Anyone starting chemo in June 08
Comments
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ChocolateLover, hope things are getting better. Its AMAZING how big those needles are. Keep us posted on your progress.
To those whose birthdays have passed, belated HAPPY BIRTHDAY!!!!!!!
I'm with HunkyDory when it comes to my hair. I don't think shh...quiet my hair is growing. It took forever before. I still all of my eyebrows, but bottom eyelashes are almost gone. Top are thin but OK.
Tomorrow I de-wig for the school. I can't wait. My wig starts to itch by the end of the day.
Next week is last day for chemo, then I get a month break before radiation. Maybe by then I can eat something that actually taste like it is supposed too. Husband has to go to Seattle in Oct. I'm going as a celebration for completing chemo.
Everyone have a great day and enjoy.
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Liz ..Glad you had such a nice birthday.
I laughed when I read what was on your hat Westie... too funny Vinogal. I guess now we will all be waiting for our hair again.
So glad to hear that Liz, HunkyD and Vinogal are coming up for their lasts....YEAH.
Thinking about you Chocolate Lover... hoping all is well.
Enjoy the nice day all.
Karen
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Tx # 11 tomorrow - 5 more to go after and probably a lump, but mast is not ruled out. the tumor has shrunk abt 65%, and once I get enough courage to make the surgical appt, I will drill her as to my best chances. Onco feels a lump will do it.
Although my son and his bride are supportive, I do not want to burden them with gory details. I see the pain in my son's eyes when I try to talk to him and think part of it is his dad died of cancer 5 1/2 yrs ago in trauma icu. I am very independent and have "come a long way" as a widow, but it ain't lots of fun either.
Good luck to everyone this week and may you have a really good weekend. Hugs and Blessigns, Nancy
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This is a little off topic but... Is anyone else having people constantly telling them about juicing, and raw foods, and wheatgrass stuff? I have had about 4 people the last few days telling me how wonderful they are and I should be doing more juicing etc. I try to be polite, especially when I am at work, but I think it is all a bit nutty. I would rather stick with the chemo chemicals and kill this cancer. Tomorrow is my 40th birthday and I would like to be here for the next decade or two so I don't think juicing is the answer to that...
Kelly
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Kelly, I think people mean well, but are THEY doing what they suggest? There are many theories about food, additives, diet, and environmental factors. My answer to these people is something like: " thanks for the info" or " I have heard about it", or " I need to check that out more". None of it says that you/I are going to rush out and do it, but it does not "agree" either... know what I mean?
Too bad there is no magic formula that will cure this b*tch of a disease. Happy Birthday, Kelly and Happy UN birthday to all others. I am off to chemo # 11 with my umbrella and positive thoughts. HUGS, Nancy
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Hope things go well today Nancy.... great to hear it shrunk that much. If you take the lumpectomy.. as I did... will you need radiation as well??
Kelly HAPPY 40TH.. are you up for a little party?? As soon as certain people heard I had BC... all they talked about was juicing. Honestly, I haven't tried it but I do think it is a good idea.
Hoping everyone else is having a good day.
Karen
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Hey Gals -
CL yikes be strong that really sucks!- my thoughts and prayers are with you! I'm in Red Deer so not far from you! Can they at least give you chocolate as a feel better med?
Well this last and final treatment is making sure I don't forget it! I was on the couch for a week! I think my butt got 2 inches wider! I tried doing laundry - live in a by-level - it was like climbing mount everest! but finally getting energy back in time for my canker stage. I just keep saying to myself - this is the last time I will have no energy - the last time for cankers .... New thing this time - my tongue feels like its been singed - it has like crevises running down it - anyone have that se? Its affecting my ability to enjoy ice cream!
I have peach fuzz on my head - its quite funny looking! Sad thing is I have more hair on my face than on my head - like where the heck did that come form! I am going to be able to audition for planet of the Apes soon! THat hat is halarious! I'm a ball hat person - so when I am at the store people either will look me in the eye or quickly look away! Whats up with that! I have no hair so have powers to turn you into dust if you make eye contact?
Gina - did you get your schedule from Tom Baker. They changed my times so it will be easier to get there.
I met with my onc yesterday only for him to tell me that i am done my treatments - no shit sherlock! I think it was like a graduation appointment and to tell me that after radiation I will have to take tomoxafin for 5 years. yup more hot flashes - can't wait!
