Starting Chemo May 2008

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  • ellenoire
    ellenoire Member Posts: 674
    edited August 2008

    Sue!!! you made me almost cry in front of my staff over there in the April thread!!!!!

     I hope chemo was a breeze today and that you are pole dancing like a maniac!!

    Sable- love the new avatar!

     Sable, Eddie, Roxi & Cristine - chemooooo!

     Kristy, glad chemo will be over soon! I bet you are glad to be home despite everything. 

     I am a babbling overtired idiot today. More later. 

     Noelle 

  • Sable
    Sable Member Posts: 738
    edited August 2008

    Just got home from #3...... 2 more to go 2 more to go! this one went especially smooth. One stick, everyone was in a good mood including me... and I didn't cry for the first time! I started to well up but that was it. Onc told me to take 2 aleves about 8 hours beofre I expect the pain to return and that should help alot. And that the pain lessens for most women each time they get taxol. Here's to hoping!

  • Jeano77
    Jeano77 Member Posts: 237
    edited August 2008

    Hello to all - hoping those having chemooooo this week have minimum SEs!

    I have dropped in to keep current with the posts, but have not posted because I could not get through a sentence without sobbing at my computer.  Tuesday morning my Mom had a major stroke.  She endured a risky surgery which did not yield the most promising results.  Since that time, it has been an hour by hour, day by day on whether we would lose her or not.  Although she has recently shown some progress, critical risks still remain in place. 

    My Mother is a cherished friend to me and this breaks my heart in two.  I will write more later when I can gather myself.  Wishing all of you the best.   Jean

  • sueper13
    sueper13 Member Posts: 1,224
    edited August 2008

    THE POLE DANCE!!!

  • sueper13
    sueper13 Member Posts: 1,224
    edited August 2008
    The end of the Pole dance!!!!
  • sueper13
    sueper13 Member Posts: 1,224
    edited August 2008

    CHEMOOOOOOOO!!!! I'm done!  I know I still have to go thru se's from this one, but I FEEL DONE!!!

    The forest was perfectly cool, so cool I needed a blanket. 

    Going for a nap, though.

    Love all you guys. 

  • MsKarin
    MsKarin Member Posts: 647
    edited August 2008

    Sue - Welcome to the other side. You look great. Love the heels. Can't imagine getting my feet in heels mine still aren't ready for that yet. 

    Thanks for bringing a smile to this still crying face. Spent the day with my grandson. Thought it would do me good. As soon as I dropped him back home tears started running again. This has got to be a non spoken SE cause it sure ain't me.

    Enjoy the day, Karin

  • sueper13
    sueper13 Member Posts: 1,224
    edited August 2008

    Karin, 

    I didn't WEAR the heels to treatment.  I had them in my chemo bag.  I WORE my flat clark's flip flops which are muy comfortable. 

    The crying is a se that happens to me, usually on day 8 counting chemo day as day 1.  I have come to the conclusion that for me, it's bettter out than in, and I just cry when I need to and talk if there's someone there to listen or journal if there isn't.  Crying is actually good for your body.  I know it feels like you are out of control and that can be scary, but I promise nothing bad will happen if you just let go and cry until you're done.  Wish I could give you a hug or a shoulder.  Just know I am thinking of you, k?

    Sue 

  • rock
    rock Member Posts: 1,486
    edited August 2008

    Sue you are rocking GORGEOUS.  And I'm with Karin, I love the heels -- you DO have great legs!!!! (Is there something be flung through the air in pic #2?!) I love it. I love it i love it i love it. Congratulations, my friend. Woooooo-hooooooo!!!

  • rock
    rock Member Posts: 1,486
    edited August 2008

    (Karin, I have two theories: Maybe you're making up for all the times you wanted to cry over the last 4-5 months and there just wasn't a time or an opportunity to let it all hang out.  OR I wonder, too, if there is might be a side effect of withdrawal from the steroids.  Either way, I'm with Sue. I wish I could be there to pat your arm or pass you another Kleenex.)

  • MsKarin
    MsKarin Member Posts: 647
    edited August 2008

    Sue

    You go girl, you came prepared with props. Did you see that Rock? Wonder what props Rock will bring.

    Thanks for the hug. If I leaned on the shoulder can you imagine what we would look like from above? Heads together would look like two giant boobs. Good thing about crying, flushing more of the chemo left behind out.

    Enjoy the day, Karin

  • sueper13
    sueper13 Member Posts: 1,224
    edited August 2008

    rock,

    the quilt around my waist in pic #1 is being flung thru the air in pic #2.

    Love ya, hon. 

    And Karin, two giant boobs could be a good thing, but we'd still have only one each! (I don't know how many you have, sorry) 

  • rock
    rock Member Posts: 1,486
    edited August 2008

    Jean -- I just read that your mom has had a major stroke.  I am so very sorry. My Dad nearly died a few months ago (severe potassium poisoning) and my Mom went to the hospital with a very close call 2 weeks ago and while she's home, she's still very weak. These were two of the three times that I have been jack-knifed, doubled over in pain and tears since I was diagnosed. (The third is still too raw and recent.)

