Nuclear dye injection
It was such an ambush. Poor nipple will never be the same again! They don't tell you it's coming, and won't talk about it beforehand, or afterwards, either. A friend told me about it before I went in. So I begged my doctor to make sure I was numb or asleep. He assured me it would be ok. NOT!!! I cried! Tears streamed down my face as they wheeled me out of that room and back to my little waiting room. I have had flashbacks to it ever since. Can't get to sleep at night and wake up in the morning thinking about it. We BC surgery women need to ban together and insist that procedure be changed so that we are heavily sedated or anesthetized for it. How many of us out there are in favor of that?
Comments
-
It's too late to be able to help you, and for that I'm sorry, my surgeon gave me a prescription for Local Emla cream to get through the SNB injection, you slather a large amount around the entire circumference of the areola and then place saran wrap over it so it doesnt rub off, applying it as far prior to the injection as possible, take the saran wrap off as you are on the nuclear med table, I wont say I didnt feel my injections , I did, but the pain level was totally bearable and tolerable, the nurse who was with me told me how some women sob during the procedure.....everyone should have access to the Emla cream !
jan
-
Can't we do better than that? Let's face it, if it were a man's most sensitive organ, it would be different for him.
Ruth
-
I agree with you Ruth - I had no numbing creme - and when I asked, they said I couldn't have any analgesics at all because it might interfere with the test. The pain was sky-high, out-of-this world, shriekingly unbelievable.........fortunately the mind forgets pain like that when time passes, except in the most academic way. It was just one more insult my body had to endure - but not the worse. The worse, for me, was the "ambush" I received when I developed hospital acquired MRSA............but I won't go into it - even an "academic" memory of that pain brings out so much anger - anger that I will definitely channel into making sure there is accountability to what happened to me.
-
I had a good experience with this...no pain at all..they really numbed me up...and this was eight years ago...
-
I have to agree, I was not at all prepared for the pain of this injection. (although the doctor did say "this is going to hurt some"-- I should have known that that meant it was going to kill!!). Luckily the intense pain only lasted probably less than 30 seconds, but it is something I will never forget, and I've had plenty of other painful procedures!
-
TOTALLY on board with this one. There should at LEAST be a standard of care guideline that requires some kind of anesthesia, whether local or total. While I can't say I'd actually rather give birth again, this was right up there with that memory. I too was ambushed.
"This is going to be uncomfortable" just SO doesn't cover it.
-
I had it done this past July and did not need any numbing medicine. They felt like little bee stings or what one would get if they were being tested for allergies. I was totally amazed-- so maybe it has to do with the radiologist that is doing the procedure. He just went under the skin and not deeper, Maybe that was teh reason for not having alot of discomfort.
-
I'm with the camp that didn't have any more pain than the sensation of being pinched a couple of times.. sorry for those that had major pain!
-
Me, too--the pain was quick and intense, but tolerable in the grand scheme of BC indignities.
The injection was right at the edge of the areola, which is a hugely sensitve area of course. On me, it was a very shallow injection--kind of like a TB test (it made a bleb).
The rad tech was kind of funny about it. She got me all ready, and she prepped the site, and as she was getting near the skin with the needle, she said, "Now this is going to hurt a little...". But once the needle was in, she said, "I mean, it's going to hurt A LOT!".
By then, of course, I was stuck like a dead bug in an insect collection, and there was nothing I could do but lie very, very still. She kept saying, "I'm sorry ... I'm so sorry ... I know this hurts, but it will only hurt for a little while...". She said there was an anesthetic in the syringe that would make it quit hurting eventually, and she was right (I think). She massaged the site gently, saying it would help soothe the pain. By the time she left to go back to her picture-taking station, the pain was gone, except for a very mild burning feeling.
So, for me it was like a wasp sting in a very sensitive location. I was stung in the face by a bald hornet once, and I gotta say, that was way worse than this was. I've also had kidney stones, and this nuclear dye injection did not come close to that pain either. Even my mastectomy hurt worse than this--my chest hurt like I'd been kicked by a horse. The nurses would not give me the Percocet my surgeon had ordered for post-op pain. It was a classic failure to communicate; and only the troupe of docs that came through the next morning were able to fix it.
