Anyone In Phoenix, AZ Area?

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  • PinkLaddy
    PinkLaddy Member Posts: 133
    edited November 2008

    Hi Elizabeth,

    I'm so sorry I haven't replied in several days. My swelling has really taken a toll on my energy and had my Bone Scan yesterday and blood work today and see the BC Surgeon again tom. about the swelling. Also having a CT Scan on Friday. I think we are getting everything ready for Chemo.

    Your Party sounds like fun but I may have to pass since I think I will be starting Chemo around that time. I want to meet you and the other Great Ladies. I think I need the Power of Prayer and New Friendship Now not that I don't have great friends.

    I will keep you updated about going to the Party.

    Again Sorry So Late on responding but just no energy.

    Love and Light,

    Jerri

  • neesie
    neesie Member Posts: 1,924
    edited November 2008

    Hi AZ girls!

    I've been visiting my Son in your wonderful, Sunny State for a week....................sure is going to be hard to hit MI tomorrow with cold temps and snow flying!

    Sending the best of wishes to all of you....................hopefully I'll get to meet some if not all of you on my next trip out here!

    Neesie

  • ebann
    ebann Member Posts: 3,026
    edited November 2008

    Neesie;

    So nice to hear from you. I am glad that you have been enjoying 'AZ.  The weather right now has been fabulous. I will keep you in my prayers while you are traveling back home. I look forward to a day we get to meet. Blessings to you and your family.

    In God's Grace; Elizabeth

  • ebann
    ebann Member Posts: 3,026
    edited November 2008

    Hi Jerri;

    So sorry to hear that your energy has been down. I do know how that is. I am being treated with chemo and radiation. The combo is something else. On Sunday I slept all day and during the week I sleep most of the afternoons. Get up occassionally here and there to check BCO out. Other than that I do my best with my day however I spend it.  Will it does sound like you are getting everything ready for chemo. I do recall going through all those tests.  Do you know what cocktails they will  be using?  I am doing Taxol/Carboplatin right now. I am praying that I will be done in January. That is the goal anyways.

    Jerri, send me a list of prayers that are needed and I will be sure to lift you up in prayer. Friendship are good to have and it is nice when you can have other women who can relate. I do hope you can join us. If not know that we are thinking of you. I am your friend and that is just for starters.

    In God's Grace;  Elizabeth

  • sweeeeetpam
    sweeeeetpam Member Posts: 115
    edited November 2008

    Hi There,

             I am in Gilbert, az I am 55 , with a 18 year old at NAU. I really could use the surpoort of anyone close, I have no family here except my husband of 31 years!!  Pamela 

  • PinkLaddy
    PinkLaddy Member Posts: 133
    edited November 2008

    Hi Pamela,

    You came to right Place for support. Lots of great ladies here. I live in Ahwatukee not close but I do know there are support groups and get togethers here on this site. I believe Elizabeth is planning a get together soon for everyone.

    How are doing?? What kind of radiation and do you know if you need Chemo?? I see you were diagnosed the same day as me. We have to bond together to help each other out.

    Let me know how you are doing.

    Jerri

  • suemed8749
    suemed8749 Member Posts: 1,151
    edited November 2008

    Hi Pamela and Jerri:

    Save Dec. 1 - that's the night for our Phoenix area get together. Stay tuned for further details.

    Pamela- I'm also 55 - I live in NW Phoenix, so I'm not really close, but this site is a great place for support.

    Hope to see you both in December.

    Elizabeth, hope you're feeling as well as possible. PM me if there's anything I can do to help.

    Sue

  • PinkLaddy
    PinkLaddy Member Posts: 133
    edited November 2008

    Hi All,

    Just curious where everyone lives in the Valley??

    Jerri

  • Scrappygrl
    Scrappygrl Member Posts: 120
    edited November 2008

    Does anyone else here have small children?  I have a 2 and 3 year old and I am curious how handeling chemo plus taking care of kids will work.  I had severe vomiting/nausea with both pregnancies and worry that the Chemo will cause same type symptoms.  I'm expected to do the chemo and take care of them and it really worries me that I won't be able to.  Thanks

  • ebann
    ebann Member Posts: 3,026
    edited November 2008

    Hi Jerri;

    Here is the run down where everyone lives in the Valley.