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Hey SuePeet,
Good to hear from you! I see my oncologist this coming Monday (after blood tests), then have my third Herceptin treatment. I'm assuming they will let me know if my immune system has bounced back after Tx4. Tx4 side effects were worse than Tx 2 or Tx3, but hopefully they are behind me now. I already had my radiation "simulation" and tattooing on Sept. 12th, but have to go in for a "mock" treatment on Oct. 3rd. The real treatments start on October 7th and carry on until November 7th. I've asked for 3 PM rad treatments as I hope to work until 2 each day. Then it will just be the once-every-three-weeks of Herceptin infusion until next September. I will have MUGA heart function scans after each 4th Herceptin treatment to make sure my heart function is not being affected by the Herceptin. I also have a breast MRI scheduled for Feb. 26th as follow up. SuePeet - when do you start/finish your radiation?
Gina
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Hey Gina
My simulation is on the 9th of October and then I start on the 16th. What is herceptin? Obviously you are on something different than me. I get all these mixed up!
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Hey SuePeet
Herceptin is for Her2+ tumours (about 20% 0f BC is Her2+, which have "accelerater" proteins on them to make the cancers more aggressive); Herceptin is a monoclonal antibody that is available (at around $40,000 per year, which the ACB pays for) for those with her2+ markers. I am ER/PR negative, which means Tamoxifin won't do me any good, so I won't be on that. Herceptin is given by intravenous drip like chemo (at the TBCC also in the Med. Onc. Day Unit) once every three weeks for a year. It takes about 30 minutes to give it. What times are you scheduled for radiation? Maybe I'll see you if it's late in the day.
Gina
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hi y'all,
I'm finally home again and it is Bliss! thankyou for all your positive energy and support.
Apparently I qualify for homecare becoz I'm palliative, so someone will come see me soon. I suppose its a good thing. They can check my BP and oxygen and give me some peace of mind.
Kelly, I drank wheatgrass 4 yrs ago until I couldn't stand even the smell of it. I do think it can't hurt to load up on nutrition and vitamins especially after how harsh chemo is. I know that's helped me make it thru' 7 yrs of stage IV. Do whatever it takes! I take mega doses of vit.C (5g) daily too and never get colds or flu. it really helps to support your body as much as you can.
ok, I'm going to have a nice long soak in the bubbles now. ahhh....
ttyl8r, CL -
ChocolateLover, glad to hear that you are home. I can feel the bubbles!!!!!!
Nancy congrats on the shrinkage. It is nice to hear good news.
I de-wiged at school today. Went really well. A lot of students thought that I shaved my head. Most treated me the same which actually helped me. I like going bare.
Everyone have a great evening.
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Hello Ladies,
I am finished with chemo ,and i do not have to get the neulasta shot this time, i hope and pray that my white blood cells does not drop down so our family can go to the SEAFOOD FESTIVAL thats coming to our town next weekend!!!! keep me in your prayers and i will check back with you good ladies next and let you know what they were next wednesday:)
this is liz19 -
Hugs to all. I had a great chemo session with 3 other ladies I had talked to individually. Imagine 4 on steroids trying to all talk at the same time. My side hurts from laughing so hard and even the nurses were laughing. We are having a last treatment next week for one who will then have surgery in October. They promised to seat us together if as all possible --- otherwise we will do pole races in the halls... just teasing !!!
HUGS Nancy
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Hi Ladies,
I have been so busy lately that I have neglected this support group... sorry. I am also very envious of everyone finishing up their chemo. I am to get #6 FAC on October 9th and am scheduled for a c-section on October 23rd!!! It is time for this little boy to make his apperance. I need to be getting ready for him... pulling stuff from the attick, washing clothes... cleaning the house, I just can't get my butt in gear! After the baby I will get 3-4 weeks to recover then either weekly taxotere x 12 weeks or once every 3 weeks for 4 cycles. Possibly radiation after that.
Did anyone use icepacks on their wrists and feet during the taxol/taxotere infusions? I heard that it helps with the tingling and numbness.
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Hi All:
Marking my place and wishing a really GOOD weekend for everyone. HUGS, Nancy
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Chocolate Lover------Glad you are home and resting easy. The hospitals are not exactly the most restful place to be and I know I feel more comfortable in my own surroundings.
Kelly----I know that juicing is a big thing now for everyone. It just hasn't been something I can jump on the bandwagon with. It's a total change of lifestyle. Even people I know with no illnesses are doing it as prevention. I am just going to go with trying to cut out the processed sugar and try to get about 10 lbs off this body with exercise. HAPPY LATE BIRTHDAY!
LeftyNancy----Glad you are doing so well and had a good day at trt yesterday. Hope you continue to feel good this week.
SuePeet----You are hysterical!....Planet of the apes...I about died. I never thought about the facial hair. Now I have something else to worry about.
