Vegetarian diet and ER+

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So this is a strange question.  I am not a vegetarian but am asking for a friend.  She's concerned about the amount of soy in her daughter's vegetarian diet and the association of soy to ER+ BC.  Can I point her to a resource to learn more?  What do other vegetarians on this board do?

Thank you in advance.

Debbie

Comments

  • Maryiz
    Maryiz Member Posts: 975
    edited September 2008

    All I can tell you is the medical world has not determined whether soy is good for breast cancer or bad.  On one side they point to low rates of BC in Asia where soy is prevalent; on the other hand, if you read the back of a lot of our foods they are made with soy or soybean oil.  My doctor told me to avoid it at this time since the jury is out on this.  Also, Johns Hopkins web site says same thing.  Hope this helps, Maryiz

  • RobinWendy
    RobinWendy Member Posts: 1,983
    edited September 2008

    Same here as Maryiz... I have been told to avoid whole soy products but if soy is in the "bottom" of the list of ingredients comprising any processed food, then it is OK in small doses.  Who the heck knows... next thing we'll hear is that smoking is good for you (OK, I stole that from Woody Allen's movie... Sleeper)

    Robin

  • bomber410
    bomber410 Member Posts: 564
    edited September 2008

    This is great information and confirms what I understood.  I'd love to hear from some vegetarians as to how you manage your protein in take.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2008

    I have been a vegetarian for 35 years, vegan (no animal products, i.e., dairy, eggs, etc.) for the past 2 1/2 years. I was diagnosed with ER+ bc this year.

    Even before being diagnosed, I never ate very much soy. Now I eat it infrequently (my dr. and nutritionist told me the occassional serving of whole soy was fine). Also, FYI, no need to worry about soy oil - it does not contain the phytoestrogens of whole soy. 

    Check out The Vegetarian Resource Group website on nutrition for vegetarians. There are sample menus on there to show how easy it is to get enough protein. The standard American diet has too much protein. Getting enough is not a problem for a vegetarian or vegan who has a varied, real food (not processed "food") diet of beans, legumes, whole grains, nuts, vegetables and fruits.

     -- Jo

  • Wintermoon623
    Wintermoon623 Member Posts: 119
    edited September 2008

    I was vegan for many years and I did eat soy and drank soy milk.  I do wonder now if I was feeding my cancer.  I had a strongly ER/PR+ tumor.  Now I eat fish and chicken occasionally but not read meat, pork or dairy products.  I don't eat any soy products on purpose but soy is in a lot of stuff.  I agree that there are many ways to get adequate protein without eating meat/dairy.  I added fish and chicken back into my diet during chemo to try and keep my strength up.  Now I find I like them now and again.  I try and get raw food into my diet each day as well.

  • EWB
    EWB Member Posts: 2,927
    edited December 2008

    value from soy seems to be only if consumed from early in life- Asian diet and soy promote better health because it is eatten life long.  Most western diet people will not get same benefit if we switched to that diet in adulthood.  Since soy is phytoestrogen there is concern that it will act as estrogen in the body (not good for er+), most seem to recommend no soy until research complete. Easy to do vet diet w/o soy.

  • vivre
    vivre Member Posts: 2,167
    edited December 2008

    Another problem with vegetarian diets is that many people tend to fill up on rice and pasta and make this a mainstay of the diet. Rice and pasta are high glycemic and if vegetarians eat a lot of sweets also, all this is just as dangerous as soy, or meat. The key is to eat mostly fruits and veggies, and small amounts of protein, with very little starches or sugars. Variety is important. If we eat the same things all the time, we may be missing key nutrients. Also it is hard to get enough nutrients from our fruits and veggies because the soil is depleted of many of the essential things our bodies need. It is important to eat well, but also take supplements so nothing is missing.

  • cp418
    cp418 Member Posts: 7,079
    edited December 2008

    I know someone who grew up as a vegetarian when diagnosed with bc later in life was triple negative. 

  • car
    car Member Posts: 492
    edited December 2008

    My onc suggested Walter Willet's diet based upon his research w/the nurses and professionals study. It's easy to Google him or go to Amazon.com. He has a couple of books out. His diet deals w/the glycemic index issue and it's easy to go vegetarian on it as he separates nuts and legumes from animal protein. I was on a healthy Mediterranean diet and my onc suggested that I "tweak" it a little toward Willett's suggestions. I would say that I'm a vegetarian except that I still like to have 2 3-oz servings of salmon/week. It's an easy, great diet for most chronic diseases and I highly recommend it. Easy to get your protein while being vegetarian (we don't need that much) as well as the essential oils.

