Has anyone started a forum for Chemo in Dec 2008?
Comments
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Wow, I think we all did the Christmas tree bit this weekend! I'm also busy trying to be organized for this next week - keeps me busy and not focused on BC..... just me to do list. LOL Texas357 and Mimi I'll be thinking and praying for you tomorrow. Welcome Linda to the Dec group. Another Dec 2nd - popular day for this crowd. Mary
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Good Luck to the Monday group -- together we can do this!
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Meg511
You go girl, I'm so glad you stuck up for yourself, if we don't do it who will?
To all the Dec Diva's,
I bought some scarves on my shopping spree yesterday (nothing like a little retail therapy to make you feel good!), Anyways, I tried tying them and they didn't look to bad, I downloaded some directions on scarf tying (I've never been good with all of the girly stuff) and I did ok. I'm feeling a little better. I have an appt to get my haircut short about 10 days after my start date (Thurs).
To all of you starting tomorrow, I think the anticipation is worse then the actual experience. We're all going to do fine and after the first session we can say we put a big X over chemo tx #1!
I read a quote in the book Nordie's at Noon (book about breast ca) and I'd like to share it.
"Life should NOT a journey to the grave with the intention of arriving safely in an attractive and well preserved body, but rather to skid in sideways, chocolate in one hand, wine in the other, body thoroughly used up, totally worn out and screaming "WOO HOO what a ride!"
Divas, it is now time to kick some cancer BUTT! You are all in my prayers.
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Hello Ladies: Just wanted to wish all the Monday ladies Good Luck!! I feel like the only one that did not get the decorations up this weekend. Just to much going on. My son started to bring up some of the boxes, but he didn't realize that the areas had to be cleaned first. We came home from Thanksgiving to find a leak in the living rm. ceiling. So that has to be addressed first. I did get a nice surprise from my family though. They told me on Thanksgiving that since most of them live to far and with my Mom being sick that they wanted to do something for me, so they hired a cleaning person to come in every other week to help with all the big stuff. Which will be so helpful, my hubby is great but with him working I don't want everything falling on him. I go tomorrow for all my blood work and any other info. that I need and then Tues will be the day!!!! Still scared, but I know that we all will get through it. Like I told my kids, I am taking one day at a time. I also need to call the PS to schedule the 2nd surgery for the reconstruction. Hopefully I will be able to have it sometime in April. (They told me to book it now, because his schedule fill up fast). He told me that I still need to have another 3 fills, but I can spread them out. The first 2 were not bad at all, but the 3rd one I was sore for about 3 1/2 days.
Well I will check in tomorrow to see how you ladies made out.
Be Well,
Colleen
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I might be starting chemo in December if I decide to do so. My onco told me that I need to choose whether to get chemo or not. He gave me all the statistics. I had a lumpectomy and had one sentinel node positive for a micromet. I will get radiation which will put my chance of recurrence at 25%. If I get Tamoxifen also (which I am definitely getting) for 5 years, the recurrence goes down to 17%. If I add chemo, it goes down to 11%. So I guess he wants me to weigh the 5-6% benefit with the negative side effects. Do I want chemo? NO, but I don't want to spend the next 10 years wondering if I made a mistake. If I do have a recurrence, I don't want to blame myself because I could have done something more. I'm so confused!
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teachgrade3,
Getting chemo is a personal choice and I know it's scary, but I think that 5-6% decrease is worth it. My oncol told me that I my oncotype showed I had a 20% recurrence rate (AHHH), getting chemo cuts it by 1/3, so now I'm down to a 12-13% rate, I didn't ask him if it would go down further with Rads and Tamoxifen, which I'm going to do, I hope it does. Good Luck with your decision.
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Colleen, don't feel bad; I didn't get my decorations up either. Hopefully next weekend. Port tomorrow (Mon) and 1st TAC Tuesday.
Talk to ya'll later
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Hello Ladie
Well, got all the decorating done this weekend...which is normal for us. It is our tradition to put up the Christmas cheer the weekend after Thanksgiving...that includes one live tree and three artificial in the house. Finished up all the outdoor lighting today.
Tomorrow is my chemo "education" class. Tuesday I'm off to the plastic surgeon to get my third and probably my final fill. I was lucky to have 200 cc's at the time the expanders were placed, so I only needed three more fills. Friday is my first round of TC.
Best wishes to everybody who is starting tomorrow!
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teachgrade 3, did you have the oncotype. Mine showed 34% recurrence. I had a lumpectomy, 5 day Mammosite radiation, and will now do 6 TAC treatments. The onc really didn't give me a choice. I know you will make the right decision.
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Teachgrade 3 - I don't think any of us WANT to do chemo...... we just don't want the BC to come back! I'm with CindaD that my oncotype score indicated a high recurrence rate (don't remember the exact figure) which made the decision easy. Before I got the test I was debating whether to do chemo.
But, even so - the whole decision process is a challenge and each treatment has SEs. So being confused is part of the process in making decisions! Is there another oncologist that you can consult? Hearing a second/third opinion can assure you that you are making the right decision for yourself.
