Moody/Karens daughter Olivia

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  • ibcspouse
    ibcspouse Member Posts: 613
    edited February 2009

    Liv,

    You are such a special young lady.  I know that you are a person that will do great things.  Maybe God has chose this way to let you know that you are on a path that has a special meaning.  Anybody can get a cold, not many can confuse the Doctors.  With the brains and goodness of heart that you have inherited from your Mom and Dad, you can change the world. 

    So now is the time to get well, have fun, and dance your way into the life you are meant to live.

    Karen, you have our prayers, If there is anything you need us to do, let us know. 

    Herbie and Cam

  • coonie
    coonie Member Posts: 7,618
    edited February 2009

    We're still with you Olivia and Karen.....keep the faith!

    hugging_kittens.jpg cute kitties image by thenani143

  • moodyk13
    moodyk13 Member Posts: 1,180
    edited February 2009

    Linda54 thanks for posting the update, you got it right as you know about as much as I do. 

    I have told so many people bad news comes fast, if you are told to wait for results, probably a good thing...........MRI results were back and doctors were in our room in less than 1 hour.

    Deep inside our brains is a cavity that contains the pituitary gland.  I know some things this gland does but guess I will be an expert very soon.  Anyway, the cavity in Olivia's brain has no gland........One thing we do know is that is does control one part of the brain that triggers nausea and dizziness.  It controls hormones and cortisol production too. 

    So, it seems that we at least know where to go next--specialists.  They are calling in a team of endocrinologists and neurologists to take over her case.  The GI doc of course does digestive system, not brains. 

    So we wait......GI doc did say that the next 24 hours are the most critical for her due to the no nutrition since last friday.  Yes she is getting sugar water, but obviously no nutritional value their.  There is a possibility of having to do a pic line.  If they have to do this, there is NO measurement on the "hysteria" scale to cover that amount of hysteria....I bet you would be able to judge by the screams you will no doubt here in Hall County all the way from Scottish Rite.

    I have no idea how much longer we will be here, but doesn't look like we will be coming home anytime soon.

    Anyway, as soon as the new "tag" team comes in and tells us anything I will update everyone.  Thank you for the prayers as we certainly feel them!

  • Estepp
    Estepp Member Posts: 6,416
    edited February 2009

    Thanks Linda...Karen I am sorry you are hurting! Olivia, I hope you are able to eat a little something today.. something that you like!

    Karen,. if you cannot post here... just  call Linda or e-mail Sandy ( I think that is who you write to).. they can tell us..... Don't feel you have to post things over and over on the boards.. I BET a million bucks the ladies do NOT mind doing the updates for you.

    Lord, We ask for not only healing for Olivia, but the  skill of her doctors.. We pray that this cross they are carrying ends soon. You told us that whatever we asked for, in full belief, then we shall have it. I believe Father. I love you Father.

    Mark 11:24 "Therefore I say to you, whatever things you ask when you pray, believe that you receive them, and you will have them."

  • rockwell_girl
    rockwell_girl Member Posts: 1,710
    edited February 2009

    Still Praying, sorry so short have to get back to work, breaks over...

  • marshakb
    marshakb Member Posts: 1,664
    edited February 2009

    Bumping

    Still praying for Olivia, Karen and family.

  • coonie
    coonie Member Posts: 7,618
    edited February 2009

    Olivia, I thought you might enjoy this picture. I fell in love with it !

    Hope you are feeling better real soon!

    52-1030321007.jpg Beautiful Animal Pictures image by Keefers_

  • tami48
    tami48 Member Posts: 533
    edited February 2009

    Karen, Olivia and Family,

    I hope Olivia is feeling better very soon.   Just know that we're all thinking of you.

  • LuAnnH
    LuAnnH Member Posts: 8,847
    edited February 2009

    Karen, I wish there was something I could do to help you out!  This has to be so rough on you and I just can't even imagine how tough on little Olivia.  Such a beautiful for a beautiful young lady.  Does anyone have an address that we can shower Olivia with cards and cats!  I would enjoy looking for something she would love and help take away a little bit of her pain.

    I will continue to pray for your daughter and hope that she improves soon.  This is just so much to deal with at once, but Karen I know how strong your faith is and it will pull you through this trying time in your life.

  • moodyk13
    moodyk13 Member Posts: 1,180
    edited February 2009

    Well as I said earlier, right now their biggest concern is the lack of nutrition, so this is going to be addressed tomorrow.

    They are going to have to put her to sleep and put in a feeding tube down her nose past her tummy and straight into her intestines.  It has to bypass the stomach because if they force anything into it, it will trigger the brain and make her vomit.................not good.

