Starting Chemo May 2008
Comments
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Wooohoooo! congrats kristy!!!!!!!!!!!!!!!!
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Jen, dahlin, your right eyebrow looks mah-velous. Just perfect. How do you DO that?
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Thank you very much <blush> I started off using a template that you can buy at walgreens. I have also a very small angled brush and eyebrow powder.... then just fill in. After a bit I stopped using the stencil and just followed the edges of my natural brow.
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Ladies~ do any of you want to exchange holiday cards this year??
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yes to cards. Address exchange ok by me!
off to bed.. my Obama costume was well received... this was my lowest key Halloween in many years, but me and the BF are tiiiired this week.
I am off to bed..
BOO!
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Kristy
DONE DONE DONE. Hurray. Celebrate.
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Yes to cards...fine to trade addresses with me too. Had a lovely Haloween. Sleep well and may this have been the spookiest year of our lives.
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Congratulations Kristy!!!!
I love Christmas cards! Count me in!
GS birthday party today!
DH doing okay-a little grouchy, but nothing I can't deal with. The packing in his nose is driving him nuts.
Happy Weekend Everyone!
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I would love Christmas cards from you all!
Confirmation party this afternoon, surprise b-day for my brother-in-laws 60th tonight. Busy weekend. Hoping this final burning from the last of the rads doesn't last long. Sue, how long will this last? I go back in a month for a follow-up.
Eddie, will you be taking something besides the herceptin since your tumor was +?
Ellenoire, I love dressing up but didn't have any parties this year.
I didn't have any trick or treaters. Now I'm stuck with all this candy. I'm going to bring it to my office. Speaking of work, the Pot Lunch lunch I did yesterday in celebration of being done with rads was a huge success. About 20 people came. They do love me! The owners sent me some amazing roses that said, Congratulations on completing your journey. Made me cry...
Mary
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Mary, how nice to have a "done with rads" celebration at work . . . sounds like you have great coworkers. And Kristy, a big "hurray" on being done with rads. Doesn't it seem as though time is playing weird tricks on us? Chemo took forever . . . and then it was over, just like that. Same with rads (vicarious rads, in my case). Same, too, I hope, for the herceptin crowd. All I know is, this has been at once the longest and the shortest year of my life.
Gracie, glad your husband is doing well post-surgery. (And yeah - I've observed that same male/female difference.)
Linda
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Since there are some who want to exchange cards, if you would like to pm me your addy I will put together a list and past it to the others who signed up. And for those who don't want to give out your snail mail addy we could do email addys instead for holiday cards :O)
I'll collect them up until november 15th.
I'm so excited! :O)
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Roxi - Congrats on being finished . . . no more rads!!! It sounds as though you have some fantastic co-workers, I would have cried as well. It reminded me of a gift that I received from a friend after chemo was complete. It was pictures of the pole dance (and others) and it was a scrapbook page that read "finding joy in the journey". It made me cry, but most it made me think of you all and the laughs shared.
Kristy - congrats to you as well on finishing rads. I also have a whopper of a cowlick beginning to show itself.
Gracie - That is great to hear that your hubby's surgery went well.
I have 10 rad treatments to go and eager to be done - I am red but not peeling. The pattern has been to come home from work, eat, exercises (if possible), walk the dog and go to bed. Which is also the reason that I have not posted much. Work blocks & monitors web site activity so I am trying to log in at home when I can. It is a beautiful fall day here in MN and I am going out to enjoy. Hope you are all doing the same!
Jean
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Mary and several others- ala Barry Manilow
LOOKS LIKE WE MADE IT!!!
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Been off for a couple of days, so I'm just catching up.
Yaaayyy to Kristy and Mary! Wooo hoooo!!!!!!!!!!!!!!!!!
Gracie - Also glad dh got through surgery okay, but alas for the neediness! (Mine too, when he had bronchitis). We await your pole dance...
