flap surgery for an unhealed wound
I'm a two-time breast cancer survivor. I've been radiated twice on the same breast. I was diagnosed with four atypical vascular lesions (AVLs) in July. AVLs are a rare complication of radiation treatment and I am the only patient at NYU Perlmutter Cancer Center that has this and one of only 200 cases worldwide I was told. I had surgery to remove the four lesions in August and the surgical wound never healed due to the skin being radiated twice. I went to a wound doctor at NYU who told me I had two options, both involving more surgery. He said I could do a debridement down to the bone (under general anesthesia) and then 40 consecutive treatments of hyperbaric oxygen therapy, or a flap surgery/breast reconstruction. I had a mastectomy without breast reconstruction in 2019 and I did not then, nor do I want now, a new breast. But this was his strongest recommendation since he did not believe the hyperbaric oxygen therapy would help. He said because the skin was radiated, it is like trying to heal through concrete and the best option is to remove all the radiated skin. I am so disheartened by this. I've had five cancer surgeries already and this would be my sixth. I understand it's a big operation. If I go this route, I want to tell the plastic surgeon to just do what is necessary to heal the wound and to not give me a new breast. Has anybody else been through anything similar? This is what the wound looks like on my mastectomy scar:
Comments
-
Patricia--so sorry you are having to go through this. I suppose one question that pops up immediately (for me) is why a breast reconstruction? Seems to me that a skin graft from some other area of your body could be used to replace the removed skin. Of course, what do I know but I wonder why reconstruction would be the recommendation. My very best to you for a successful outcome.
-
Patricia - so sorry for your troubles, but the rule for BCO is no pictures. Perhaps you could remove that. I have heard really good results about hyperbaric O2 treatments.
-
If the MD does not think the hyperbaric oxygen will help, I would trust his judgment, rather than rely on anecdotal information.
-
Thank you Pessa, MinusTwo, and LW422 for reading and responding to my post. I met with my primary surgeon yesterday and he said that yes, I could have a flap surgery without reconstructing a breast. I am so happy about that. He also agreed with the wound doctor that the hyperbaric oxygen therapy would not work. He is holding off on the flap surgery to give the wound time to heal on its own so I am thrilled that surgery is not imminent for now.
-
Patricia--that is good news, and I hope the wound will get busy healing! Take care and let us know how it goes.
-
Great news/ Thanks for posting.
-
Hi there! I had a similar issue, but did decide to go ahead with DIEP flap reconstruction. The flap was very successful in healing my skin, as there is evidence that the healthy stem cells and blood vessels infiltrate the radiated tissue. I regained a lot of movement and lost a lot of pain in my chest wall. I would assume a skin graft without intent to build a breast would have the same success. Good luck!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team