Nurses with Breast Cancer

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  • 3rdSister
    3rdSister Member Posts: 2
    edited October 2008

    I have read as well that nurses on night shift have a higher incidence of breast cancer.  I never thought about the diseases or the artificial lighting we are exposed to.  We are certainly exposed to many chemicals.  My mom always thought that my sisters (neither were nurses) got their breast cancer because they lived in a certain nieghborhood when they were very young.  Many children in that neighborhood got cancer when they got older.  I never lived there.  I do know that nursing is a very stressful job and stress can be a prime factor in breast cancer occurance as well.  I see so many nurses give so much of themselves to their jobs and their patients and then not take care of themselves.  We need to work on that area for ourselves and our colleagues!!  I have to admit in my 27 years of nursing, I have only worked with a couple of nurses with breast cancer.  But, my perception could be skewed.   

  • irishdreama
    irishdreama Member Posts: 938
    edited October 2008

    I think that it may be healthcare professionals in general. I have it (I'm a medical asst.) and my friend has it-she's the senior advocate(social worker) for the hospital. I was diagnosed just a month or so before she was. That would be a very interesting survey.

  • anna62
    anna62 Member Posts: 76
    edited October 2008

    I think its a shame that people (collectively ) assume it is something we did in our lives that caused us to be the "chosen ones"  I look at it as dodging the bullet, I believe that everyone , everyone has the potential to be where we are, there is nothing you can do, diet , excercise, vitamins, nothing it is just a matter of cell division, I just didn't dodge the bullet this time, it is a crap shot.  Those are my thoughts, I hope I am not offending anyone. = >

  • Jo_Ann_K
    Jo_Ann_K Member Posts: 277
    edited October 2008

    No offense at all.  The reality is that this is such an unknown and it's so cruel that the natural tendency is to try to blame something.  I mean why should we be the random pick of the dice?

    Today is a downer day for me.  My aunt, who was like a second mother to me, after my Mom died, is in the last days of her life now and I'm very sad.

  • Dawnmrn1
    Dawnmrn1 Member Posts: 446
    edited October 2008

    Hi!  I too am an RN with 31 years experience. 20 of which were in the OR! Who knows what makes us part of this club!  I've been zapped with radiation, exposed to gases, lived in poluted areas, exposed to 2nd hand smoke, eaten meat, drank coffee, and eaten processed foods. I've worked all shifts, been on call, and have had plenty of stress! Would I change any of it, I doubt it! I am happily married with a teenage daughter, now I work part-time,as an RN, doing cataract surgery. I went back 3 weeks after my mastectomy! I think living a full life and doing what makes you happy is the answer, who knows why we ended up here, we can't change it anyway. Find a place where you have peace of mind and go forward!  My best to all-

  • irishdreama
    irishdreama Member Posts: 938
    edited October 2008

    I'm with you dawnmrn1!

    We are given what we're given in life, and there's always somebody in worse circumstances than we are-I thank God every day that I feel as good as I do RIGHT NOW and that I have a beautiful, healthy daughter. I went back to work 10 days after my bilateral mastectomy (with a nice dose of shingles at the same time) and think I'm stronger for it. Everyone has to do what they think is best for them.

  • KAK
    KAK Member Posts: 1,679
    edited October 2008

    Hi, sisters!  Hi, Anne!  I'm a PT & am glad to find this thread.  I was thinking of starting a thread myself for healthcare professionals with BC.  There's at least one mammographer on this forum & I'm going to let her know about this thread.  Can you believe it?  How positively ironic & difficult to be a mammographer, of all things, trying to figure out how the heck you can face returning to work.  Except maybe for the onco nurse that posted here!  Now I have to go back to remember who that was.

    Mostly, it's been a good thing to let my docs & so forth know I'm a PT, because they all seem to relax more & realize they don't have to translate medical-ese into English or get taken aback when I ask detailed questions about treatment & research data.  Also, from the get-go, my breast surgeon was soooo helpful about making sure I didn't talk myself into going back to work too quickly; she made me stay out until I was thoroughly healed, partly because I do have to lift patients & partly because she wanted me to feel able to focus on my patients & not be totally frazzle-headed.  I'm still frazzle-headed, but at least not all the time!!

    I work in homecare for the Visiting Nurses.  Homecare rocks!  I love doing it & I love my nurse buddies.  The nurses I team with the most, i.e., share patients with, are like my sisters & they have looked after me with great compassion.  All my colleagues have been completely awesome.  It makes me tear up just thinking about it.  

