School decisions - would love an opinion
I would love some opinions on this subject. I was responding to a post on the mets board. Our situations were a bit similar. The post is called "Ooooooh I'm Steamed" by Watson if you would like to read her story. Anyway, I would love to know what people think of my situation.
"We had worked really hard trying to keep my kids as unaffected as possible by everything surrounding my "journey". They really did not need to know much at all and only on a need to know basis. Mommy was sick and had to take medicine that might make her look weird and feel sick. That was the extent of what my kids needed to know. They were 4 & 6 at the beginning.
Everything was going fine until a teacher at my daughter's school (she was in 2nd grade at this time, 7 years old) was dx'd with BC and arranged for the counselor to visit every class and talk about cancer and what was happening to this teacher.
This totally freaked me out because I was so afraid something would be said that would scare my kid and make her think I might die. I called the school and begged them not to go through with this but they were having none of it. By gosh, every child just had to know all this information and who cares what the parents thought.
In the end they called me and asked me if I wanted her removed from the class when this session was to take place. I said no and no real harm was done.
I was so mad because I did not think it was in anyone's best interest to inform these young kids about cancer. Maybe I am wrong here and it probably would not have bothered me if I did not have cancer myself. It did make me "out" myself when I really did not want to"
Did I overreact to this? I truly believe that these children do not need to be stressed out by this stuff unecessarily.
Thanks
Comments
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My kids were older (youngest about 12) when I first had BC so we just told them. One person that I went through chemo with was a teacher and she and the principal told the kids what was going on. She kept teaching and they felt that the kids were going to know something was happening and it would be better to explain it. I wouldn't say that anyone overreacted, but this teacher's approach seemed reasonable to me. However it was not a question that affected me personally.
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At 12, I can see explaining to the kids, b/c kids talk at that age and can read into things that aren't there.
At 5-7? No way! Don't they have enough to fear, with 'good touch/bad touch', nuclear age stuff, not talking to strangers, and all those things WE never had to hear about at that age! Geepers! When do kids just get to be kids!
I would agree, that at junior high level, with a teacher involved it's one thing. At grade school level, completely different. Especially since some parents (like yourselves) believe the children need to be children and not worrying about whether their parent will die for goodness sakes!
Just my humble opinion, but I think we already expect and try to get kids to grow up way too fast. They need to be kids first, adults later....
CANCER SUCKS!
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Hey Newter: I read the post on the mets forum last night so know exactly what you are talking about. I just think its a damn shame that both you and yours had to be put through this because of breast cancer. I dont know if it is right or wrong to do what they did - but I know if it were me I would have felt the same way you did.
Nicki
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I work at a middle school and for that age-group I think a discussion about cancer in a health class setting is very appropriate. But for children in Grades 1 - 3 or lower, I think it can be scary - but it depends on how it's presented. I would have asked to be shown the presentation that was being shown to the kids - THEN I would have decided whether or not it would be negative for my child. You have the right to ask the counselor for this information before they presented it to your children......it's a matter of reaching the "top" administrator in your school - sometimes you have to even go over the head of the principal - sometimes you have to reach the Superintendent to make your case heard. I'm happy your children weren't affected in a negative way........I believe parents know best how and when to prepare their children for health problems in the family and you did NOT over-react at all!
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I think when it is your child's own teacher who has cancer, what is told makes a difference. You know - Miss Smith is sick and will be seeing the doctor a lot and may look different for awhile. If there will be substitutes - short or long term. The diagnosis info, I think, depends on the age of the children. It's important for the parents of those children to know so that they may watch their child for impacts.
Telling other classes - especially running a tour - is excessive, IMO. Especially for younger children - who may not get it and may worry needlessly. It's all about being age-appropriate. For young children, it may only be a note home to parents telling them about what is going on and allowing the parents to discuss (or not) with their child. For older ones - say 5-6 grade, there can be more info presented, and (as was the case in my nieces' school) the kids wanted to help with fund raising, making cards, and so on.
Looking at that thread, I would be madder than heck if my child was pulled out of class to help another child 'deal' with cancer WITHOUT MY PERMISSION. Probably a violation of HIPPA laws or some such thing. Allowing children to have a safe environment, where they don't have to think or deal with a parent's illness should be the top priority at any school.
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I realize this is a tough call. My son was in 3rd grade when I was diagnosed. I had been quite active/present in his school since kindergarten (i.e., a lot of the kids knew me.) He felt he wanted to tell the kids in his class what was happening, and the teacher (whom I was friendly with) let him stand up and tell the class. They then made cards for me - one was a huge card that they all signed. The teacher took a picture of them all holding the card, and put it on the front of the card. I'm sure you'll understand when I tell you how much I cherish those cards. And how I looked at them again and again as I went through chemo. But I digress... I did wonder how the other parents felt about the teacher doing that. Cancer is a scary thing, and I'm quite sure some of them went home and said, "xx's mom has breast cancer and she is going to die" or something to that effecct.
