Large DCIS - Your experience?

Amacadams

Hi All! I'm looking for people with similar experiences. I was diagnosed with DCIS, but the doctors made it very clear that it could actually be invasive once we see the full masses. My largest mass was 8cm x 11cm x 12 cm. I had several more masses through the breast as well. It was VERY visible to the naked eye and I was having discharge. I also had 9 suspicious lymph nodes and they removed my 6 sentinel ones.

I just had a DMX done in Wednesday and am waiting on my full pathology. I guess I'm wondering what the chances are that this could still just be DCIS and has not become invasive. