Is flaxseed bad for BC survivors?

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naturegirl2
naturegirl2 Member Posts: 332

Okay, I thought I did my homework on this one but after reading more info this am, I've changed my mind.  Several weeks ago, I went out and purchased organic flaxseed and have been grinding up in my coffee grinder using 1 teas. per day on various foods.

I decided to research what foods are high and low in estrogen this morning and didn't like what I saw.  Flaxseed was on the high in estrogen list.  Now, I will be quitting flaxseed.

 Input from others please?

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Comments

  • pip57
    pip57 Member Posts: 12,401
    edited January 2009

    There are a lot of different studies and opinions about flaxseed. I have chosen to stay away from it for the same reasons you are.

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2009

    To your question, "Is flaxseed bad for BC survivors?", the answer appears to be NO.

    Unfortunately there isn't a lot of reseach on either soy or flaxseed, both of which are natural estrogens.  However to-date the research that is available is mixed on soy and as a result most doctors recommend that women who've had ER+ breast cancer avoid heavy soy consumption.  On the other hand, all of the evidence to-date on flaxseed has been positive, showing flaxseed to be effective both from a prevention and treatment standpoint. 

    Did you read something that said that flaxseed is dangerous for BC patients or are you just concerned because it is a natural estrogen?

    http://www.flaxhealth.com/breastcancerupdate.htm

    http://www.cancer.org/docroot/ETO/content/ETO_5_3X_Flaxseed.asp?sitearea=ETO

    http://www.cancerrd.com/FAQs/FAQ33.htm

    http://www.mayoclinic.com/health/flaxseed/NS_patient-flaxseed

  • car
    car Member Posts: 492
    edited January 2009

    I found 20 articles, most of which were animal studies, by searching MEDLINE. There were a few studies w/BC pts., none of which were longterm. As Beesie says, the results are mixed. The focus of most of these studies seemed to be the fact that flaxseed is a rich source of lignans. There are other foods, such as rye, wheat, pumpkin seeds,  broccoli, and cereals that also are high in lignans, so if you are worried, these foods are healthy foods that share some of the attributes of flaxseed.

  • naturegirl2
    naturegirl2 Member Posts: 332
    edited January 2009

    Hi prettyinp-Hmmm, thanks for your input, I'm with you on this topic.

    Beesie, 

    Thanks for the live links.  I've seen most and originally made a decision to ingest flaxseed (not the oil) initially.  This morning I did a "google" search to see which foods were high and those that were low in natural estrogen and discovered flaxseed was on the high list so I freaked.

    I also discovered apples were also on the high list for natural estrogens as well, double freaked as I've been eating one half of an apple each night along with walnuts for quite some time.  Boy, was I mistaken.

    I don't think I will be eating apples are devulging in walnuts at night again.  I'm really bummed right now.  

    Thanks car, I'm going to go with the healthy foods rich in lignans.

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2009

    I think we have to be careful in drawing any blanket conclusions about natural estrogens.  There are many different types of natural estrogen and each may work differently on our bodies.  Some might turn out to prevent & help treat BC (so far, flaxseed seems to land in this group) while others might turn out to be harmful to women who've had BC.  Some natural estrogens may suppress the body's desire to create estrogen (similar to how Tamoxifen works - it mimics the body's estrogen so that the body produces less) while other natural estrogens may simply supplement the amount of estrogen already produced by the body (which would be a bad thing for anyone who's had ER+ breast cancer).  So, given that medical science doesn't know the answers yet, to adjust your diet drastically one way or the other is generally not recommended by doctors or nutritionists who specialize in breast cancer treatment.  In other words, it's not a good idea to start eating tons of soy or flaxseed (or apples, to your example) but it's also not necessary (and possibly not medically beneficial) to totally eliminate these things from your diet. 