    I think it's really hard for us to be patients, to ask for help, to be on the receiving end of all this.  I was so glad when I finally did get back to work.   A day on the "front lines" of homecare is better than 5 minutes as a cancer patient!!   I have felt positively schizoid sometimes, because the clinician part of me will know certain things that the patient part of me has forgotten.

    Also, for virtually everything else, including a lumbar diskectomy 4 years ago, I have had no problem being looked after at the local hospital by my colleagues whom I've known & worked with forever.  But after the second mammogram, when I was told to get a biopsy, I went elsewhere to get followed & treated.  RI is a small state, so in a way, everybody in healthcare knows everybody else.  But as it turned out, I was glad I got my biopsy & breast MRI & lumpectomy & radiation, etc. & so forth at places where I could just be a patient who happened to be a PT & not where I would know everybody walking down the corridor.

  • donutswife2003
    donutswife2003 Member Posts: 38
    edited October 2008

    Hi,

    I am a labor and delivery nurse of 18 years so all of this treatment and meds are quite foreign to me. I didn't get my RN degree until I was almost 40, a late bloomer I guess. We don't give too  many complicated meds in our department so excuse me if I ask stupid questions.Sometimes I think my dr's just assume that I should know what's ahead and all the meds involved. I am  thankful  for this site as I have found so much valuable information. There has been several people diagnosed with BC in our small community hospital within the past 5 years. Makes a person wonder doesn't it. I live in a farming community so my concern is with all the field chemicals that may seep into our drinking water. Maybe we will never know.

    Susan

  • Roya
    Roya Member Posts: 346
    edited October 2008

    Hi There! Smile

    I just noticed this thread!!  I am also an RN.  In the past I have worked off and on depending on where we were living at the time.  Right now I am not working because we are living in Paris.

    The last time I worked, which was about 3 years ago, I worked at night. This may be difficult to understand, but working was my way of keeping up with my profession and helping others at the same time.  I don't have to work but I worked 2 nights a week and loved every minute.  It kept life interesting and I got to be more than just a wife and mom.

    Now, everyone tells me that working nights is most likely the reason that I got BC.  At first this made me feel very angry.  All my life  l've lived a very healthy lifestyle which included lots of exercise,organic foods and no red meat.  My parents did the same. I am the first one on either side of my family to get any kind of cancer.  I realize now, that anything can be the cause of BC and lifestyle and or environment may or may not have anything to do with it at all.

    Anyway, my family and I are growing stronger and closer together through all this.  In some ways each of us seems to be experiencing the life lessons that have been brought to my family  through my experience.  Our 4 year old seemed confused at first especially because of all the changes that we made when I started chemo.  Suddenly she found herself in a full time preschool instead of home with me.  Now a nanny lives with us because when she is at home, I have been too tired to watch her properly and keep her safe.  Now she is soooo happy to be in school with other young children, making new friends, etc.

    My eldest daughter, 17, is seeing a psychologist because she is terrified of losing me.  Two of her friends have lost their moms from breast cancer.

    My son, 14, seems to have adjusted ok but then, at that age, they don't always express their true feelings. 

    DH has been wonderful but he has to travel a lot and is away much of the time so I feel alone so much. 

     Anyway, I am very very grateful for this website.  It has been a lifeline for me  especially by my being an expat in France  and not being very fluent in French yet.  I have learned  and shared a lot  with other BC sisters........things that I would not have learned otherwise.  I am so appreciative.

  • Jo_Ann_K
    Jo_Ann_K Member Posts: 277
    edited October 2008

    Welcome to all the new healthcare folks who have joined this thread!  How nice it is to bond with others who understand what it is to be in healthcare and have a health problem, but how sad it is for all of us to be here.

    KAK, one of my favorite jobs was working 14 years with the VNA in Washington DC and Baltimore. I even worked in hospice nursing then...

  • AnneW
    AnneW Member Posts: 4,050
    edited October 2008

    Roya,

    Don't be angry about your time on night shift, which you loved. I am really nowhere near convinced that this has a direct link to breast cancer. Sure, cortisol levels change on nights, but there are a gazillion night shifters out there, not just in nursing, who don't have bc. Yet, anyway.

    The real reason you got breast cancer? You have breasts. Beyond that--we just have hunches, but not facts.

    I'm sorry your daughter is going through this fear phase. I hope counseling helps her.

