Anyone In Phoenix, AZ Area?

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  • wildfilee
    wildfilee Member Posts: 17
    edited December 2008

    Hi there: Sorry for the delayed response.  Sometimes I get so confused and can't figure out how to use this website!  I was computer challenged before the bc but now, wholly moly--a complete disaster.  I haven't been to the wellness center yet because I've been too sick to drive that far.  I'm seeing a new med onc on Wed. and another at Banner Desert in Chandler on Fri, Jan 2.  I'm going to try to get in at the one on Wed at their Chandler office because they have me booked at their Mesa office on Power Road which is like 20 miles away.  So we shall see.  Yes, going to the ER for fluids and then having your onc do absolutely nothing but throw up his arms and tell you your diarrhea is not from the chemo is absolute ludacrous to say the least.  And then to boot, his medical assistant called me at home and asked for an apology because she said I was rude; can you believe it.  I told her I was rude because she kept disconnecting me four times everytime she transferred me from the Phoenix to the Scottsdale Offices and I was frustrated!  I couldn't believe she didn't get it and I told her I wouldn't apologize to her. She then went on and on about how overworked Dr. Roberts had her and I told her that she should probably not be working at an oncology office but perhaps dermatology would be a better match for her!  I was so angry; Between having the doc do nothing, waiting two hours after ccalling on xmas eve after four days of diarrhea for an on-call doc and then  being requested to apologize, I was at my wit's end.  Anyway, here I am ranting again.  I'm sorry, it's just everytime I think about it, I see purple.  I'm supposed to be healing, not stressing out over an oncologist. 

    I hope you are doing well and that your Xmas was a good one.  Take care.  Joy

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  • ebann
    ebann Member Posts: 3,026
    edited December 2008

    Joy; I received your information and did send you an evite today. I do hope that you are able to attend. I am looking forward to meeting you. I hope you get everything figured out with your onc. Purple is my favorite color BTW. LOL You can rant and rave anytime you want. That is what we are here for.

    Amira; I hope that you are hanging in there. I understand having those days that you just can not move. It does happen. I wish I was able to help you pack. Is anyone else helping you? When are you to be out of your place exactly?

    Sue; thank you for the Christmas card. I hope you are doing well and enjoying your time off before school starts back up.

    Well be emailing out the newsletter to everyone after New Year's. Melody was nice enough to share her story with us. I hope you will enjoy reading it. Looking forward to seeing everyone in a week. Please respond so I know whether or not I need to reserve a table or not. Thank you and have an awesome day.

    Blessings; Elizabethresol

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  • Scrappygrl
    Scrappygrl Member Posts: 120
    edited December 2008

    Elizabeth,

    No I do not really have anyone helping me pack.  I told dh tonight we needed to get our butt in gear to pack and he just kind of mumbled at me which means I will do the brunt of the work as always.   We hopefully will get the keys to our new place on Friday (2nd) so I am setting up movers to come move our furniture and boxes on Saturday morning.   Then unpacking, phew what fun.  If we don't get the keys on Friday then it will be the following Tuesday.  And that was not an option because we can't move during the week and that friday (9th) I am scheduled to have my 2nd Chemo treatment which was why I pushed for the 2nd to get the keys.   I will know tomorrow and hopefully have a definate answer.  Thanks for asking.   I am gonna try to make it but don't want to commit until the sunday before if that's ok?  Thanks, Amira

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  • ebann
    ebann Member Posts: 3,026
    edited December 2008

    Amira;

    I am so sorry to hear that you have no one to help you pack. Does not sound like your dh is going to be much of a help either. I am really sorry to hear that, cause you are going through a lot right now and need as much help as you can get. How are things going with your precious little ones? Are you doing okay with them? I know it is not easy when you are sick and doing your best to hold it all together. Hang in there Amira!! Know I am thinking of you and if I was magic little elves would have you packed already. LOL  Letting me know Sunday is fine Amira. I think it would do you good to get out. Sometimes we just need that. Looking forward to meeting you.

    Blessings; Elizabeth

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  • Scrappygrl
    Scrappygrl Member Posts: 120
    edited December 2008

    Elizabeth, I was finally able to convince my dh to put my daughter into daycare so she started today.  That in itself has taken a tremendous load off of me!  My son goes to preschool 4 days a week for a few hours a day so that will be my quiet time to nap etc.  I think it will be alright.  Last week was definately hard with both of them so my mom helped and my dh took a few days off as well.  But we will get through it I know it!  I just got told we can get our keys friday late afternoon so that is a blessing!  :)   I will try super hard to make it.  I love Macayos and rarely get to eat there so that will be a treat! :)

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  • ebann
    ebann Member Posts: 3,026
    edited January 2009
    ny
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  • suemed8749
    suemed8749 Member Posts: 1,151
    edited January 2009

    Happy New Year! May 2009 hold health and happiness for us all.

