Help Us Please!

Options

Hi, I wanted to post this concerning us ladies that suffer with Anxiety and Depression. I do. Alot of mine is called Post-Traumatic Stress Syndrome. And, fear..........of the unknown. I would like to see a new Thread started on the forum relating to just this. I do know many of us ladies suffer a great deal of Anxiety and Depression. And, it would be nice not to mix this up with the ladies just being diagnosed and going through treatment. So, I do feel we should have just a Thread on the forum for this only. So, we can come here, and support each other.

God Bless,

Love,Kaloni  Flowers





Comments

  • HeatherBLocklear
    HeatherBLocklear Member Posts: 1,370
    edited December 2008

    Dear Kaloni,

    I think this would be a good and appropriate thread since I believe most of us do suffer from the conditions you describe. I don't take anything for mine, but probably should.

    Do other women on the boards recommend something?

    Thanks,

    Annie

  • ggrose
    ggrose Member Posts: 64
    edited December 2008

    Hi Kaloni,

    I can't stay on line for too long tonight but wanted to jump in and let you know that you are not alone.  I'm struggling right now to make sense of life and learn how to cope with the anxiety.  I've bumped an earlier thread on Anxiety and Depression which has some good suggestions.  I think its a great idea to devote a thread to this issue.  For me, the emotional damage caused by BC is worse than the physical.

    Hugs,

    Rose

  • PinkyLee
    PinkyLee Member Posts: 648
    edited December 2008

    I was so depressed at one point that my ps told me he was concerned with how I looked.  My sister stopped by and I broke down in tears.  I have been taking Prozac for about amonth now and still I have my crying moments.  Cancer so sucks that you can't help but be depressed.  The unknown, the brokeness that it causes.  The reck it makes of your body.  I hate it!

  • mumito
    mumito Member Posts: 4,562
    edited December 2008

    I think the holiday season even makes us all worse.  We are expected to have holiday cheer but all I want to do is drink the holiday cheer.

  • my2boys
    my2boys Member Posts: 339
    edited December 2008

    Good Morning Ladies.....

    I have found that this journey is filled with anxiety or a fear of the unknown.  My doctor prescribed Xanax and I use in on the days of my surgeries, bloodwork and I used one yesterday on the day of chemo.  It really helps to calm my nerves and relax me a bit. 

    I don't take it everyday, just the days that I need to calm down.  I would encourage you to ask your doctor for a prescription of some sort to help you on your tough days.

  • ggrose
    ggrose Member Posts: 64
    edited December 2008

    I just got a presciption for Xanax and it really does help.

    I have to see my onco for follow up visits and bloodwork every 2 months.  I've found that the anxiety starts about a month before my appt.  By the time I get in to see my onc, I'm a total basket case.  Hopefully I can take the Xanax when the anxiety starts and it won't build up to crazy levels.  

    I have also started to read the "Picking Up the Pieces" book that someone suggested on the Depression and Anxiety thread.  I'm not very far in to it yet but think it might really be able to help me through this stage.  Is anyone else reading this book?  

    Hugs,

    Rose

  • paras
    paras Member Posts: 63
    edited December 2008

    dear kloni i did get a rx for xanax . and i do not ususally take it only if i feel anxiety and it helps your dr should prescdribe this for you if you ask for something to help you you do not have to suffer. hope this will help you just knowing i have it in the cabinet helps me if that makes any sense.

  • fightinhrd123
    fightinhrd123 Member Posts: 633
    edited December 2008

    I was terrible, crying all the time, didnt enjoy anything,so Iwent to see a psychiatrist, turns out she had BC 2 years ago, (totally random, had no clue when i picked her name of a list) and she put me on lexapro, what a difference.  I was on zoloft years ago for panic attacks and hated it, had horrible weight gain and side effects, lexapro I havent had any, and I havent had one bad day since ive taken it.  Its really really helped me.  Ive had good news so far thank god, so thats helped to, but the difference is night and day.

  • paras
    paras Member Posts: 63
    edited December 2008

    dear frightened123 i am glad you are feeling better. i have found that i take this cancer thing one minute at a time my nurse practioner told me this and i  finally have been able to apply this in my daily life. i wish the same for you.

  • leaf
    leaf Member Posts: 8,188
    edited December 2008

    I was diagnosed with something similar to PTSD (from childhood issues) a short time after my LCIS diagnosis in 1-06.  I was shocked.

    I read up some about PTSD, and here is a link to the APA guidelines for the treatment of acute stress disorder and PTSD. http://www.psychiatryonline.com/pracGuide/pracGuideChapToc_11.aspx

    It sounds like benzodiazepines (such as Ativan, Xanax, Klonopin, Valium, Restoril, etc.) may not be helpful for PTSD, though they may help with other anxiety disorders.