    Take care of yourself. We're here for you,

    Anne

  • hvnlyangel
    hvnlyangel Member Posts: 7
    edited October 2008

    HI Amber,

    I am not a nurse or health care professional. But you are human too and depending on what kind of nurse you are, yes you need information too. I am now 7 days out from surgery.  I am one that doesnt like to be pampered but have to learn to let it happen.  I do want to say that nurses are wonderful people they take better care of you then doctors.

  • bar62
    bar62 Member Posts: 321
    edited October 2008

    Hi  fellow  nurses and friends,

    Hope everyone is getting on well with treatments. I don't think working nights caused my cancer but I do want to hear and talk about any and all theories.

     I need aggressive cancer treatment--triple negative is my dx-- but it's semi-aggressive for now because I'm waiting for my Neupogen Foundation to kick in. Here's hoping my Metformin is really working. I take heart from the report I read about it on this site. That it is somehow protective..sorry I can't remember the details but the report is on this site.

    My tumor was large--3.5 cms--came out of nowhere, and is  triple negative, yet all nodes(19) removed by my surgeon were negative. Metformin doesn't affect survivorship...Diabetic stats are included in article but any  help is good at any stage of this disease.

     http://www.breastcancer.org/treatment/chemotherapy/new_research/20080606b.jsp

     I am also  totally frazzled but praying for all of us to get better ASAP! I want my doc to give me something for my nerves this afternoon to get my Foundation papers done again; the Foundation hadn't received them as of yesterday and I sent them 12 days ago.  I am about to jump off the 26th floor of my coop.:lol:lol

     hugs to everyone

    Mina

  • Jo_Ann_K
    Jo_Ann_K Member Posts: 277
    edited October 2008

    Mina,

    Nice to meet you.  What wonderful news that you did not have any node involvement!!!  That's plenty to be grateful for for sure!

    The waiting game is the hardest part of this journey.  It's those time that test us most.  Hang in there!  We're praying for you!

    Regards,

    Jo Ann from Maryland

  • bar62
    bar62 Member Posts: 321
    edited October 2008

    I send much love and  and warm hugs to you Jo Ann... back soon.

  • OG56
    OG56 Member Posts: 897
    edited October 2008

    Hi Everyone, I too am a nurse, have been since 1975. I have worked ortho, rehab and since 1988 have worked inpatient psych with kids. Now I train and consult to a specific behavioral model for working with kids. I moved to NY in 2003 to continue this work. Unfortunately I knew very little about BC when diagnosed and really have become educated at this site. It was kind of funny because my family just couldn't understand why I didn't know much about my BC "but your a nurse".

    Good idea to start this board. Thanks

  • KAK
    KAK Member Posts: 1,679
    edited October 2008

    Thanks Jo Ann, for the welcome.  I sent the link to this thread to a mammographer who is dealing with BC.   We used to have a hospice department in our agency, but Medicare nearly put us out of business when OASIS came in (that is a form of torture disguised as endless paperwork, for those of you who are not in homecare!), so we had to turf our hospice department to someone else.  Now, that the someone else may be going out of business, we may be doing it again.  I worked with the hospice team when we had it inhouse before & occasionally, the outside hospice agency subcontracts PT's for their patients, so I've gotten to do it again.

    One of my favorite patients ever was a women on hospice care that I treated & was even her case manager sometimes, who died of ---- you guessed it --- breast cancer.  I met her when she started getting bone mets & having path fx's.  That was 12 years ago.  She gave me a silver-spoon handle that her daughter had turned into a key-ring, which I still have & use every day.  I think of her with great poignancy these days.

    Kathi

  • pk0199
    pk0199 Member Posts: 586
    edited October 2008

    Hi All,

    The mammographer here!

    Glad someone has started a healthcare page, as we all know sometimes we can make the worst patients. It is hard to be on the other side of healthcare.

    I have to agree with Annew about her theory on why we have gotten bc, we have breasts. In my line of work I have seen many many people with this disease and so many of them state that they had no fam hx. We know cancer is not picky on who it chooses, it chooses people from all different cultures and all different ages and as we know , both sexes.

     For me now, my next step is figuring out how to go on, how to take that next step to go back to work and to deal with this both in my private and work life. My boss (also a good friend and one of my main supporters) is coming for a visit today so maybe this will be a good time to discuss some of my fears with her.

    Thanks to all of you for your inputs, reading these make me cry sometimes but helps in the knowledge that I am not alone.

    Sisters in more ways than one!