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  • KinAZ
    KinAZ Member Posts: 180
    edited January 2009

    Hi Everyone,  I hope this finds you all feeling as well as you possibly can.  I have been slowly regaining my energy!!!!  We just returned from Pinetop.....had to cut our trip short because I had trouble breathing from the altitude.  Also got a really bad headache.  This has never happened before, so it must be leftover chemo affects and surgeries.  I go up and down the stairs at home without any trouble but up north I couldnt go 20 feet without having to sit down...Ugh  I feel fine now that Im back in the valley.  I hope to see you all on Monday.....I have 3 appts...bone scan, onco dr, lab work.....so if I am not tired I will be there.....

    2009 is gonna be better for us....HAPPY NEW YEAR BC SISTERS

    Hugs, Karen

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  • tbird57
    tbird57 Member Posts: 150
    edited January 2009

    Wishing everyone a healthy, happy and blessed 2009.

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  • ebann
    ebann Member Posts: 3,026
    edited January 2009

    Teena I could not figure out who you were with the new username. So why did you change it? Tink is very cute btw.

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  • tbird57
    tbird57 Member Posts: 150
    edited January 2009

    HI Elizabeth,

    How are you feeling?  I changed it so I could keep everything the same with some of my other logins and such...easier to remember.

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  • ebann
    ebann Member Posts: 3,026
    edited January 2009

    Hi Teena; I am doing alright. Tired a lot but that seems to be the norm. Thanks for asking. Sorry you can't make it to group this time. We will miss you! I understand about the logins. I am pretty simple about mine too. My husband on the other hand has so many for so many different things. I do not know how he does it. LOL

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  • ebann
    ebann Member Posts: 3,026
    edited January 2009

    Hello Sisters;

    I want to know if everyone is receiving their evites and newsletters. I have spoken to some of you and you have mentioned that you have not received them. Can you please let me know so that I can make sure that I have the information correct.

    I know that these sisters have received them. Teena, Sue, Jerri, Jill, Karen, & Kathy 

    These sisters I am not sure of: Joy, Tamara, Amira, & Melody,

    Look forward to seeing you sisters Monday night @ 6:30pm Mayaco's. Yeah!!!!

    Blessings from your sister; Elizabeth

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  • ebann
    ebann Member Posts: 3,026
    edited January 2009

    My Dearest Sisters;   I am getting scared, close to the end and I am so afraid that it is not going to end. (chemo that is, this cancer thing) I get this big thing caught in my throat and I have a hard time breathing, and I just want to cry cause I am so afraid. The end is right there and I feel it. What is going to stop it though? Will I make it to chemo? Will this really be the last round? Is there no more cancer or has it spread? Why do I have to wait? I just want to know now! It is like a nightmare to me. I remember getting the news, oh how it could not be true. Then I think I am done and come to find out I am not. I stopped reading about IBC and cancer. I just need to clear my mind from it. I want to be an advocate for IBC and be active in our group and start to have fun.  I just need to space myself. I know it is going to take time for me to get well and back on my feet again. My mind is driving me crazy though. I just can not seem to get excited about Wednesday being my last chemo. I want to but I am afraid too. Do you understand what I am talking about?  Like church wants to celebrate Friday my last chemo, yet how do they know? Why celebrate uncertainty. I want to know it is final. I am praying and asking God and believe that anything is possible through him. Just I still continue to question it all. I have a life and want to be able to celebrate it. I mean really celebrate it. I feel even though I have grown closer to God and I am grateful for that. I feel that part of my life has been taken away from me cause of these last few years. Do you understand what I mean? I feel rather cheated. I know I am just venting and there are other people out there who have it so much worse than I and I really do not need to be complaining. I am fortunate so far and I suppose that is how I need to look at it. I have woken up each morning breathing in a new day. I get to spend time with my friend Tracy, time with my BCO sisters, and my husband and my daughter and my mother. People who matter the most to me. So just excuse me for all my stuff. I am just having a moment but feel better now that I let you know how I am feeling.

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  • MelodyinAZ
    MelodyinAZ Member Posts: 25
    edited January 2009

    Happy New Year to everyone. Just wanted to say Thanks to Sue, Jill and Elizabeth for the get together last night. I was a most enjoyable evening and yummy dinner.