  • PraiseTheLord
    PraiseTheLord Member Posts: 24
    edited January 2009

    I use a multitude of cancer fighting things- dandelion root powder from the farm of Harvesthaven.com 43 nutrients in that root- more then any plant source on earth to build up your blood and keep cancer away. Red-clover flower whole tops- creates a tea- preventative cancer from "bulk herb company"

    Zeolite, essiac tea. protocel,carrot juice. red beet juice,

    low acidic diet- they say cancer can not thrive in a alkaline body- lookup acidic foods

    nor can cancer thrive in a oxygen rich body - I take Oxygen elements Max from " Global Health Trax"

    I have a nutrition doctor Dr Pirvatera- all natural supplements and minerals and more cancer fighting stuff- one is " Immune option" powder mix- i put in smoothies ...I also take liquid minerals and vitamins from "New Vision" and the highest Orac level you can get in ViaViente! google it

    - no caffine- soda- processed sugar or food no red meat and little of others . Organic foods and i jut got a power juicer! Purity products makes the " rainbow package" purples, reds, greens and oranges..I like to blend it! No milk- I drink "AlmondBreeze" Vanilla , plain or chocolate..it is so good with cereal!

    Carob instead of chocolate- wheat grass barely grass

     All is worth a try- also at cancertruth.net or in the book " Cancer step outside the box " gives 8 good things to do to stop prevent cancer- worth a try.

    God Bless you!

    i have more info if you want it!

  • flyrzfan
    flyrzfan Member Posts: 557
    edited January 2009

    I look at it like this...eating soy is better than eating red meat (I have to watch my cholesterol for many reasons, one being a fatty liver) and using flax seed as a supplement is better than the moutain dew and marlboro light diet I used to be on...I think all healthy things in moderation and the occassional taboo thing (alcohol, candy, cigars/cigarrettes) will not make a difference in whether I have a reoccurance or not. If it does, then I will have to just deal with it. Research changes over time and things we once thought were good, they now say are not - and vice versa. I'm working on balance more than anything else. But, everyone makes their own choices for their own reasons.

  • lexislove
    lexislove Member Posts: 2,645
    edited January 2009

     I choose NOT to eat flaxseeds. I love the Almond milk too, and my 3 year old drinks it with me. Still trying to get the hubby.

    LIZA, I have read on the internet about low acidic diets and I think I follow it well. I also juice daily, beets,carrots,celery,lemon and a big hunk of ginger. I'm actually making ginger infused tea this morning. My question, do you know of any books on LowAcidic / Glycemic Diets?

  • Annabella58
    Annabella58 Member Posts: 2,466
    edited January 2009

    Hi, I was told by my onc "be vigilant but don't go crazy"...we have to live in this world and need to be able to tolerate it, is his thinking.

    I was told NO flaxseed, but OK to have soy sauce, or flavoring, just not tofu or soyjoy or food products.  I do eat the barrillia pasta plus w flaxseed, but will have to cut it out I guess.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited January 2009

    Hi Ladies: 

    There has been a great deal of research done on flaxseed and, by and large, the studies show that it reduces blood cholesterol, aids diabetics through its ability to reduce the rate at which glucose is absorbed from food, and its lignans, which bear a resemblance to estrogen, fit into estrogen receptors on cells and thus block estrogen from stimulating cellular activity.  And besides that, the fibre in flaxseed keeps things flowing smoothly through the digestive system.

    Oncologists just don't know too much about the nutritive value of most foods -- they don't learn about it in medical school, and they're too busy to keep up with all the research. 

    I take a tbsp of ground flaxseed each morning in my fruit smoothie, because I have cholesterol concerns, I was pre-diabetic, and I don't want my estrogen-pos bc to return.  And the bonus is that I'm never constipated, and I do have lots of energy.  This is just my story, but before eliminating flax, please do some more research, from well-regarded sources.  I think you'll find your concerns about flaxseed are largely unwarranted.

    Linda

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited January 2009
  • ptjen
    ptjen Member Posts: 52
    edited January 2009

    Lindasa:  Any chance you can send a link or citation for the article that said flaxseed and its lignans fit into estrogen receptors on cells and thus block estrogen from stimulating cellular activity.

