Radiating Expanders, Chance of Implant "failure"

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Springtime
Springtime Member Posts: 5,355
edited July 2015 in Breast Reconstruction

Hi All, 

I am newly diagnosed July 10, 2008 (about a month ago now). Have had mamograms and checkups for years, long and short of it is that my dense tissue hid a 4-5CM lump that even ultrasound and diagnositc mammogram did not find "see". My specs: Invasive Ductal, ~4-5CM, ER+/PR+ (both 90%), HER2 neg (0). Sentinal node surgery found 1 sentinel node, 2 others were removed that were "nearby" - All negative. I was told I am Stage II B (due to the size of the lump, and zero nodes, T3 N0 M0). I have been told to count on mastectomy to the left side, Breast MRI shows little of concern in the good/right side. Having genetic test done, have not received results yet.

So, Order of events for me are to be the following: Sentinel note (done), Chemotherapy, Mastectomy (one or two? with or without tissue exapanders?), Radiation, Hormone therapy for 5 years.

Facts I've compiled and My questions:

  1.  
    1.  
      1. 1. The breast surgeon suggested waiting until everything was done (Chemo first to see what the reaction is - does the cancer shrink?, Mastectomy, Radiation) and THEN do Reconstruction. Was told that 50% of silicone implants will fail after radiating the chest wall. May need to then do Trans Flap.

2. The Plastic Surgeon said that he recommended putting in an expander right after the Mastectomy. And then do the radiation (not sure if it just stays that way throughout radtiation and THEN gets expanded AFTER radiation treatments?)

3. I have made an appointment on Aug 25th with the Radiation Oncologist - to get his take.

Questions:

1. Does anyone out there have experience with radiation treatments with expanders? I read one post where it sounded like a woman had to get the expander OUT for radiation. 

2. Does anyone know if your chances of having a silicone implant "take" after a radiated chest wall improves if you wait and do this several months down the road? Vs. right away with the matectomy, then radiation to follow? Is the failure after radiation also considered "capsular contracture" - or is it something else?

3. I know if the implant does not take because of radiation damage to the chest wall, the my only other reconstuction option would be a trans flap. I'd love to get surgery all "over with" (decide if I want bilateral, and just do it, or not! ahhh!) But I wonder if I should take this one step at a time. For instance. If I do the left side, and it fails with the implant, and I have to have a TransFlap, wouldn't it be better if my right side was "natural" so they both "sag together". Vs having a TransFlap and an implant - Where one will go south and one will not, over time? So, maybe I need to take this "one boob at a time"?

4. I know the consmetic angle is only one consideration. I should be making the decision about my right/good breast based on other things as well (how much stress there will be knowing it might get cancer, knowing mammograms and ultrasounds are totally useless in my case, knowing I'll have a breast MRI with contrast IV every year, or more...) etc.

Anyway, I've read that the Unilateral vs. Bilateral is a very personal decision, and I've read how agonizing it is for many women (not just me!), so somehow this is good to know.

Any help / thoughts / insights appreciated. I am one month into this, going through chemotherapy, and feeling a bit overwhelmed by the surgical decision that is upcoming...

Springtime in Raleigh NC 

Comments

  • bbmom
    bbmom Member Posts: 391
    edited August 2008

    Hi Springtime,

    I had an expander put in when I had my mast. My expander was filled during chemo so it was fully expanded when I did rads. I didn't have any problems with the expander during rads.

    I can't answer #2. I know there are women who have successful recon with implants after rads but I was told upfront by my ps that implants usually did not work when you had rads.

    Have you already been told that you'll have rads? I know rads is a given when you have a lumpectomy. But if your nodes were negative and you have a mast I wouldn't have thought you'd have to do rads.

    The cosmetic angle didn't factor into my decision to do bilat. I had ILC that didn't show up on my mammo. It wasn't until I found a lump and had an ultra sound that my bc was found. After that I just didn't trust a mammo to find cancer if it popped up on the other side. I also knew that I wanted to do tissue recon and since DIEP can only be done once I didn't want to take a chance on needing recon again. I didn't know about the GAP procedures at the time.

    Since you're just starting chemo you have time to research your options. Immediate recon with skin sparing mast will give you the best aesthetic results with minimal scarring whether it's implant or flap recon.

    Good luck to you with everything.