Unfortunately, I did get dd's cold. It seems to have settled in my throat/chest and if it is not better by Monday, I will be visiting my PCP. I thought I was going to cough up an organ this morning. However, I did learn a little trick for keeping the cough down at night (somebody emailed this to me a couple of weeks ago): Get a jar of Vicks VapoRub and slather on the bottoms of your feet, cover with socks. It will keep the cough away for a good 10 hours. I did it for dd and on me last night. It does work. Feels weird but works.
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Congrats Roxi!!!!!!!!!!!!!!! Yay for being done!!! <squish>
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Yea Mary, YOU are done. I will be on herceptin for a year like Jen and I will take tamoxafin ...five years if I leave ovaries in and two and a half if I take them out I think....then switch to some other ai. What about you?
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Mary, so very happy that you are done with rads! (And Jean, you'll be there before you know it... I had really good luck with Eurecin. It's basically petroleum jelly. It feels disgusting and made a mess of my camisoles but! even though my skin is so light it is almost blue, it came through with no visible changes. WEIRD.)
Have GOT to get some work done before I go to a Halloween party. Oh, that Vapo Rub on the feet would cure procrastination...
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Roxi/Mary,
Keep doing whatever you were doing during rads for at least two weeks....I stopped after one week and think that is where I went wrong. If it gets really bad, go to Walgreen's and get Domeboro soaks--packet of powder that you mix with water and put on a rag, soak the burn 2-3 times a day for 15 minutes and get your rad onc to prescribe you Silvadene cream.......It was REALLY uncomfortable for about a week, somewhat uncomfortable for another week. Now I only have one little spot left that hurts. YEAY for being done!!!!!
Rock, why are you going to a Halloween party on Nov, 1st? Procrastination?
I am home alone, dh has flown to Miami overnight. Had a really good day, took the dogs to the dog park and then for a 3-mile walk with my friend Vicki--the dogs have been sleeping since we got home at 5 and it is almost 10!
Holiday cards sound great to me!
Hope everyone has a great rest of the weekend, operative word being REST.
Sue
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Linda, I agree with the 'longest and shortest year of my life' thang. Nov 2007, my hub lost his job. Dec, (desperately needed) sale of my house fell through on the hour of settlement. Dec, I found out I had .2 teaching, not .6 as expected. New Years Eve, my lost luggage was found and delivered to my door: brand new macbook Pro bent in half. Jan 29 08, complete respiritory failure (2 hours to live). Feb 08, lumpectomy. March 08 diagnosed with bc. April 08, mastectomy. May 08, chemoooooo. June, July, August..who knows?? Sept, turn 50. Oct 31st 08 Groundhog Day: house settlement delayed again..hopefully by a week this time. Roll on 2009. The Year of Nothing Worth Noting.
Today I went for an awesome 2 hour walk in the bush and feel fantastic, although the old taxotere continues to wield it's dark powers on my poor old feet-bones. Oh well, it's sparkling spring sunshine here and I've got a veritable bomb-site to try to pack. I laugh at you, neuropathy HA HA! Night-night, girls. Hope y'all are not too dog.ass.tired. XXX
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morning everyone.. thinking of you.TMI alert...
I think my period may have returned, which I am quite happy about. It is not definite, but something is different about the colour I am producing.
I am off to work for day 7 of this week. I had a few hours off on Wed, but that is all. The basement in my shop has been ignored since my diagnosis and you cannot even go into one of the rooms it is so crammed with crap so that is todays project.
Tomorrow is a day off of sorts, but I am in the JCC most of the day with gene tests, herceptin and the MUGA ...
Love y'all.
N
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Thanks Sue. I've got the soak and use it a lot. Ah, refreshing.
Kerry,I truly wish you the very best in 09. I'm hoping your move goes easily too. Don't do any lifting. I was informed nothing over 5 lbs ever again...great, I was just starting t get rid of the spaghetti arms pre-diagnosis.
Eddie, just herceptin for me through June.
Rock, what was your costume? Did you dress up? Cancer Vixen maybe, kicking the a$$ of BC?