    Rem the hysteria scale of 1 - 30?  This doesnt even register.  In fact I dont know what you could call how she will handle this.  SO.........they are sending in a child psychologist and the doctor that she has bonded with to start preparing her now for what will happen tomorrow..........................................................going to be a long long long 24 hours.  Actually, until we are on our way home all healed, it is fixing to go down hill for her psychologically............................................................................................I would rather go through hard chemo and be bald again than to have to do this to her.

    I trust God, I have faith in God, I know He has this thing under control.  I am angry with Him (but He already knows this and has forgiven me for it), I dont understand it, I am terrified of it--more than cancer or anything else.  I have never felt so horrible in all my natural born life.  Thank goodnessGod is carrying me because I couldnt do this without His strength.  Im still mad, but I am thankful we are His children.

  • moodyk13
    moodyk13 Member Posts: 1,180
    edited February 2009

    LuAnn, I want you to ask your bible questions!  I have my bible here and been doing tons of studying so I am ready for you!  Plus I enjoy the distraction emensley!

    The address here is:

    Olivia Moody - Rm # 401

    c/o Scottish Rite Hospital

    1001 Johnson Ferry Rd.

    Atlanta, GA 30342

    Thanks so much you guys she is LOVING all the pictures!!!!!!!!!!!!!!  We love each and every one of you!!!!!!!!!!!!!!!

  • lovinmomma
    lovinmomma Member Posts: 1,879
    edited February 2009

    Just caught up on this and I am praying for you! You go ahead and be mad at God. He is big enough to have it. Praying that you feel His peace and all the answers are revealed!!

  • Daffodil
    Daffodil Member Posts: 829
    edited February 2009

    We will send cards to InnocentOlivia!!

    Republicans are having a group prayer at 10 PM EST. Since Republicans are NOT exclusionists, they will accept all comers to join them in this prayer:

    Matthew 18 v19

    The Power of United Prayer:

    "I say to you further, that if two of you shall agree on earth about anything at all for which they ask, it shall be done for them by my Father in heaven.  For where two or three are gathered together for my sake, there am I in the midst of them".

  • Linda54
    Linda54 Member Posts: 2,689
    edited February 2009

    Oh Karen,

    I just can't imagine going through this without our faith in God and the fact that WE do KNOW that HE is in CONTROL of everything.  Poor Olivia.  My heart hurts for her.  I know you and everyone of us would go through this cancer thing again in order to keep our children from this terror of not understanding what is happening.  It is OK to be mad at God.  I think he would be disappointed if we didn't get mad at Him. HA  He is the one that gave us emotions and He expects us to use them even toward Him.....Olivia hun, it will be OK and you will be back to dancing in a few weeks.  Hope you are enjoying all the pretty animals being sent to you.  I was trying to find a picture of my Beagle to send but can't seem to find it.  Thanks for posting the address to the hospital.  I so believe in the power of united prayer.

    You are on my thoughts constantly

    God, heal Olivia and give her strength.

  • Marple
    Marple Member Posts: 19,143
    edited February 2009

    Dear God.......please help Olivia and her family. 

  • Daffodil
    Daffodil Member Posts: 829
    edited February 2009

    Olivia, the little picture is Misty the Labradollie~~~she says "Rurrrfff". That translates to "Hey, girlfriend!! I know it's rough right now, but it will be better soon!!"

  • rockwell_girl
    rockwell_girl Member Posts: 1,710
    edited February 2009

    More prayers and (((HUGS))) coming your way

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited February 2009

    Prayers are with you.....

  • EWB
    EWB Member Posts: 2,927
    edited February 2009

    Wow, did I miss a bunch!  Holy Moley ladies all kinds of things going on...remember that "This to shall pass". 

    Olivia, just think of all the new things that you thought you could never do, would never do---that you HAVE done. And if you can do it once- you can do it again. I know its hard doing things that you don't want to, and that seem scary, but remember that there are lots of people who can help, just have to ask, take a breath, try to keep calm (I know thats not easy) and have a go at it.

    Karen- I know its hard going thru all this (when things calm down I'll tell you about my dd) but it WILL all work out, just keep faith, know that you, dh and Olivia will all get thru this soon and that we are all here with prayers and hugsfor you!

    Elaine

  • Mykidsmom
    Mykidsmom Member Posts: 1,637
    edited February 2009

    Karen - Praying for all of you here. I don't think there's anything else I can say. With love - Jean

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited February 2009

    What a day that you've had.

    Olivia. I wish that I had a magic wand and could PROMISE you that everything will be back to 'normal' again when you click your heels. I pray that is the outcome of all that you are undergoing. I pray that there are miracles with your name embroidered all over them.

