Starting Chemo May 2008

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  • familyroks
    familyroks Member Posts: 575
    edited January 2009

    Rock - I did what Karin did..bought a weekly pill box with the days on them.  I've always been horrible about taking meds and I want to make sure that this is one that I DO take.  I don't want to be worrying everyday...Did I take it or didn't I?  I like CRAFT Karin!  I've always used CRS but I think I might switch to CRAFT.

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  • kerry_lamb
    kerry_lamb Member Posts: 778
    edited January 2009

    No offence Karin! LOL. My colleagues and I bemoan our 'craft moments'! Noelle, I'm with Sable..the smells you sent (which accompanied the goodies!) are just heavenly. I WANT TO WORK IN YOUR SHOP!! Promise I'll earn my keep..and probably spend it all at your till! Our local paper (which is CRAP...that stands for crap) surprisingly had a special insert today. The 'outside' was news and pics from the Inauguration, and the inside had a big old-fashioned scroll thingy with the speech written on it. Looks cool. Knowing our paper, they just lifted from the Net. But if not, would any of you fans who collect memorabilia like me to post it over? Noelle? Pills....sigh...I never thought I'd see the day when I had one of those old lady pill reminder things. Crap. Good news on the nail front, though. My 'new' growth (4 months worth) is actually pink. I HAVE RED BLOOD CELLS CARRYING OXYGEN AGAIN!!! And my hair is resembling a month-old........lamb.    Got to work out the photobucket thing so I can post pics here. RanD! Today is the day and I'm right there with you. XXX to y'all.

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  • kerry_lamb
    kerry_lamb Member Posts: 778
    edited January 2009
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  • rock
    rock Member Posts: 1,486
    edited January 2009

    CRAFT!! My new middle name!  I'm getting one of those pill boxes post haste.  This is ridiculous.  Aside from my craft-iness, I am bleary-eyed.  A long, good day. 

    Sue -- Nekkid pictures?!  Next thing you know, you'll be starring in your very own calendar.

    Everybody: I think of you guys all the freaking time. I work on the UCT medical campus where every other office is labelled something that deals with cancer or blood or genetics.  It's WONDERFUL to see all these medicine-related signs . . . and ignore them!!  Big hugs all around (Eddie, your posts are always so on-point.)

    RanD: Having you post again makes me so blooming happy. We really DID think of you often and I think for a lot of us, the more time that went by, the more we  thought about you. 

    I need to get some shut-eye.  Much, much love from Cape Town!

     

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  • Sable
    Sable Member Posts: 738
    edited January 2009

    If it makes ANYONE feel better.... I'm the baby of the group and I had to get one of the pill boxes as well... *sigh. I got one is a circle though, it didn't look quite as "old" ROFL.

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  • MsKarin
    MsKarin Member Posts: 647
    edited January 2009

    Jen you amused me with all your sounds over Noelle's package. At first I thought I was looking at the manuscript for "When Harry met Sally".

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  • Sable
    Sable Member Posts: 738
    edited January 2009

    Karin~ if you were here in person it would have SOUNDED like that movie as well ROFL.

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  • MsKarin
    MsKarin Member Posts: 647
    edited January 2009

    Jen - That's exactly what I thought. LOL

    Karin - Mental note to self. When we all get together if spouses attend also, and we all stay in the same hotel; make sure you're not in the room next to Jen's. OFLMAO!!!

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  • MsKarin
    MsKarin Member Posts: 647
    edited January 2009

    ranD - Thinking of you, sending positive energy your way.

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  • MsKarin
    MsKarin Member Posts: 647
    edited January 2009

    Shhhhhhhhhhhhhhhhhhhh - Rock is sleeping. So Jen, keep it down, LMAO!

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  • Sable
    Sable Member Posts: 738
    edited January 2009

    if I was drinking milk right now it would be spraying out my nose! ROFLMAO! ya nut!

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  • ewesterman
    ewesterman Member Posts: 417
    edited January 2009

    I JUST BLEW A FRENCH FRY THROUGH MY NOSE READING ALL THIS.  Okay, not really, but if I'd been eating one, it would have flown out my nose. You  are SOOOOOOOOOO funny. Ciao. No, I did not use the May Chemo Girls title. I just rambled.

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  • ellenoire
    ellenoire Member Posts: 674
    edited January 2009

    ok, so today was a fun day.

