Starting Chemo May 2008
Comments
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adrienne? how are you doing? (I've lost track of you and am feeling a bit adrift...)
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Gheezzze! Didn't realize it had been so long since I have been on. Too much to catch up on so I just skimmed through.
Sorry to worry you all and thanks for the concern. As you know I had been battling anxiety and depression. Going back to school didn't help. I came on one day and saw Jean's mother had passed and Eddie going through troubles with hubby. I am a compassionate person and feel for others so their rough times added to mine. I needed to take a break.
My onco put me on Lexapro and I do believe it is starting to work. I feel a lot better. When he had suggested it at the end of August I had refused because I didn't want to put anymore chemicals in my body.
Will catch up with you later, grandson is on his way over.
P.S. - I'm in Southern New Jersey
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Grace, Happy shopping. We,all need to splurge once in awhile and you definately deserve to spoil yourself! I got you on the list.
Kristy, so sorry about your rads. It's only one day but I completely understand.
Eddie, here's hoping they give you something. Hope you feel better soon.
Angels...yeah for completing your first week. I'm so jealous. I start Monday.
Jean, Minnesota dontchaknow. Hot flashes have been pretty bad. I'm driving my hubby crazy with the bed sheets and blankets.
Fammy, please stay in touch with your Sept. rads but check her too. As everyone has mentioned, were all different. I also had DD (dose-dense) AC 4 x and Taxol 4 x. I had treatments on Wednesday and planned nothing over the weekend just in case. I had some bad days but overall, did pretty good, only a few days of nausea. The taxol had bad bone pain, but agin, had nothing planned and stayed off my feet. You will definately need help with your little ones. My kids are older and took care of me. Please ask for help. Your family and friends are there for you Follow doctors orders and take your meds. So sorry your here with us but welcome.
Mary
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YEAH Karin's back...we missed you. Going for dinner, catch up later. Got you on the list girlfriend. Did you start your rads?
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Just a quick check-in to say hello - and yay, Karin, glad to see you back, hope the clouds continue to lift - after a hectic week at work. The weekend should be fun (I'm taking my daughter to Stratford, ON to see a play), but I'll be off-line for most of it. I'm *not* taking my laptop to the b&b, even if they do advertise wi-fi.
Hope all of you with sore throats and other ailments feel better quickly.
Fammy, I'm so glad that this thread was able to provide you with reassurance. It gets said over and over, and it truly does bear repeating, that all of us are different. Some of us had a rougher time with the chemo, some of us had it pretty easy, for some of us (me!) the first couple treatments with a drug seemed the worst, for others the effects were cumulative: but you know what? We all got through. And so will you.
Linda
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Hey girls.
I'm having a teary day. Teary as in happy, for a change.
Today is my 50th birthday..my first half-century.
Now, in this house any mention of half-centuries is to do with cricket (all the males are sports mad) and this is some of the cricket 'commentary' my husband wrote on my card:
"An excellent innings, combining hard graft and some sparkling boundaries"
"Her ability to play the big shots under enormous pressure is her stand-out"
"She gives so much to the team it is often forgotten when she is scoring so freely"
"A classic innings from a master in the game of life..can't wait for the hundred."
What a man I have. XXX
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Don't have long, grandson has me playing Playstation 2 "Ben 10" with him, told him I needed a little break and to battle the creatures by himself till I get back. He's already in here asking me am I done yet?
Mary - Just finished rad 21 out of 34. Starting to get reddish brown at SNB site but it doesn't hurt yet.
Linda - Hope you have a great time in Stratford with your daughter.
See you all later I still have a lot of reading and catching up to do.
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Yay linda and karin are back!I may have to send out scouts for the missing ladies from now on. :O)
Out of town for the weekend for a family reunion. First time they have all seen me this way... should be interesting. Ya'll behave while I'm gone! Or if you have to get in trouble wait for me! lol
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Linda ya goof.. Stratford is like 45 minutes from here.
Have Fun!!!
More tomorrow, I have a date with my BF
Love ya'll.
xoN
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HAPPY BIRtHDAY KERRY!!!
And I gotta say, I got a kick out of your hubbie's cricket commentary (why/how is 'half century' a cricket thang?); I'm a sucker for the personal touch! ALSO, I'm a believer in celebrating the "biggies" for a full year! (and the "off years" for at least a month). It can get a little annoying for those around me as I turn EVERYTHING into an occasion to say "Cheers!" and "Happy birthday!" to somebody but it takes the pressure off the day.
Happy birthday, Kerry! I'm glad you were born!!!!
(Karin, so very very good to have you here again!)
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HAPPY BIRTHDAY, KERRY!!! Yes, sounds like quite a man you have there, but then, what a woman he has!! Here's to your 50th, and at least 50 more!!!
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People, last night a guy asked me if I was seeing anybody and wanted to give me his phone number. I begged off because he is not the international journalist that I'm holding out for (I'm only partly kidding) but still, it did the ego some good.
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Very intriguing, Rock! I love hearing that sort of thing. (Not sure why, but I do.)
Noelle, dang! Is Stratford really that close? I did check on a map, and it looked a lot farther (I must have the world's worst spatial sense) . . . if I had known, I would have PMed you and tried to arrange a detour.
Happy birthday, Kerry!!
Gotta go . . .
Linda
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Happy Birthday Kerry!
We make birthdays last a while at my house too- last summer Joe (my youngest) announced plans for his 4 birthday celebrations- guess he picked up on my love to celebrate!
Kristy
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Kerry - Happy 50th birthday - you should be entitled to celebrate for at least a month!
Karin - Great to see you posting again!
Headed out for a run & catch the Komen 3 day walkers going by. I have some pals that are walking it this year.
Wishing everyone a fantastic weekend!
Jean
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Kerry,
Have a GREAT ONE!
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thanks a lot guys... I really do appreciate all your input... I can't wait to look back at all of this when it's all over!
Keep your prayers coming... thx!
Good luck to all of you.. and once I find out when exactly I start chemo, i'll start another group.. possibly the october group... we'll c! It's so much easier going through something so hard when you know others are going through the same thing!!
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Hey Oink,
Kerry is suppose to cut the cake first, then you can have a piece.
Couldn't resist, LOL. Looks like I'm starting to feel like my old self again.
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Happy Birthday Kerry! Celebrate, you deserve it. Going to the last day of the horses races today. Should be fun. Have a great day all.
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I was gonna say... Karin really is back! yay!
Linda, yes it is that close. I live in a wee town called Dundas, not sure if I was clear on that.
Funny thing is, we were going to do a tri about 20 min from Stratford (on the other side of)this weekend but decided to have a lazy quiet weekend instead of getting up at 4 to drive like nuts to race and have to drive home again)
Happy Birthday Miss Tasmanian K! My BFF from Nursery School onwards is called Kerry, she has red hair ( do you? your pic seems you might) and is a Libran which you are on the cusp of.
Yahoo to Rock for having boy attention.... feels good regardless of the outcome no?
Fammy welcome you will be safe here.
Jean, glad to see you posting more and more!
gotta race... have to do 3 girls curly hair for a demo this aft.
Cheers, chemoo! and happy Saturday to all!
xN
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KARIN!!!!! So glad you are back, and posting again, and most of all feeling better. I missed you, and was worried about you.
rock, you rock, it doesn't surprise me that someone wanted to get to know you better. You are a lovely person, and you deserve anything you want. I understand about the ego...though it's been a while for me!
Fammy, welcome, feel free. We'll be glad to be here for you thru chemooooo, but I do believe you also need to be in touch with a group who's going through it with you. We're (Well, almost all of us) waiting for you on the other side of the chemoooo river, which you are just about to dip your toe in!!! But we'll have a lot of good advice for you, which you can take back to your chemoooo group----you can be their guru!!!
Kerry, happy 50th!!! I'll be right there with you in November.....here's to another half-century, and not the cricket kind! But I loved the cricket sayings and the way you applied them to yourself!
I am going out of town next weekend with my son's girlfriend--I will fly to Austin on Friday, then we will drive about 50 miles north to a little, artsy tourist town called Salado and spend two nights in a beautiful B & B--she wanted a girl trip for her birthday. We did it last year in San Antonio, and that's what she asked for this year. Makes me feel good. We don't get a lot of alone time, so every year we get closer. I really love her, she and my oldest son have been together for 8 years--since they were 17 and 15--but I don't pressure them to get married. They live together, and have three dogs, and they seem pretty happy. We'll see....it's really difficult when you have this person in your life whom you love, and you have no control over whether or not things stay the same....here's my control issues rearing their ugly head again!!!
Noelle, you sound so good. I used to have curly hair, but it was not natural--I got spiral perms twice a year for years. I loved it because it was so easy. Maybe my hair will come back curly now, post-chemo, I hope so. My hair is naturally straight as a board but thick and healthy (or it was before it all fell out)....
Eddie, Cris, Jen, Adrienne, any one I missed, hope you are feeling better every day...
Hope everyone has a great Saturday, I am off to the library...
Love,
Sue
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Library?? Whatcha readin'? I finally finished a book, and one that I liked. Hollinghurst's The Line of Beauty (it won the 2004 Booker prize). It's "a sweeping novel about class, sex, and money that brings THatcher's London alive." A sampling:
Just in front of Nick, Lady Kimbolton was greeting the Tippers. Lady Kmbolton's first name was Dolly, and even her close friends found ways of avoiding the natural salutation. 'Good evening, Dolly,' said Sir Maurice . . .Cracked me up.
I'm now working my way through Golding's (Lord of the Flies fame) Rites of Passage. It's improving my vocabulary but not quite a rollicking good read. A sampling:
I have seldom seen a face at once so daunted and so atrabilious. He is a complete argument for the sovranty of the humours.
Say wha- huh?That Golding, such a jokester.
*****
Karin. Karin, karin, karin. I'm just sitting here smiling, as happy as a pig in ... mud. (Do you know that I now think of your posts of pigs as "jpigs"? Dorky, but true.) A big welcome back (*missed you a LOT*) hug. For what it's worth, my moods came off the rails a bit too. But I had the reassuring benefit of knowing that I was not alone, i.e., that you had struggled/were struggling too. It helped tremendously.
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Hey girls,
It's been a heck of a week and only got worse at the end. Here's the summary version.
On Monday afternoon, dh states that he has a scratchy throat and by Tuesday morning, it's so sore that he can't talk. He spent all day in bed and on Wednesday went to the doctor and found out he had bronchitis!! Even more terrific. So the girls and I spent the week at my mom's. Katie is prone to pneumonia and I didn't want her exposed, and I couldn't be exposed for obvious reasons. He is better now, by the way.
So, we got through all that and yesterday, I dropped my mom off at her church as she was going on a weekend retreat with the ladies to Santa Cruz. About an hour later, she called me and told me that my brother (not the one who lost his wife last month), had been scheduled for an angioplasty yesterday morning, but was now being kept in the hospital over the weekend and is having bypass surgery on Monday (Sept. 22). When I talked to him later that day, he told me one artery is completely blocked and the other is 80% blocked. Sigh. So I drove to King City, about 40 miles from us, where the ladies had dropped my mom off and brought her back home. She is now on her way to Las Vegas to be with my brother and sister-in-law. Please pray the surgery goes well and that my sister-in-law can handle the stress. She has had her own medical issues for several years and is rather frail herself.
Since my mom is my primary caretaker of my girls during the week, it is always stressful and hectic when she is gone. Not to mention, I'm rather worried about my brother. Up until about 6 weeks ago, his primary diet was meat and beer. However, to his credit he changed that dramatically when he didn't pass his stress test. But you can't undo 35 years of eating that way in 6 weeks. Other than that, he's in fairly good health (no chronic conditions), so I think he'll make it through, but it is major surgery and that's always scary.
Sorry I'm not commenting like usual on everyone - I just don't have it in me today. I did read everything and missed you all on the days I couldn't check in.
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oh, cris. I wish there was a more original way to say how terribly sorry i am to hear this. dh's bronchitis, the surgery, your mom's absence...
It sounds like a cliche' but I say this from the heart: Make sure you look after yourself. It's so easy to let your health (and sleep) hit the shi**er when there is so much stuff happening. I wish I could put some rest and a sense of calm in an envelope and send it to you...
xoxo rock
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Cris,
I agree, take care of yourself. It's easy to take on the whole world again, but you ain't well yet, sister. I wish good things for your brother and his wife, your mom, your dh and YOU.
rock, I mostly got reading for escape books at the library--a new one by Chris Bohjalian, a cookbook, some books on cd for the commute, other not-so-memorable stuff. I'll let you know if any of it is good. I basically read a book every day or so--if I am waiting in line, on my lunch break, for 1/2 hour in the morning and at night, most of the weekend, you get the picture.
Readingly,
Sue
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Really tired tonight.
I am thinking about Cris, and any of you having tough days.
I am fine and selfishly cheery about my new eyelashes.
My eyebrows look almost normal, and my eyelashes while stumpy are long enough to wear mascara!!!!! If I was wearing a wig I would look almost normal.
I hate that it gets dark so early in late September. I love fall and winter, but I like the sunlight too.
I am reading tons of mags as usual and some book that is in my bed.... all the way upstairs right now. I will tell y'all about it later.
Chemooo!
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Noelle -- so, um, you know, just a casual question, like... about how long did it, you know, take to go from, kinda shadow-like eyebrows to, um, something like "almost normal"? you know, like, days or hours? You know?
** ps noelle sweetie-boots. i think i'm gonna make an announcement around oct 31 re: getting people to click on el book and see if it creates a little boost on amazon. i am convinced their rankings are completely rigged.
****
Cris. An IMPORTANT QUESTION. Where do you think your daughter got her gymnastics talent? I ask this as a person who never got the hang of even a basic front roll (tho there was a period where I could do a handspring and a headspring).
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Silly me. I thought Karin's button said, "Go HUG wild!" Kerry, I hope your birthday was a good one.
Hi to Karin--now you know how much we missed you. Hi also to Kristy and Noelle (no more chemoooooo!), Sue and Roxi, Jean, Linda, Sherri, Jen, and everyone else hanging around here. Rock, congrats on the "hit"--sorry it wasn't that international journalist you're looking for. Fammy, welcome! This is a great place to be, if you have to be somewhere...
Cristine, it is so hard to "help" a family member who's in trouble when you are many miles away. Those cardio surgeons do bypass surgeries all the time. Your brother will be fine. My (former) boss had quadruple bypass surgery a couple of years ago, after failing a stress test. I saw him the day after his surgery, and he looked great. It is very scary, but most people bounce right back afterward. It's good your mom can be there, even though that puts extra stress on you. (Try to find some time for yourself every day, so you can unwind.)
I miss all you guys. I've hidden behind the bushes over at the rads board a couple of times, watching and listening. It looks like most of you are over there now, in the September group. I've been hanging around the LE board, learning how to measure for sleeves and gauntlets and how to wrap my arm in case it swells again. It's a small group over there, but there is a lot of support.
My dh and I have been working on our boat for a few days every week or two. We are headed up there again tomorrow, to spend the rest of the week on the boat. Most of the time is spent fixing things, and he gets grouchy if I spend time here instead of helping. So.... that's the main reason why I'm not around as much anymore.
I do think of y'all a lot, though.
Hugs...
otter
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Karin
I am so, so glad you are back and even more, more, more sorry my troubles with dh drove you away. I apologize, dear one, and promise to keep that to myself from now on. I will be more careful and I am sorry about being too open. If I'd known it would make you stop posting, I never would have said anything. Again, please accept my apology.
Kerry,
Happy, happy, happy happy birthday.
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Eddie,
No, there is no need to apologize and no need to keep things to yourself. The boards are here for us to share what is going on and get things off our chest if need be. It is not your fault that I had a hard time dealing with things.
I had written a long post to you to about my hubby and his feeling helpless because he couldn't fix me and the BC and how it was affecting our relationship. Instead of posting it I hit the delete button because I too felt helpless in not knowing what to say to you to try to help. I didn't want to say the wrong thing to make things worse so I just said nothing.
Cristine - On the same note all I will say is my thoughts are with you.
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