  • Farrah
    Farrah Member Posts: 566
    edited August 2008

     Springtime,

    This is taken from a link provided by Beesie.  

     

    When implant reconstruction is 

    used, immediate rather than delayed reconstruction is preferred to avoid tissue expansion of radiated skin flaps. Immediate implant 

    reconstruction in patients requiring post-operative radiation has an increased rate of capsular contracture. Surgery to exchange the tissue 

    expanders with permanent implants can be performed prior to radiation or after completion of radiation therapy. Some experienced breast 

    cancer teams have employed protocols in which immediate reconstructions are followed by radiation therapy (category 2B). Tissue 

    expansion of irradiated skin can result in a significantly increased risk of capsular contracture, malposition, poor cosmesis and implant 

    exposure. In the previously radiated patient the use of tissue expanders/implants is relatively contra-indicated. 


  • Farrah
    Farrah Member Posts: 566
    edited August 2008

    Springtime,

    I deleted my last post because it didn't copy/paste well but I can't find the link that Beesie provided on another thread, to post instead. Anyway I'll try the copy/paste again.

  • Farrah
    Farrah Member Posts: 566
    edited August 2008

    Oh dear!

    Last try...

     

    When post-mastectomy radiation is required, delayed reconstruction is generally preferred after completion of radiation therapy in 

    autologous tissue reconstruction, because of reported loss in reconstruction cosmesis (category 2B). When implant reconstruction is 

    used, immediate rather than delayed reconstruction is preferred to avoid tissue expansion of radiated skin flaps. Immediate implant 

    reconstruction in patients requiring post-operative radiation has an increased rate of capsular contracture. Surgery to exchange the tissue 

    expanders with permanent implants can be performed prior to radiation or after completion of radiation therapy. Some experienced breast 

    cancer teams have employed protocols in which immediate reconstructions are followed by radiation therapy (category 2B). Tissue 

    expansion of irradiated skin can result in a significantly increased risk of capsular contracture, malposition, poor cosmesis and implant 

    exposure. In the previously radiated patient the use of tissue expanders/implants is relatively contra-indicated. 

  • Panchoandlefty
    Panchoandlefty Member Posts: 181
    edited August 2008

    Here is the deal-- 

    Big picture- almost 100% of implants will have some degree of capsular contracture after they (or the expanders before them) are irradiated. Not all will be terrible or immediate. It may not show up for years, may be mild enough to live with, can be dealt with in revisions, etc...  I believe the 50-60% figure relates to the amount of CC which is bad enough to be considered a "failure" within a certain window of time. It is complicated and it is tough to get a straight answer.

    Anyway- there are still people (myself included) who have immediate reconstruction using implants even though radiation is recommended. Most of us didn't know we would need rads until an SNB was done during our mastectomies. At that point, the plan was already in place. The PS team goes ahead with the mutual understanding that this isn't a perfect situation. 

    Rarely will expanders/implants be placed when the Plastic Surgeon knows IN ADVANCE that rads will be recommended. Generally, though not always, such patients are guided toward delayed recon.

    If expanders are placed, there are 2 ways different surgeons like to move forward. Some will irradiate the expander, others will do the exchange about 4 weeks prior to radiation and irradiate the implant. To my understanding, neither is "better" so far as eventual CC is concerned. It is just a matter of preference at different institutions. 

    I have an implant with rads.

    If your PS prefers to irradiate an expander, there are a couple of different methods. Some will partially deflate one or both expanders to get a better line in rads. I have never heard of the expander being REMOVED, just deflated.

    Sometimes this is deflation is done in a process called "immediate-delayed reconstruction" popularized by MD Anderson. In this case, the idea is that the pocket created by the expander will have cosmetic benefit in a TRAM or other flap procedure post-rads. You'd have the benefit of a skin sparring mastectomy and some additional tissue for the PS to work with, regardless of whether you choose to do an exchange for an implant or a TRAM flap. Does that make sense?

    Bottom line is that you have an understanding that it is PROBABLE that implant reconstruction will have some degree of cosmetic problems. That said, there are some benefits to moving forward. If it works and the CC isn't too bad, great. If it doesn't work and you need the TRAM, you'll have some advantages over someone who never had an expander.

    You don't burn any bridges moving forward, it is just an issue of comfort, expense, etc. 