    Unfortunately Planet Earth has it's limitations. There's gravity for example. There are things we don't yet understand. This planet does have injustice. I join everyone here in praying for heaven's direct intervention to have the happiest of endings for this portion of your story. We all love a happy ending. That's exactly what we want for you.

    It sounds like you have an amazing team gathered around you -- I believe they are being sent from heaven for your care, directly. I'm thanking the angels for the brilliant minds gathered on your behalf.

    I KNOW in my heart, I absolutely believe that our Creator will be with you every single step of this journey..... thru every test & every consultation, thru every frightening aspect that may knock on your door.

    I KNOW that you can spew every emotion possible at our Creator and that's just fine. You will be carried when needed.

    We can trust that: "Everything works together for those who love Him, for those who are called in agreement with his purpose."  I believe that God makes ALL things work together for good.....

    Even things that we deplore. Even things that are painful. Even things that make us frightened or afraid. Our God can take the absolute 'worst' and make it a part of the tapestry of our lives that has beauty. I've seen it happen in my life.

    [Your mom & I have 'spoken' about this amazing truth in our own, grown-up lives.]

    We will pray for understanding. We will pray for support. We will pray that there are answers.

    We will pray that you feel the love of this community as you venture forward into your future.

    We are here for you. We are here for your family.

    You can count on us.

    Sleep well tonight.

    Dream of trust and wellness, being held by the very angels themselves.

  • Estepp
    Estepp Member Posts: 6,416
    edited February 2009

    Oh Karen... I am so sorry for you ...:(... I know you are crying...:(.. I HATE OTHERS PAIN!

    Lord please give a medical cure for Olivia. I ask you give her a way to live her life without the gland she is missing., and do just fine.!

    I wish I could physically give you a hug Karen. Do you have family and friends with you? I am sure you do... let them help you.

    Gods Love,

    Laura

  • coonie
    coonie Member Posts: 7,618
    edited February 2009

    Olivia, aren't these "kittens" so cute?

    They will grow to be bigger and stronger some day---just like you.

    One day you'll look back on these days you've spent in the hospital and be

    so proud of yourself for being able to stand strong through all of your tests.

    Gentle hugs and caboodles of prayers going your way tonight!

    tiger.jpg cute! image by 11sweetkiss11

  • rockwell_girl
    rockwell_girl Member Posts: 1,710
    edited February 2009

    I just did a google search hoping to find something out about not having a pituitary gland but no luck.  I so would like to help in some way...  I'm sure the doc will guide you.

  • Estepp
    Estepp Member Posts: 6,416
    edited February 2009

    Moody Family... I will not check this thread anymore tonight.. as I will be off to bed soon...

    I am going to start a 9 day prayer  for you here. My Church calls it a Novena. I have witnessed huge miracles from it. I just wanted  you to know. Jesus Christ is ALL of our savior.. ( IMHO) and We might all pray a little different.. and I know the Lord loves us all. And hears ALL the prayers of believers...

    Gods Love to you all and I hope to see how you are doing good tomorrow..

    Laura

  • Linda54
    Linda54 Member Posts: 2,689
    edited February 2009

    Thinking of you this morning and praying that you had a good night and will get some answers today.  God Bless

  • moodyk13
    moodyk13 Member Posts: 1,180
    edited February 2009

    I am watching my baby girl slowly starve to death and there is nothing I can do to help her.  While these freaking doctors argue over who should be treating her, she is deteriorating.  she has had NOTHING in 7days and now she is too weak to get up to go to the bathroom.

      She got so bad starting about 9:50 and it lasted till 4:00am.  They had given her all the meds they could and nothing worked.  I dont understand why God doesnt heal her or send in the right doc with the right treatment.  I dont understand what purpose there is in her suffering so much.  I dont understand any of this and I need it to go away.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    Moody, all I can say is 'I'm sorry' since no words are adequate.  Hugs

  • Journey
    Journey Member Posts: 905
    edited February 2009

    Karen - we will never know until we are in God's presence why things happen the way they do here on this fallen earth. In the mean time keep your faith and your eyes on the God you love.

    I'm no expert - just a mom - but you may consider calling Olivia's pediatrician or your family doctor and see if they have any suggestions on getting the ball moving.  You may even consider moving her to Emory?

    Prayers for a sucessful day today. {{Hugs}} - Gretchen

  • 2new1s
    2new1s Member Posts: 1,995
    edited February 2009

    My thoughts & prayers for you & your family. 

    Is there a children's hospital or a larger hospital that you could transfer her to?  I had to move my son from a local hospital out of intensive care and go to a childrens hospital to get the answers we needed.  Not trying to be nosey, just offering a suggestion if you feel you are getting nowhere with her current team of doctors.

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