    "The benzodiazepine was ineffective against PTSD reexperiencing and avoidant/numbing symptoms, although it did improve sleep and general anxiety. Rebound anxiety related to alprazolam treatment was also observed during this trial. In addition, a postdiscontinuation benzodiazepine withdrawal syndrome has been described that was characterized by a profound exacerbation of PTSD symptoms (158). Although a limited open-label case series also suggested improvement in insomnia and core PTSD symptoms in acutely traumatized individuals (438), positive long-term outcome data have not been reported, and a controlled study did not show advantage over placebo (156). Indeed, early administration of benzodiazepines was associated with a higher incidence of PTSD at 1- and 6-month follow-up in one study (157). "   http://www.psychiatryonline.com/content.aspx?aID=52967

    I've tried psychotherapy, cognitive therapy, and sertraline.  My symptoms are certainly better than they were in 2-06.  I personally feel that psychotherapy and cognitive therapy certainly helped; I'm not sure if sertraline has helped or not. I chose sertraline because it is cheap, I was on tamoxifen at the time, and I was concerned about potential interactions. http://medicine.iupui.edu/flockhart/ Note the cover page points out the interactions are fairly theoretical.

    But I will soon be starting amlodipine (Norvasc) for a different condition, and restarting tamoxifen, which interact with each other. I know the Norvasc is only symptomatic (in my case- for Raynaud's / CREST) but is more serious than my LCIS. 

    I certainly feel that cognitive therapy has been more helpful for me for insomnia than Benadryl or Valium.

  • Ka-Loni
    Ka-Loni Member Posts: 431
    edited December 2008

    Hi Annie, I am glad you came here. Yes, we all recommend taking some kind of Anti-depressant for Anxiety and Depression. I have ups and lows alot, and, I take what is called "Effexor-XR." It is an Anti-depressant. I take 150 mg. and, this works well for me. I take a little Xanax when I need it. This really does help. Especially you having to deal with your BC, going and seeing a Mental Health counselor or Psychologist would not hurt. To get the Medication though, I do believe you need to see a regular MD. Try it. It wont hurt sweetie. My prayers and thoughts are there for you

    during this rough time.

    God Bless, Flower 

    Love, Kaloni





  • Ka-Loni
    Ka-Loni Member Posts: 431
    edited December 2008

    For You All,

    God Bless,

    Love, Kaloni

  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited December 2008

    Hey, all - I posted in the other thread - I didn't realize this was here!

    I know that some of you also have PTSD, and I've been thinking that I've been doing pretty well. I am a week from my first annual mammo, and I haven't been doing badly. Talked to my therapist about being prepared, DH is going with me. A few anxious dreams, but really, not that far from normal for any woman less than a year past diagnosis.

    Now, I live in Michigan and it's snowing tonight. This was not a surprise. I even like snow. So I'm leaving the office, and walking very carefully, because it was slippery. And I fell. Hard. Swore. Picked myself up, walked the rest of the way to the car. Drove to the library. Realized when I went to check out that my cards were all messed up, apologized to the lady behind the desk, she offered to replace the card, and suddenly, I just could not deal! I said, I'm so sorry, I'll put them back. Hands started shaking. She said no, that's fine, I'll do it.

    Went out to truck, and I was instantly back at tumor board, trying to talk to a doctor who wasn't listening to me, who just wanted me to shut up and agree with what she was saying. So I decided to go work out, since I was right by my gym, and physical activity is calming. Oh, wrong, I was in my head, and my heart was racing before I even got a good sweat worked up, and I kept saying to myself, you don't want to be here, and trying to change the subject, when finally, I said to myself, what is going on. And I said - you lost control. Scary, isn't it?

    Wow. Took one slip on ice. I have always been a strong woman, could do anything, heck, did do anything. Suddenly I am vulnerable and fragile, and I don't like it.

    Being able to post about this is why I wanted us to have this board - I want to recover from this part of my illness as well.

    Thank you all for being here and "listening" to me. I'll be back.

    Leaf - thanks for the post especially. I am trying cognitive, and am hoping that I can do this without drugs.

  • leaf
    leaf Member Posts: 8,188
    edited December 2008

    "I have always been a strong woman, could do anything, heck, did do anything. Suddenly I am vulnerable and fragile, and I don't like it."

    That's exactly the way I felt.  In fact, I think that's one of the goals for therapy for me - to be able to feel vulnerable and depend on someone, and feel safe.

    We each have our own way.  Its good that we are all recognizing our problem and getting help if we can't handle it ourselves -whatever way works for us!

  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited December 2008

    The reason that I went from just being anxious to PTSD was that, in my eyes, my medical team was not dependable, and they were the people I needed protecting from, rather than they're being people it was safe to be vulnerable with.

