Starting Chemo May 2008
Comments
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Okie Dokie.... I found rock, Noelle and karin.... I added rock and noelle to my myspace (if that's ok) Karin... I need to look up your last name to add you doll.
Fart.... queef..... either way funny as hell LOL
Noelle~ if somebody had told me I looked like a monchichi..... I mighta had to stick my finger up her nose and ask if that made her feel good about herself? idiot had no cooth
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Once again, another night of laughter thanks to all of you. OMG Mary, had not heard that term since high school and laughed out loud when I read it.
Blood work was yesterday - no port. The nurse approaches me rubbing her hands together (anti-bacterial gel) and states, "I am here to take your blood." I bust out laughing because she sounds EXACTLY like Dracula - NOT kidding - and she quickly replied that people always laugh because she rubs her hands together. I had to laugh again.
Chemoooooooo Ladies!
Jean
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p.s....... if my hair (the cute fuzzy clear stuff) is coming in with a cork screw fashion.....is that a bad sign of what's to come???? I had naturally curly before, not as curly as noelle's but close enough...... I'm wondering if I may end up with a fro this time or worse... egads.
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Adding insult to injury..that's what cancer is all about, girls. Corkscrew hair, big foreheads, pointy ears, liquid farts, swollen guts, black fingernails, invisible eyebrows, very messy homes, very, very tidy 'ginas and no sex. WTF??!! I've told all my friends: Do not do cancer. It is shite.
I had my LAST pre-chemo blood test today..by 12pm tomorrow AUS time, I will be OFF the chemo-carousel! For the last three days I have been preparing. Secret recipe barrier cream for the fan irritation,( we call the 'gina a fanny here in Australia), biotene toothpaste flat out for the mouth lining, slippery elm bark for the digestive tract, drinking yoghurt for the gut, ground linseed for the colon and sachets of some fizzy shite for the expected cystitis. No wonder I feel bloated with all that crap in my system. Oh, well. According to what I read here I can also look forward to some tickly forward-farts and peeing in many directions. Chemo SEs are just so much fun, don'tchya think? Oh! And THEN I have to do the BF tamoxifen thing AND lose 20 lbs. Feck.
XXXKerry
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ok, as for the curly hair woes I am here to help. I may start a thread about it.
I am here to brag about my skills as a curly hair expert. I have sold roughly $30,000 in curly hair product alone this year. Our store is the go to place for a curly hair rescue. There is nothing to fear, I will take care of all of you. I have videos to share, products to suggest etc. No detergents, No silcone, No petroleum. It is the only way to live as a curly girl. Believe me, I have tried it all!
The ONLY reason I sell face and hair care is because my customers pestered me to. I only wanted to carry prods for the body. Anything from the neck up women are VERY fussy about and I was not interested in fighting to win any share of those buying dollars. Annoyingly, since my skin and hair are visible to my customers if they like what they see they ask me what I use. So ultimately I started selling what I use and became my own living breathing freakin' commercial.
oops, I was supposed to be taking about curly hair, not about my dilemma with being the only one that can actually really sell anything in my store. I could go on forever about my arrogant assistant blah blah.
Anyhoo!
I am overtired as usual.
I am glad everyone is in what seems to be good spirits as we get ready to dive in and get Kerry onto the shores of Camp Recovery. Dive in Lady, it is a long swim from Tas!
How is my Siouxie today!?
xoN
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Hey do you guys know about Team Survivor? http://www.teamsurvivor.org
I wish I had one here, but there are at least some chapters you all could join.
It is a group that helps "survivors" exercise in groups with other survivors from any cancer. I had a US Doc suggest it to me.
Check it out, it is not hardcore. I approached them about starting one here, but got no reply. If there was one in Buffalo I would drive there once a week.
Anyone want to do one of next years Danskin Triathlons with me?
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Kerry--Congrats on the last one--WOOOOOHOOOOOO!!!!!!! The 'gina's a fanny down under?
Queefs? I never knew there was a name for that!! What's up with that, anyway? Another thing that has been a growing phenomenon since chemo (not hugely so, but noticeable) Thought maybe it was part of the forward traveling fart thing......
Noelle, MONCHICHI? That lady needed to be slapped. My hair was straight as board and limp as....well, anyway, dh is now reporting the sighting of some white fuzz, (which only he can see--true love, don't you know). I'm hoping for curls when it does comes in...seems only fair.
Great day to all!
Sherri
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Noelle,
I am fine tody, got my port out this morning! WooHoo!!! I makes it real that I am DONE with chemo...I took the day off to come home and rest or whatever, as I am taking a trip out of town tomorrow (weekend with my oldest son's gf for her birthday)....and I want to be rested!! So, tomorrow I will go to work at 6, go to rads at 9:45, then go back to the airport and fly to Austin (1/2 hour flight) and we will travel to Salado, this little tourist artsy town about 50 miles north of Austin where we will spend 2 nights in a b&b. Should be fun, stress-free girl time. I can't wait. We did this last year around her birthday, and when I asked what she wanted this year, this is what she asked for. Makes me feel good.....