I guess it's all a matter of perspective. Hey, if they had told us ahead of time how much it was going to hurt, do you suppose any of us would have shown up? (I like the EMLA cream idea.)
otter
-
This is one of those things where it seems like individual experiences vary tremendously. I was terrified going into it, maybe more than I was scared of surgery since I'd be out for the surgery. I was told no anesthetic too, and no xanax because of the general anesthesia for surger later in the day. And it was totally unremarkable in a day of having things stuck in my boob (guide wire, etc.).
So if it has to do with the administrator's skill, they should hold training sessions! And if it has to do with the structure of one's breast, they should learn to tell who might have more pain. And if it is just a crapshoot (isn't everything? sigh) some kind of painkiller should be offered. No one should have to go through what some of you are describing as a standard pre-op procedure!
-
I had NO clue what they were going to do, so when that needle came at my nipple I wasn't sure what was going on! I think in my case ignorance was bliss and it was over before I could think too much more about it! I am kind of glad I didn't know before hand otherwise I would have just panicked and like Otter said, may not have shown up!
-
Oh, that was incredibly painful for me. Emla-shpemla, that cream did NOTHING to help the pain for me. I thought I would pass out from the pain!
-
Incredible pain. The doctor who did the injection had the gall to tell me it would only hurt a little and he didn't give numbing injections. Then while the tears were streaming down my face told me it wasn't "that bad". Ticked my DH off badly.
Then when I was rolled into the pre-op area my surgeon came in. I told him that every doctor who gave that test or ordered it done should be required to go through it at least once. He laughed and said "well, guys have to have prostate tests" I told him that wasn't even close to the same thing and my anesthesiologist (a female) backed me up big time. My surgeon was excellent but needed much better bedside compassion. Comparing the nipple injection to a prostate exam!
-
I remember when my mom had it in 2001, she made the comment that it was the worst part of her surgery experience. I had prepared myself mentally for my bilat procedure in 2007. The radiologist came in, read the orders and said I have bad news and worse news. I have to give you 6 shots in the right breast and go around and give you 6 shots in the left breast. He did it as quick as possible and then the assistant put warm packs on each side as he finished. It did sting but the warm packs seemed to help relieve the pain. I did my focus breathing from yoga and kept telling myself, I can get through this almost in a hypnotic state.
Sheila
-
Hi all -
Boy! My lumpectomy and SNB are scheduled for this Friday and my BS called in a prescription for the Emla cream, which I am picking up tomorrow (since my pharmacy had to order it - and it costs $44.00, so the darn thing better work!)
Revkat - NO Xanax at all? I have read where some people have taken Xanax prior to that procedure -I was wondering myself if it would exacerbate the general anesthesia - but some have responded that it did not - my surgery is scheduled for 1pm and SNB at 9:15 am - I have already asked my BS about this and she said I could take Xanax after the surgery is over.
Has anyone else taken a Xanax before this procedure to calm them down, with no repercussions afterwards?
-
Don't know about xanax, but my surgeon recommended that I take an ativan the night before to help me sleep, and then another one in the morning before I came to the hospital! My surgery was scheduled for early afternoon. Maybe you should ask your surgeon about ativan?