    BTW--my onc suggests avoiding soy.

  • Welga
    Welga Member Posts: 308
    edited December 2008

    I wish I could follow a vegeterian diet, I was eating fish and poultry prior to BC but only occasionnaly. because at that time I was already a bit anemic.  Now my PC told me to add red meat because my anemia has gotten worst,  I now eat it a couple of days a week, but don't feel quite right about it. Cannot tolerate iron pills as constipation is already a big problem for me even with metamucil and other stimulants. My diet does not please me at all.

  • vivre
    vivre Member Posts: 2,167
    edited December 2008

    Eating meat is not so bad as long as you make sure it is the hormone free and antibiotic free kind. Also, did you have a blood test for anemia? Sometimes anemic symptoms can mimic other problems. Also take magnesium and vit c for the constipation. There is a powder I got for my uncle who was so bound up after surgery. It is very bitter, lemon but it works if you take drink it. I cannot remember the name. Just ask them for the mag/C. Also there is lots of protein in nuts and iron in spinach that can replace red meat. I eat very little meat, and my blood work was great.

  • car
    car Member Posts: 492
    edited December 2008

    You're right about the magnesium. After I mentioned these screwy leg cramps and muscle spasms in my calves, he prescribed 1500 mg of calcium + D (starting w/500 mg/day for month one, 1,000 for month 2, and 1500 at month 3) and 1000 of magnesium (500 mg/day month one, 1,000 month 2). It really helped the constipation from the iron tabs (lucky me--3/day). From his explanation, I take it the magnesium increases bowel motility. Anyway--it helped solve both problems.

  • Welga
    Welga Member Posts: 308
    edited December 2008

     Frist thankyou both for your great suggestions, you are both well informed and i appreciate your contribution to my post.

    vivre, I like your name, yes I had blood test I have been anemic for many years due to uterus fybromes that brought on heavy periods. What I don't understand is that after four years without periods I am still borderline anemic from the last blood draw. I will look into the antiobiotic and hormone free meat but I'm from a small town with little choice considering products. Vitamine C is part of my regymen as is magnesium citrate, I wonder who my bowels with be without this, Femara and calcium and low energy for exercices seems to have made my constipation worst. I also look for rich in iron products like black strap molasses and spinach. I hope my anemia does not come from something else, I've had a few test with my gastro to check for bleeding ulcers with no finding.

    car: what form of mag are you taking, maybe I could switch if it is not citrate, my dose is 150mg X3 a day, I was hoping it would help me more but maybe your constipation problems are less than mine. For the dosage I am following the advise on the bottle and of my naturpat who sold them to me.

  • car
    car Member Posts: 492
    edited December 2008

    Oh, the joy of constipation. I was having to take a stool softener and then laxatives every few days once my PS put me on Feosol 3xday after becoming severely anemic after the first stage of my DIEP (blood count was down to 5). I got a transfusion, the second stage of the surgery (pneumonia along the way), and when I was finally out of the hospital 8 days later, the iron treatment started.

    My onc is pretty happy w/my blood count now, and might let me off of the iron in January. What he prescribed was the calcium/magnesium combo saying it would help bowel motility as a bonus. I've stopped the stool softener and haven't used a laxative in ages. I'm using plain old NatureMade Magnesium 250 mg. that I get at Target. The ingredients list magnesium oxide. Hope this helps.

  • vivre
    vivre Member Posts: 2,167
    edited December 2008

    I have a book called Vitamin Cures. It says that anemia can also be caused by lack of copper and folate or B12. If you cannot find the book, pm me and I will call you and read you the chapter on anemia. It also says that sometimes anemia takes up to a year to overcome so be patient. Even though you are low on energy, force yourself to exercise every day. Even just walking will get your blood flowing and improve your energy level.

    I know that anemia is a lack of iron in the blood, but iron also has a link to bc so do not overdo the iron supplements. You can get a lot of iron by juicing dark veggies, so try that too.