    I would love to read that - I have been putting flaxseed into everything and then looked up phytoestrogen foods and was shocked to see how high it was - way higher than soy. I know the lignans play into this is a positive way, but just don't understand all of this and don't know where to find someone who does. 

  • lisasayers
    lisasayers Member Posts: 850
    edited January 2009

    Here are a couple links you can check out.  As with anything, find as much information as possible.  My onc was fine with me eating flax...just didn't want me taking any supplements.

    http://www.annieappleseedproject.org/dietflaxstud.html

    http://news.bbc.co.uk/1/hi/health/1061885.stm

    http://clincancerres.aacrjournals.org/cgi/content/full/11/10/3828

  • ddlatt
    ddlatt Member Posts: 448
    edited January 2009

    here's another link about the benefits of flax re: cancer:

     http://www.caring4cancer.com/go/cancer/nutrition/questions/what-is-flax.htm

     my med onc has me taking 1 heaping tablespoon of ground flax meal and 1 heaping tablespoon of flax oil every day in my protein smoothie.

    as with lisasayers' onc, mine said no multivitamins during chemo, but i can take B complex, fish oil, and calcium/Vit D.

    re: soy - i was told that because i'm triple negative, i can have soy, but those who are ER+, PR+ should avoid soy. here's a link for that info:

     http://www.caring4cancer.com/go/cancer/nutrition/questions/soy-and-hormone-related-cancers.htm

  • AllieM22
    AllieM22 Member Posts: 464
    edited January 2009

    Oh lord! And I thought I was doing a good thing with my diet--specifically the ground flax seeds on my cereal every morning! Did NOT know they were high as a phytoestrogen...However in reading the links that Beesie provided (thanks Beesie) it seems that they actually may act to block estrogen receptors which is what I had read--that they were good for breast cancer patients. Unfortunately I think it is more complicated--seems like perhaps the kind OR dose of phytoestrogens makes a difference. Flaxseed is high in ligans which is different than soy beans which are isoflavinoids. Again don't know if this makes a difference. 

    Here's a good recap also: http://www.dietaryfiberfood.com/phytoestrogens.php

     My dr said that probably soy foods were ok in moderation but no supplements.I haven't asked about flaxseed but will.  But I think they just don't know what to recommend as the studies aren't conclusive...not great for us patients, huh?

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited January 2009

    ptgen:  The quote is from the book "An Apple A Day", by Joe Schwarcz, PhD.  He is Director of McGill University's Office for Science and Society in Montreal.  Winner of the Royal Society's McNeil Award and the only non-American to win the American Chemical Society's prestigious Grady-Stack Award.  His creds are excellent!  and his book is really interesting.  Published by Harper Perrenial.  I got my copy on-line.

    Allie:  Oncologists really don't know much about nutrition, so it pays to do a lot of research (and stay away from websites that exist primarily to sell you product!).

  • lori5
    lori5 Member Posts: 75
    edited January 2009

    I'm so glad that this web site is here.  I have learned more from you girls then all my doctors.

    Thanks again for keeping us informed.

    Hugs and Prayers

    Lori

  • Baxter
    Baxter Member Posts: 234
    edited January 2009

    Hi Ladies,

     Interesting and also confusing subject. I have also been trying to find a good mix of things to take to help prevent breast cancer.

    I found some interesting information in Dr. Christiane Northrup's book "The Wisdom of Menopause." She addresses both soy and flaxseed issues. I am taking a soy product she recommended that is actually used in studies at Johns Hopkins Univ. and the soy shakes are available in the lobby for BC patients. On page 452 she sites why soy (the right kind) is safe for breast tissue.

    It is confusing because every study seems to differ in their outcome. I will say that my husband has been eating this soy product as well and his PSA has gone down 2 years in a row. The soy is the only thing different in his diet so for now I am reservidly giving that the credit for the decrease. His family has a high risk of prostate cancer.  