-
Hi, kamico -
Thanks for responding. Actually Ativan is very similar to Xanax so that is encouraging. I definitely will check with my surgeon again - it is so apparent that each dr has a different idea about these things! Thanks again and take care - Maria
-
Although the nurses/techs were very apologetic and concerned, no numbing cream for me. Honestly, although I know it hurt like hell at the time, it was quick and I barely remember it now. It did remind me of when I had to get some thing removed from my son's face when he was 2 years old. It took me, 2 nurses and the doc to hold him down as they injected a HUGE needle in his cheek, right below his eye, to anesthesize him. It was a nightmare, and the giant bruise on his face from the shots were beyond disturbing. A friend of mine who's a surgeon, happen to be visiting that weekend, and was completely disgusted. He said they could have given him a "valium puff" (not the tech term I'm sure) that would have basically just made him so relaxed as to almost be asleep for a very short period of time, and then given him the needle. The reason they didn't? You guessed it - cost! I don't for one second believe that they can't give us something for those injections for any medical reason. I'm not big on medical conspiracy theories, but this one is pretty obvious to me - it hurts like hell, but only for seconds, so it's not worth the cost of the drugs to make it less painful. (Like circumcising a baby boy - they don't use anesthetic when they do that either! My sister had to pay $75 of her own money for some numbing cream for her son, because she couldn't bear the thought of them circumcising him with no anesthetic.)
Goodness, rambling, sorry!
-
I am so sorry for those who had just a terrible pain with the injection. Mine was not too bad....I was given a local.
I really like the idea of giving people the EMLA cream before hand but I also think since it does not work on everyone that you should also be given the option of the local.
-
I'd rather be asleep! I wonder if giving a sedative, similar to that given for a colonoscopy or upper GI would work without it interfering with the bc surgery. We definitely need to be given an option. I wasn't even told it would hurt!
-
I was asleep for mine. From the sounds of these experiences, I'm glad I was. I wasn't even given a choice. My BS told me that is the way she does it with all her patients.
They gave me something in the IV, I was wheeled into the nuclear room, and that was it. I didn't wake up until after the mx. If the shot is that painful, why don't they knock everyone out? I just don't understand sometimes.
-
auriga, PLEASE, tell me where you had yours done and who your surgeon was! If I ever have to have that SNB done on my right side I want your doctor! I think I know alot of others here who would, too!!!
Thanks for the info!
-
I was fully awake for mine and yes it hurt like HELL, but I was warned and it was explained to me that numbing meds would interfer with things.....like with the others here it only hurt for a few moments....
I think each one of us has our own pain tolerancy levels and the SNB was the closest Ive ever been to my limits!!!!!
-
Hi everyone -
I promise that I will describe my SNB experience in detail once I get it over with this Friday. I am armed with the Emla cream and a clearance from my BS to take a Xanax beforehand.
If it is worse than my MRI guided biopsy . . . then watch out!
-
Maria... Just for comparison's sake... I thought the MRI-guided biopsy was worse than the nuclear dye. And... I didn't have EMLA or a local for it. I won't lie and say it didn't hurt but you've already been through the worst of the "awake procedures"... IMHO.
Michele
PS. I took 1/2 a xanax the morning before my procedure (at ~7am). However, my nuclear dye procedure wasn't 'till 11am so the xanax was long gone by then.
-
I was told by the nurse when I was getting on the table that it would hurt some. But they have this can that they sprayed some stuff on the area where the needle was to go in which was to freeze the area so it wouldn't hurt. NOT!!!! After the proceedure was over he made a comment to the nurse that he didn't know why the freeze didn't work and it hurt so much.
Yes, I was one of those that cried.
-
Hi, Michele -
Well, I'm taking my Xanax at 5:00 a.m. and the procedure is at 9:15 so I should be ok - and thanks for sharing your opinion that the MRI guided biopsy was actually worse than the nuclear dye procedure - I am feeling better about it already - and you didn't have Emla or a local!
Joy - OUCH!!!! I would have grabbed that can of spray and sprayed it in his face! How insensitive! I would have cried, too. Heck, I would have screamed!
Really - can't they conduct this procedure in a more humane manner?
-
Good luck, Britt! Let us know how you are when you can! We're all in there along side you, in heart!
-
Thanks, rdrake0 for your good wishes!
And thanks for starting this rant! About time someone addressed it!
Your SNB experience sounds so similar to my MRI guided biopsy experience (which I documented in detail elsewhere on this board) - well, if we can survive this, we can survive anything!
Take care -
Maria
-
Hey, Britt, see if you can get them to knock you out before that injection! I've been working on this at many different levels. Right now I'm searching for docs who are willing to do the right thing and use anesthesia first!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team