    I got a MUGA scan and the stupid tech told me my results- that my fraction dropped a point. Stupid tech... now I have bad-ish news that I have to sit on until I get the official results.. AND her two pokes have left me with little cat scratch like marks on my hand because she sucked at doing my injectionsAND in the parking lot on the way home I found that she had left the 6 sticky electrode pad thingys on my chest!!!!!!!

     I woke up feeling a little crappy this morning and had a quiet first half of the day at home... then my stupid assistant called. He let me know that Sable and Sue had called! I called them back when I was getting ready and en route to my scan. I had a great chat with both of them. Jen is about 40 times more excitable than you would imagine and I loved it! Sue, is calm and deep and adorable and gave me great luck with getting an awesome parking spot! LOL! 

       Ok, ladies by now most of you (Cris and RanD yours will ship tomorrow) should have your packages. Eddie, your extras with your lotion should match what everyone else got. Aside from one screw up you should have all received Shea Butter, Salt Scrub, Muscle Mist and a CD. My CRAFT could be kicking in here, but I think that is what was sent. The screw up is that Jen was supposed to not get Muscle Mist because she had previously told me about a eucalyptus allergy and Muscle Mist has eucalyptus. So, I chose the Shea Butter because I talked about it a lot and everybody needs some... and if you remember the convo's about lubricant or have read my stuff on the Mojo thread then you should have some other creative places to try it. PM me if you have questions. The scrub is there for the magic exfoliation that I bugged you all about.. and I chose the scent because Linda told me she loved it when she ordered some things for Xmas. It is a good body scrub, but a little harsh for the face. The muscle mist I chose because I wished everyday during chemo that I could have sprayed you all with it to relieve all the pains you were suffering. The CD was sent for kind of obvious reasons. Read the back, and listen in your quiet moments.  

    Love you all!

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  • drcrisc
    drcrisc Member Posts: 836
    edited January 2009

    Okay, so I had a post almost finished and then accidentally clicked the exit button and signed off!  Crap.  Smooth move, Ex Lax!  I will try to re-create it...

    Noelle - What an awesome thing to look forward to!!  I am so stoked!!!  ("Back away from the package, little girls.")  Love your descriptions of Jen and Sue - I can totally hear them!

    RanD - It's a race to see who get theirs first!  Don't see a post from you, so I'm slighly worried.  I've been checking in on and off today to see if there's been any news.  Sending good thoughts, good thoughts, good thoughts...

    Eddie - Did you have a Roseanna Roseanna Danna moment?!

    Kerry - LMAO!  Love the "crap" comment!  (Hmmm...that sounds odd...)  But what a cool thing to get in the paper. 

    Rock - So glad to see you!!

    Karin - I'll be sending a pic soon - Dh just downloaded all our pics from last weekend.  I think there's at least one I'm in.  Probably should change my avatar, too.

    Okay, so I went to Oprah's website and had NO IDEA where or how to post our story.  Where did you guys write it?!  I wandered around and felt like I was in the big box of websites, grabbing some of this and a package of that.  All I wanted to do was send a friggin' email!!  I felt like the "Inspiration" section fit the best because I think that's what bonds us together and what we project to others.  But sitll, NO CLUE how to actually write something there.  HELP ME.  We need to be on Oprah.

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  • ranD
    ranD Member Posts: 373
    edited January 2009

    Hey all, Okay,I talked to chemo doc today, still no lab results, although she did say that the prelims showed NED. But, she said that all signs point to otherwise,,,whatevr.

    Anyway,we discussed theplan of attack.  First Tamox and then(remember me insisting on this) ovary removal as soon as possble...in other words as soon asI can take going under.

    I am going in tomorrow just to give me peice of mind, I am making them check my vitals while I pick up my scipts...who hooo,, lunch with a friend coming up!!!

    Noelle, I will make sure the little savages stay away frmo the mailbox...probably will put det cord around it....

    Cris, bet my results beat yours!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    will write in tomorrow as soon as I can log on after the news...

    love you all, ran

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  • drcrisc
    drcrisc Member Posts: 836
    edited January 2009

    RanD - Glad I came back for something else and saw your message - bonus!!  Sounds like they're just not too sure yet.  BTW, I was referring to the race as Noelle's package, so you can definitely have any good results I might have just randomly floating around!!  LOL!

