Starting Chemo May 2008

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  • drcrisc
    drcrisc Member Posts: 836
    edited August 2008

    Yes, we are a verbal group and we even had visitors!  If I'da known, I'da gotten dressed!  And woo hoo, we're all Otter's sisters, naynaynaynaynay!

    Rock - O.K., feeling left out cuz I missed the picture, although I can only imagine gvien some of the comments!!  It made me think of an email that has been circulating entitled "Why boys need mothers" and there is one of a little boy who has clearly gotten into his mother's private stock.  Suffice to say, I did not know that pantyliners could be used as body armor.  However, loved the Bert and Ernie videos - there is also one called "Mad Funny" or "Ernie mad at Bert" that is hilarious, too.  But I didn't want to post the link in case it might offend someone and I would be banned!  Sorry about Sr. Dolor - I shall smite him and call for Jay-sus to heeall our beluhved sista!  Be gone, demon!!

    Sue - Shovelgirl, here.  Point me in the direction of that doc so I can smite him in a different way.  Yes, we are ALL swollen!  It is hot in TX?  It's not even hot-hot here (over 100) and my feet/ankles have been slightly swollen most evenings.  YOU DO NOT HAVE CHF - You have chemooooo.  And love the song for Sable.

    Sable - By the way, I turned 41 in May, so I think that makes me the second youngest.  Was 40 when diagnosed - Happy First Mammogram Day!

    Roxi - I'm glad you walked and cried.  I'm still trying to decide if I want to walk in our Relay for Life event in 2 weeks.  I think I might be a blubbering idiot all the way around the lap.

    Eddie - So glad you are feeling better.  And I desperately want to see Mama Mia!

    Kristy - I know you said how long you were going to be in the hospital, but now I'm on a different page.  Darn.  Well, I hope you are doing much better and are home soon!  Borrowing from Otter and sending good imunnoooo thoughts your way!!

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  • ranD
    ranD Member Posts: 373
    edited August 2008

    Hey all,

    Getting ready to take my tylemol and go to a good bye party.  Wish me luck!  SOme people from our old church (the one I was was kicked out of, that will be my night story for you all, yes, you actually klnow someone who was put on a church trial and kicked out) might be there and most don't know about the bc, so it should be fun.  I have my t-shirt that reads that "Cancer can't get this broad" that my bf got me.

    Later, after my tri-tip b=bq! randie

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  • drcrisc
    drcrisc Member Posts: 836
    edited August 2008

    Sue - One more thing...Yesterday, at the fair with dh (we got ot go by ourselves and had a nice time, looking at interesting stuff, listening to a good band and having Strawberry Daquiris, but I digress...) some young girl offered to clean my wedding ring to show off her amazing ring-cleaning stuff.  I almost laughed in her face, but managed a polite "No thank you" and then showed dh how there was NO WAY the ring was coming off my finger!  This morning I could get it off if I had to, but don't have to.  See?  Everything's swollen!!

    So, it's back to the fair (again - third time) for me this afternoon.  Glad it's not hot-hot.  But maybe I will ride some rides with my older dd (Sable - I'm really a lot younger than my age sometimes). 

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  • drcrisc
    drcrisc Member Posts: 836
    edited August 2008

    One more...is there something up with the site today?  It would not let me edit the above post.  Nothing major, but somewhat irritating...

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  • ellenoire
    ellenoire Member Posts: 674
    edited August 2008

    I am 41, and the weather is too nice here to stay inside.

     Chemoo, and immunoooo to everyone! Most especially to those in pain and Kristy Ann!!!!! 

     More later after the sun has set!

     Noelle  

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  • Sable
    Sable Member Posts: 738
    edited August 2008

    hmmmm Just read that Christina Applegate is joining our "ranks".... It seems to be running amok lately.

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  • drcrisc
    drcrisc Member Posts: 836
    edited August 2008

    Hey Girls!  I just found this - check it out.  If you go to the website, you must visit the SUTV and click on the "Lift" tab.  There are hilarious videos that will make you laugh out loud!!!  I also joined our team created by Deb (see thread below), but NO PRESSURE (really) to anyone else.  I think this is a great event and the colors are NOT pink!!!

    Find the conversation under here: Forums: Walks, Runs and other Fundraising Events

    Thread:  Stand Up To Cancer

    And, Sable, yeah, I just read that, too.

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  • Sable
    Sable Member Posts: 738
    edited August 2008

    My day....

    I actually got to go out and have a girlie day today. My gf and I hit the book stores and the used cd places and had lunch. All around is was just nice to get out. Unfortunately the heat got to me and made me swell up pretty good. I had to take off my rings and pop them in my pocket. Towards the end of things my "bad" arm starting aching from the swelling... that was interesting, first time that has happened. Tried to keep it up all evening and getting ready to do my MLD yet again. I am determined to not have to wear one of those darn sleeves. I've had enough crap to deal with.