No way do you look like a monchichi. That woman is seriously in the wrong line of work.
Yeppers on the 'gina sensation of the other kind of fart. AMAZING. Kerry, tidy 'ginas and no sex, LMAO.
Love you guys. Off to clean a bit, then maybe (probably) a long nap.
Hope everyone has a great day. Rock, hope your ribs are okay. Karin, hope you are feeling happy today.
Jen, just say no to the 'fro.
Love,
Sue
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I put in my order for red, curly hair but so far it is looking like straight dark brown with gray mixed in. Oh well!
Rock I will be joining you for the oophorectomy- I tested post menopausal but not trustable at my age, tested for tamoxifen matabolism and I dont metabolize tamoxifen so my Onc wants my ovaries out - the ObGyn will probably do a hysterectomy at the same time- gotta get all that set up in the next few weeks. I called in a transfer request as my ObGyn person is a nurse practicioner and she cant do surgery and I did not want her supervising doctor so I am trying to switch to another doctor in the same practice who delivered my first 4 kids.
Rads #7 completed - Im almost to double digits Yea!
Kristy
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Ladies who have had their port out~ did you go to the hospital and go thru like if you had surgery or did they do it in an office? I'm nervous about getting mine out (next year) and I'm just curious. They completely knocked me out at the hospital to put mine in.
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Linda,
This is a monchichi.
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Hey Jen - I've heard several different scenarios for people having their port removed. For me, it was done in the surgical center and I was given general anesthesia. Even with the general...surgery at 7:30 in my car by 8:20! It was a GREAT day indeed!
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Hey Sueper13! That sounds like a brilliant little junket! No wonder you need your energy!
I'm in bed still, pre-dexed up and about to prepare myself for MY LAST CHEMOOOOOOO! I'm going to take a 'Kerry has Left the Building' pic. I won't be darkening THAT doorstep again!
I'm interested in the port thing too. I understand it is an 'in the surgery job' , but I can't really imagine my surgeon doing it there. If it's a theatre job, I'll get an 'up periscope' as well. If it's ANOTHER bloody anaesthetic I may as well get the two-for-one deal if I can.
Yeah..it's funny about the fanny. We must have got the slang from our earliest convicts. I got a real surprise as a kid when I was watching US TV and someone would say something like, "Sit your fanny down here", and it would be a MAN! A few years ago I was running a bath and my three-year old niece asked if she could have one with me. As I climbed in second (feeling a bit shy!!) she said, "My Mum's got a fan like that". It was hilarious.
Now I know what a Monchichi is, I can say (loudly and indignantly): monchichi?? MONCHICHI?? HOW BLOODY RUDE!!
Hey Rock, fellow rural lass! Your stat (less than 2%) was a revelation to me. How can so few farmers feed your hungry nation?? Why are they not multi-millionaires??? Answer? The 'food' available to buy is filled out with all sorts of non-food and chemicals and additives and we accept it as food. Billions if tons of who-knows-what is imported from os to get the volume up. Cancer is on the rise. Hello?? Hello??
Confirms it for me. I'm returning to my red-ragging, far left wing rural and feral roots. Can't wait.
Have a most excellent adventure of a day, ladies. XXX Love you all. Love everybody.
Kerry.
Shite, I'm dex-talking....
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Jen,
I happen to have had my port out this morning! (What are the odds?) It was removed by my breast surgeon in her office, with a local anesthetic. I could feel pulling sensations and it was kind of scary, and it is pretty sore this afternoon, but overall I would rather have done it like that than with general anesthetic--that always make me feel awful for several days. The nurse told me to take tylenol for pain. My appointment to have the port out was at 9 a.m. and I still went to rads at 9:45!
I am SO glad to have the port out--it was a tangible reminder of chemo, and this makes it real that I am really done with chemo. It feels great. And, I gave myself the day off work (I told them I was getting the port removed and they assumed I would need the whole day and I didn't correct them!) So, I've just been relaxing this afternoon, doing my nails, packing for my trip tomorrow. (Off to Salado, TX with my son's girlfriend, Melissa for a girls' weekend) I will probably not be back on the boards until Monday afternoon. I hope everyone has a fantastic weekend!
Love you all,
Sue
P.S. If I see a hat I like this weekend, I AM BUYING IT!! Hair is coming in on the back and sides but not on top--WTF? I look like a bald little old man.....*sigh*
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Sue! Did you keep the port? I am going to keep mine and make it into something beautiful. (I make real jewellery). I want to be reminded ( Not of the corkscrew hair, big foreheads, pointy ears, liquid farts, swollen guts, black fingernails, invisible eyebrows, very messy homes, very, very tidy 'ginas and no sex.) but the stuff that maybe saved my life!
