Doctor Choice for Chemical-Free Treatment?

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Hi all,

I am choosing not to take Tamoxifen after having a mastectomy, 6 tx of chemo, and having another mastectomy soon.  I've researched A LOT, and have settled on supplementing my diet with indole 3 carbinol, iodine, vitamin D and folic acid, in addition to a daily Centrum.  I'm confident with this, but would love to have a dr. who would help me monitor my levels, etc. and be supportive in this.  If any of you have found a dr. who goes this route, what kind of dr.??  I've checked with a chiropractor and a "nutritional counseling" DO, and neither of them seemed to be on the same page.  Any suggestions??  Thanks!

Comments

  • StaceyR
    StaceyR Member Posts: 136
    edited October 2008

    try a naturopathic doctor.  I'm foregoing Tamoxifen as well and have consulted with 2 naturopaths who seem comfortable assisting me down this path.

  • catlover44
    catlover44 Member Posts: 160
    edited October 2008

    Stacey, thanks for the advice.  I would ask about the ins. paying for a naturopath, but since you are in Canada, I think things are different for you!  Aren't you the same Stacey who had the punctured lung earlier this year, right after I had mine?  Glad to be rid of that port and all its connotations...how about you?  In any case, it's always good to have support from others who are telling the drs. to stick their Tamoxifen.  I feel like it's trading one possible risk for several others that are at least as bad, if not worse.  What are you doing in lieu of the Tamox, if anything? 

    Here's to being chemical-free! 

  • StaceyR
    StaceyR Member Posts: 136
    edited October 2008

    yeah, that's me who had the punctured lung nonsense.  I wish I could say that my port is gone, but unfortunately, I've learned that port-removal is low on the priority list for minor surgeries here, so they tell me it will be *months* before I get it out.  It sounds crazy but I'm trying not to get upset about it, since there's not a lot I can do...

    As far as the naturopath goes, they're not covered under public insurance here, so I will have to pay out-of-pocket and get reimbursed through private insurance, but at least my personal insurance covers most of it... And both naturopaths I consulted offered a free initial meeting, so at least I get to assess how I feel about them before paying.

    And on the hormone front, I have done a TON of research and learned that there ARE natural alternatives and lifestyle changes I can make; so many things in our environment mimic the effects of estrogen in the body, so there are some we can control or limit our exposure to.  I'm trying to go all-organic (fruits & veg) these days, so avoiding pesticides.  Also, although I learned that in Canada we do not give hormones to dairy cows (in the US you do), I'm still eating organic dairy.  I'm having a harder time finding organic meat, so I've reduced my meat consumption (not that it was all that high).  I'm also avoiding plastics, which may or may not contain Bisphenol A ("BPA") (I can't be bothered to learn which plastics are the "safe" ones) - you may have read some of the scary news about BPA lately, how it mimics hormones in the body, etc.

    In addition, supplements like Indole 3 Carbinole ("I3C") (which is synthesized from vegetables like cabbage!) are supposed to be natural estrogen regulators. (See this study.)

    I already take several supplements, but I'm thinking of adding more.  Things like melatonin, vitamin D, flaxseed, turmeric, green tea.

    Anyway, I'm with you on wanting to be chemical-free.  The thing that has frustrated me the most in dealing with doctors is that they don't seem to encourage you to participate in your own healing - they just want you to sit back and let them treat you.  Nobody asks me about my diet, nobody asks me about my other habits like exercise, smoking, alcohol intake.  I kinda feel like declining Tamoxifen and gearing up for some personal vigilance is my way of taking the wheel.

    Let me know what you end up trying!  I have a month of radiation ahead of me, so I'm still in the treatment stage, but gradually phasing in the stuff I mentioned.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2008

    It shouldn't be too difficult to find someone to assist you down any path you choose, when you choose to follow a non-conventional path. Just keep looking.

    But I wonder, are you looking for validation, or are you looking for the best treatment for your condition?

  • everyminute
    everyminute Member Posts: 1,805
    edited October 2008

    I guess I am fortunate (for someone who has bc anyway).  My oncologist strongly recommends that I work with an integrative med dr.  In fact, the integrative med practice has an office in the cancer center that I attend.  My onc suggested accupuncture during treatment and allows certain vitamins now.

    It is a good balance of eastern and western med and is truly complementary not alternative.

  • Liz08
    Liz08 Member Posts: 470
    edited October 2008

    Catlover-

    I see a naturalpath regularly. My insurance covers her visits but not the supplements.  She does blood work and based on the results, she recommends supplements.  She came recommended to me by my breast surgeon who has been referring breast cancer patients to her for over 20 years.  Also, my naturalpath specializes in women's health.   I am on a long list of supplements and indole-3 is one of them along with vit D3.  Wishing you the best.

  • catlover44
    catlover44 Member Posts: 160
    edited October 2008

    Thanks for all the advice--hopefully I'll find a good naturopath or integrated med. dr. soon.  And LJ13, mainly I just want to find someone who will do things like monitor blood levels etc., and who is knowledgeable about bc specifically.  I don't feel the need to be validated for not taking Tamoxifen, but it would be nice to be assured that the supplements and dosages are where I should be. 

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