    Elizabeth: Glendale

    Armia: Buckeye

    Teena: El Mirage

    Karen: Chandler

    Sue: Phx (Ahwatukee)

    Melody: Tempe

    Jerri: NW Phx

    Hope this helps you out. I am not sure where Tamara is. I have not heard from her since her last message letting me know she was interested. Everyone please check your email for your evite. I know some of you can not respond until later. I will post the information for our meetup here as well. I will keep everyone posted.

    Sue:

    I am doing alright. Very tired doing radiation and chemo  together. My side effects are mild so far. The one thing is constipated though I believe I have that under control now with SenKotS.  It works wonders. So glad bourschild told me about it. Thank you for the offer Sue in helping. Right now I do have everything covered so far. Though I may need help in future gatherings.

    Amira:

    I do know someone on this site named Sue/Susan13. She takes care of her daughter who is 2 yrs old. I do not have a little one anymore. I do pray that your will not have to experience vomiting/nausea. The medications for that are pretty strong. Which is great. I will PM you a site Susan13 started and you can either PM her or discuss it on the discussion board. Maybe you can start a topic and I am sure that other women have young children. I wish I could be more helpful to you.

    Pam:

    Welcome to our group. We are so happy to have you. I look forward to getting to know you as well. We are having a get together on December 1st, 2008.

    In God's Grace; Elizabeth

  • ebann
    ebann Member Posts: 3,026
    edited November 2008

    PHX BCO Sisters Meetup:

    Host: Elizabeth Fugate
    Location:  The Old Spaghetti Factory
    1418 N. Central Ave, Phoenix, AZ 85004 US
    View Map  
    WhenMonday, December 1, 6:30PM
    Phone 



    Welcome to Our 1st BCO Meetup

    What perfect timing. Just in time for the holidays. For this special meetup please bring a ornament wrapped for under $10. Meals vary in price. $8-$15. They also have a glutten free menu. Here is their website if you would like to check them out. http://www.osf.com I I look forward to meeting up with everyone.

    Please bring a friend, ask them if they would like to participate in the ornament exchange as well. Please check your email for your evite. Please list rather you are bringing a friend or not so I can plan accordingly. If you did not receive an evite in your email please PM me with your email address so that I can send you one.

    Thank you, and I look forward to meeting everyone.

    In God's Grace:  Elizabeth

  • ebann
    ebann Member Posts: 3,026
    edited November 2008

    Welcome to Our 1st Phx BCO Sisters Meetup

    What perfect timing. Just in time for the holidays. For this special meetup please bring a ornament wrapped for under $10. Meals vary in price. $8-$15. They also have a glutten free menu. Here is their website if you would like to check them out. http://www.osf.com/  I look forward to meeting up with everyone.

    Please bring a friend, ask them if they would like to participate in the ornament exchange as well. Please check your email for your evite. Please list rather you are bringing a friend or not so I can plan accordingly. If you did not receive an evite in your email please PM me with your email address so that I can send you one.

    Host: Elizabeth Fugate

    Location: The Old Spagetti Factory 1418 N. Central Ave. Phx, AZ 85004

    When: Monday December 1st, 2008

    Time: 6:30pm

    Looking forward to many more get togethers.

    oranments

  • ebann
    ebann Member Posts: 3,026
    edited November 2008

    Oh yeah Pam who just came into our group lives in Gilbert.

  • azsunn
    azsunn Member Posts: 201
    edited November 2008

    Hi Ladies...

    I live in the NW valley, Peoria/Glendale border.  I won't be  able to join you this time, but  do hope to keep up with this thread. 

    I hope you all have a wonderful visit.

  • ebann
    ebann Member Posts: 3,026
    edited November 2008
    1. Hi azsun;

    Welcome to our Phx BCO Sisters. We would love to have you join us anytime. Believe me we will have other plans coming along the way. I am planning to have a get together once a month. I will send you a form to fill out for the group in your PM box. This information I will be giving out to each of the women. For those of you that cannot attend I will mail you the information.

    Information Folders includes:

    Form w/ each women information

    Newsletter for December

    2009 Agenda for our Get Togethers

    Poem

    Brochure for up2god

    Picture

    I hope you find this to be helpful. I am always open to more suggestions.  2 more weeks and we shall meet.

    1. Scrappygrl
      Scrappygrl Member Posts: 120
      edited November 2008

      Looks like I have a change in plans for my Chemo treatment etc so I just might be there after all! :) Amira

    2. KinAZ
      KinAZ Member Posts: 180
      edited November 2008

      Thanks for all your hard work Elizabeth....I cant wait to meet everyone.  I am having a rough time this week fighting a skin infection.  I am 6 wks post op.  Saw my ps today for f/u...she said if it doesnt look better by Wed she will have to remove the expanders.  Frown  Aaaarrrggghhh

      Pamela, I live in Chandler...I will send you a PM.

