I have to share my good news TN ladies!

FloridaLady

I got my Pet results yesterday.  I ONLY have one small place under my scar on the right side.  This is from open wounds and total coverage of my chest wall and cancer under my back muscles, small nodes near liver and lung.  Yes! God has been so good to me.  I will do one more round of chemo.  (three weeks for me because I'm doing low dose) My Tumor markers is 52 and we want it below 40.

This low dose stuff is great.  I this will be my fifth month and I still have my hair and I actual feel better now that I did to months ago.  ( I went back to my diet and supplements that helped me with fatigue.)

I hope you all are bless with this chemo.  I just hope it holds me for a while. I will be stopping soon do to neuropathy that I got from previous chemos.  (This is number 9 for me.) I will go back on Ixempra in a few months.

Flalady

PS Early stage ladies good news is coming.  My oncologist told me that they will start trials for early stage bc and Ixempra in the next few month.  Some of us did great with this drug.  They hope to soon drop Adrain. and replace it with Ixempra as first line of treatment.(this would not be the early trials)  But we still have ladies looking for the right chemo.  I pray for VickiG and Pinehouse and all the other that are looking for there chemo that will knock this disease on it butt.

Frenchie

Flalady, that's wonderful news.  Really really pleased for you.

Could I ask what Adrain and lxempra are?

James

tibet

Floridalady

That's good news! Congrates.

bourscheid

Hooray!  I am so happy for you Flalady!  God is still in the miracle business!

 Hugs and blessings!

Lori

carolynf

Here's to you for never giving up!  You are an inspiration. Congrats on the news. I hope your neuropathy goes away next!

Carolyn

cmb35

I'm thrilled for you!

everyminute

That is wonderful! 

FloridaLady

Frenchie,

Adriamycin is a tough chemo that most ladies get for their first line of treatment. Ixempra is a newer chemo that was designed for bc from what I understand.  Research is showing that it works really good for TN ladies.  So is kind of the first drug that is geared to us.  I think the trials will be starting off that you will still have to do Adriam. first before surgery and do Ixempra as the last part of your treatment.  But I'm not sure.

Flalady

cmb35

Yes, adriamycin is the one we call "the red devil", but I just tried to look at it as it was killing those cancer cells (along with all those nasty side effects!)

FloridaLady

Well...Ixempra in full dose once a month is really bad per the ladies on the Ixempra thread under mets section.  My oncologist really feels they will try low dose weekly in the trial.  I hope so much this is true.  Being slammed with Adriam. right after dx is not a good way to start your cancer journey.  I did not ask if you will still get any other chemo's on this trial.  Must of us that do Ixempra only do Xeloda with it, because the drug is so bad for so many.

Flalady

VickiG

So thrilled for you FlaLady ~ you so deserve this!!!!!  I actually did not have much trouble w/ Ixempra, altho the Xeloda gave me major issues w/ hands/feet... I know SEs are not supposed to correlate to the efficacy, but looking back I can honestly say that the ones I had SEs w/ I had response w/, and the ones where "gee, it doesn't even seem like I'm on chemo" didn't seem to do anything.  But my good news is that I swear my skin mets seem to be lightening ~ just in the past few days.  I have upped my Turmeric & I wonder how much of it is the Gemzar & how much is the Turmeric... but I'm sticking /w the Turmeric!!!!!!

FloridaLady

Great news for you VickiG! I did first part of my treatment with Gemzar,Avastin & Carbo and was not really getting a response and than started hitting the Turmeric and felt it started working??? (for other who may not know Turmeric is a herb) I did see were their back to researching this again to add into are chemos.  I had to back off my Xeloda because my feet started blistering also. This dry heat is not helping it.  I'm now only doing four pills a day for one week and off the next week.

I also blow my doctor away that after 11 months of chemo this round...my blood work was completely normal!  I was even shocked. Liked I motioned before I started blending my juices and taking my supplements again.  I can't believe it... but I really don't feel as if I'm in chemo. 

Flalady

g94u67

Flalady & Vicky G:

 I'm so happy about your positive news and results! Awesome. God is great!

You are such an inspiration Flalady to all of us TN's.  Thanks for the incredible medical updates.

God Bless,

Jeannine

Analemma

FlaLady, that is outstanding!  I hope you get many months of NED or stable and a long chemo break.

I don't know what chemo you have been on.

Brenda

kelty

That's wonderful news!  I'm so happy for you! You're truly inspiration for us TN girls!

I love Indian and Thai food, there's always tumeric in the spice, is that what you refer to?  That was added to your chemo?

jeanne46

Great news!  Am so glad to hear there's an easier protocol for Ixempra.  Thanks for keeping us updated!!

VickiG

Kelty, yes it's the same.  I take supplements daily ~ when I take it 2x/day I notice that my skin mets seem to be improving... could be completely coincidental, but I'll take what I can get!!!

PineHouse

FlaLady,

Hmmm, can you smell that fresh air...the kind that you breath when you're not on chemo...

Who knows, maybe you'll never have to go back on the drug again!

Hugs

Traci-----TripNeg

Woo Hoo!!!!!!!!!!!!!!!