    The thought of losing Mom or my Dad...  I try not to think, "I can't. I just can't cope with that."  Yet if it happens, I imagine we will continue to find strength that we did not even realize we had.  How I feel for you.  I'm so sorry. I am keeping you in my heart and praying you will have the strength and the comfort you need for what lies ahead.

  • familyroks
    familyroks Member Posts: 575
    edited August 2008

    Jean - I am so sorry for what your mom, you and your family are having to endure with your mom's stroke.  Please know that my thoughts are with you.

  • familyroks
    familyroks Member Posts: 575
    edited August 2008

    Sue - You go girl!!  You look fabulous and congrats on your final CHEMOOOOO!!

    My last tx is next Wednesday.  I know I won't have the guts to pull off a pic as I'm obnoxiously shy....but I think those of you that do are totally awesome!

  • ellenoire
    ellenoire Member Posts: 674
    edited August 2008

    I wish they sold Aleve here!!!!!!

    Glad things went well Sable!

     Suuuue you look awesome!

    Glad it is all over for you.

     karin- I wept a ton in the first weeks after chemo ended. Get the book I mentioned in the prev. post. It may explain some of it. I think it a combo of relief, fear, exhaustion and confusion. 

     Jean, what can I say? What an awful thing to happen when you need your mom.  I am so sorry.

    Rock and Jean, watching a parent be ill and the fear of losing them is a horrific thing. You can and you will find your way through whatever comes!  Be sure to try and not let your own health be compromised by the lack of sleep/ not eating etc that this kind of emotional stress can bring. You need to be strong to get through your remaining treatments and to be there for your parents. 

     I carry you all with me wherever I go.

  • susansblues
    susansblues Member Posts: 88
    edited August 2008

    Laura -  Originally I was told I'd be getting 4 tx of Taxol & Herceptin, once every 3 wks, but then my onco changed it to 12 wkly tx.  I believe that it's supposed to be easier to handle, & I *think* I read somewhere that some new research shows the weekly schedule to be slightly more effective, but I could be wrong about that last part.  I *do* know that the wkly schedule is newer but seems to have become pretty popular.

    Susan 

  • hunkydory
    hunkydory Member Posts: 1,241
    edited August 2008

    Sue, just got home from work.  You look great, and those ARE CFM shoes.  I want some.  I don't think I could walk a city block with them on but I could just stand in the kitchen cooking some bisquits and gravy in them.  Great job on the completion, and perfect pictures.....HunkyD

  • Sable
    Sable Member Posts: 738
    edited August 2008

    Jean~ my prayers and thoughts are with you and your mom sweetie~

    Sue~ You GO GIRL! LOL. I sat today looking around the room wondering if I had the guts to do my own pole day when my time came.

    ChemooOOOOOoooooo to you lady warriors!

  • lewing
    lewing Member Posts: 1,288
    edited August 2008

    Jean, I am so sorry to learn what your mother - and you - are going through.  So sorry.  Please know that we're thinking about you and wishing you well, OK? 

    It's just so damn unfair, at a time when we're dealing with our own cancer, to have to face our parents' illnesses (or our children's, or economic worries, etc. etc.), too. 

    (I just learned that after almost a year of cardiac watchful-waiting-let's-see-if-more-symptoms-develop, my Dad is going to be having valve replacement surgery at the end of next week.)

    Linda

  • lewing
    lewing Member Posts: 1,288
    edited August 2008

    OK, even though I'm late to the party, I have to add to the admiring hoots and whistles for Sue's legs (and those SHOES). 

    Linda

  • drcrisc
    drcrisc Member Posts: 836
    edited August 2008

    Jean - So very sorry to hear about your mom.  Big {{{{hugs}}}} to you and your family. 

    Sue - Wowee girl!!  Those are definitely CFM heels and you look fantastic in them!!  And, yes, the forest was definitely cool -  I needed a blanket, too!

    Rock - Hugs to you too for whatever it was that made you cry.  Been weepy myself all day and thought of you as I was holding it back during the infusion. 

    Speaking of which, it mostly went better in that I didn't blow a vein and I didn't get nauseated during the infusion this time (they added some benadryl to the pre-meds).  But, my new billing group for my insurance (which was just changed in July) will not let me take my Neupogen shots home.  So that means I have to go to the office every day (except Sunday!) for the next seven days.  Not happy about that and tomorrow some insurance person will be getting an earful!!

  • Roxi65229
    Roxi65229 Member Posts: 462
    edited August 2008

    Jean,

    Please know I am thinking and praying for you and your Mom. How much more can we endure, have strength, you both need it know.

