Starting Chemo May 2008
Comments
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Roxi, it's 94 cents to Kerry and 72 cents to Noelle. Pretty inexpensive, considering the distance!
Kristy, hey, I have 'em too ('rhoids I mean). I was kind of glad they found something while they were in there--otherwise I'd have been worried they weren't paying attention.
OMG, Eddie's having an ooph tomorrow! This could be the sucky thread, considering all the stuff that's going on.
That is, except for the phone call I got this evening--from rock! What a wonderful surprise! We talked for a long time, but after I hung up, it felt like we had hardly begun and there was so much more to talk about. I do hope we can all figure out a way to get together some time. I'm envisioning a nice, wide porch somewhere, sitting in big chairs and sipping our favorite drinks.
Hugs to all of you...
otter
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I love you guys. I'm hanging in there. Tired, but very thankful for each of you. Doctors appointments tomorrow and Thursday; nothing special. Routine stuff.
Kristy-- I'm glad you came through the "up periscope" okay. I'm right ... behind you. And Otter? What Otter was too gracious to report was that when I called her and she answered the phone, I started to cry and couldn't speak. (Sue, we were sitting on your porch, draped on your porch steps.)
G'night and lots of love.
Mommy: I THINK I started Tamoxifen at the same time as rads and did fine. (I'm pretty fair-skinned.) I have some hot flashes when I'm in stressful situations, but in general, things have eased up quite a bit.
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ok, so my hospeetal day was uneventful. Met a (15 years ago!) BC woman in the waiting room. I looked like a toddler compared to all the sad faced women there. She was the only one who spoke to me( Canadians rarely speak to each other in lines or waiting rooms) the squishing was fine. Do they ever look at the mast side with anything??She did say she was not unhappy I had no port, as a mammo with a port means they cannot get images of all the breast tissue. My Herceptin was mostly uneventful except for the 90 min wait to get in. I just worked on my phone making orders and such In a room full of more non talking Canadians.
It is snowing like crazy crazy here. I like it, but the shopping will be wonky tomorrow.
I bought my first house today... it has a leaky basement and is already a mess! LOL! As I told you, I live in the house mom bought before she died. Her will said I could live here for 2 years and sell it or buy it. MOVE? now?? HA! so, I bought it. It was soooo uneventful it was funny. I met the lawyer for 2 minutes, filled in some paperwork. He called later and said something about a transfer being approved on my voicemail and dat was it! I'm a homeowner.
ok gotta run. Love to all. Mummy I am her2neu, so I know nothing about Tamox. Sorry!
I'm gettin' some lovely cards! Thanks!
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Eddie! Have an easy oof day will ya!
les Oeufs n'est pas important!
ok, that was goofy.. but I think you'll get it.
N
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Otter - I had the same thought last night as I was trying to fall asleep, that I have a deep need to meet each and every one of you.
Noelle - Before I forget again (damn chemo!), I watched the videos on curly hair you posted about 3 pages back and for the last 4 days, I have curly hair again!! Yay!! I had been towel drying it too much and getting frizz. I also hadn't used my diffuser correctly and now - voila! Curls! (Can you tell I'm excited?!) I wonder what would happen if I actually used the products, too...
Kristy - Glad everything was okay. Hope the ooph goes as easily. Can they do it laproscopically?
Rock - I forgot to say yesterday that I agreed with everyone else on "giving it a rest". I am so with you on that. It's time for the year of "one more things" to be over!
Okay, I'm back to wrapping presents while little peoples are sleeping...it's what I do now that I've stopped reading applications.
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Good Luck Eddie on your surgery today!
Cristine,
I am having a total hysterectomy instead of just the OOPH and they are doing it abdominally. I had a previous abnormal Pap smear -it cleared up- but docs and I felt like having the hysterectomy instead of just ooph because of that and because there is a link with uterine cancers with some of the hormones used. I didnt want to have abdominal surgery twice in the event of another abnormal Pap at some point. I dont have enough cervix intact to do it vaginally or laporoscopically- due to the 5 children and a previous LEEP procedure.
Happy Holidays!
Kristy
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Good Luck Eddie, we're all here for you!
