Radiation necessary in an early stage cancer

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  • badboob67
    badboob67 Member Posts: 2,780
    edited September 2008

    A little consistency of policy would be nice, too

  • mzmiller99
    mzmiller99 Member Posts: 894
    edited September 2008

    Melissa and Tami,

    A big thank you from me,as well..  Having cancer is scary, you feel so alone in a huge ocean of emotion, and finding this site has been a lifesaver!  But, the circling sharks were making this site pretty scary, as well. 

    Cancer is stressful enough.

    Susan

  • LovelyRita
    LovelyRita Member Posts: 13
    edited September 2008

    Thank you to the Moderators who finally got around to cleaning out this thread.

    It was just so bizarre to let this go on so long---

     One specific example--the woman who admitted she has continued to smoke cigarettes after her diagnoses, and proclaimed that others were  "risk-averse"...as though they were wimps.

    .... uhhh...yeah...okay.....some of us non-smokers are risk-averse...guilty as charged.

  • mdb
    mdb Member Posts: 52
    edited September 2008

    I'll just say .... I do NOT want, to die.  Yet, I have NOT made my choices, lightly.  I HAVE had, Stage 1 breast cancer. AND Leiomyosarcoma, cancer. And in January, 2008, my sister was diagnosed with Stage 3, Ovarian Cancer. 

    Where to go, from here. This is all hard.

    And again, just for me, the radiation was NOT for me.  In the grand picture, of MY life. With all of my other, cancer threats. Yet, other people, disagree.

    And that's fine.

    Although  as some poster said, "mdb smokes" Like screw her. "She deserves, what she gets."  But then, I also eat right, and walk 60 minutes/day, and am not overweight. 

    And my Leio CT scans, have shown, NO lung cancer.  And the reality, 8% of smokers, get lung cancer. 

    You have to DIG for this statistic. To read the popular media, EVERY smoker, get's lung cancer. 

    There's a LOT of variables, in "Health." 

    I've just chosen, my own path. And I'm totally happy, with it. 

    And that's all that I've ever wanted to say, on this board. Choose, your own, path. Whatever is right, for YOU.

    And I've just wanted to give you an alternate, choice. What I have done. Against, the mainstream, advice.

    I'm here, alive, with no cancer. 2 years, later, with my breast cancer, and 4 years, later, with my Leio Cancer. 

    With NO side effects. And no, other treatments. No Radiation.

    But ultimately, it's the person's choice. 

    That is all that I want, to say. 

    mdb

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2008

    Personally I am glad that there are other treatments beyond surgery, such as chemo, radiation and other systemic treatments.  Recognizing how many cancer cells are often left behind after surgery, it would be scary indeed, from my point of view, to have to rely only on surgery to kill all the cancer.

     Radiation also was likely a benefit to my wife because during the Sentinel Node Biopsy, it was clear that some of the lymph was flowing to her internal mammary node, which was not tested by the sentinel biopsy but I am pretty sure was zapped by Radiation, just in case there were any cancer cells in there.

  • Jacquio
    Jacquio Member Posts: 39
    edited September 2008

    I had radiation, and my BC was in the left breast. At my hospital, the radiation oncologist ASSURED me that my heart would not be affected. That is how precise radiation is nowadays.  I was also worried about my left lung, to which he replied that at the most, it would catch the tip of my lung, but I would never know that it was affected. I trusted him to do his job, have the permanent blue dot tattoos to show for it, and I'm glad I went all 33 times.  I am stage IIB, but I am a triple negative and would do anything to fight this because it got to my lymph nodes.

  • easyquilts
    easyquilts Member Posts: 876
    edited September 2008

    I am glad there are other things to do after surgery, too.  It just makes sense...to me.. to do everything possible to kill any remaining cancer cells....I trusted my doctors to recommend what was est for me....My rad/oncol also assured me that the radiation would be so precise that I should not worry about my right lung being affected.....I trusted in his exptertise and experience...

     BTW...I noticed that one of my posts had been deleted....So....I want to apologize if anyting I said (can't rememer any of it) offended anyone.  I do believe that each of us has to decide for herself what treatments we will have...OTOH...I think we should seriously consider the collective experience of the professionals who are charged with our care.  Doctors are not always right, of course, but when I was thinking things over, I realized that I really did not know nearly as much as my doctors did...No matter how much research I did, I had not been to medical school, nor had I treated hundreds of cancer patients.  The decisions were mine, but I took everything into consideration...including the experience of my doctors...and their reputations.