    I have a doc appt with my surgeon tomorrow morning. My onc wanted me to go see him because he felt an "odd spot" on my scar. So tomorrow is a follow up with the surgeon, I think he said a few weeks ago I might be getting an ultrsound tomorrow but I can't remember. He said last time he thought it was just a cyst or a fluid filled spot if anything. I keep trying to feel the spot myself and my entire scar feels bumpy to me.. I dunno, trying not to be freaked out over it. I'm over this already and want to go back to normal boring me.

    I hope everyone is feeling better this evening. I'm wishing you lots of good vibes. Sweet dreams sistas!

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  • ranD
    ranD Member Posts: 373
    edited August 2008

    ths bone pain really sucks, seems t ge worse at night.  I tried the ibuprofen and tylenol, no luck, just ook a darvocet, lets see how that works.

    Had fun at th picnic, but it was really a long day and I am bone tired...lol...

    randie

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  • sueper13
    sueper13 Member Posts: 1,224
    edited August 2008

    randie,

    Hope the darvocet gives you relief and a great nights' sleep.

    And have some good dreams, too. 

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  • familyroks
    familyroks Member Posts: 575
    edited August 2008

    Randie - I agree it gets worse at night.  I have a hard time categorizing this pain...for me, its a really irritating ache.  I just ache.  I get a feeling that this must be what arthritis is like.  I didn't sleep well last night because I just ached.  Kept trying to change position and had the fan directed on me for the hot flashes.  Oh what fun we have.

    The teeth ache, the skin is numb off and on in spots, the knees..back..butt..ankles..toes...just ache.  It will all be better by tomorrow or Tuesday.

    I've had one glass of wine too many tonight (in hopes of sleeping through the aches) and I looked in the mirror and realized...jeez louize, I look like I have cancer.  Damn, I hate these moments.  I do a great job of just getting through treatment and not really acknowedging the big picture.  I'm good at that.  Big picture in the mirror after some wine...DAMN....I'm being treated for cancer.  DAMN DAMN DAMN. 

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  • ranD
    ranD Member Posts: 373
    edited August 2008

    Adrienne,

    Shit, we have CANCER???? How come no one gave me that memo////lol///

    Same pain here, it feels like I pulled an all nighter and everything just aches.  There is no rhyme or reason, any even my pelvic area aches on and off...this reallysucks...oh please come tuesday, please.......randie (obviosly under the effects of the darvocet already...want a glass of Trader Joe's raspberry wine...yummm)

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  • drcrisc
    drcrisc Member Posts: 836
    edited August 2008

    I almost forgot to ask for a "roll call" for this week. 

    I'm on for Thursday - who's with me??  It's my last C/C and then I'm on to Taxotere with the big kids.  I guess that fits for being the "younger" sister...lol...but not the youngest, that's for you Jen/Sable (I have to get used to "Jen"). 

    And, Noelle, apparently you and I are the twins, both being 41. 

    Randie and Adrienne (and anyone else with bone aches) - So sorry, my sisters.  I hope the darvocet worked, Randie.  But if you need a laugh, try some of the videos on the www.standuptocancer.org - I'm still laughing about those from earlier.

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  • rock
    rock Member Posts: 1,486
    edited August 2008

    Re: "Sweet dreams."
    I used to remember lots of dreams. Since chemo started, I almost never do. But! (And I am not a fan of dream-relaying, btw, but this was kind of funny) last night I dreamed that AlaskaDeb and I were paratrooping in "behind the lines" to intercept women who had been diagnosed with breast cancer before the fell into enemy doctors' hands.  Apparently, the rest of you had been involved in this covert operation for quite a while (Otter was the undercover agent who coordinated everything); I was among the last to know. Why? Because there was concern that I didn't have the right shoes. 

    Adrienne -- everything you said. Achy bones and joints. Raw realization. Opened a bottle of Prosecco (a wine, not a painkiller) last night and caught up with a good friend and her life (distraction seems to be the best approach to the pain, for me). We will get through this. We will. 

    Cris -- Congrats on last C/C!!!!! May it be UNEVENTFUL. BORING, even. 

    Am off to the ovary surgeon guy in a few minutes. The fun never stops.

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  • ellenoire
    ellenoire Member Posts: 674
    edited August 2008

    Hey Sisters, Good Morning!

     Yes, sisters is a good way to think of us, I am with otter about the real sister thing- mine really sucks. Visiting me from an hour away does not seem to fit her schedule. I don't care that much as she comes more for my counselling than to be of help to me, but my son does not see his cousins much as a result- I know if we all lived close we would do our best to stumble through the pain and exhaustion to take turns and help each other out.