    Hope this helps.

    Stephanie 

  • Springtime
    Springtime Member Posts: 5,355
    edited August 2008

    Thank you Stephanie, I was not able to get back in here to see the replies until today!! (It would not let me log in for some reason, I had to get in via Google!) Appreciate your post.

  • Springtime
    Springtime Member Posts: 5,355
    edited August 2008

    Actually, thank you ALL for your posts. Please see above, I was trying to get back in for weeks and was not able to log in for some reason, the site kept bombing on me.

    I am actually going to see the Radiation Ocologist today to ask questions and see what he says, then will go back to the PS, then the breast surgeon. There is a LOT of GREAT information here to digest and think about. You all are WONDERFUL!! Thanks

    Bottom line is, it sounds like nothin is "lost" by going for the expander right away, and there are degrees of CC (didn't realize that). And even if you need a flap, there is benefit from having the expander (I don't get this yet, but will ask the PS about it too).

    THANK YOU all. :)  Springtime....

  • Springtime
    Springtime Member Posts: 5,355
    edited August 2008

    Just wanted to post an update after seeing the Radiation Oncologist today. He has no issue whatsoever radiating an expander (says to him it's no different than radiating through breast tissue with lumpectomy).  He says the expander would be at full capacity before he started the Rads. Wait a bit then do the Rads. Wait a bit for skin to settle down, then do the exchange. His feeling was like many here that the risk of CC was not "50/50" but could be slight, something you can live with, something that may be "corrected"; he said the chance of a compete "it needs to totally come out" is 5%! The PS had said 50%-ish, but maybe this is perfection.

    About "waiting" for chest wall or other tissue to heal, like doing Rads first, then expander/implants, he said NO, the skin/chest wall is better BEFORE Rads than after.

    So that's my update, wanted to say thank you all again for your insights and responses. My next step is to see the PS and then decide about uni- vs bi-lateral, etc.  

  • anam262
    anam262 Member Posts: 27
    edited August 2008

    Hi springtime,

    I had a left mastectomy 10/06 with expander put in. I knew that i was going to need radiation but i chose to go with the implant anyway. I didn't do any fills until 6 months after radiation was done. My ps warned me about failure with radiated skin but i wanted to try the least invasive procedure. I had the exchange surgery in5/08 and a reduction and lift on my right side. My incision would not heal so i just had a tram flap on8/7/08 and so far so good. I guess i should have taken my ps advice but at least i tried and now know that the implnat did not work out for me. Good luck. 

  • BethNY
    BethNY Member Posts: 2,710
    edited August 2008

    here's some more info:

    http://www.breastreconstruction.org/Section1/RadiationandReconstruction.html

    Having the expanders placed at the time of the mastectomy will save you a lot of time for the entire reconstruction process.  Ask your PS if he uses AlloDerm or Strattice.

    Also, there is the possibility of combining a lat flap to salvage radiated tissue:

    http://www.breastreconstruction.org/Beth.html

    the girl listed above started with a lupmectomy, but radiation left her breast deformed.  You can scroll down to see pics of the lat flap and then bilateral implants.

  • Dakini
    Dakini Member Posts: 10
    edited August 2008

    I went through the whole expander process a few months ago - was completely expanded and waiting for the final implant surgery when something went terribly wrong.  I started leaking fluid, my temp went to 108 and my body went into septic shock.  I was in the hospital for several days and in a lot of pain.  That was a couple of months ago and I am pretty much recovered.  I knew there was a higher risk of problems after mastectomy with radiation but I decided to try it anyway.  Wish I had just gone ahead with the tram flap to begin with.  I am planning on scheduling that surgery in the next few months.

  • ps123
    ps123 Member Posts: 221
    edited August 2008

    I had chemo first and then a single mastectomy w/expander placed at the same time.  I was quickly expanded and then had rads once fully expanded.  2-3 months after completing radiation I exchanged the expander for an implant and have had no problems.  I knew from the beginning that I was going to have radiation but had no interest in flap reconstruction so an expander/implant was my only option.  My ps had no problems trying the expander/implant.

    Good luck.