Thanks for the postage amounts Otter. My friends in foreign lands, please excuse my tardiness since I'll be re-sending out cards to you all.
I too can't wait to meet you all. I look forward to the day when we can just relax and move on with our lives, together.
Mummy, me too, her2, no tamox.
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Eddie , my thoughts and best wishes are being sent your way...hope your recovery is quick !
Got the cards out yesterday...Kerry hopefully yours get there by the New Year !
Still have a few more small things to pick -up before i can say i am done with the shopping, haven't done any baking yet will hopefully get that done this week before the boys get home! At least the nut & bolts are made.
Have to try and get my mom out of the house today...it's been so cold here she doesn't want to go anywhere. I don't think she even gets it that Christmas is around the corner...it's really quite sad. I even have to remind her in the morning to let the dog out ...take her pill and the other important things to get the day rolling. I guess i will be there one day....with chemo brain it's seems i have already arrived !
Have a great day everyone!
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Hey women,
Thanks for the good wishes. I am headed to the showers now to "sanitize" for the surgery. They told me not to wear deoderant, lotions and not to put product in my hair. I told them it would not be likely. I am more nervous about that tube they put down your throat in surgery than the actual surgery itself. Will check in with you on Thursday. I will be offering the ovaries to the cancer gods with all of our names attached. I am telling them I am sacrificing a part of my body that was very important at the time, but hoping they will accept the ovaries (sunny side up?) and leave us all alone! Talk to you soon.
Mommy, no word on tamox here yet as I got my onc to give me a full medicine reprieve once I finished chemo. Will go on tamox at next herceptin treatment in January. Have been flashing some but not bad...hope tamox doesn't kick in in more. Ciao all.
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Mommy~ I've been on the tamox for about 2 months now. Can't say anything about taking it with rads as I didn't have those. The se's.... eh they're ok I suppose. I am having a few more hot flashes than what I was having before but for the past week (knock on wood) they seem to have been tapering off a tad. Now I'll probably have a monsterous one all nite now that I said that. Besides that everythings ok. I gained a few pounds last month but I'm not sure if that was the drugs/herceptin/ or all the holiday crap I was eating. Dropped it all back off recently to boot.
OH! I found a good side to hot flashes!!!... If you have a really bad cold and you have a hot flash, it clears up your sinuses for about 2 minutes ROFL~!
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Eddie -- THINKING OF YOU. Hope you are healing and that recovery is swift and uneventful!
xoxoxo to all of youse!
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zzzz.. long stupid day. My assistant is a complete idiot. I found two HUGEEEEEEEEE mistakes he made in the "shipping department" He is asleep at the wheel of my car!
In Feb once I am done trips to NYC, tradeshows and inventory I get to CUT his hours and see how that plays out. This was all supposed to happen LAST January. I have decided 2009 is my own personal do-over. Just like that movie Groundhog day...
My high school part timer just gave notice today to add to the stress of a busy, but not busy enough season. Today was a long one, tomorrow will be worse.I have my yearly stress rash on my face, an itchy dermatitis that hits the area around my eyes. I hope everyone is peachy. I got a little online shopping done today( I am allergic to stores most of the time) ok, off to bed.
love to all.
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Ah, ladies, today was the last day of our school year with kids, (tomorrow is our staff breakfast) and it hit me like a freight-train: where did that year go? Where was I? What happened? WTF??? After work I was talking to a young friend (who spent 2 weeks in the French Foreign Legion, I kid you not) and was describing this whole bc thang as like being abducted by aliens. You know..you kind of remember, but not really. You are deeply affected, but are you?? Did I dream it? No..I have the scars! How weird is this?? This evening was hilarious. It was our staff break-up. Chemo-brain made me send the TWO taxis to TWO wrong locations because I couldn't remember where the dinner was! The cabs were so slow that by the time we found out where the dinner actually was we decided to just not go, and to have a lovely dinner for two at this nice restaurant (No.2 incorrect destination). The irony is/was that tonight was the FIRST night out 'topless'. I even coloured the hair (such as it is) , shaved the legs (waxed the mouche yesterday) and dressed up rather than 'don't give a feck' down, for my colleagues and THEN didn't know where the do was!!!!@#$@!! I am so over this cancer shite! AND THEN we got home to discover that the dog AHA! CAUGHT! has been sleeping in the cat's bed! The fecking liberty! My life is off the rails. Thank goodness I have no procedures this week....oh, that's right..I HAVE CHRISTMAS!!