    I found out after my surgery that they had forgotten to order several pre-op tests, everybody expected some one else to do it. I had multiple infections, but no one wanted to take responsibility for ordering antibiotics, etc, etc. I've changed oncs and will never have a mammogram done where I had it done before, nor will I ever take pre-op sedation again. I even changed my primary care physician - she didn't recommend a second opinion because her husband is a big shot at the breast center I went to, and she didn't tell me. Nor did she try to expedite my studies. She did, however, offer me, a recovering alcoholic, drugs with high addictive potential.

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited December 2008

    That's horrible!  Didn't she know you were a recovering alcoholic?  Honestly, I wonder about people who work in the medical profession sometimes. 

    I've been taking Effexor XR mainly for my hot flashes (caused by Tamoxifen), and as Kaloni said, it works great!  I'd be a total basket case without it.  I still have my feelings of anxiety though.  I've wanted to get on a wait list for a nursing program, but I'm terrified that I'll start school, will have racked up student loans, and my damn cancer will come back.  I know I shouldn't let fear dictate my life, but it's SOOOO hard!

    Blessings to all of you who are suffering emotionally from the aftermath of this damn disease.

    Hugs,

    Karen

  • Jo_Ann_K
    Jo_Ann_K Member Posts: 277
    edited December 2008

    Karen,

    Don't worry about student loans for nursing school.  Most nursing programs give full scholarships because of all the money given due to the nursing shortage.  Check that out with the nursing schools for which you are interested in applying.  You can also check out Johnson and Johnson. They have been doing a big push for nursing education.

    Good luck!

    Regards,

    Jo Ann Klein, RN

  • paras
    paras Member Posts: 63
    edited December 2008

    dear kaloni ,i have been thing about yu . i guess cancer could indeed cause post tramatic stress disorder. If it is any consolation know alot of people who had cancer 26 years ago when the treatments were not as good as they are now  have no evidence of the cancer no reacccurance and this i pray for you. the chances for us is much better your gonna be fine.

  • leaf
    leaf Member Posts: 8,188
    edited December 2008

    Do most of you who have PTSD (or something like that) have it due to cancer treatment, or a pre-existing situation?

  • carpediemocc
    carpediemocc Member Posts: 53
    edited January 2009

    Leaf - I personally have struggled with PTSD since I was a young teen, but didn't know what it was. I was on Wellbutrin for a few years and it really helped, but then I got divocrced and no insurance. I have insurance now but have yet to get back on it.

     My onc has prescribed Ativan to be taken when I'm feeling anxious. for me it's worse at night and the day before chemo all the way up to the sticking of the port and then I'm fine.

     I told my onc today that the Ativan doesn't seem to have any effect one me so she up my dose to1 1/2 tabs. We'll see if that helps!

  • leaf
    leaf Member Posts: 8,188
    edited January 2009

    Hi Carpediemocc!  I think I had it as a child, but I didn't know either. Spent some 25 years in therapy, but the therapist didn't want to deal with it, and I was grateful for what I got in therapy.  (That must be a record  of some sort for a slow learner!) I have a new therapist now, who diagnosed me with something like PTSD 3 years ago.

    I know some people have had horrible experiences with their doctors.

    Thank you for sharing that you had pre-existing issues before you got bc.  For me, I think it was somewhat magnified by my increased body issues as I get older.

    Has  the increased Ativan dosage helped you?

  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited January 2009

    Leaf - I have a history of trauma, that I thought I'd successfully put in the past. The cancer treatment brought the trauma back, resurrecting nightmares of episodes from my childhood, and weaving them with what I experienced during treatment.

    After treatment was over, the experiences didn't fade into the past, and I got angrier and angrier, stopped being able to sleep, started having flashbacks, and found a good therapist.

    My understanding is that this is a pretty common scenario.

  • leaf
    leaf Member Posts: 8,188
    edited January 2009

    Ah-ha!  So that's the way it commonly goes.  Thanks so much, Sue!

  • Ka-Loni
    Ka-Loni Member Posts: 431
    edited January 2009

    Hi My Sweeties, Boy! I have too say this thread of mine is good! I really think it would be nice to have a Forum for our issues here.It is really so nice to be able to come here when your feeling down, and, at your low, with your concerns and issues. I do know it is so nice for me. It is such a good way to support each other. Keep up the support here, and, just know I am right along with you. I will check in later. Bye now.

    God Bless, Flowers & Butterfly 

    Kaloni 





  • leaf
    leaf Member Posts: 8,188
    edited January 2009

    I agree.  Although my breast issues are not my most concerning medical problem, it sure helps to understand my reactions to some of these tests.  I've been in therapy a total of ummm about 30 years (incluiding 27 years with a therapist who would not deal with my  trauma issues), and I  learned from 2 posts above that I am not as alone as I thought.

    My late friend (age 59) died last month of stage IV pancreatic cancer.  She was obviously traumatized, but never wanted any help with it, and took all the details with her to her grave.  I don't think she could relate very well with me and other people.  But it was only the last 2 weeks of her life (when she was nonverbal) that I found how messed up she was. (I had known her for more than 15 years.)

Categories