    On a completely different note, I got this link in an email and thought it was cool.  It's not political, just cool.  All the U.S. presidents starting with the original G.W. "morph" into one another to the sound of "Bolero".

    http://www.flixxy.com:80/presidents-morphing.htm

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  • lewing
    lewing Member Posts: 1,288
    edited January 2009

    Just got back after a week away from this board (work, travel, way too much snow to shovel); Randie, I am thinking of you.  What struck me most about your posts - besides feeling, well, STRUCK, as in upside the head, by the godawfulness of what you're going through, and the fact that you have (or had??) the world's most cloddish doctor - is the way your spirit shines through.  It's a profane spirit that kicks ass.  And takes names.  And gets through the bad stuff.

    Hugs,

    Linda

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  • otter
    otter Member Posts: 6,099
    edited January 2009

    Well, you probably all could guess what I've been doing this morning:  sitting here in my recliner, indulging in the wonderful fragrances from a package that came yesterday, while I listen to a CD of the most soothing, relaxing piano & harpsichord music playing in the background.  Bliss, I say.  Pure bliss.

    ...mmmmmm....   :)

    Noelle, here's a big hug coming your way... ((((((Noelle)))))).

    A hug also goes out to RanD as she waits for her results:  ((((((RanD)))))) 

    otter 

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  • ranD
    ranD Member Posts: 373
    edited January 2009

    Still no news form th doc, she is doing rounds all morning. But, more bad news is that last night my breathing took a bad turn and now most activities leave me short fo breath.  Crap, how the hell did that happen?  The only difference is that this time my chest feels really tight, last time it was more of an I can't breathe thing happening.

    SOOOOOO, waiting for the onc to call.  The nurse is talking about admitting me again until they can figure out what is going on.  You all know what that means, they will be poking the shit out of my ONE fecking vein.  They all say the same thing, my, your skin is so tough we can;t get to the deep-lying vein.  No shit sherlock, especially since I always tll them that I am a hard stick and they only get one shot and then I scream.lol...Last weel, she tried, poked the hell out of my hand and I screamed WTF are you doing????  Then I made them put it in my elbow, the whole time listedning to them complain about how if I bend to much I will blow the IV.Sheesh....so now you know my kryptonite, I hate IVs...they freaking punctured my back twice to drain my klungs and I was busy watching a movie on my laptop, asking the doc to tell me the step by step.  But show up wth an IV and I freak....lol

     Sorry about the ranting, I am home alone until hubby picks up kids from school and mymind is going 200 mph...

    So, pray that they figure this out before hey have to stick me again! randie

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  • MsKarin
    MsKarin Member Posts: 647
    edited January 2009

    Whaaaaaaaa! All the talk and sounds describing Noelle's package is filling me with anticipation then disappointment when the mail man again showed up with out it. Forget Snail mail, I must have slug mail. With no shell to protect him, he must have froze and got stuck some where waiting to thaw out.

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  • Sable
    Sable Member Posts: 738
    edited January 2009

    NED cha cha cha NED cha cha cha NED cha cha cha <------ that's my NED chant for RanD :O)

    excitable... now that's a new word to describe me LOL. I've had weird, off the wall, bizzarre, obnoxious and a few others before lol. It was so neat to actually have a voice to go with the name/pic...... I may have to make more phone calls to diff people <wink>

    Karin~ I put my empty box from noelle in my computer room cause it smelled so good.mmmmmmm

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  • MsKarin
    MsKarin Member Posts: 647
    edited January 2009

    ranD - You snuck in while I was typing my post. Sorry to hear you're having problems with your breathing. The waiting for the onco to call must be driving you crazy. Did you try calling him? I understand the HATE IV's. Last month trying to start the IV for my colonoscopy they stabbed me over 10 times. I thought I had turned into a human pincushion. Drink water, lots of it. Drink, drink, drink. That way if they do admit you, you've got your veins plumped up.

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  • MsKarin
    MsKarin Member Posts: 647
    edited January 2009

    Jen - Thanks. The aroma must have jumped into your computer and found its way here. I can almost smell it. But the scent is not strong enough for me to break out into my sound effects.

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  • familyroks
    familyroks Member Posts: 575
    edited January 2009

    RanD - I am SO sorry!  I can't believe you are having to deal with all this crap.  You continue to be in my thoughts.