      Hugs to all, Karen

    3. ebann
      ebann Member Posts: 3,026
      edited November 2008

      Hi Amira: I am so excited that you maybe able to come after all. Is the change in chemo treatment a good thing? 

      Hi Karen: Your welcome Karen...I love doing this kind of stuff. If I had it my way I would be planning events and organizing things. It is a lot of fun. I am so sorry to hear that you have a skin infection and may need to have your expanders out. It actually sounds painful.

      Okay here is a list of ladies that have joined our group so far!

      Elizabeth - ebann

      Tracy- friend 

      Sue - suemed8749

      Teena -TNT

      Jerri - PinkLaddy

      Karen - KinAZ

      Pamela - sweeeeetpam

      Amira - proudafwife00

      Kath - azsun

      Melody - MelodyinAZ

      Neesie - Neesie (when she is visiting in AZ)

      verse

    4. PinkLaddy
      PinkLaddy Member Posts: 133
      edited November 2008

      Hi All,

      How are you all doing??? Haven't really written in a while. Hoping to come to the Party but I think I will have to pass on this one. I'm really stressing now. Had a Bone Scan and CT Scan with the Contrast and will find out the results tom. and then get get going on the Chemo but still having problems with my arm. Some swelling and lots of pain. Will be seeing a PT specialist who works with only BC Patients to get Strength Back in the arm.

      Better go and take Xanax to help because otherwise I might not sleep.

      Jerri

    5. PinkLaddy
      PinkLaddy Member Posts: 133
      edited November 2008

      Well back from my Medical Oncologist and having my Port put in on Thursday and start Chemo next Tuesday. Ready to get it done and over with. Will be looking for CUTE wigs soon. I think I have heard of a place called Susie's Wigs so might have to check them out.

      Has anyone here had the Cytoxin and taxotrene??

      Jerri

    6. suemed8749
      suemed8749 Member Posts: 1,151
      edited November 2008

      Hi Jerri -

      I didn't have Cytoxin/taxotrene, but I wanted to let you know that as much as chemo sucks, it's good to be getting on with it and doing what ya gotta do. Seriously, chemo was far more "doable" than I ever thought. I worked, traveled, and kept going pretty well. Everybody reacts differently and has different side effects, but you will get through this and on your way to putting this behind you.

      I really liked Brandy's Wigs Outlet in old town Scottsdale (just east of Scottsdale Road - turn at the Sugar Bowl.) I have NEVER been a redhead before, but Brandy picked out a "nutmeg" wig with blonde highlights for me, and I tried it on very sceptically, but loved it! I think I'll keep my hair that color when it grows out.

      Where are you having your port put in? Best wishes to you -

      Sue

    7. PinkLaddy
      PinkLaddy Member Posts: 133
      edited November 2008

      Hi Sue,

      Thank You for the Encouraging Words! I'm having the port put in at Chandler Reg. Hosp. then have have my Treatments at the Doctors office in Chandler. He alreay gave me Zofran for the Nausea. Hope I won't need it. He stated to have my Hubby take me the first time to make sure about possibly be drowsy a then go back the next day for the Shot to boost mt immune system. I hope you were asking where to have the Port if not it will be on my Left Clavicle.

      I thought on the Wigs I might try the Pink (HA) since Samatha did on Sex and the City. I do have a few cute hats and scarfs. Oh, also have a warm soft sleeper to wear. Did you need that Sue??

      Thank You Again,

      Jerri

    8. ebann
      ebann Member Posts: 3,026
      edited November 2008

      Hi Jerri;

      I have been on Taxotere/Cisplatin and then I did AC/Cytoxin, and now I am doing Taxol/Carboplatin. I can tell you Taxotere was the hardest for me. I am so grateful that they had medications to help me out. I do not know what I would of done. AC was alright it really broke down my red blood cells so I had to have a blood transfusion. I had a allergic reaction to them all. So they premedicate me before I even begin. I sleep during chemo cause of the meds they give me before I begin.

      Everyone is different though. You may do just fine. That would be great. You seem like a very strong lady. Remember we are here for you. I think it is a good idea that your husband does take you. My husband takes me everry Thursday. I am glad that he is there.