Wyoming----Glad you got your wig day done. Sounds like that went well. I haven't been wearing my wig to work...just scarves. My Wig looks nice but after so many hours my head feels pretty itchy...Maybe if I got a wig cap or something for under it. I might have to look into it. Any tips? I have a feeling I am going to have to wear something for a long time. Good luck on next week for you! Are you driving to Seattle in Oct or flying? I haven't been to my rads oncologist yet but bet I will be close to the same schedule. I have a few other things to consider after I talk to the genetics doc.
Jax----You're another one for next week I wish luck to. What kind of multivitamin are you taking and are you using Nioxin hair products. I am going to get geared up for some serious HHH (Head Hair Helpers). Going to need all the help I can get. It will probably backfire on me and I will be cast for Planet of the Apes too.
Liz19---Wonder why they didn't want to give you the neulasta shot this time. Maybe they figure you have oodles of time to build back the whites now. Dip a piece of fresh crab in a little butter and eat it for me would you...
KKing-----Hope you are steadily feeling better and gaining strength after your last one. Yippie!!
Ellimae32----Sounds like you are about done too. Congrats on your little one. Oh babies are soooo sweet. Good luck to you on both.
To the rest of ya, Gina, BBLady.....have a great weekend.
Jeeze...looks like I wrote a frickin book! HunkyD
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Chololate lover - Really glad to hear you are home again!
Gina - all my appmnts are in the am except October 22 - I have to go to some education thingy on breast care - I guess they figure by then my booby will be burnt and they will give me lotion? anyways that should end about 3:00.
Lefty- sounds like you are having fun. My dad always used to say - no one has more fun than people! My friend brought a bottle of champagne to my last chemo session! She is a BC survivor for 6 years now. It was lots of fun.
Have any of you guys heard of Immunotec? Apparently its a new vitamin that is mainly to build your immune system. You gals in the US are normally way ahead of us in the north so was wondering if you have heard anything about it.
Hunky Dory - Yeah my head gets itchy too if I wear the wig too long and when it is breezy out or I am sitting in hockey arena my ball hats don't to so great a job! They gave me a skull hat to wear under the wig for when my hair starts to grow back - it just looks like a khee high pantyhose.
Well everyone have a great weekend! Sue
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Sue: tie a square scarf over your ball cap, like put the pointy part of a scarf folded diagonally inhalf at the back of your neck and tie the ends to the front of the cap. Mix and match colors and it keeps the back of the head and neck warmer. OR take a long scarf and sort of wrap around your neck/head and then to the front of the cap.
I dont dare bring champagne to the last tx party because one of the gals has liver problems and I think the nurses might have a major fit. And another one is diabetic. Anyone have ideas? We will all be there around 10 am and i have no idea about what diabetics can have or not have. TIme to put on my thinking cap - now if I remember how to think... lol
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Hugs and Happy Weekend to all. May you have a good day and night and be able to smile, laugh or chuckle today. Nancy
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Hi SuePeet
Sorry to hear about your mouth problem and to not be able to eat Ice cream how terrible. I know what that is like as I had the same problem from the beginning but it has gone now and can enjoy my ice cream again.
chocolate lover
So glad to hear that you are home from the hospital, now it will be possible to recuperate much faster. Hope all goes well for you.
I was wandering if others are still having the same problems as me, I finished my chemo 5 weeks ago but every muscle in my body hurts like it is stiff especially my legs, arms and neck.My finger tips are so sore I find it hard to do a lot of things and my feet also. In the morning they are not to bad but by night time I am just about crying because it is so irritating.
Thanks everyone for listening, and hope you all do well!
Bonnie
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Liz while dipping crab for HunkyDory dip a little lobster for me.
Ellimae32 congrats on you little one.
Lefty laughing during chemo is probably the best medicine.
Now that I have gone wig-less I don't think I will wear my wig much. I too had itchy scalp at the end of the day. My niece brought me some Nixon hair products to use. I need all the help I can get. Everyone keeps telling me that my hair may be different from before. I hope that means I will have more and some curl.
HunkyDory I will be flying to Seattle. I have a friend whose son lives in Seattle and he sent me a list of things to do while my hubby is at his conference. Should be fun. I will let you know my rad schedule when I find out.
Bonnie hope you muscle aches ease up soon.
Everyone have a great week!!!!
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Hey all- I can eat ice cream and dairy now yeh! BUT currently have 6 -7 cankers in my mouth so I can't eat any solid food! The good news is that I can fit into my skinny jeans I haven't worn in 4 years (yes I kept them!). The mouth washes don't realy work - but what seem to hurt the most is my tongue - it has like a burning sensation! Anyone know what can fix this?
