Free Iodine Tests for Breast Cancer Patients

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Free Iodine Tests for Breast Cancer Patients

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  • anondenet
    anondenet Member Posts: 715
    edited December 2009

    Gang, FYI

    Hello to those not yet tested for iodine deficiency,   Breast Cancer Choices' Iodine Investigation Project is collecting data on the iodine. The test is reimbursed to bc patients.

  • anondenet
    anondenet Member Posts: 715
    edited September 2008

    The Iodine Investigation Project has resumed reimbursing the Iodine Test for breast cancer patients. See www.breastcancerchoices.org/iproject or email sally@breastcancerchoices.org

    They are giving me a follow-up test to see if my iodine levels have come up since the last time. I believe taking selenium as well as Vitamins B2 and B3 has helped with my iodine absorption. Dr. Flechas told me those vitamins are "co-factors"  and repair the absorption mechanism.

    Anom 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    My oncologist never mentioned iodine, bromide, or any other deficiency vis-a-vis my breast cancer. Neither did the surgeon or radiation oncologist.

    Why is that?

  • anondenet
    anondenet Member Posts: 715
    edited October 2008

    Most oncologists are very behind in their research.

     Also, those who are informed about iodine, practice a "Don't ask, don't tell" policy. They don't want to hear what you are taking if it didn't get published in the Manual of Clinical Oncology treatment guidelines.

    Doctors can get censured for not sticking to "standard of care" medicine.

    You have to find an Iodine Literate Practitioner in your area.

    Anom 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    Interesting. My radiation oncologist is the head of radiation oncology at my hospital, and a leader in his professional organization, as well as sitting on state boards for cancer. My oncologist attends weekly seminar at Johns Hopkins Hospital, a NCI Comprehensive Cancer Center and top research hospital. I think they're both up on their research.

    I also know, from having spent hours talking with them and being examined by them that they're interested in giving me the best possible treatment available, that has been proven effective in randomized clinical trials. Can you point to the peer-reviewed, published clinical data from iodine deficiency studies? 

  • anondenet
    anondenet Member Posts: 715
    edited October 2008

    LJ13,

    I'm not following your reasoning.

    You mean, because your oncologists are in positions of official authority, it necessarily follows that authorities have the most accurate information for your situation?  If you think this reasoning is sound, please consider the authorities currently running the US and world economy.

    I'm sure your oncologists mean well. Just as the economists do. The notion that authorities must always know what they are doing has repeatedly proven a fallacy. Oncs practice consensus-based medicine, not evidence-based medicine. If your rads onc were following evidenced-based medicine, he/she would not be giving radiotherapy post lumpectomy after it has been proved to show no absolute survival value in their own literature.

    But I'm sure your rads onc already informed you that the cardiac compromizing rads procedure had no survival and a higher risk of death from cardiac damage.

    Or perhaps there is a new, peer-reviewed article which contradicts all the preceding ones showing no survival value? I think it is curious that you would ask me about iodine studies when the rads studies have shown no absolute survival value. You are asking for a different standard to be used for one kind of medicine than another.

  • gymgirl
    gymgirl Member Posts: 121
    edited October 2008

    I had a blood test for thyroid function, came back normal. Is this related?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    Show me those studies anomdenet. Or stop making ridiculous claims.

  • anondenet
    anondenet Member Posts: 715
    edited October 2008

    LJ13,

    Let's review. No one is "making claims" other than you, claiming your oncs gave you authoratative information just because they were authorities. That is called a tautology.

    Also, the name-calling on your part closes this discussion for me. I only give my intellectual capital away to serious brokers. You will have to do your own research.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    anomdenet: Your first post says, "research shows a clear connection between iodine deficiency and breast disease..." That is a claim.

    You asserted that my doctors aren't "up on their science" because they don't subscribe to some recent controversial study data. I provided some of the ways in which they are up on their science. If you're going to debate an issue, at least keep the facts straight.

    The only name I called you was "anomdenet." I believe that is your screen name.

    Studies such as those cited are not science, and they do not prove anything. Studies like that are statistical correlations, ones that suggest a relationship. Much much more study is needed before this kind of stuff becomes accepted as fact. Much more.

  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited October 2008

    Thanks for posting your links cp418. 

  • Liz08
    Liz08 Member Posts: 470
    edited October 2008

    CP418-

    Thank you for sharing your links/info.  It's much appreciated.

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