    Pat

  • Springtime
    Springtime Member Posts: 5,355
    edited August 2008

    Thanks everyone. I can see from the experiences above that there may be complications. I am currently in chemo, then surgery, then radiation. So I have time. I next see the PS in early OCT (or earlier if I move up the cancellation list) and also need to see the breast surgeon. Thinking the surgery will be in Dec. It seems that it could work, but it may not, there may be complications. But from the URLs above, eventually, there can be success with a good PS.

    So I will go into it with my eyes wide open. It has been very helpful to hear your real experiences and see the "personal stories" shared from on the  http://www.breastreconstruction.org site.

    Thank you all. These topical boards are amazingly helpful...

  • nosurrender
    nosurrender Member Posts: 2,019
    edited August 2008

    I had expanders in place for my radiation.

    My PS filled the expander up as much as he could so any skin shrinking would be minimal. They had to deflate the other expander so the radiation beam could come in from the other side without hitting it.

    I had IMRT rads which is a more targetted rads. If you think of a garden hose on full blast that is regular rads, then if you turn the nozzle to a tight stream that is IMRT.

    I had my exchange done 6 months later.

    I hope that helps some!

  • Springtime
    Springtime Member Posts: 5,355
    edited August 2008

    Yes that helps! It seems they leave the expanders in a long time - 6 months wow. Will need to ask the PS about time frames so I get a realistic picture....

    Nosurrender, love the cat pic! We have a cat just like that! :) 

  • Estepp
    Estepp Member Posts: 6,416
    edited August 2008

    Hi ladies..

    So, if you have the expanders and rads.. and find out two years later you need tram...Won't your insurance pay for that? I hear you all talk about the expense? Worried!

    Laura

  • Springtime
    Springtime Member Posts: 5,355
    edited August 2008

    There is the Women's Health and Cancer Rights Act of 1998 - see bottom of this page: I would think "complications" are covered! It seems many women have issues, that are later fixed. 

    http://www.froedtert.com/Froedtert/Templates/BodyPage1.aspx?NRMODE=
    Published&NRNODEGUID=%7b0E1FE321-9108-4719-9C6F-8EA8017D6FCE%7
    d&NRORIGINALURL=%2fHealthResources%2fReadingRoom%2fIncredibleStories
    %2fCancerSurvivorTalksAboutBreastReconstruction%2ehtm&NRCACHEHINT=
    NoModifyGuest#whatisact

    The Women's Health and Cancer Rights Act of 1998 (WHCRA) was signed into law on October 21, 1998. This federal law includes protections for individuals who elect breast reconstruction in connection with a mastectomy.

    Under WHCRA, if you have coverage under a group health plan, or under an individual health insurance policy that covers medical and surgical benefits in connection with a mastectomy, the group health plan or issuer (an insurance company or HMO) must also provide coverage for reconstructive surgery in a manner determined in consultation with you and your attending physician. Coverage includes reconstruction of the breast on which the mastectomy was performed, surgery and reconstruction of the other breast to produce a symmetrical appearance, and prostheses and treatment of physical complications at all stages of the mastectomy,  including lymphedemas.

    Most plans and issuers that provide coverage for medical and surgical benefits in connection with a mastectomy are required to provide reconstructive surgery benefits.

  • jennbtwins
    jennbtwins Member Posts: 4
    edited July 2015

    I am also new to all of this and not sure how to navigate this site. All I can say is I find all of these posts extremely helpful. I also have had a bilateral mastectomy with tissue expanders placed at time of surgery. I just had my first small fill of 30 cc on each side. Prior to my surgery it was thought that I wouldn't need radiation so I wasn't worried about implant then. Now I find out that one of my sentinel nodes on the right( they found 2 on my right side) had cancer in it and one didn't. Unfortunately I haven't even seen an oncologist yet and am now scared to death that I made a huge mistake. I just listened to my surgeon telling me that I didn't need to see an oncologist until after my surgery because they wouldn't start any treatment until then. I wish I would have insisted on seeing one first. now I don't know what is going to happen. I am so scared and so stressed out. I really do appreciate all the posts everyone puts on here. it helps to know I am not alone.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2015

    Jennbtwins, congrats on your first post! We know there are many, many helpful members on these boards, but since this thread was last posted on in 2008, you may not be reaching them. We'd suggest starting a new thread (and you can copy and paste the post you just made), in the Breast Reconstruction forum, but clicking the link, and then clicking "Start a New Topic", where you can paste the post and click Submit.

    We hope this helps!