About a year after my dx, my son and I were asked to speak at a middle school/high school about living with a cancer diagnosis. This school had a huge team that walks in the Making Strides Walk. We did 8 back-to-back assemblies in the school gym. In the first 2, I talked about being dx, being scared when I found out I was Stage II and needed chemo, etc. In the 3rd assembly, a middle school boy raised his hand, and very tremulously asked, "is Stage 3 really bad?" Well, I just about died right on the spot. What an idiot I was, how could I not think of that fact that children sitting in front of me had to have people in their life with breast cancer. I think I did OK when I recovered. I likened it to having just the sniffles (stage 1) but still being able to go to school, vs. having to stay home and have chicken soup, vs. having to go to the doctor and get medicine. All the same thing, all a cold, but just different treatment based on how bad the cold was. To this day I hope that was enough, and that that little boy felt OK after sitting through the assembly. Again, I digress (it's a pattern with me!
) I did much better for the remaining 5, made no mention of stages, but again I thought, if my child was at that school, I would probably not be very happy with them trotting out a cancer survivor and her son to scare the crap out my kid.
I'm also the mom that found out my child was being used to "help" another child deal with his uncle dying of cancer since my son had "experience" with cancer. I was livid about it at the time, and thinking about it has made my blood boil again.
I guess my conclusion is that the school system needs to tread very carefully. Having someone talk about their cancer may unintentionally impact a child who is dealing with cancer in his or her family. That's a tough call. But what isn't a tough call is this - intervening with the child of a cancer patient or survivor, and talking specifically about the parent's cancer with the child without the parent's knowledge/permission is completely and totally unacceptable.
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I think that knowledge is power and I would be thrilled to have an education about cancer for my kid's school. if counselors gave the information talk, you can be sure they know how to do this in an age appropriate way and probably never even discussed death. I think the teacher was incredibly sensitive in setting this up, particularly if she was going to be teaching through chemotherapy and possibly losing her hair. Kids do best when they understand at an age appropriate level what is happening, rather than left to their own devices to fill in the blanks, because they usually imagine situations much worse than is actually going on. Students would have a reaction seeing a bald teacher walking the halls, if she chose not to wear a wig;. I trust counselors much more than I do parents to appropriately explain cancer at an age appropriate level in a way that is not so scary, yet accurate.
PSK, I'm not sure you understand HIPPA laws-- they are for health care professionals and confidentiality-- teachers, schools, friends, neighbors, librarians etc have nothing do with HIPPA.
Not 20 years ago people were afraid to say the word cancer, they called it C, let alone breast cancer. The Susan Komen foundation was so helpful in demystifying the disease and empowering women to take charge of their health and not feel ashamed about our disease. Some of the responses in this thread make me think not much has changed, when survivors are talking about telling students as being not neccessary. I find that very sad.
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OfP: Whatever. Teachers are not allowed to discuss a child's illness without permission...the school nurses cannot discuss a child's medication with other students or necessary staff. At least not in my part of the world. (we have full-time nurses on staff at all the schools in the district).
I do not think any teacher/school staff member has the right to discuss medical conditions with any child, teacher, whatever without explicit permission from the parents concerned.
Again - when it comes to something serious - like cancer - it is best for school staff to tread very, very lightly. First, if it is a staff member, the school should send home/contact parents prior to ANY discussions or presentations to make certain that there isn't something that could be brought to the surface. If it is a child OR the child's parent/sibling/family member, they should seek permission from the parents before engaging in conversation about the illness AND set guidelines for any future discussions and how it should be handled.
Let me tell you, I have known some incredibly insensitive counselors in my day, and I wouldnt' trust them to properly address a cold, let alone cancer.
A schoolmate of my younger daughter has some severe emotional issues which tend to manifest themselves in loud, angry outbursts, throwing things, lashing out. When they were in 4th grade the child's mother gave permission to discuss with the children what they were to do if the boy became physically violent. Nothing was said about his particular disability/illness, and to this day I don'tknow the specifics. What I do know is that it was handled with delicacy, sensitivity, and the least amount of privacy invasion.
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Why couldn't the teacher and school contact the parents, explain what was going on, and ask the families to handle it in a way they knew their children could handle? The school could offer further counseling, if the parents felt their child had concerns or questions they couldn't answer at home.
Anna
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Hi Everyone,
Thanks for all the responses. At the time I thought it would have been a much better idea to advise the parents to discuss the situation at home instead of this all encompassing education about something so serious and worrisome..
The teacher in question is one of the gym teachers so a lot of the students saw her every week. Still, I hated it and thought there were better ways of handling this if it had to be handled at all.
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I think Anna had a great idea of how the school should have handled it. As somone who never told my kids (18 months and 7 years) at the time, I don't think I would have wanted them to know what was going on. Kids that young just need a simple explanation, not some long detailed report. My kids still don't know much about my history and I'm sure some day I will explain more, but for now I feel it's best they don't know.
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I think Anna's idea is much better.
Some kids will have Grandparent who've been ill, others might have a parent or sib with a problem. You just don't know where the child you're giving the information to has been. Sensitive children, even with a perfectly healthy family could freak, while other children would be rolling their eyes and telling you about their Grandpa's port and how he looked without hair.
The schools get very wound up about these kinds of things. I mean, do they announce when someone is getting a divorce? Where do you draw the line?
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