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My onco is checking in on insurance coverage for Oncotype testing. I'm not really a candidate because I had a pos. node. The cost is $3500 and my husband said he will pay it if insurance doesn't. I think the studies for Oncotype are on Stage I & II node neg AND on node pos post-menopausal. I'm Stage IIa, one node pos, pre-menopausal. If I can get Oncotype I will but it will postpone treatment until that comes in. I heard it takes 12-14 days.
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First TX on Wednesday - 6 TACX/every 3 weeks. A bit apprehensive. My doctor prescribed some valium and although I have always resisted drugs of this type -- I am finding that a little bit helps take the edge off and I do sleep well -- we'll see what happens when I take the Decadron tomorrow. My Decadron dose is 2/5mg the day before and 2/5mg the day after. I have been told this is smaller than some starting doses. Of course, there is also some in the infusion. Cut my hair 12 inches and got a great wig which I Thanksgiving day to see the reactions - my family all throught it was my own hair - they all wanted to touch it -- so at least that part is over with. The young butcher at the market told me I looked twenty years younger! I will shave my head as soon as the first strand falls out. Leaving the partial bangs long so they will help conceal the lost brows and lashses. It sounds like we all had an excellent Thanksgiving holiday. You are all in my prayers -- we are a strong group and I know we will come through this with spirit and dignity. Tuesday night my husband and I will pack up my chemo goodie bag and be ready for the first tx. I have a calendar set up so I can cross off each treatment with a big red "X" -- and I look forward to putting the first one there on Wednesday night.
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Good Morning!
I was such a basketcase yesterday, didn't get much of my projects done.
Jim is going to pick up his mom tonight after work as I have an appointment for new tires on my car. My rear tires are as bald as I will soon be! (Haha...that's a joke!!!) We had snow yesterday and last night, so I have cut it pretty close!
So, I had my pity-party yesterday, and I really do feel better today. Lots to do, including packing my chemo bag, vaccuming, dusting (such fun!)
Zuffa - I'm glad that you did not resist the Valium! I have have Xanax, pretty much same thing, and it really does help, especially in the sleep department. You cannot heal if you don't sleep! I like the big red X idea too! It will show progress!
WE CAN GET THROUGH THIS!!!! Carol
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Gotta get me a calendar to mark progress! Thanks to simvog for her compiling the dates - Good idea. I've started the Decadron, 8mg in morning and 8 this evening. Not really noticing any effects. They changed my report time from 7:15 to 8:00..... YEAH! Since it takes us an hour to get to the center that makes the morning less frantic.Mary
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Just got back from my onc. Great visit, much better than last week. First, his reasons for suggesting AC+T was that he was trying to put me on a clinical trial involving a new drug called Bev. Took home all tyhe papers last week, didn't even read and decided not to get on the trial. Well, as soon as he found out that I wasn't going on the trial, his recommendation became TC for 6 rounds. Can't blame the guy, they're all trying to put us on trials, but I was sure happy to find out that he wants me on TC now. We even asked about TAC since it's the same with the addition of adriamycin and he said no. We got the path report back from Mayo too, and they're saying no nodes involved also, so that helped his decision stating that A isn't necessary in my situation. Since 2 people are saying negative nodes & Hopkins says 1 micro met 2mm, no full ax. disscetion or radiation. Got my report from the oncotype and they're telling me that I'm ER- and onc is one of the rare onc that doesn't believe that Tamoxifen really helps. So biopsy says ER+ (weak) and oncotype dx says ER-, he's not recommending Tamox, offering but not recommending and agrees with the fact I don't want to take it. Port on Wed. chemo teaching on Thursday than start chemo on Monday, Dec 8. 2 months from dx to start chemo, I guess it's not bad. I'm happy
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Hi Caroline, I'm soo glad your appt. went well today. How relieved you must be! I go back to my onc on Wed. now instead of Fri. So, we'll see what he says. I think he's still going to recommend TAC 8 tx every other week. That's terribly aggressive I think. At this point I don't understand why unless my oncotype was off the chart and he's counting the micromet as a pos. node. I don't know. I'll find out soon enough. What is Bev supposed to do? I'm three months from dx and still counting until I start chemo. If they think my cancer is that aggressive, don't you think they'd move things along a little faster? I'm also waiting to get MUGA and port insertion scheduled. Wait, wait, wait.
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Hi ladies. I just got back from my post-op appt - clear margins! Yay! Now I know I will be starting chemo on Thursday. The date has been set but there was still that lingering worry that it might be postponed.
I didnt put up xmas decorations. The thing is, I know I feel OK putting them up, but I don't know how I'll feel once it's time to take them down! That is always the worst part! So because it's just me and my BF, I'll just put up a wreath and call it at that. There is always next year!
I am thinking of the ladies starting their TX today. *hugs*
Love, Elaine
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I talked with a lovely woman at ACS today. She enrolled me in a Look Good Feel Better class on Jan. 5. By that time, all my hair should be gone and I'll really benefit from the class. She also told me that the Cancer Resource Center at one of the major hospitals here has free wigs. You just have to call to see when they're open coz they don't keep regular hours. I have to put a lot of financial stuff together to see if we qualify for financial assistance. We might have to be destitute before we can get that. But I'm going to try.
