So depressed! Help, please

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jfsnh
jfsnh Member Posts: 39

I am 2 yr past dx, one past tx--mastectomy, dose dense chemo, radiation.  Stage 2B, 4 nodes.  I have seen a therapist for support all the way through.  I was doing OK, then in Sept started to slip and it has been down, down, down ever since.  Trouble sleeping, anxious, unable to focus, fatigued, and just so down I feel desperate.  Taking Effexor, wellbutrin and xanex.  Still down.  My relationship with hubby was very strained by his reaction to my CA.  I have neuropathy in my feet, and fall about 1 time a moth.  Chemo brain to the max.  I left work, went back to school, but it is so hard.  I only have one more semester, but I can barely get through each day.  My onc stopped my femara a week ago--no help yet, we'll see.

I can't keep up like this.  Am I the only one, this far out, who feels this way?  Has anyone had this issue with Femara?  Any wisdom appreciated. I seem to get the "is it menopause (chemo) or side effects of CA tx or just plain depression"  I don't even care.  I need to feel better.

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Comments

  • guitarGrl
    guitarGrl Member Posts: 697
    edited December 2008

    It sounds an awful lot like bad depression - this disease is very scary & can get to you.

    Not all anti-depressants work with all people. Also, some of us develop a resistance to certain kinds and have to switch. (I've switched 3 times)

    Make an appointment with a psychiatrist - this isn't something the onc can help with. A psychiatrist can adjust your meds with the proper training.

    susan 

  • jfsnh
    jfsnh Member Posts: 39
    edited December 2008

    I do see a psychiatrist--but that is where the "what's it about" question comes in.  I have been on Paxil and Effexor.  Effexor worked great until the past couple months.

  • wishiwere
    wishiwere Member Posts: 3,793
    edited December 2008

    Just a question, but isn't paxil contraindicated with the tamox or Ai's?  Maybe thats why it's not working?  Ask your pharmacist if they are contraindicated. Are you on tamox or another Ai now?

  • jfsnh
    jfsnh Member Posts: 39
    edited December 2008

    yes, I was switched from Paxil to Effexor when I went on Tamoxifen.  So now I am on Effexor and Wellbutrin and Xanex.

    Femara is an Ai.   I will be off it for a month.  If that lessens the depresion, then we need to figure out if there is any Ai I can tack.  Tamoxifen was a nightmere with constant hot flashes resulting in dehydration and electrolyte loss.

    Jody

  • NoH8
    NoH8 Member Posts: 2,726
    edited December 2008

    Who is prescribing your antidepressants? General MDs can prescribe, but aren't as adept in the intricities of more complicated depresion. Psychiatrists have much more specific knowledge of the ins and outs of different medication combos that work in treatment resistant depression.

  • jfsnh
    jfsnh Member Posts: 39
    edited December 2008

    I see a psychiatric nurse practisioner.  She is very good, and listens.  I also see a therapist every week, and go for Reiki to help me deal with stress.

    Jody

  • pennylane
    pennylane Member Posts: 177
    edited December 2008

    So sorry you have to deal with persistent depression.  I have juggled a bunch of antidepressents and tranqs myself since dx...Wellbutrin which has a great reputation was just awful for me....left me in a deep dark well.  Lexapro and valium were a calm and steady fix  (again, for me)....I sure hope they keep subtracting meds 'til they find the culprit.  Perhaps take old-fashioned valium instead of Xanax....I find it has a much lighter touch....And of course, keep working out...walk, walk, walk....There must be some way to get your endorphins to kick in!  Anyway, just wanted to tell you,I sure do sympathize with your plight....Hang in....You will find your way out......Best wishes, P

  • NoH8
    NoH8 Member Posts: 2,726
    edited December 2008

    Is there a way you can see a psychiatrist, for an evaluation for your medications. Psychiatric nurse practitioners are good, but you'd get someone with more experience and knowledge to look at the cocktail of meds you have. Once you get the evaluation and perhaps tweaking of the meds, you can go back to seeing the NP for monitoring. You're doing everything right, seeing a therapist, doing reiki and reaching out. Not all meds work for everyone because the biology of depression is different for everyone and psychiatrists have the years of schooling, training and education to ,make the best call.

  • jfsnh
    jfsnh Member Posts: 39
    edited December 2008

    Thank you all for your responces.  I stopped the Femara at Thanksgiving, and my depression has lifted a great deal.  Still, no one else has posted that they had depression with Femara.  I still don't know wh, but I do feel better, good enough for me, now at least.

    Jody

  • Sierra
    Sierra Member Posts: 1,638
    edited December 2008

    Hi Jody>>>

    I agree with this suggestion re the psychiatrist

    Personally, I dont take anti deps or these meds

    without counselling...

    I do know about depression

    have had it off and on.. and took several anti deps

    they were ok for a while with me.. but then I wanted to help myself

    and get to the root

    Last year, I had to get on them.. and maybe you are a bit

    worse now because of SAD.. many gals get this

    i send you a big hug

    and understand.. how you feel

    it is a tough grind.. depression

    2 yrs out is not a long time.. and it took me a real while to get

    onto a new life

    each one is different

    Sierra :))

  • dlb823
    dlb823 Member Posts: 9,430
    edited December 2008

    Hi, there ~  Reading through your question, I wondered if your psychiatrist deals with enough bc patients that he really understands the unique stresses of it?  I'm asking that because the point was made to me at the major bc center where I've been treated that it's extremely important to talk to psychologists who specialize in bc because there are many intricacies about it that make it quite different from other life stresses, including other life-threatening illnesses.  So, even though a woman might be getting excellent general counseling, it may not be quite as on target and helpful as you would get with someone who is totally versed in bc dx's and familiar with the psychological challenges of living with it.  Hope that makes sense, and just something I wanted to pass along  to add to your thought process.  Take care ~  Deanna 

    P.S.  On the neuropathy... someone here clued me into using B6 when I was going through chemo.  That was when I had first started to get symptoms of neuropathy in my feet, and it totally resolved it.  I don't know if it works as well when you are having the problem post-chemo, but it might be worth a try, since it's inexpensive and easy to find.  If you try it, just be sure to get a good natural brand.    

  • jfsnh
    jfsnh Member Posts: 39
    edited December 2008

    Thank you all for your help.  I do go for weekly counseling, and my counselor is very up on BC and really helps me to vent, and to get to the central issues.  That is why the drastic downturn was so unexpected.  I am doing better now.  I stopped the femara, cancelled my reconstruction surgery (just too stressful right now) reduced day to day stress with a couple weeks off, and made some decisions about how I can change my personal life.  I still think the femara was a good part of the problem, but for whatever reason I am headed in the right direction.

    Re: neuropathy--I have taken a B complex ever since the neuropathy first appeared.  Unfortunately, I am one of the unluky ones who will have it forever.  My neurologist did nerve studies, and the damage to the nerve sheath goes 2/3 to my knee.  Even if the nerves recover, they do so at such a slow pace it would be many, many years befor my feet improve. Long term I hope to move to a home without stairs, since when I fall it is on the stairs 99% of the time.

    I appreciate the support.  Jody

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