Bonnie - haven't had the soreness except for last week when I sat on the couch for 7 days - my thighs really hurt if I tried to walk too much - like acroos the livingroom! I just figured my muscles were atrophing (I know i didn't spell that right!) from sitting so much!
Hope all you guys are doing well! I just keep thinking this is the last time for cankers or the last time for leaky faucet face or whatever!
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EllieMae... congrats on the baby... hopefully the rest of your treatments go well. Yes, I did the icepacks during the taxotere.. I would recommend it. Does help with any nail issues happening.
Hey SuePeet... I have that as well....leaky faucet face...
To the ladies finishing treatment this week... yippee.... may your s/e be minimum
Well I am 12 days from last treatment... feeling not too bad... energy level is still minimum but can't complain.
Hope you all have a wonderful day
Karen
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Hey Junies........this last round was rough........but had a good weekend........couple of open houses......and lots of hockey........can't believe it's almost Wednesday........last one.......yay.......hopefully won't be feeling to badly........family and I are doing the Run for the Cure on Sunday........fingers crossed for few SEs.......I will post pics after.....
Congrats......EM........babies rock!
Good luck to HunkyD and all those with treatments this week!.......what's next on your journey HunkyD.....rads?
Those who are already done.......yay!......keep posting and let us know how you are all doing.......I get very excited when I log on and there are a bunch of posts.....
Cheers to all
Jax
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Hi All,
I am taking the next two or possibly three weeks off from work for recovery from this last trt coming up. I have an appt with my surgeon tomorrow which is good because I've developed some swelling under my armpit on mastectomy side. I put my old surgery compression bra on today to see if that helps. (Gawd....they are attractive) I think I might have over used my arm a bit helping install a new dishwasher this weekend that..... LEAKED all over the floor once we got it installed. Husband was not a happy camper. Had a broken seal in the door. He went to Home Depot this morning and they told him to bring it back and he said not until they order us another one (different brand) and it arrives. He said he had visions of just dumping that one in the parking lot and he told them that. It was on clearance....not boxed up or anything...we should have known better! It will still work until our other comes in...just have to put a towel down. I just poured a glass of wine last night and put it out of my mind. Speaking of wine......
Vino....I think I will be having the rads next....haven't met with rad oncologist yet but that was the talk at my last appt. You are probably going to go under the knife sounds like. Hopefully they will give you a little recovery time before they do that from your last trt.
Wyoming....hope you have fun in Seattle. I have been there several times myself and there is a lot to see. Pikes Street Market is always entertaining. You can literally get lobster thrown at you there! HeHe! I ordered Nioxin scalp therapy and some Biotin today for hair help. Might be wasting my money but at this point it will be worth a shot anyway.
SuePeet....glad your back on the ice cream....lucky dog losing weight. I have gained about 5 lbs and I hope those leave the building on this last trt. The tongue thing I don't know about. Maybe that magic mouthwash they talk about with lidocaine in it. Don't know.
Karen....you are right behind us. 12 days is not that far away.
Chocolate....hope you are feeling better. Thoughts are with you.
To all the rest of you lovely ladies....Peace Out! HunkyD
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HI All:
Marking my spot. Not much going on with me. Tx on Thurs will be # 8 of taxol and herceptin - then only 4 more to go and a surgical decision to be made. I have done well with the SE but I can moan and groan all I want since I live alone. This last TX had left me with a bit of numbness in my fingers, but I had that with all the wrist reconstruction surgeries - maybe that is flaring up again... UGH !!! And I am using a Ped Egg for my dry flaky feet - along with tons of lotion.
If anyone is in the Tyson's Corners area of Virginia - we will meet at the Tysons Mall Food Court at noon on October 18. Just a casual meet up to get to know each others. Our previous meet up was washed out due to heavy rain.
Good luck and happy thoughts for the rest of the week and weekend. BLESSINGS, Nancy
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hello lovely ladies,
EllieMae, I am so happy for you, but also concerned. Two babies to look after and treatment that will be ongoing for some time. Do you have lots of help? I wish I could come be your nanny for 6 mths! Hmm.....
I too had good "shrinkage" with the taxol (paclitaxel) drug, so I'm quite peeved that my onc. had stated it is time to move on to the next chemo. WHAT? Apparently because the cancer crossed into the blood barrier around my heart, this is definite progression and this tx no longer works in their minds. OK. Whatever. It almost seems like all those years I had enlarged nodes in my neck area (2001 - 2007) and took herbs, vitamins, yoga, meditation etc. everything stayed stable. Then came some minor growth and the med.onc. panicked, got me into radiation (only 10 sessions) then chemo, and everything has been way too complicated since then. I'd like to just see what they say if I take a break from their treatments and try the holistic approach again. Maybe just for 3-4 months, then do a CT and see where we are at. What do you all think? Am I taking my life in my hands?