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  • kerry_lamb
    kerry_lamb Member Posts: 778
    edited January 2009

    RanD would a port help?? I think it saved my sanity (and my veins!) during chemo. It was literally my best decision through this whole landmined territory, and I know you can leave them in indefinitely.  I'm praying so hard for you that Jesus is starting to remember who I am lol! Maybe it's your heart? Just a thought, but it's been quite some time since I qualified as a physician.......Funny story about...hearts! My hub HATES helping me change the sheets and last time he was grumping and grinding his teeth and muttering, and when I 'threw' the top sheet over the bed, a peg dropped out. Quick-as-a-flash he grabbed it and threw into into my side of the bed (to disturb my sleep, presumably rofl!). Anyway, it broke his crabby mood and we fell about laughing at his childishness. Well, that peg has shown up a few times, carefully placed by moi! Last night I pegged it inside his dressing-gown, in the armpit. During the night we had a bit of a storm and power-failure so he got up to gown downstairs to have a little look around and....HOLY SHITE!!!!  HEART FAILURE!!! He thought there was some kind of large (VERY large) insect in his dressing-gown! Now..my hub has a 'bad' heart and is on tablets for it. Probably not a good idea about the peg, but feck it was funny. Especially as he started it.  Have a great day gals.   RanD. I have had enough of this CRAP (which stands for crap) on your behalf. I want this fixed, known, dealt-with, resolved to the 'all's well that ends well' point because I love you and I cannot bear this happening to you. oh my goodness I'm praying so hard for you...XXX

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  • Gracie713
    Gracie713 Member Posts: 302
    edited January 2009

    RanD-I agree with Kerry--Enough of this crap!  I think about you often!  You are in my prayers.

    I still have my port in.  Onc said it would be best to leave it in in case I needed IV fluids/antibiotics or blood.   Hoping to get it out in March, but now, may consider keeping it for awhile.

    Karin-My mail must be "slug mail" too!  I've also been waiting on a package from my sister in Colorado all week!

    Starting to get a little red from the radiation, especially under the breast.  Being a good little patient and using just aloe vera gel as the rads onc said to do.  DH likes it when I go around the house topless--I fixed him a cup of coffee awhile ago and he said that it was the first time that he had been served by a bald, topless waitress.  I didn't know whether to laugh or hit him!   (I laughed)  Just 18 more to go!

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  • kerry_lamb
    kerry_lamb Member Posts: 778
    edited January 2009

    Oh Gracie, I didn't know whether to laugh or cry!! Is 18 many? I'm so glad I didn't have to have rads.    I jumped back on here because I forgot to say Hooooooo Hoooooo! (think high-pitched old lady in sit-com voice) to Rock.  Rock, what a fecking thing it has been for you in the last month. I am so pleased and excited  for you that it really could be me! I always thought to live ones life vicariously was a bit..not on. But in this case, it's weird..it's great. I really am super thrilled for you. Just wanted to let you know! XX

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  • KristyAnn
    KristyAnn Member Posts: 793
    edited January 2009

    Gracie,

    I lived topless during rads during the evenings- I would get home from work and put on my robe but go off the shoulder with the rads side- not too exciting for anyone though since I had a mastectomy - but it sure was more comfortable.

    ranD- Hang in there we are all praying for you!

    I found out today a lady at church was just diagnosed with bc- dont know any details but it really tore up my day to know someone just starting this journey.

    Im doing great (I think) - almost completely off pain meds- an occasional advil during the day but sleeping without anything. It doesnt hurt to get up or down anymore- it still hurts to laugh, cough and especially to sneeze - thank goodness my terrible allergies are on the mild side right now.

    I can wait to take a bath again- I miss my bath bombs!

    My hair is poking out all over- I know it is in the growing out stage but it is really aggravating and rather funny at this point. Not sure Im going to like this gray and black color I am getting but not quite willing to color it yet!

    Going on a school field trip with the second graders tomorrow- to see a live production of Juni B jones- I signed up for this way back in August at the beginning of school and planned to take a vacation day- so I am determined to go and it wont even cost a vacation day now :)

    Kristy

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  • ranD
    ranD Member Posts: 373
    edited January 2009

    Okay, onc has decided to drain the lung tomorrow.  Bad news, the test came back with lung mets...CRAPOLA....

    Onc is supposed tocall me in a bit, so I will have more info.

    Yup, crying as I wrote just thinking of the kids....\

    love you guys, ran

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  • ranD
    ranD Member Posts: 373
    edited January 2009

    PS......Thanks for all the prayers...I know that's what got me this far....not plpanning on leavin here just yet, got kids to graduate and future weddings to plan, right?

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