  • Welga
    Welga Member Posts: 308
    edited December 2008

    car, glad you finally resolved your experience with anemia, a surgery can really put you in severe anemia sometimes. Magnesium oxide seems interesting, will surely look into it but I guess my anemia is not severe enough to take iron tabs as my ps did not want me to take them. thanks for your answer and glad you are over this painfull experience.

    vivre, I did not know about those vitamines deficiency causin anemia I will also ask my ps about it maybe he will add them to my supplements. Yes he has told me it could take a long time for my anemia to settle dow. I will start walking more I know I need too, lately I had a lot of work to finish for my accountant and that did not help me with exercise. Iron a link to bc, as I am not on supplements but only on rich iron containing food I hope it does not have as much impact on BC. Unfortunatly I cannot eat anything raw as they give me heartburns and reflux so I am on a strict diet all vegetables have to be cooked but I do eat dark veggies a lot. I will try to find the Vitamin Cures as it seem I need to learn more about them, you have both been very generous with your answers, and I am gratefull to both of you. 

    Welga

  • vivre
    vivre Member Posts: 2,167
    edited December 2008

    Welga, before bc dx I had a lot of heartburn too. Once I cleaned up my diet, it went away. My doc told me to take prolosec, but it did not do anything. Then I started taking probiotics every day, and with better foods, that did the trick. My chiro did a blood test that evaluated over 200 foods that are toxic to some people. My test showed that there were about 10 things that I should avoid. Ironically,some of them I had always eliminated because I did not like the way they made me feel, like brewers yeast(I have never been able to drink beer), and bakers yeast( which always made me feel icky). Now I know why. The blood was sent to immuno labs in Florida for evaluation if you want to check it out: immunolabs.com

    A good book about digestion is "Micro Miracles", by dr. Ellen Cutler. It really explains how poorly our stomachs digest food as we age and the need to add enzymes to aid digestion. Sometimes our stomachs work so poorly, that even when we eat well, it does not get absorbed. If you can find this book, on page 131, she talks about supplements needed for extreme fatique. It is too long to type the explanation, but she mentions, Biotin, ribooflavin(vit B3), niacin, pantothenic acid(vit b5) vit c, iron, and magnesium along withdigestive enzymes to aid absorption. It should take a couple of months to notice results.

    I think it is fine to eat iron rich foods, just do not use supplements. Check any multi vitamin you take as many of them contain iron. The ones for "over 50" generally have no iron.

    Have you ever tried blending a bunch of veggies and then heating it up? Add some herbs and you have a healthy drinkable soup. Great for energy! If it is too thick, you can strain it. You will lose the fiber, which is good for you, but still get lots of nutrients.

  • Welga
    Welga Member Posts: 308
    edited December 2008

    vivre, unfortunatly probiotics are not helping me I took a whole bootle, maybe it's not enough at that time I did not watch my diet that much....You seem to have a good chiro, wich I could afford one but my budget is low. I was tested for celiac . Enzymes this is my next try I've heard about them. I will look for this book also, biotin is on my regyment (hairloss caused by AI), but B3, niacin and b5 not yet.I know most of the foos that trigger my heartburns they are vinegar, mustard, garlic and tomatoes and citrus, sometimes apples will not work unless i cook them.

    As far as multivitamines I don't use them I prefer to buy them individually so I can choose the ones that are approriate to my conditon. Your suggestion is great about the blending of veggies and herbs and then boiling them, sort of like a soup cream but in reverse, lolll you sure are giving me a lot good tips here and I'll get back to you when I feel some of them have helped me.

     About the fibers I try not to blend all my soups because of this, but I like creamed soups a lot so I do them too. Have a nice day and thanks a million

  • audreynyc
    audreynyc Member Posts: 21
    edited December 2008

    A good book about soy and ER+ is "What your doctor may not tell you about breast cancer" by John Lee, MD.

  • bmdaley
    bmdaley Member Posts: 292
    edited December 2008

    Welga & vivre, I have an acidic stomach too. Your suggestions are really interesting and I'm going to check them out. Here's a few other tricks I've used which have helped. Aloe vera juice at health food stores is a miracle cure. It tastes/smells funky but makes my stomach feel better right away. I also take some supplements that help line my digestive system -- IGg and GlutAloeMine by from Xymogen (xymogen.com). They are a bit pricey, but they've saved me as I'm going through chemo.