    She mentions that ground flaxseed has a lot of benefits and her reasons are too extensive to go into here, but it made sense to me. I guess we each have to do our research and then decide what seems reasonable to us. I think today more than ever we need to be well informed and stewards of our own health care.

    Just my 2 cents worth. Thanks for all the great info and links ladies!

    Candi

  • hollyann
    hollyann Member Posts: 2,992
    edited January 2009

    Being ER+  I was told to avoid soy as this is a pytoestrogen food...Meaning it created estrogen in our bodies which we as ER+ don't need because our umors fed off estrogen....It is impossible to totally avoid all soy as it is common in just about all the processed foods you buy......I read labels all the time and it is hard for me to find bread or cereal without soy..As far as flaxseed i am not sure on that front....i will ask my oncologist when I see her Wednesday........I am also confused about it all and I am 2 years out......Maybe one day we will get it all straight.lol....Hugs,  Lucy

  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited January 2009

    Why I would not want to eat soy.  They did a research project on mice/rats.  At first the soy fed mice had a reduction in tumor size when fed soy.  Looked great...end of project.   But another researcher did the same project but let it run longer.  The soy fed mice in his research had the same results, tumor went down in size but then,  because the project lasted longer, the tumor game back with a vengeance and grew larger.  Long term use of soy could be detrimental to our health.

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2009

    I think one of the problems we have to consider is that the dietary rules may be different if you are trying to prevent breast cancer vs. if you've had it.  From my understanding, studies have shown that soy can be affective at reducing the occurrence of breast cancer and as a result, it's advised that young girls start consuming soy and continue through adulthood.  Similarly, women in Asian countries who consume soy starting in childhood have lower breast cancer rates.  But, if soy has not been part of your diet since childhood and/or if you have an ER+ breast cancer, soy may be problematic in the way in which it adds estrogen into your system and how that estrogen acts.  It appears that how soy reacts in our systems may be different if it's a lifelong habit vs. if it's a new or infrequent habit.  And it may be different if we are premenopausal vs. if we are postmenopausal.

    I don't consume soy because there have been studies that have shown it to be problematic for ER+ breast cancer patients.  The study results on soy might be mixed overall, but certainly it's value is in question.  On the other hand, I do consume flax because the studies done specifically with breast cancer patients or on breast cancer tumors have so far all been positive.  Unfortunately these studies have all been small so it's too early to draw any definitive conclusions, but there does seem to be some level of understanding about why flax, as one type of phytoestrogen, reacts differently in our bodies than soy, which another type of phytoestrogen.  So while there is still a lot of stuff that we don't know, I'm comfortable that there is some understanding on why flax seems to be providing positive results - meaning that it's probably not a fluke and not a finding that the next study will reverse.  I hope.

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2009

    DO NOT GO TO THE WEBSITE LISTED BY lina85.  IT IS SPAM. 

    We've had a number of newly registered members over the past few days who are sending women to these same spam websites.  The websites are useless - just a list of other websites - and the sole purpose is to get us there so that we can be sent cookies and so that "lina" (whoever he really is) gets paid for each "click" on the site. 

  • AllieM22
    AllieM22 Member Posts: 464
    edited January 2009

    Great recap Beesie--that is what I have read elsewhere... thanks. :)

    Interestingly--I have found that no dr will get involved in any discussion about nutrition. I believe they don't want to pass on anything as an official recommendation unless it is backed by some solid studies. There is a lot of good info out there however--I am thankful for the Internet, although you have to cross check info as some of it tends to be from left field...

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited January 2009

    ...and that is why I am going to keep eating the way I've been eating for the past 51 years! As someone said on another thread, it would be like closing the barn door after the horses are out to make drastic dietary changes now that our bodies have already produced cancer. It took 50 years to get the cancer in the first place...