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Now, calmly. I have had the BEST mail! In have had cards and treats from people I have never seen..a bit like a sponsor-child I suppose
I have had little cries and felt a kind of relief wash over me. My sisters. To all you girls grappling with ovary-removal and any number of other interventions: I'm right there with you, from the Southern Hemisphere! This year ends really soon and then we will be Fineganbeginagin! 2008 will seem like a bad dream. Or...an alien abduction, perhaps. Now...how can I keep that dog out of the cat's bed.........
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Kerry, I'm thinking (again) how much I love the way you write - the profanity, the images! Abduction by aliens . . . yep, that's a perfect way to describe 2008.
Did you get my telepathic Christmas card?
Linda
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Eddie-hope that you are recovering well!
CTHave /PET scans were all clear!! Have appt this morning with the rads onc. Port stays in until after rads. Will have to go in to med. onc to have it flushed once a month Will start Taxoxifen in March. Onc. is starting me on Neurontin for the numbness in hands and hot flashes. Not really thrilled about starting a new med.
Love all the cards! I think that they are my favorite part of Christmas!
Yeah-I was abducted by aliens--yeah--that is now my story! (And I'm sticking to it!)
Have to get motivated and get some cleaning done before DS gets home from China!
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Kerry, you nailed it girlfriend. I seriously thought I was dreaming the other day but aliens, oh yeah. They just want to see how much we can endure in our lives and boy were they shocked to find our how strong and unbeatable we are. Sorry you never made it to the party but your alternative party sounds just as fun. Yeah for hair!
Eddie, hope the cancer gods appreciate the early gift. Hope your recovery goes quickly, you too Kristy.
Noelle, so sorry about your staff quitting and your other problem at work. I wish I could send my daughter your way. She's an extremely hard worker.
Grace, glad to hear your scans were all clear.
Got the calls yesterday. First from the genetic testing. I don't have the brca gene. My daughters and sisters were very happy. I guess my cancer just happened, no explanation. Just gods way of seeing how strong I am I guess.
Bone scan, yep, periosteriposis (is that the word). Pre- osteroposis. New med to take once a week to battle weak bones. Thank you adriamycin.
Blood work, oh yeah, need to lower my cholesterol, get back in shape and lose weight. My goal for 09.
Got my cookies done last night for our cookie exchange tomorrow. They're calling for 14 inches of snow tonight. Gotta run to work, love you all.
Merry Christmas RanD, thinking of you.
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No time to read... etc.. thought u should see this.
"Our findings reveal for the first time that all the major complex phenols present in extra-virgin olive oil drastically suppress overexpression of the cancer gene HER2 in human breast cancer cells".
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Kerry~you crack me up! And I have to agree with the alien abduction. <envisions 3rd rock from the sun episodes LOL>
Noelle~If I lived closer I'd be more than happy to come up and help out. Of course I'd have to stand around and sniff everything first mmmmmmmm.
Roxi~ YAYAYAYAYAYAY! One less thing to worry about.
Gracie~ YES! congrats on the clean checkup.
Eddie~ I'm resisting the urge to look you up in the phone book and call and check up on you. I hope you are doing ok sweetie!
RanD~we miss you !
To the rest of my ladies, have a fabulous day!!!
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Any of you ladies here order from LL Bean? I have a $10 gift cert that needs a home that will use it.
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en route docs.
Hands clasped and pounded to heart for you, Noelle. And then I'm giving you a hug so hard that you say, "Ow! Careful! Careful!"
To all of you, actually. Jacki -- YES! YES! YES! to good scan results. (Fist pumping and a little dance.)
Roxi -- I'm very happy you don't have the mutation. At the same time, I can imagine that there might be a feeling of "Well, heck, then why DID I get it?" I just want to throw it out there to you and to everyone that I do not care if you have spent your whole life eating red meat and chainsmoking, you did not deserve this. For all we know, you were just standing in the wrong place when a school bus belched some exhaust ... Maybe bc goes after the most thoughtful, funnies, most supportive and insightful women. Maybe. We'll never know.