    Penny

  • anna62
    anna62 Member Posts: 76
    edited October 2008

    Welcome Pennyk0199

    One of my dear friends is mammo tech, her mom died of BC and she tested positive for BRCA gene, she had three boys under the age of ten and opted for bilat prophy mast with recon.  I am an ER nurse and I can't help but wonder when you have a mammo who does it for you ???  Your co workers ?  Finding something on your films must have been so hard for them too.  I mean the radiologist knows you so well, it must have been a tough time. Thanks for the job that you do  !!!

    Anna

  • KAK
    KAK Member Posts: 1,679
    edited October 2008

    Penny, I'm so glad to see you here.

    Kathi

  • KAK
    KAK Member Posts: 1,679
    edited November 2008

    Nurse & Healthcare Sisters, if any of you has a moment, maybe you could visit this thread & reassure this poor woman that not all nurses & healthcare clinicians are such bleeping idiots.

    http://community.breastcancer.org/forum/5/topic/723711?page=1

    Thanks!  Kathi

  • haltsaluteatx
    haltsaluteatx Member Posts: 97
    edited November 2008

    Hello all

     I was pleased to discover this forum during one of my many sleepless nights. I enjoy the wisdom here and look foreword to the discussions. I had bilateral mastectomies on 10/28/08. I have been an RN for 24 years. I work nights on a Nephrology/Transplant/Urology unit.

  • SaraRivka3
    SaraRivka3 Member Posts: 8
    edited November 2008

    I was just dx 10/22/08 and am schd for bilateral mastectomies in 4 days (Nov 5). My Biggest question is what kind of sensitivity will i have on my chest when my incisions are healed. Will I be able to feel touch to my chest? Is there anywhere on this site where intimacy is discussed? I have other questions, too. I am planning not to do recontruction. Should I have a plastic surgeon as part of my surgery team in 4 days? Aghh . I need lots of information/questions answered. I do have an appt.that I requested  /c the surgeon Monday. I don't know any results other than IDC, and 1 cm. What *must* I know before surgery? Thank you all soooo much. I am (oddly enough) a prn Breast Bx RN at a Breast Dx Center. I also work for the state Health Dept as a Wellness Nurse. I worked for a couple years as a pediatric chemo nurse, and also on GYN surgery floor, school clinic, free clinic, kids camp, also direct entry midwife before nursing school. 

  • KAK
    KAK Member Posts: 1,679
    edited November 2008

    Sara, here's a link to a section of the site on intimacy.

     http://www.breastcancer.org/tips/intimacy/

    Also, in the Family Matters... section of the forum I think there are some intimacy threads.  Also, check under Moving On for other threads.  Also check under the Surgery thread.

    Also you might want to visit the Reconstruction topic here & check out www.breastreconstruction.org which is run by one of the women here (BethNY).  There's a lot of info here in this forum & on the regular part of the site.  There's also a topic category here for women who don't do reconstruction that you can check out.

    Good luck whatever you decide & remember, you can reschedule your surgery if you need more time to consider your options!  And talk to your surgeon.  And maybe talk to a plastic surgeon first, if you want.  This is a huge deal & you want to make sure you feel okay with your decisions.

    Hugs,

    Kathi

  • haltsaluteatx
    haltsaluteatx Member Posts: 97
    edited November 2008

    Hi Sara

     I am 5 days post bilat mastectomies. I cannot comment on the feeling after incisions are healed. Now, I have numbness under both axillas and r upper arm at times. I have odd sensations to my chest at times such as twinges, cool and tingling. I have 2 jackson pratt drains. I declined reconstruction. If you are unsure, you should talk with a plastic surgeon pre op. If you are certain about no reconstruction, talk with the surgeon about the anticipated appearance of your chest.  Also are you having a sentinal node sampling during surgery? Another consideration is a pre op PT eval and expectations for post op PT. I was a bit unprepared for the emotional reaction after surgery. I went home 12hrs after my surgery. On the second post op day I was an emotional wreck and it was hard for me to give in to it but important to do so.  My partner and friends were amazingly supportive. I couldn't have gotten thru this without them. I am truly blessed to have such wonderful people in my life. Anyway, this is my experience. I agree with KAK that you need to feel confident and comfortable in your decisions.

    Take care and let others help you

  • KAK
    KAK Member Posts: 1,679
    edited November 2008

    Penny & Mina (Bar62), you two were awesome to address the experience of that poor woman who had the bad time with her MUGA & MRI.  On of the mamm techs I had on my team for my stereotactic mamm & biopsy had had DCIS a few years ago & when I told the team I was a PT, she told me about herself & the radiology nurse chimed in & kidded her colleague about what a wuss she was during her stereotactic biopsy, but it was all done with affection & they were so sweet & funny & empathetic after that, like we could all just be human together. 

