LCIS and PLCIS,

Lileli

Hello,


Help…Just received surgical excisional biopsy results which state “lobular carcinoma in situ, classic type, extensive” and “single focus lobular carcinoma in situ, Pleomorphic”


I was previously diagnosed with LCIS, ALH, FEA and ADH IN 2015 after an surgical biopsy and completed 5 years of Tamoxifen in 2020.



My breast surgeon is recommending I see my medical oncologist to possibly begin another round of chemoprevention. She did state a prophylactic mastectomy is an option but not recommended.



Wondering if anyone else was diagnosed twice with LCIS and whether or not the Pleomorphic LCIS finding pushed them towards a prophylactic mastectomy?


I am worried that continuing the increased surveillance route with chemoprevention is just delaying an eventual cancer diagnosis. Not sure if I am comfortable with that risk
Thank you