     It is a Holiday here in Canada, so i get one more day to lie about. I have a lot of work to do this sweek, we are coming up on our busiest outdoor festival in 2 weeks and have a lot of planning and product making to do.

    Sable, Randie, Chris, glad you got to get out and have a little fun, sorry about all the pain.Bedtime was the worst for me too, but my Doc only gave me Tylenol with codeine that barely took the edge off. Take lots of baths,it helped me a lot with the pain.

    Adrienne- I am sorry you have cancer- is that contagious??? lol?! 

    Rock, that dream sounds awesome, did we get to carry shovels? I hear the Thompson Twins singing "Sisters of Mercy" in my head when I think of it. I hope the ovary doc visit goes smoothly.

     Randie, cannot wait to hear the story about getting kicked out of church.

    I cannot tell whether activity makes the neuropathy better or worse, but I have decided to be as active as I have energy for. I start training this week in the hopes I can race at the end of August, and am attending a swim workshop on the weekend.   

    Any word on KristyAnn?

    The SUTC site is fun, too bad Revlon is a sponsor.  If only they would get rid of the cancer related ingredients from their products I would actuallly believe that they cared. But Ford, Avon et al are always sponsoring BC events .... Look Good Feel Better my a......!!! 

    oops, did I say that outloud?

     Did I miss anyone?? Chemooo!!!

     Noelle  

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  • familyroks
    familyroks Member Posts: 575
    edited August 2008

    Noelle - You'd think it is contagious, wouldn't you?  Simply with a little eye contact and BOOM!  There you have it.

    I do think activity plays a part in the degree/severity of the neuropathy.  I mentioned to DH this morning how this last tx seemed to be worse than the prior two, as far as the achy/numbness, and the only thing we did different was forego our nightly walks this week.  Besides a couple of days of bad weather, I have no excuse for not walking.  This is my punishment.  Shame on me!  We walk tonight!

    My Onc did say that the neuropathy would be more pronounced the further into the Taxol tx I get so that is probably part of it.  In addition, I did get a Neulasta shot this last round.  So its hard to say if its a combination of all or any one thing.  But I'm blaming myself and the lack of exercise.  Mostly because I can control that part!

    Rock - LOL @ your dream.  Funny the shoe thing since Crocs have been such a topic of discussion here.  Perhaps you left your Crocs at home or you had the wrong color?

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  • Jeano77
    Jeano77 Member Posts: 237
    edited August 2008

    Got up Saturday morning and read Noelle's post on crossing the river and cried.  Thanks to you and Otter for cheering from the other side - and to everyone else for the encouraging words while trying to stay afloat. 

    Kristy - positive, positive vibes your way.  Hoping you are out of the hospital soon. 

    I went to the Uptown art fair yesterday and walked around for 45 minutes which was all I could manage with the bone pain (I have it in the legs, hips, butt, but also have it bad in the teeth and neck).  After the art fair, stopped by an open house and caught up with a group of friends that I had not seen since my surgery.  Great group and a nice visit. 

    Minimum SEs to all!   Happy Monday!  Jean

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  • Gracie713
    Gracie713 Member Posts: 302
    edited August 2008

    Randie & Familyroks, I am still with you with the bone pain.  Called my onc for something stronger than Tylenol & ibuprofen because it just isn't helping any.  Waiting to hear back from her.  At least the nausea has let up, just wish I had an appetite. 

    On the bright side--Grandson has made his debut--9 pounds 4 ounces, 20 1/2 inches--adorable chubby little guy.  I got to hold him for a little while this morning-I just couldn't stay at the hospital as long as I would have liked.  Plan on going back this evening.  He & Mama are doing fine.  Kinda gives you a new outlook on life.  Did I say that he is absolutely adorable???   

    Not going back to work as planned, they are extending my leave another 30 days.  I was kinda looking forward to going back, but at the same time, the risk of infection is high there, so it is probably for the best.

    Hope that everyone has a great day and all the SE's go away!

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  • ranD
    ranD Member Posts: 373
    edited August 2008

    Hey all, Still on meds and waiting for my call as well, since the pills are my dh's. You're right, this pain sucks, it bleeds thru the darvocet, I checked on a website and the dr. there recommended heavier meds then tylenol and ibuprofen.  WTF?  Can we get at least one straight answer from anyone on what to do.  I am starting to feel as if we are the first ones with bc and they aer trying a lets see what works attitude.

     Gracie: Whoo HOO, a new baby, lucuky you, I won;t be able to see mine first grandchild until the spring/summer.  So, give him an extra hug for me.

