blending my juices and taking my supplements again.  I can't believe it... but I really don't feel as if I'm in chemo. 

    Flalady

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  • g94u67
    g94u67 Member Posts: 436
    edited February 2009

    Flalady & Vicky G:

     I'm so happy about your positive news and results! Awesome. God is great!

    You are such an inspiration Flalady to all of us TN's.  Thanks for the incredible medical updates.

    God Bless,

    Jeannine

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  • Analemma
    Analemma Member Posts: 1,622
    edited February 2009

    FlaLady, that is outstanding!  I hope you get many months of NED or stable and a long chemo break.

    I don't know what chemo you have been on.

    Brenda

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  • kelty
    kelty Member Posts: 80
    edited February 2009

    That's wonderful news!  I'm so happy for you! You're truly inspiration for us TN girls!

    I love Indian and Thai food, there's always tumeric in the spice, is that what you refer to?  That was added to your chemo?

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  • jeanne46
    jeanne46 Member Posts: 1,941
    edited February 2009

    Great news!  Am so glad to hear there's an easier protocol for Ixempra.  Thanks for keeping us updated!!

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  • VickiG
    VickiG Member Posts: 536
    edited February 2009

    Kelty, yes it's the same.  I take supplements daily ~ when I take it 2x/day I notice that my skin mets seem to be improving... could be completely coincidental, but I'll take what I can get!!!

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  • PineHouse
    PineHouse Member Posts: 416
    edited February 2009

    FlaLady,

    Hmmm, can you smell that fresh air...the kind that you breath when you're not on chemo...

    Who knows, maybe you'll never have to go back on the drug again!

    Hugs

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  • Traci-----TripNeg
    Traci-----TripNeg Member Posts: 2,298
    edited February 2009

    Woo Hoo!!!!!!!!!!!!!!!

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