Liz19 I am so jealous! I LOVE seafood. Right after choc. and wine. Mmmm...... Two yrs ago, hubby and I purchased property in Nova Scotia for our retirement (we are from Ontario originally and missed all the water out here) and I think about small towns with local fairs and lobster fests all the time. Mmmm....Eat, drink, dance, be merry. I will be thinking of you.
HunkyD, after my mastect. my arm swelled slightly, and seemed to maintain that measurement (the clinic measured it about 2.5cm thicker in the forearm and 3.5 cm thicker in the upper arm) than my right arm as a comparison. This didn't bother me. I tried not to get cuts etc. but I always used my arms (we built a huge deck one year, did landscaping last yr, I worked full time on computers for 6 years) and it didn't seem to effect it. NOW, the day after I had my heart fluid drained, my forearm was the size of my calf!!!!! They came and put a sleeve on in the hosp., propped my arm up all that week, and I was taking steroids/anti inflammatories. This all helped alot and now, if I take the sleeve off too long it starts to swell again (mostly from my elbow down to the tips of my fingers gets all puffy and stiff and aching). I think this is my new normal. Make sure you get a compression sleeve and keep rarm up as much as possible. This helps fluid drain down into other lymph nodes to flush away. My other nodes are disease compromised, so I'm not sure where the fluid is going? ha - probably to my ankles. $%itch! They are the only skinny thing I have left. LOL.
Hey SuePeet - my paliative homecare nurse came yesterday and told me I had thrush on my tongue. That's why is felt like I scalded it with tea. Anyway, she said to rinse 3-4 times daily with just Club Soda and it neutralizes the bacteria. I did it twice yest. and once already this am, and I gotta tell you, no more burning sensation! WOW! What a great, cheap easy solution. I still have some "fuzzy tongue" happenin' but we're getting a presc. for that. In the meantime, I can eat and drink with less burning feeling and now that things are gonna taste good again, I'm hoping to gain another 6 pounds. NOT!!!!! ROFL. hahahahaha.
Hubby bought an LCD TV for our bedroom, in case I just wanna stay in PJ's this winter and watch Oprah from under the covers. What a gem. We'll see how we do at the installation part later today.
sorry hunkyD, but I hope it goes better than your DW!
I am also going to the Calgary CIBC run for the cure on Sun. Oct 5. My Mom is coming from Ont. to visit and we'll likely walk it very slowly. Or sit with a poster to support others. I dont have that much energy yet, but I sure showed those homecare nurses with all their official paperwork. They seemed to think I would be in bed, needing a wash and feeding.........ugh...NO! actually thinking of painting my bathroom a lovely curelean blue. I know - one day at a time - I do get lots of rest too.
So many blessings to y'all and much love and smiles and hugs.
CL xoxo
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Chocolate Lover -
You are an inspiration! I love your attitude - why stop living just because you have cancer?! I'm glad that you are home where you can relax and enjoy that LCD TV. I don't know how to advise about stopping chemo and going holistic. I have been trying to improve my diet since I'm done with chemo. I'm trying to eat as much organic as possible, carrot juice, vitamins, milk thistle, etc. Some 'friends' tried to convince me that I was doing more harm than good with the chemo, but it's a personal decision and you just have to do what's best for you. I hope you regain your strength and are able to enjoy the Run for the Cure. You're in my prayers.
Kathy
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CL...I hope your installation goes better too...hehe! We mounted a plasma on the wall two years ago in our living room....hiding all cords and electrical behind the wall...that was very entertaining...haha. I hope yours goes well. My son bought me a 42" LCD for mothers day for our bedroom this year as we had an old 19' piece of crap up here. That was right after my mastectomy. It is so nice and you will enjoy it. Thanks for all the info on the arm swelling. I just got back from the surgeon and he asked me right out if I had done any straining on that arm. My arms measure at the same size and he said the fluid had built a little under my armpit but he wasn't alarmed. I had massaged it last night and got some of the fluid moved so it seems to be much better today. BBLady is right...you have a remarkable attitude. You know your body, and your decision is your own. I do not have any knowledge or stats of the holistic approach. Whatever your choice, I hope the best for you. We're all here for you too.
Well, time to get the bed changed and a few things tidy before my poison tomorrow. HunkyD
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