    Sue, Ditto on the pole dance and CONGRATS!!!! I'm not real good with texting so I think they are F*%K Me Pumps???? Oops, did I write that???

    Rock, I hope how hard it is when a parent gets sick. You feel so helpless. Hang in their girlfriend.

    I'm so glad everyone's treatment went well.

    Kristy, I can't believe you can give yourself all those shots. Dang your brave.

    Adrienne, you must pole dance net week cuz I'm right behind you.

    Roxi (Mary) 

  • ewesterman
    ewesterman Member Posts: 417
    edited August 2008

    Otter, PTS, yes. Dancing in Limbo, yes.You have made it to the top of the mountain, but the air is thin, you're tired and you don't have the equipment to get you down. Your tent isn't that great although it is sheltering you (your body) but it would be nice to patch it up and fix the tears and other stuff. You are wandering up there and you see the beauty, but it would be more beautiful if you had proper gloves, better shoes, a softer hat and whatever else you need to survive. Slowly, things will get better and you will be able to start the slow descent back to normalcy. Meanwhile, we all love you and send you HHHHUUUUGGGGSSSS!

     Roxi, welcome home from taxol...my taxol went in smoothly as well.

    Sue, congraats on last chemo. Where is the pole dance. I began thinking about mine today and will continue thinking until the final one.

    Cristine, Hope chemooo was good for you. Love you daughter and new avatar.

    Sable, you too on avatar and chemoo.

    Kristy, phew. Get through the next few weeks...okay?

    My blood counts were higher than my oncologist today. Red meat. I have now gained nearly nine pounds. OYYYY. Red meat? Naw...other treats and reading all about your baking and cooking.

    Breaking news. Get what my rash is all about? Prickly heat? no

    Hives? no.... Get this. I am allergic to steroids...the very ones we've been taking. Too late for this  batch as I took a bunch already but we cut the dose from 60mg to 21 so I am hoping it'll be more mellow. I am not worried about danger...just itchies. Using aloe, hydrocortisone cream, blah, blah, blah. That's it for now. By the way, I think I am beginning to do some hot flashing, but we'll have to talk about that another time. Love you all. Hoping not to "crash" on Saturday...herceptin (first one) tomorrow....talk to you soon. 

  • KristyAnn
    KristyAnn Member Posts: 793
    edited August 2008

    Jean, Prayers are with you and your family!

    Roxi, I dont actually give shots- the syringes screw onto the end of my tubing so I dont deal with any needles other than trying to protect the one in my arm!

    Noelle, I have the FRS sample pack ready to start after my last chemo! I cant wait to try to have some healing time for this body!

    All is well here- I am struggling to stay awake until 10 for my last meds- I am completely wiped out after the hospital stay- and being wiped out is not normal for me! I could go to bed at 7:30 PM and be perfectly fine with it except I would hate having to get back up at 10 to do my little routine.

    Kristy

  • ewesterman
    ewesterman Member Posts: 417
    edited August 2008

    KRISTY, No one should have to stay awake just to take meds.

    Has anyone had herceptin yet....any fevers, chills or thrills? Good night.

  • sueper13
    sueper13 Member Posts: 1,224
    edited August 2008

    eddie,

    pole dance is earlier on this same page (66)....I also posted my first pictures successfully thanks to otter for directions!!

    Happy Friday! (My happy ass is in the recliner until 3-ish when I leave for my Neulasta shot.)

    Sue 

  • Roxi65229
    Roxi65229 Member Posts: 462
    edited August 2008

    Eddie,

    I've had three rounds of herceptin and haven't noticed anything yet I can put my finger on because they have both been with taxol. I'll fly solo with just hercpetin in about a month. Kristy may have more to share.

  • ellenoire
    ellenoire Member Posts: 674
    edited August 2008

    Eddie, my hot flashes started soon into the taxol. I start herceptin on Wednesday. The herceptin boards are really thin without much info. I hope that means there are few side effects.

    Chris, what a pain that insurance change is. As much as the Canadian system blows donkeys at least they are too slow and stupid to change things mid treatment. I had to have a nurse check on me once a week to get my Neupagen covered and I did my own injections b4 bed each night. All drugs in the hospital are covered no matter what, all drugs outside are not unless you pay for private insurance. 

     I have a nutty day/ 10days ahead of me. 

     Chemooooo!

     N 

  • Sable
    Sable Member Posts: 738
    edited August 2008

    Noelle~ loving the mo'

    My onc won't start me on the herceptin till after my taxol is done. Said there are too many chances for reactions and doesn't want to try and figure out what is causing them. At least I'm getting a 3-4 week brreak between the end and beginning.

    my bone pain set in early this time around, so not fair. Was gonna get the house all nice and cleaned up today and have that part done. Grabbed my 2 aleve and hope that it works. :OP

    Eddie~ Good luck sweetie!

    chemoooOOOOoooo ladies!

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