    Just downloaded a new buttermilk pancake recipe and bluberry pie recipe and will try them both this morning, if I amgoing to hurt, the house is going to smell good.lol.

    CHEMOOO SISTAS!!!

    randie

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  • ranD
    ranD Member Posts: 373
    edited August 2008

    Hey all, Still on meds and waiting for my call as well, since the pills are my dh's. You're right, this pain sucks, it bleeds thru the darvocet, I checked on a website and the dr. there recommended heavier meds then tylenol and ibuprofen.  WTF?  Can we get at least one straight answer from anyone on what to do.  I am starting to feel as if we are the first ones with bc and they aer trying a lets see what works attitude.

     Gracie: Whoo HOO, a new baby, lucuky you, I won;t be able to see mine first grandchild until the spring/summer.  So, give him an extra hug for me.

    Just downloaded a new buttermilk pancake recipe and bluberry pie recipe and will try them both this morning, if I amgoing to hurt, the house is going to smell good.lol.

    CHEMOOO SISTAS!!!

    randie

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  • sueper13
    sueper13 Member Posts: 1,224
    edited August 2008

    Cris,

    For roll call:  Me, Me, Me!!! My LAST TAC on Thursday!!!!

    Love,

    Sue

    CHEMOOOOO!!!

    P.S. Rock, love the dream! 

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  • Roxi65229
    Roxi65229 Member Posts: 462
    edited August 2008

    Cris,

    Taxol #3 on Wednesday. Yeah Sue for last TAC! I think we have a few graduations coming up.

    Congrats Gracie on your grandson, what a joy.

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  • Sable
    Sable Member Posts: 738
    edited August 2008

    Oh I hope you ladies are finding relief! still sending you feel good vibes!

    WOOHOOO yay cris and sue!!!!!! I'm jealous really really jealous!

    congrats gracie on the new bundle!

    Me~ I'm doing ok today. Doc sending me for my ultrasound tomorrow. He thinks it is scar tissue but wants to make sure. He said if it comes back iffy.... I'm back under the knife. I had a choice as to biopsy then take it out or just take it out.... I voted for the latter. I'm hoping it comes back just fine. I've been poked enough already.

    Jen, the young'un LOL

    p.s. taxol#2 thursday

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  • Roxi65229
    Roxi65229 Member Posts: 462
    edited August 2008

    Jen,

    Good luck tomorrow, keep us posted. Hope everyone's feeling better.

    Mary (Roxi)

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  • rock
    rock Member Posts: 1,486
    edited August 2008

    Babies are so darned cute (especially when they're a leetle bit older and their heads don't bobble around so much).

    Oh, Gracie, please give your grandson a squeeze for me, and breathe in the good just-had-a-bath baby smell and put the little guy's feet up against your cheek and all those wonderful baby things... I'm so happy for you.  Babies are wonderful. (And grammas are so important. Another reason I'm glad you have some more leave.)

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  • mommy3abm
    mommy3abm Member Posts: 221
    edited August 2008

    Kristy Anne,

    I just noticed your 1st post on this thread.  I too am in East Texas.  Tyler to be exact.  Where are you?

    Stacy

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  • otter
    otter Member Posts: 6,099
    edited August 2008

    Stacy, Kristy was quite literally in the hospital on Saturday (Aug. 2).  She said she expected they would keep her their until today or tomorrow.  We haven't heard from her here, since her post on Saturday.

    otter 

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  • familyroks
    familyroks Member Posts: 575
    edited August 2008

    Congrats Gracie!  I love babies.

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  • KristyAnn
    KristyAnn Member Posts: 793
    edited August 2008

    I AM HOME!!!!!!

    I got home around 8 PM tonight with an IV line and have to do do-it-yourself IV infusions of antibiotcs for the next 8 days - but they trained me and at least I get to be home. The staph was negative before I left (that was a requirement) and the clots are about half dissolved- doc said it would take months to completely clear out the clots in the PICC line vein.

    My last chemo scheduled for this Thursday has been delayed a week so August 14 is now the last chemo with August 21 and August 28 the last weekly Herceptins- then I am on the Herceptin only  every 3 weeks.

    Kristy

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  • ellenoire
    ellenoire Member Posts: 674
    edited August 2008

    Gracie, press a piece of silver (or just a coin) into the babies hand for me!

    Ok, so I typed that and realised you will think I am nuts if you don't know the tradition.

    My mom was Scottish, born and bred and this was what you did when you met a baby for the first time. I googled it and got this: It was thought that you should cross a baby's hand with silver to bring it luck and to ensure that the fairies thought well of you. 

    Congratulations!

     Chemoooo everyone!

     Noelle  

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