     Hope to see more of you next month. It really is nice to meet everyone and have an enjoyable evening. Thanks Elizabeth for all the work you do keeping us informed and invited.

     Melody

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  • luvmyself
    luvmyself Member Posts: 146
    edited January 2009

    Good evening ladies-

    It was sure nice meeting all of you last night. Looking forward to seeing everyone next month and hope that more can join us.

    Elizabeth-  Thanks for coordinating and I send my thoughts and prayers for an uneventful LAST TREATMENT tomorrow!!  I'm planning on starting my garden in the next couple of months and you are welcome to join me!!

    Sue- What a small world-  I can see how you and Rita are related-  You are both such sweethearts.

    Melody- It was nice meeting you and look forward to more great yummy dinners!!

    Jill

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  • KinAZ
    KinAZ Member Posts: 180
    edited January 2009

    Elizabeth, I am so sorry you are struggling with the uncertainty this disease brings us.  We know we are mortal and look forward to life after death......but this damn bc has a way of knocking us down over and over.  Even after our treatments are finished,  as if it never ends!  You have had such a long road and so much to deal with.....it is no wonder you feel this way.  I understand how you feel as December 7th was my 1 year mark for dealing with cancer.   I thought I was done...but now find myself waiting for more tests next week.  I had my first follow up yesterday after chemo and surgery.  Left thinking all was good till the dreaded call this morning.  Dont you hate how it can just consume your life...I have been running a low grade fever and am anemic.  I read the post about life after bc,.  It is a guidline of sorts and what we are feeling is totally normal.  In time it will be less intense...never totally gone, but not so consuming.  The end of chemo was my lowest point physically which affected my moods.....did you experience that your first go around?   If you want to celebrate the last chemo day, go for it...if not then DONT...You dont have to try to make everyone understand.  It is time to pamper yourself.  Hang in there, it will get better.

    I missed you all last night but I was just too tired.  I look forward to next month!  You are in my prayers.

    Hugs, Karen

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  • ebann
    ebann Member Posts: 3,026
    edited January 2009

    Hello Sisters;

    It was so nice getting together with everyone. I did miss those that could not attend. I hope next month we will see more of you. For on Feb 2nd we will be in Chandler. Joy has opened up her home for the cookie exchanged. I am so looking forward to it. I will send the invitation out through your email. If you would rather get a snail invite let me know. Also I live in Glendale if anyone on this side would like to car pool let me know and we can sit it up. For there is 5 of us that do.

    Sue, Melody, & Jill your welcome. I love putting things together. I think it is important that us ladies get together and have fun. Not always about cancer, but other things we enjoy about our lives. Also thank you for letting me know I am not alone in what it is I am going through. I felt better when I left Maycao's. Jill I would love to come over and check out the planting of the garden that is something I have always wanted to do, just never knew how to get started. Plus I have felt Arizona sun and lack of water kills it all. So inspire me! LOL

    Karen thank you for your words of encouragement.I have experienced that chemo does effect my moods, just not as bad as they really would be. I am bipolar and take all kinds of medications. I do take mood stablizers and that keep me from being a roller coaster. I was scared at first cause I did not want the chemo to effect my medications. I have worked hard in finding a balance that works for me. When you find it you want to hang on to it. It has made such a big difference in my life. Karen we understand tired. Rest is what you need. We missed you too.

    Sisters I love you and am glad that we have a group. More fun to come. Sending you blessings along your way. Elizabeth

    cookiesUpcoming event COOKIE EXCHANGE!!!!!

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  • ebann
    ebann Member Posts: 3,026
    edited January 2009

    My apologies I meant that Jill will be opening her up in February.

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  • ebann
    ebann Member Posts: 3,026
    edited January 2009

    Well I did complete my chemo today and  saw my onc. She told me no more chemo and that my PET Scan will be in March and we are hoping it is clear. I am a triple neg. Which means only aggressive chemo works, anti hormonal drugs do not work nor does HER2. Which because I can not take that increase my chances of reoccurrence. The fact I have IBC reoccurrence is high too. So my odds are not the best. She said I can still get IBC in my same area of the chest wall. So I need to watch for a rash and when my body experiences any pain to alert them. She does have 5 year survivors with IBC. She has treated 40 patients with IBC in 2008. So I am doing my best to take all this in.  My blood counts are all low and I have to go to the hospital tomorrow to get 2 units of blood. I know that is going to make me feel better. I had one in September and it made such a difference. I will be going in every week for my nuelasta shot until my wbc are better. I will be going in every 2 weeks for Arimist for my rbc.  Will be doing this until I am in a good place. No wonder I have been so tired. I have to go at 7 in the morning. That is so early for me. But I will be pre medicated so I will sleep anyways. That is a good thing. Thank you so much for the prayers they mean a lot to me. I appreciate all your words of encouragement. Now we are praying that my scan is clear and that I will be lucky and have no reoccurrence.