    God bless all of us....and grant us the wisdom to make good,  informed decisions regarding our own health.

    Sandy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2008

    easyquilts, about one of your posts being delted, heck not only were so many of my posts deleted but so were worriedhubby's 1 and 2.  I think the moderators gave up on me after that :-)

    Obviously there is no way we as lay people can compare ourselves to the experience and training of knowledgeable breast cancer doctors.  I'm not talking about the typical Internest or family doctor here, but those who do nothing but treat breast cancer at the top medical facilities.  They are the ones who treat hundres of patients a year and they are the ones who follow up with their thousands of patients from years to year.  They are the ones who see the recurrences, etc.  They are not gods, but they are certainly in a better position than most of us to determine what are the best recommended treatments.  At any rate, there are quite a few studies and papers out there who believe that those who receive lumpectomies AND radiation have better survival outcomes than those who do not receive radiation.  Until they perfect a more individualized approach, its a no-brainer that virtually all lumpectomy patients (with the exxception of those who are elderly or who have other serious health problems) should opt for radiation.  Its not even a question in my opinion. 

    Interestingly,  I didn't bother posting it here, but I found some papers who opined that those who received full breast radiation were also better off because the mammary nodes were treated, nodes that are hardly ever removed because of surgical difficulties in doing so, but in a percentage of cases have cancer cells, even when the sentinel nodes are negative.  So there may be women walking around who assume they had negative nodes when in fact, if checked, their mammary nodes would have been positive.  At least radiation will take care of that problem, hopefully.

  • GayleD
    GayleD Member Posts: 36
    edited September 2008

    I had my lumpectomy on Friday, 9/12 and got the pathology results today.  My actual area of DCIS was only 2mm (which is TINY) and my surgeon got clear margins of approx. 2.5cm all around (those are HUGE margins).  He knows I was averse to radiation and he is conservative in the use of rads too.  He told me that given the size of my DCIS and the margins he obtained, that any radiological oncologist trying to make a case for me having radiation would have a "very hard sell!"  I do not need radiation and will not get rads.  I am not saying rads are a bad choice for everyone, but if you have a small area of DCIS (mine was grade 3 with comedonecrosis, but still DCIS, stage 0 cancer), and your surgeon gets large clear margins, it's wise to question an automatic recommendation of radiation.  I have NO family history, and no other risk factors so that plays a part in my personal decision.  I know most everyone on this site is more in favor of radiation "just to be safe," but it's important to realize that radiation itself has risks worth discussing with your doctors.  Overtreatment is as bad as undertreatment, in my opinion.

    Incidentally, my surgeon is the #1 rated breast surgeon in the area and has been for years.  He's the guy that other doctors say they would send their wives and daughters to!

    Wishing everyone the best and hoping we all make good, informed choices. 

    Gayle

  • pinoideae
    pinoideae Member Posts: 1,271
    edited September 2008
    Good to hear your margins were good GayleD and that you did not have to have radiation treatment.  Smile
  • GayleD
    GayleD Member Posts: 36
    edited September 2008
    Thanks, Summer!  I'm REALLY happy too!  Had my cancer been a different stage and my risk factors different I might have made another choice.  As is, I'm happy!Smile
  • peeps1111
    peeps1111 Member Posts: 262
    edited November 2008

    Hi:

    I just read most of this thread, it took me hours, and I don't remember seeing this posted anywhere but I thought it might be helpful and if the moderators think it should be posted somewhere else, please do.  I just thought it was a good, logical explanation.  If I don't get into the new radiation study at RI Hospital with the 3-week protocol, I am planning to go to Dana Farber and see this Dr. Harris for my 6-1/2 week treatment. 

    http://content.nejm.org/cgi/content/short/356/23/2399??eaf

    Peeps

    Dx 6/20/08, DCIS, 1 cm, IDC,1cm,Grade 2/3/1 of 2 sent nodes, no ALD, oncotype 20, ER+,PR-,HER-

  • Lissa123
    Lissa123 Member Posts: 10
    edited November 2011

    hi, how have you been doing?  did you decide to have the rads in the end?  i also had a small cluster of low grade dcis on the surgical margin and although the surgeon is confident there was nothing else left i am very worried that i will get local recurrence, hence i don't want to have radiotherapy either.

     i understand that r/t forms some scar tissues in your breast and if you get a recurrence and need to have a mastectomy at a later stage it will be difficult to have an implant.  i first did not want to have r/t then panicked and started them  but could only do six as i found it very upsetting and i had a lot of side effects.  now i wonder whether six rads have already damaged by breast tissue

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