  • Welga
    Welga Member Posts: 308
    edited December 2008

    bmdaley, I'll read more about your supplements, although when I wanted to take Aloe my pharmacist was against it. I think he said it was a laxative that your intestines could get use to or something like that. I think I'll give it a try anyway. About GlutAloeMine it contains licorice (degly something) and my gastro told me to stop taking licorice because it would raise my blood pressure. There are other ingredients I'll have to research, nice to hear that someone has found a solution, have a nice day

  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited December 2008

    I eat some crystallized ginger for stomach problems and heartburn.  I know the sugar, but one piece will work for me. The problem is it's hard to stop at one piece.

     What offsets soy is eating flax. Freshly ground flaxseeds might be the answer to too much soy in our diet.

     There is evidence that soy feeds a tumor.  You have to watch the length of the study. If the study is longer than 16 weeks, tumors come back with a vengence on the mice they test.  At first it reduced the size of a tumor, but then it came back. 

    What they found out is if we were brought up on eating soy products it could be beneficial if we started at an early age before puberty.  That's why  Asians can eat it without the same results we could possibly get. 

  • Welga
    Welga Member Posts: 308
    edited December 2008

    Rosemary,

    I have tried boiling ginger and drinking the liquid and that did not help, crystallized ginger sounds good and delicious,maybe the reason it works is that it is more concentrated than when I boil a piece of ginger . Like you say problem is to stop at one piece, I'll be looking for that in the health food store. Nice to hear your advice

    Welga

    About the soy I've been reading the same thing for a few years, soy has to be taken over a lifetime in order to be beneficieray, starting at 50 (like I did) is not the way to go.

  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited December 2008

    Welga,

    Yes, me too on eating soy too late in life.  I ate it for a year before I was dx'd.  I've not heard of boiling ginger, you can juice it and drink a tsp straight, but you'll learn to hate me.  I did it and it burns all the way down, but the heartburn is gone, and the stomach gets right over time.  This is not for everyone. 

    I liked ginger so much, I was cutting a little piece off and putting it in my green tea, till I lost my voice, but It tasted so good.  If you can't find crystallized ginger,  nutsonline.com sells it.  And it's nice to talk with you again.

  • Welga
    Welga Member Posts: 308
    edited December 2008

    Rosemary

    Always with good advice, been reading you for a few years, boiling ginger was told to me by my onc nurse for nausea to drink it like a thea.I tried the route of juicing it, like you said I hated it, burns to much. My sister was telling me that she used soy for her hotspells and I told her to stop it right away for the reasons you have explained, have a nice day

    Welga

  • AllieM22
    AllieM22 Member Posts: 464
    edited December 2008

    Great info everyone --thanks! I had asked about soy and have read a bunch and drs say that "regular" amts of primary sources of soy are fine but no supplements if you are ER+, but to be safe I am skipping it altogether since they haven't really studied it conclusively.

  • ptjen
    ptjen Member Posts: 52
    edited December 2008

    Welga - I just saw your post about still being anemic well after your periods ended. I ran into a similar problem. I had a blood transfusion a few years ago b/c of severe anemia. Blood counts were good so we thought my problem was solved. I still had heavy periods b/c of uterine fibroids too. But once I was postmenopausal I thought I would be fine. Turns out, I was again extremely anemic and ended up in the hospital last spring for another transfusion. This time I saw a hemotologist who figured out that the problem was that after the first transfusion, I should have remained on iron supplements even though my blood count was normal. Seems that they also need to check your iron stores. I should have remained on iron until mine were normal. This time she kept me on iron supplements for six months after the transfusion, even though my blood count looked fine to make sure my iron stores got replenished. btw...in order to be able to take the iron supplements, I always take them with food. I also take the polysaccharide-iron complex capsules. They are easier to metabolize and are easier on my system.

  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited December 2008

    Great thread ladies. 

    Flalady

    vivre,

    I see you contine to read.  Thank youWink

  • Welga
    Welga Member Posts: 308
    edited December 2008

    ptjean

    Well looks like we have the same problems, anemia caused by fibroids, I never tought one should continue the iron pills if blood count is normal, well your doctor either so you are fortunate they finally realized what was happening, I will talk to my doctor about this and let him know what you have told me, will print you message in case I forget some parts and thanks for letting me know about this it's very important and also it keeps me from wandering if the anemia is cause by other causes when it keeps lowering even after menopause,  and the supplements I will see if we have those in Canada, your info was very helpfull, hope you continue to stay anemia free,

    Welga

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