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  • KinAZ
    KinAZ Member Posts: 180
    edited January 2009

    Yeah Elizabeth.....no more chemo.  Soon you will begin to feel a little better each day.  I will keep you in my prayers for a clear outcome in March.

    Hugs, Karen

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  • tbird57
    tbird57 Member Posts: 150
    edited January 2009

    Elizabeth, I'm praying for you, girl!  Much love, Teena

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  • PinkLaddy
    PinkLaddy Member Posts: 133
    edited January 2009

    Elizabeth how are you doing?? Sounds like you had some really TOUGH days there. I haven't been on the boards for days since my Chemo and they seem to get worst with the end in sight.

     Just checking in on you Lady.

    Jerri

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  • polishqueen71
    polishqueen71 Member Posts: 17
    edited January 2009

    Hi Ladies,

    I don't mean to get off the subject, but was wondering if you knew any aerola tattoo artists in town.  My PS gave me 2 numbers and both have failed to work out.  I was hoping to start the new year finally done!!!!

     Thnx, Ginger

    Elizabeth...the last Chemo is a blessing and a curse...I  think all that crap just finally wears u down, but u almost don'e care cuz its ur last...Don't over do it!!  God Bless

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  • ebann
    ebann Member Posts: 3,026
    edited January 2009

    Hi Jerri I have had you and Amira on my mind lately. That means prayer time when someone is on my mind. :-) I am hanging in there. Actually done with chemo and radiation so that is a added plus. Have to wait for a PET Scan in March to see if I am cancer free. So that is the part I hate.  I am so sorry to hear that the side effects are getting worse. I so do know how that is. Hang in there, eventually it does get better. I know it does not seem like it right now. I have been doing chemo for almost 10 months. We love you Jerri.....I will make the time to give you a call sometime.

    Blessings your way; Elizabeth

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  • ebann
    ebann Member Posts: 3,026
    edited January 2009

    d

    February 2nd, 2009 Cookie Exchangec

    Location: Jill McCormick's Home  address and direction have been sent to you through your email. So please check them.

    Time:       6:30-9:30pm

    RSVP:      January 28th 

    Needed Items for the cookie exchange: (let me know what you would like to bring)

    • paper plates
    • a gallon of milk
    • ice tea
    • napkins
    • saran wrap
    • paper cups

    Everyone bakes a dozen cookies.  Bring the recipe with you, enough for everyone to take home with them. If you are not much of a cook then you can by them from a store, bakery, make them from a box, pouch, whatever. Just let us know the brand or store you got them from.

    c

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  • ebann
    ebann Member Posts: 3,026
    edited January 2009

    February 2nd, 2009 Cookie Exchangec

    Location: Jill's Home  address and direction have been sent to you through your email. So please check them.

    Time:       6:30-9:30pm

    RSVP:      January 28th 

    Needed Items for the cookie exchange: (let me know what you would like to bring)

    • paper plates
    • a gallon of milk
    • ice tea
    • napkins
    • saran wrap
    • paper cups

    Everyone bakes a dozen cookies.  Bring the recipe with you, enough for everyone to take home with them. If you are not much of a cook then you can by them from a store, bakery, make them from a box, pouch, whatever. Just let us know the brand or store you got them from.

    c

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  • suemed8749
    suemed8749 Member Posts: 1,151
    edited January 2009

    Elizabeth, you find the cutest graphics! Hope you're doing well.

    Sue

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  • ebann
    ebann Member Posts: 3,026
    edited January 2009

    Hi Sue, I am doing pretty good thank you for asking. I do like graphics. Anything with art and animation I enjoy. Are you gonna make it to the cookie exchange? So far Jill & I are the only ones. Though I have time before everyone responds. Have an awesome day!

    Blessing; Elizabeth

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  • KinAZ
    KinAZ Member Posts: 180
    edited January 2009

    Hello to all my Phx area sisters....It has been so quiet here lately.  What is everyone up to?  I hope your all feeling well.  I am having lapband surgery next Wed.  I want to lose some weight before I have my DIEP reconstruction.  If I am feeling well I hope to see all of you at the cookie exchange!

    Hugs Karen

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