  • karen1956
    karen1956 Member Posts: 6,503
    edited January 2009

    My onc said that  to avoid soy based products like tofu but did give me the okay to eat it occasionally - we eat it a few times/month. 

    I do avoid phytoestrogens in supplements though...omega 6 and 9, flax seed/gels( was eating it till I saw that I read its a no-no for ER+).  I have a book that lists supplements and contraindications, but it is for each one, not say what to avoid for ER+.

    It does make it hard when the "data" is conflicting, depending on what study you read.  When you read studies, remember that the larger the study, the more "reliable"  the study is...when the numbers are small it is important to be cautious...not that the results are valid or true, just harder to generalize to the larger population that the study is about.

    Maybe one day, there will be more answers...

  • badbabe56
    badbabe56 Member Posts: 46
    edited January 2009

    Thanks for the interesting link, I just spent a week at a caregivers course and the teacher (who knew everything) was really promoting flaxseed big time, I am a 19 year survivor and it scares me what we can take thinking it will be good for us, and in fact it may not be, to all those who have an onc, discuss it with your onc first, I found that my onc was open to me trying things as long as I passed it by him first, he was the one to say no to a couple of things that I may of taken thinking it would be good for me, and in fact would of been the opposite, great post made interesting reading, thanks bad

  • josette
    josette Member Posts: 3
    edited September 2009

    Hello

    I'd like to add a comment, although I'm a bit late to the party.

    I had a different type of cancer (gyne) but was advised not to take flaxseed from a flaxseed researcher--not a physician. To my question, he said "I wouldn't advise it based on what we know, and don't know, now."

    And another caution. I would take with a grain of salt in most cases, and complete dismissal in others, the word about any treatment or program from a physician who works in research at a university or lab that takes industry funding for its research, such as McGill. They are in conflict of interest, and their "interest" will always be their funding, their careers.. If they refused to research any drug or told about the adverse effects of any treatment (which skewed risk/benefit to risk) they would lose their funding. Don't beleive me? Google Nancy Oliveri, whose experience with a drug company that sponsored her research was the jumping off point for the book and movie The Constant Gardener. 

    For excellent information that is NOT sponsored by any drug company, or any segment of the cancer industry, see Breast Cancer Action websites. 

  • josette
    josette Member Posts: 3
    edited September 2009

    Hello

    I'd like to add a comment, although I'm a bit late to the party.

    I had a different type of cancer (gyne) but was advised not to take flaxseed from a flaxseed researcher--not a physician. To my question, he said "I wouldn't advise it based on what we know, and don't know, now."

    And another caution. I would take with a grain of salt in most cases, and complete dismissal in others, the word about any treatment or program from a physician who works in research at a university or lab that takes industry funding for its research, such as McGill in Ontario. They are in conflict of interest, and their "interest" will always be their source of income, their careers, not healthcare. If they refused to research any drug or told about the adverse effects of any treatment (which skewed risk/benefit to risk) they would lose their funding. Don't beleive me? Google Nancy Oliveri, whose experience with a drug company that sponsored her research was the jumping off point for the book and movie The Constant Gardener. 

  • hrf
    hrf Member Posts: 3,225
    edited September 2009

    This past week I attended several information sessions on nutrition specific to cancer. These sessions were sponsored by the cancer centre or cancer support centres in my community. No one knows the answers on soy and flax. There is research supporting both sides of the debate. I think we just have to recognize that there is controversy and make our own decisions. But I have to say that I have definitely learned a lot. I am now using chia seeds instead of flax. Has anyone else found chia seeds?

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited September 2009

    Helen, we do each have to decide for ourselves what foods to avoid.  But I'm refusing to get my knickers in a knot over flax.  I didn't consume it before bc, and it has so many other health benefits that I'm not concerned about it causing a recurrence.  It's keeping my digestive system operating extremely well, and I believe the omega- fatty acids are good for the rest of me!

    Chia seeds -- same as those used to grow your own chia pet???   Must look it upSmile.

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