Have a GREAT break!
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Kerry,
No, I didn't keep it, but I make her let me look at it. Just didn't want to keep it, I wanted it GONE, baby!
You have a great weekend, too! Where in Australia are you, I have a friend in Brisbane and have visited--beautiful!
Sue
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Sue,
Have a GREAT weekend, will miss you
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Sue - enjoy the weekend away! That sounds like fun.
Kerry - good luck with the last chemooooo!
Julie
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Hey, if its okay with all of you, the monchichi looks like me in my wig, seriously. Can I use it as my avatar? I needed a new one. If someone whats to fight me for it, I'll give in, I'm a lover not a fighter.
Kerry, Congrats on the last chemo. The water's fine! YEAH!!!!! Sue, I'm so jealous of you losing the port. I have mine until June for herceptin. Did you guys see the news on the home page about her2+. I'm so excited. Maybe we have some more hope for us her2+ gals. I cried with joy when I read it.
Ellenoire, thanks for the anatomy class. Okay, health AND geography were not my strongest subjects in school. I'm a creative so that whole side of the brain is a blur.
My church has the annointing of the sick coming up at a mass on Oct. 11. I'm not missing this for anything.
Had my fourth rad treatment and my muga scan. Long day, dog ass tired.
Love you all, Mary
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Jen - I just had my port removed last Friday and it went really well. The surgery center called the day before and asked if I was interested in a local anesthetic vs the general anesthetic (still mildly awake). I elected to go with the local. It was weird, I talked with surgeon through the entire procedure which was about 30-45 minutes. I could not feel them cut, but I could feel pushing & pulling sensations. It really was not a big deal and after a nap, felt pretty good the rest of the day. I ran 3.5 miles the next day. They asked if I wanted to keep my port - NO thank you! I did take a good look at it and went on my way. So, no worries mate!
Sue - congrats on getting your port out as well! Another milestone behind us!!
Noelle - which tri are you looking to do?? I have never done one, but always thought about it. I do plan to do the PF Chang marathon in Scottsdale AZ in Jan of 2010 - also a BC fundraising event if anyone is interested in that or meeting there for some vitamin D.
Kerry - Loved the list of SEs (all fitting). It is a nice & concise list for the co-worker that says - chemo makes you tired, right?
Goodnight ladies!
Jean
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Hi all,
Lots of good chatter. Congrats on getting your port out, Sue. Congrats, Kerry, on last chemo. Take care of yourself as you come off those fucking steroids. Monchichi? I think not. I am really enjoying my first day out with my foob and new bra ... herceptin has been very easy so far. I am trying to exercise EVERY day stretching one day/aerobic the next. Am hoping to get on that map soon. It is soooo cool. I love it. My dad had adult respiratory distress syndrome...was in a coma for five and a half weeks...they were sure he was going to die. He was 82 at the time. Now, he is 87 and still globe trotting. His nurse tipped him over so he was face down for several days and that is what finally got things moving. Rock, can you pm me your facebook sometime? I know you don't want to share it here in case there are lurkers. Loving the queef/fart talk. You are so funny and, sadly, I have been there too. I am finding my sense of humor is starting to come back. And I'm really enjoying singing out loud to music and though I am stuck with my port until sometime in July, I am loving the end of chemo. I am thinking of those of you in radiation and sending you hugs. Public/pubic....yes...I worked in Seattle public schools before moving to my current job and I work in communications and I made the same mistake. Fell 800 feet down a mountain last February, Rock. That is when I discovered my lump. Like Kerry, I figured if I got up and skiied away (which I did) I can beat back cancer for thirty years or so. My onc says I will also get to do the oof....I am looking forward to that as it seems they are a source of too much estrogen, eh? Talk to you all soon. Glad your bro is better Cris. Goodnight.
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I am hoping to be trained for tris all through next season (sprint distance likely) so with a little notice could come almost anywhere to one. The Danskin series is female only, which is great for beginners, once they set the schedule( usually by Feb for most series in North America) we can take a look at them. I might walk/ run a BC 5km next weekend, even though it is a Pink Ribbon nightmare.
I have to get my sleeping under control. I am staying up too late and getting up with DS and feeling cruddy all day.
Linda and Jean and anyone else who is exercising- How is your recovery from work outs? I am finding that it takes many more days after a workout to stop being sore.
Siouxie, glad you are gonna have a weekend away!
Kerry, me and Otter will be in the water waiting for you- this side of the river is fine. Take those 'roids and jump in!