Lainey, clear margins are wonderful!! Congrats. I don't really know what we'll do about Christmas decorating. If it gets done great, if not, well, we have a tiny little table top tree that we got when we were snowed in for Christmas a couple years ago. We were going to be gone thru the Christmas season and didn't do anything at home to decorate. Then we got snowed in and it felt so dismal. We didn't even have anything in the house to eat except soup. That was our Christmas dinner. DH did go out and get the tiny little tree with lights on it at Walgreens. It was one of our better Christmases come to think of it.
I hope every thing went ok for those that took their first dip in the Chemo pool. I've been thinking about you.
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Hi,
Well, I did it! 1 TC done and 3 to go. Next TC 12/22. Right now I feel good and better yet I feel empowered! Bye bye cancer cells.
I am praying for all of you. We can do this! The waiting is the very hardest thing. Let's just push our sleeves up and know that we are doing everything we can do to get rid of this. We don't want to look back and say "only if I would have done the Rx."
Thank you all for your support and good thoughts. Best wishes to our 12/2 girls tomorrow.
xoxox
Mimi
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Mimi, thank you so much for the positive report. You have just made it a tad easier for the rest of us to jump in. I'm sure you're much more relaxed about all of it now that you've done it. I hope we all can feel the same!!!!
I love empowerment.
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Mimi, I am so glad to hear from you! That is the way I want to approach this whole thing. With courage and a positive attitude just knowing I am doing what I can to make sure ALL those cancer cells are DESTROYED! Please let us hear from you all along. I hope your side effects never show up! Wouldn't that be something?
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Oh Mimi!
It's good to hear that you are feeling empowered! After reading your post, I feel better already! OK 12/2 sisters...breathe and relax...this too shall pass.
Just took the 2nd Decadron. 15.25 hours and counting...and it's the filthy, stinking, rotten cancer cells that have better be doing the countdown too!!!!!! Their miserable days are numbered! My days are NOT numbered!
Carol
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Mimi: I am so gald to hear that you got through it. And I hope and prayer that you continue to feel great. Now for those of us who go tomorrow lets get there and get this done, because then we will be one step closer to being finished and one step closer to getting rid of this CANCER!!!! I went to get my blood drawn today and saw the onco. She also said that she knows I will get through this treatment and she will be there tomorrow when I start to hold my hand if I need her. So I wish everyone Good Luck tomorrow and stay strong.
Be Well,
Colleen
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Good luck tomorrow to:
Colleen1960 berrypathc mmliv msbusdriver and
LindaBusEd
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Mimi, that's great to hear your first day went so well. Hope you still feel good for the rest of this cycle, my onc says that TC isn't as hard on your body. Love your attittude, we all need to stay positive through all this
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Chemo Angels, has anyone joined? I signed up for it tonight, I was waiting to get my chemo start date. They say it takes 7-10 days to review your application. Their website is www.chemoangels.net
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Hi,
I too would like to get some insight on this chemo thing.
I get my first treatment on Thursday Dec.4. I must admit I am scared. The changes (with more to come) that this has brought about are almost overwhelming. Is there anyone out there that can offer some words of encouragement, advise, and tell me if it will be possible to work full time at a desk job? I have very little sick time leave due to just starting the job a year ago.
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Hi girls,
You guys I am still without symptoms, (over 16 hours). I even slept 7 hours. I just took my anti-nausea Rx (Zofran). They told me to take it every 12 hours for the next 2-3 days. Steroids for today and tomorrow. I just feel better mentally! I know symptoms could and will occur, but I will tell the good, bad, and ugly. Feels so good to know that I have one Rx done, and I hope you all know that you can do this. Really. I realize the TC is not as strong as other regeimes, but remember this, your Rx is getting rid of cancer in your body. We have no control over hair loss, and perhaps I will "crash" when it happens, but we are in control by getting our Rx, resting, and eating well. I do worry about my job as I am a medical assistant in pediatrics. I work about 24 hours, and I carry the health insurance. I will work as long as I can, I pray that my WBC counts stay high enough. I will cross that road later, and just enjoy my menatl health finally being strong and positive. I use to be kind of sassy and I was wondering where it went!
Love to you all and my 12/2 girls kiss butt today! 12/3 your on deck, and remember to get plenty of water, walk if you can, and eat well.
Mimi
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had my 2nd AC treatment yesterday. Felling much better than the 1st - they adjusted my meds quite a bit for the nausea & vomiting. I am feeling pretty good today - so far. Getting a bit tired (just took my meds) so I see a good nap headed my way
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I just found out that hubby was playing online when he got home from work last night. Thought you might all enjoy this, the kids got a big kick out of it when they saw themselves! http://elfyourself.jibjab.com/view/lCz4JumNMhwmEFaR
By the way, hubby usually does look smarter than that! LOL! I hope I was able to cheer up some of you
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