I'm off to two more doc's appointments. Am intending to be on the Gracie-plan and get good results. There are holiday cards in my purse. And I am taking you guys with me into the breast MRI tube. It may be a little "squished" (xoxo jen!) but I wouldn't do it without you wonderful people.
*sniff* love you, jeanne
(Karin -- your card came yesterday and i'm carrying it around it like i'm a 2nd grader, you know?)
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Eddie - Hope all went well, I hate the tube, too. It's the worst part (well, one of the worst parts) of surgery. Feel better!!
Kerry - Alien abduction - yes. After my follow-up with the med onc on Monday, I was talking to my dh on the way home. I was explaining to him some of the conversation with the med onc and said I was going to talk to my OB/GYN re: hysterectomy v. ooph, etc. He says "Why?" And then I had this surreal experience of hearing and watching myself explain that once you've had bc your risk for other cancers increase, blah, blah, blah. But I also remember thinking "Who is that talking about all this?" "Did I have CANCER?!" (Reminds me of Adrienne and RanD's convo a long time ago - "SHIT - we have CANCER!?!") It felt like an out-of-body experience. I don't think I say it out loud as much as I think it or write about it, so saying it felt extremely weird. Or, if I do talk about it, it's mostly as the introduction to then the surgery-chemo-rads experience. I think alien abduction describes it perfectly.
Went to dd's holiday concert last night. This school is so awesome! Almost every child was in at least one act, the gymnasium was full and we were exhausted when we got home. But it was great. Dd was glad because she remembered her notes and didn't squeak on her clarinet!
Gotta run - Little dd is next...20 Kindergarter's singing Christmas carols!!
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Wild day yesterday. You'd laugh if you read my blog (just google Eddie Westerman) as the details are there but bottom line is I did finally have surgery and my ovaries are gone and I am enjoying the gorgeous snow storm.......SO glad the scans are clear. So glad you are in my life. So glad all is well. So glad snow is so pretty. I am feeling very grateful!!!
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http://www.youtube.com/watch?v=u_4qwVLqt9Q
My gift to you for the day.
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Eddie - glad to see you were able to have your surgery after all! What a day for you. Sit back, relax, watch the beauty outside your window and heal.
Thanks for the link and a good cry.
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Leave it to eddie to eat the apple! Shame on you LOL. And dang it that vid made me cry. I can't wait to win the lotto so I can bring us all together for a in person group hug!
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Congrats on getting through it Eddie- hope you are feeling well and start recovering nicely!
I have herceptin tomorrow- Im asking for my favorite nurses so hopefully wont have multiple sticks!
Merry Christmas!
Kristy
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Saw rads onc today. More tests--a CT next Mon and mammogram of right breast on Wed. (Christmas Eve) Then on Dec. 29 will do the simulation and go 35 treatments from there. I survived 7 months of chemo, so 7 weeks of rads should be a breeze!
I'm all for the group hug! Don't know what I would do without all of you!
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Well, after watching that youtube video and learning more about Kelly Corrigan, I'm badly in need of a group hug. Can we do a virtual one, at least? Please?
Eddie, good grief. A slice of apple, and they chased you away? I hope somebody at that hospital had to take a remedial course in common sense because of that. Don't tell anyone I said so, but I've read in lots of places that the old "nothing by mouth after midnight" is a bunch of bunk, too, unless the surgery is scheduled for 4 a.m. or something.
Kerry, it was aliens. I'm sure it was ... I think. Here, I'll show you. I have this scar, y'see...
Hi, rock. How's it going?
DH and I went to his (former) department's Christmas Party today. I knew there would be lots of people there, and I was so sure I could come away with a list of comments I'd be able to post on the "Stupid things people said..." thread. But, nope. Pretty much everyone said something to me, and everybody gave me a hug, but there wasn't one single comment that was out-of-place, unwanted, awkward, etc.
Oh, and I went "topless". I took some pics after we got home:
Check out those curls!
otter
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WOW Otter! I have hair envy! To be honest with all that hair you have grown back in, if I didn't already know, I wouldn't be able to guess it was all newly grown.
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