      Pink hair huh! I say go for it, we only live once. I went to Classy Sisters. They did a great job and I love my wigs. I did not wear them in the summer though cause it was way to hot. I would go bald with lots of sunscreen or wear a hat. Now that the weather is a little cooler I wear my wig. Remember they can shape and make it fit you nicely. Wigs now you cannot till that you are wearing one.

      I wish you the best Jerri in getting your port put in and the beginning of chemo. You are in my thoughts and prayers.

      In God's Grace; Elizabeth

      angel

    9. tbird57
      tbird57 Member Posts: 150
      edited November 2008

      Hi all!  Can't wait to meet you soon.

      I also went to Classy Sisters Wigs.  Even though I didn't buy anything (I got a free wig from ACS instead), they were far and away the best shop I visited and if I can ever afford to buy something, that's where I'm going.  Stay FAR AWAY from Wigs Amore on Tatum and T-bird - they have a big sign posted that if you want to try on more than 1 wig, you are subject to a charge of $5 for each one you try on. 

      Thinking of all the things there are to be thankful for...my daughter is here visiting from Toronto and is pregnant with my first grandchild, so we're excited!

      Hope everyone is doing okay with their treatments.  You're in my prayers.

      Love,

      Teena

    10. KinAZ
      KinAZ Member Posts: 180
      edited November 2008

      Hi all.....  I will second Classy Sisters.  It is on the west side but worth the drive.  They also have an excellent selection of scarves and hats. And be sure to contact the ACS, they have wigs for free!

      Hugs, Karen

    11. tbird57
      tbird57 Member Posts: 150
      edited November 2008

      Jerri, I'm doing taxotere and cytoxan.  Not going too badly; I've finished 3 of 4 tx.  How's your arm?  Hope the port insertion isn't too bad.

    12. PinkLaddy
      PinkLaddy Member Posts: 133
      edited November 2008

      Hi TNT,

      Thank You for your Very Kind Words! I was a basket case yesterday and wouldn't or couldn't talk to anybody. Started Physical Ther. for the arm and got home about an hour ago from the Port. All in place and ready to start to Chemo with the Cytoxan and Taxotere on Tuesday. I'm still little freaked on that but I know I will be okay.

      Are you having any SE on the Chemo?? What is your worst day???

      Thank You Again For Your Encouraging Words,

      Jerri

    13. tbird57
      tbird57 Member Posts: 150
      edited November 2008

      Hi Jerri,

      They give me premeds in the IV before the chemo of decadron in case of allergy to taxotere, and emend for nausea.  If you're not allergic to anything, there shouldn't be any problem and you'll do fine. And the nurses are very experienced in counteracting allergic reactions.  I was so anxious beforehand, but it was really okay.  Just be sure to take your anti-nausea meds, and if they give you a neulasta shot the next day, be sure to take your Claritin nondrowsy 24 hour plus Aleve for 3 days (the day of, and 2 days after).  My worst days are 4-5 (I get the chemo on Thursday and Sunday-Monday are the worst), and after that, it's slowly uphill. 

      Also, I like to take Miralax in juice or Crystal Lite the evening before chemo, and for 3 days after to be sure to keep everything moving.  Then, on day 6 or 7, I always get a little bit of diarrhea for 2 days.  But really, it hasn't been bad, and I've worked full time throughout, only taking off a few hours the afternoon of chemo.

      I hope you're feeling better, and I will think all positive thoughts for Tuesday!  Hope you consider joining us in December.

      Teena

    14. PinkLaddy
      PinkLaddy Member Posts: 133
      edited November 2008

      Hi Teena,

      Thank You for the advise but why the Clartin and I'm allergic to ALL Of the Aleve and Motrin Stuff. I get Severe Diarrhea. But again why take those. Did you take your Nausea Meds Routinely even if you didn't feel sick and if so when did you start them??

      Jerri

    15. tbird57
      tbird57 Member Posts: 150
      edited November 2008

      Jerri, they recommend the Claritin and Aleve to counteract bone pain from the Neulasta shot, and it seems to work, because I haven't had any.  But if you're allergic, of course you wouldn't want to do that. 

      They prescribed Emend for nausea, but I don't take that one because it costs $50 for 2 pills.  I filled it the first chemo, but I didn't for the second or third, and was fine just taking the compazine and the kytril (2 other anti nausea meds).  I do take those, starting the day after chemo, for 3 days, and I also seem to get a little acid indigestion, so I eat Tums.  Some people like Nexium.

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