Me and the BF just found out that our fave DJ is back to playing after months of being away because his club closed. The last time I got to dance was at my bye bye booby party in Feb. I danced a little at my high school reunion in May, but I was exhausted and unhappy at that party. So as long as my babysitting sitch works out, I can go dancing on Sat...! woo hoo! VV excited!
night night y'all.
N
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Hey! Been reading but not posting too much lately. As Mary said, dog ass tired.
Kerry - WOOOOOOO HOOOOOOO for your LAST CHEMOOOOOOOO!!!! Will wait for pictures...I join you all Thursday!!
Mary - Love the monchichi avatar.
Noelle - If my hair returns to it's pre-chemo curly state, I will take you up on that. I find some products that work for awhile but I did stare (jealously!) at your perfect curls on your blog. Sometimes I have perfect curls and sometimes frizz, and occasionally at the same time!
Sue - You might not read this until you get back, but have a terrific weekend!!
We start 6 weeks of gymnastics competitions this weekend. We are "away" for the first one and it is only me and dd going with the team. Dh is working early the next morning and we won't be done until about 9PM, so we're staying over. Little dd will stay with grandma who is returning tomorrow - Thank God!! But tomorrow morning, her school is hosting "Muffins with Mom" so we will get some one-on-one time before I leave on Saturday. She made it clear that her sister is NOT invited. Kinda cracked me up. Starting to ramble through my dog ass tiredness...
'Night.
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Hey girls!
Well, like the health-year I've had, today was a mixed bag. BERSERK to be finished, maxed out tired (think marathon runner falling over the line..my hub is already having a Nana-Nap!) and a bit freaked by my pathology. I read my file from cover to cover during the poisoning, and I am actually Grade 1 Stage IV. What can y'all tell me about that little curve-ball. The Stage must have been 'upped' at some point and I missed it. What does it mean for the future? That 20 lbs has to go NOW for a start!
I'm going for a Nana-Nap myself because tonight it will be all about the 'roids.
Noelle! get some serious dancing done on my behalf!
XXKerry
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Smee again. I've just had a read, and I cannot see how my stage could be stage IV (as it said on the onc's page in my notes). I had nodal involvement (2/8) with some infiltration from one node. The axillial resection was clear. I have no evidence of mets outside the axillia. I feel better. I also feel better because I just remembered another small detail from one of the pages. It described in detail the carcinoma in the right breast and the mastectomy of the LEFT BREAST. WTF?? It's hardly something to overlook! LOL. I'll save my worries up for my appointment with the surgeon on Oct 6th. More fecking waiting.........
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WOOOOHOOOOO Kerry--congrats to on last chemo!!!! Hope the after effects are at an all time minimum.....I'm not getting the stage IV either, maybe the infiltration from the one node?
Hey to everyone else...working today for the first time in two weeks so I'm just doing a fly-by this morning. Have some questions for ya'll from my onc appt yesterday, but willl wait til tonight to post.....
Great day to all,
Sherri
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Woooohoooo! COngrat kerry for making it thru!!!!!!!!
Been sitting here figuring up bills this morning. With me being off work for 6 months(ish) we have pretty much been on the downhill slide as far as finances. I just pray that work for me picks up VERY soon or there is no turning back to the good side. Had me worried but I'm trying to not think about it too much.
Have a MUGA scan today so I can start herceptin next week. Man I want this to be completely over with already. I'm so tired of doc appts and the pokes and the prodding and the what ifs. Be done already! *sigh* sorry I'm in a mood this morning
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Yay to Kerry! Welcome to Camp recovery!
Can't wait for everyone to be here!
Kerry, don't worry too much about the path report until you have all the facts.
Jen, whenever you feel financially low you can think of me. I have not paid myself from the store since January. I had to lend my business money to stay open, and the only reason I had it to lend and had money to live was a small Life insurance policy from my mom that took a year of fighting the insurance company to get. So between illness and a struggling business that policy is almost gone. Good news, my business is still open and owes me a lot of money, bad news, it could be years before it can afford to pay me back.
C'est la vie.
I hope everyone is well!
more later!
N
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Kerry,
Welcome to the other side- YOU MADE IT!
Sue- in your HONOR - last night my 7th grader had to create a brochure for some Texas town so we did SALADO!!!!
Had Herceptin today and rads and a nice lunch out with my Mom- college daughter coming home today for first time since college started in August- I am so excited- I miss my little princess! Will be cooking and shopping and playing all weekend!
Kristy
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Congratulations, Kerry!
Re: Ports. The only experience I have with 'em is of the alcoholic variety and the occasional Maine coast. Sorry. Nothing useful to offer!
Am real busy these days, but generally, real happy.
My heart goes out to folks with financial problems. I'm doing okay, but that is because it is just me and I have a paid medical leave. (I am not bragging, I swear. There is not a day that goes by that I don't give thanks for some semblance of job security and financial solvency.)
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