    We all know how hard it is to deal with a patient who is afraid, so when I'm the patient, I try to use some humor myself to help me relax & to let the folks dealing with me know that I'm okay & won't flip out.  It's tough though sometimes.  And this is a real learning experience for all of us as clinicians, isn't it???

    I think no matter how big or how small a part of our breasts we lose to this disease, it's traumatic.  I now often describe my very extensive lumpectomy as an amputation when I am talking to people, because "lumpectomy" & "mastectomy" don't quite resonate for the average person.  But most people can relate to the idea of losing half a leg or both legs, for that matter.  It's a huge thing & our breasts are an intimate part of ourselves, no matter how we think we feel about them.

    When the post-op swelling finally went down in my breast, I was gobsmacked by how misshapen it was, how much the nipple hurt, how the aureolar incision tightened up so that my breast & my nipple puckered on either side of it, how much hard, adhesive tissue formed inside around the edges of the excised tissue area.  Oh my god.  I was thunderstruck & like Nicole unprepared for how I felt.  My surgeon is a woman & a peach, and neither of us quite expected that because my breast looked awesome the first few weeks post-op.  I was so freaked, I was afraid to call her & get another follow up visit.  But I finally did, & when I saw her, thank goodness she acknowledged right away what was going on & validated my feelings, so I ended up just crying my eyes out with her.  It really allowed me to grieve so I could move forward.  One of my nurse buddies had driven me there that day, & we went out to her car afterwards & I cried all over again with her.  Made me feel a lot better.  I think I had been placing these unrealistic expectations on myself to take all this very stoically because I'm a "professional" & not letting myself be a patient.

    Once I gave myself permission to be human & let my friends know what I was going through, I was able to start healing for real.  But it's still a long process, both physically & emotionally.

    As I've said elsewhere, I feel like I've found out I have a stalker.  And I think I'll be looking over my shoulder for a long time.

    Kathi

  • pk0199
    pk0199 Member Posts: 586
    edited November 2008

    Hi Kathi,

    I think you are correct when you say to give yourself permission to be human and have your emotions. I have finally said to myself that I am going to give myself that permission, now to just follow through, baby steps...

    Also thanks for putting in the bit about areolar pain, thought I was going a bit wingy there. I am finding even material against my nipple is extremely sensitive, getting a bit better though.

    Thanks again for your help.

    p

  • KAK
    KAK Member Posts: 1,679
    edited November 2008

    Penny, I think I may have posted this before, but I used a product called Oragel on my nipple, which is sold in the States for toothache pain, but it is a form of topical benzocaine & works well for extrasensitive nipples.  Those nipple sx. can last 4-6 months off & on, I'm told.  I still have it, though it's much more intermittent, but there were times earlier on when I had to just lie there with nothing on, it hurt so much.  Also, try a softgel coldpack covered with a teeshirt.  Kathi

  • SaraRivka3
    SaraRivka3 Member Posts: 8
    edited November 2008

    Dear KAK and Haltsalute, Thank you very much for your helful posts. I went to see the BS today and am feeling a littel better (though mostly from the circle of loving women on this site!).

     I do have a question for everyone and it is this. The surgeon said he does not use drains. I am having a bilateral on this Wednesday. I have taken care of lots of pts. who have had reductions or mastectomies and I have never seen one that didn't have drains. The surgeon tells me that he often has pts that return 1-2 times a week to have fluid drained from the upper chest. I live an hour away from the town he is in and i do not like this idea. He is pretty firm that he will not use drains. (He also will not tell me anything about my ER, PR or HER2 status until after my surgery -- he is a bit militaristic in his manner -- we get along. He just is very paternal).

    Have any of you seen or experienced not having drains for a bilateral mastectomy?

    What was the outcome? 

    I am partly of a mind to call him and say drains or no surgery... 

    Blessings, Sara

  • bar62
    bar62 Member Posts: 321
    edited November 2008

    Hi Sara,

    I had a drain placed by my surgeon thank God. It drained 1000cc/1 liter of fluid  from July 23 to August 4 when they removed the drain.  How about another opinion? NO harm  to him and reassuring to you. If I hadn't had my drain placed I would have had to be drained  and more than once.

    back later to read and post...off to watch election returns.

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