Ellenoire, did you say you were kinda happy to have your period back? You young girls amaze me. I was so ready to have that be gone, PERIOD. No pun intended.. Good luck with all your tests tomorrow. I'll be thinking of you.
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Kerry, you are quite enamored of the dog. ass. tired. expression. It really works when nothing else does, doesn't it. I agree about the neuropathy, what ya gonna do, sit down and wait for it to go away? Me either!! Lost my second big toenail last night, and let me tell ya, my big toes are UGLY!!!! So far it's only the big ones, though, and no fingernails seem to be affected at all. Guess everybody is different. Oh, well, I was bald for the Texas summer heat, and now my feet will be ugly in the winter when I can cover them up. (I also left the last coat of summer nail polish stylishly growing out on the other toes. Nothing can make you procrastinate like cancer treatment, huh?)
Feeling pretty good today, washed the bedcovers and hung them on the line to dry, that's one of my favorite things. Noelle, glad to hear you are glad for the return of reproductive function, I seem to remember you left the possibility open for wanting another child? Good on ya, then! (TMI alert here) My DESIRE is finally returning, hallelujah!!!! I haven't WANTED sex since I found out I had cancer back in March. And my dh, believe it or not, hasn't pushed or complained, in fact I think I may have to convince him that he won't hurt me and it is fine now. Guess I'm off to Victoria's Secret for a slinky something to let him know what I'm thinking. We are going to Tennessee week after next to see family, then three days in a cabin in the Smokies, just he and I. I am really looking forward to no phone, no TV, no computer just he and I and walks and fresh air and good food, companionable reading and maybe a good cigar and a bottle or two of wine---the return of normalcy, or closer to normalcy, anyway. I do feel just that tiny bit more energetic every day, and have started counting down my Mondays until retirement--about twenty to go!
Roxi, who told you no more that 5 pounds ever again? Is it because of lymphedema risk or some other reason? I saw an LE therapist and he gave me exercises to do WITH weights, and said I could increase with time as I saw fit--but he says people either tend to get LE or not and if not you can do a lot of the stuff they say you can't ever do again....and that working the joints and muscles is also a way to efficiently move the fluids around. Anyway, just a thought. I don't seem to be one of the people who tends toward it--I do the massage every day in the shower, and am careful about how I carry things, of course immediately and aggressively treat any injury to that arm, but haven't had any trouble at all with LE. I only had nine lymph nodes removed, though, so that is probably part of the difference. Anyway, it's a curious thing, that LE. I did buy a sleeve for air travel, and wear it each time I fly.
Hope everyone has a wonderful Sunday and a really good next week.
CHEMOOOOOOOO!
P.S. Am back up to three miles on my daily walks, for the whole past week. It takes me 15 minutes longer than it did pre-bc, but it feels really really good.
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Noelle, good luck with your basement...I have one of those rooms, but it's IN MY HOUSE
I don't know about you, but I find it really hard to concentrate on one thing for long, so getting to the end of a task (especially a big one) is rare. I hope you totally blitz the sales in gifts this season; a fitting reward after the year you've had! Sue! I blush! After that kind of disclosure I'm thinking a little slinky purchase might be a prudent investment. Isn't it cool about the bedding. I've washed all ours this long weekend. How is it that sunshine makes fabric smell nicer??? I don't get it. I DO get it about the D.A.T. It's the only way to describe THAT tiredness we all know. I always laugh when I read your posts. Like Rock, you'd pass for an Australian too. In fact, this could be an Australian thread. Raining here today. No long walks for me. I'm going to have to pack.
XXX
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Hi Ladies, sorry to interrupt...
Do any of you know how to post a picture in my Post from my PC?
Driving me nuts trying to figure it out today...grrrrrrr
TY
Laura
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Laura --please excuse me for not answering your question but I'm kind of in the mood to unload on my May sistahs.
Women, everything you said strikes a chord with me, even if our particulars are different.
This had the makings of a most excellent year for me. A book coming out! A Fulbright! A yearlong sabbatical! And yeah, the book is still coming out (I think it is officially "out" as of yesterday, actually) and I am still going on the Fulbright and I am still taking the sabbatical but . . . well, everything kind of feels like the concession prize, or whatever it's called rather than the real deal.