    --The Mods

  • lulu2533
    lulu2533 Member Posts: 108
    edited July 2015

    Hi Jennbtwins. I also went in to surgery thinking that was all I would need(double mast). I was told that I didn't have any poss lymphs according to the MRI. Well, it was a whole new story after surgery...11 pos nodes. Soooo, with my expanders already in place, a new gameplan was set up including 6 weeks of rads. My PS has told me that they will make sure I am filled to where I want to be before any radiation is started. They will then wait 4 months after rads is finished to do the exchange. He has a lot of experience with these kinds of cases and is not concerned at ALL!

    Hope my attempt to answer your question was helpful. If you have anymore ask away :)

    Julie


  • tonia52
    tonia52 Member Posts: 36
    edited July 2015

    I wish I could get my expanders before rads but the first plastic surgeon I saw advised to have rads before and I am wondering if anyone else had the radiation before the TE and if so how long did you have to wait before you got the tissue expanders after the radiation was complete

  • ual0307
    ual0307 Member Posts: 62
    edited July 2015

    I did not get TE, but my PS told me that they do a fat graft right after rads are done to help the skin heal. Then three months later the tissue expanders could be put in -- assuming skin was healed up

  • muska
    muska Member Posts: 1,195
    edited July 2015

    Stephanie gave a very good explanation above. They can radiate with expanders or with permanent sylicone implants. In both cases, there will be some impact to cosmetic appearance. I ended up in a rather typical situation when I went into surgery - BMX with immediate reconstruction - expecting I would not need any follow-up treatment at all (based on tumor size and clean MRI.) I woke up with expanders and was notified I had multiple lymph nodes with macro mets, so would need chemo and rads. I had the expanders filled while I was having chemo. I consulted several professionals in different institutions about what to do: radiate with expanders and do exchange surgery after radiation, or the other way around. Eventually, decided on having the exchange surgery first, and then radiate with permanent implants in. Main reasons: (1) it simply does not heal well in most cases if exchange is done after radiation, (2) it takes much longer to complete the process b/c one would need a long wait after rads to even attempt to do exchange surgery, (3) some scannings, e.g. MRI cannot be done while you have expanders in.

    You can see the dates in my profile below. I recently had follow-ups with my team and they all said that the way I look is very typical: radiated breast is slightly smaller and slightly perkier than the other one. That is absolutely not noticeable when I am wearing a bras and I wear fitted clothes a lot. Feel free to PM me if you have any other questions.

    I just noticed that the original post is very old, my apology for not taking that into account.

  • tonia52
    tonia52 Member Posts: 36
    edited July 2015

    Thank you so much for your response. I think I will meet with another PS to make sure I get a second opinon. I'm hoping to get my TE before rads or even the implants. It sounds like I may able to avoid the LD surgery after all. You have been so helpful and I have one more question. Did the rads leave sunburned appearance or any damage to your skin?

  • tonia52
    tonia52 Member Posts: 36
    edited July 2015

    Thank you very much for your response. Did you gave to wait the full three months after rads to get your TE.

  • ual0307
    ual0307 Member Posts: 62
    edited July 2015

    I think it depends on the person. I had bad burn and oozing and peeling. 18 months later there is still a "tan" area. Skin was tough and stuck. Only after 2 fat grafts did color really disapate and most adhesions are gone. But I stil have 3 or 4 grafts to go.

  • muska
    muska Member Posts: 1,195
    edited July 2015

    I did not have bad burns or oozing or peeling, I was just pretty red. That radness went away rather quickly and the skin remained tanned for maybe about 8 months slowly paling down. By the 9 or 10 month it was normal color. No corrections or grafts were needed.

    My PS told me to do a light massage on the radiated side every day, so my morning routine consists of 1) shower, 2) apply good natural moisturizer to the radiated breast only, and 3) do a quick massage of the radiated breast only. I have been doing that since the completion of rads and the skin looks excellent.

  • tonia52
    tonia52 Member Posts: 36
    edited July 2015

    that's great advice, thank you! I have been massaging and cupping to increase blood flow to the surgery site since my double mastectomy. I saw a PT for several weeks and that helped a lot with regaining my strength and to prevent lymphedema. I really love massaging with coconut oil. I use the coconut oil everyday. I am praying this helps to prepare my skin for rads.

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