Plus, I now have all this stuff I need to get done and in an abbreviated fashion. And people keep telling me, "You must be so happy treatment is over! You must be so excited about going to South Africa! It's great that your book is coming out!" And I WANT to feel that way but instead I feel as though I want someone to come scoop me up and haul me off to sit in a rocking chair on Sue's porch for the rest of my days (punctuated with excursions on Otter's boat and sitting around a campfire in Tasmania).
Sue -- Enjoy your time in the Smokies. I'm so glad your mojo is back. And Noelle, I'm happy that you're happy Aunt Flo paid you a visit.
I don't know why I'm so out of sorts. But I am. It will pass, I'm sure.
*hi karin!
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Rock, if you do get to Sue's porch (and thankyouverybloodymuch for that most beautiful of images) you will find me there first. All I can manage is 'in the moment' stuff'. For example, we have waited 2 years to be moving into this house of ours and I am (intellectually) desperate to get my chickens, and do my linocuts in the sunny window. I am also (intellectually) beside myself about shopping for 2nd-hand timber beams, and building our shed on the estuary. But the reality is..apart from feeling (relatively) physically brilliant, I don't feel much at all. All you other girls? I think we have been the victim of a giant, complex burglary..you know, where for years we discover things missing. Rock, I would be gutted on your behalf if you cannot bounce from cloud to cloud about this book and this scholarship and this trip os and this sabbatical. If fecking bc has stolen that, I will be REALLY pissed off. Yes, the feeling will pass. But I don't want (on your behalf) the fecker to keep coming back. O-h-h-h. That porch visual. Is there room for 10 of us? I can think of nothing I would rather do.....XXX
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Laura,First you need to open a free account in Photobucket (www.photobucket.com). Upload your images there by following their instructions. Once you have an image in an album you need to copy the direct url from the info under the image. Then come back to bc.org and start posting your message.When you get to where you want to insert your image, click on the little tree in the toolbar at the top of the "Post a Reply" window (next to the happy face). Paste the Direct URL info into the Image URL field, set the alignment (I usually use "left so it doesn't mess up the window for everyone), and click on "Insert". It should come up in your preview window. If the image is too large, you'll have to go back to photobucket and make some size adjustments.
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Thank you very much Roxi!
Laura
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Had a great day here. I went with my gf to our hairdresser and watched as she got highlights and a cut. She was worried that it would bug me being there, didn't bug me a bit. Then we took a mini road trip to go shopping and for lunch. By the time I got home my feet were killing me. My neuropathy pains were back in them... just enough to be irritating. I'll be glad when that is gone.
I'm kinda with noelle about the girlie stuff returning eventually. I'm getting tired of carrying stuff around with me daily "just in case" ...sheesh.
Bought the CUTEST pair of boots today at kohl's. I think I need to get some inserts for them though. No padding at all inside for the feeties... did I say they were cute already?? lol
Still making up the card list if anyone else would like to be in on it...... just pm me your addy and I will put you down to be passed around.
Karin~ hope things are ok with you!
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How do we do that? How is it that we (the May girls) are so often on the same emotional rollercoaster? I thought it was because I had this cold, but it's pretty much gone now, a hit and run sore throat with a cough. But I don't think so. I've had a hard time just logging on and reading, let alone posting anything worthwhile. Raining outside was my excuse today (even though it stopped at about 10 AM) for staying in the house all day. Kerry, I'm with you on the "intellectually" part of things. I am "intellectually" ready to move on and do many other, regular things. But I'm not DOING it. And, for me, it changes on a dime. For a few days, I'm up and running and then - WHAMO! Something happens and I lose all motivation. We watched 3 movies in the last 2 days. I didn't even do that all through chemo!
Rock - Apparently I needed to unload, too. Thanks for the opening. I, too, am sure it will pass, but for now it sucks. Ahhhhh...Sue's porch...sounds lovely.
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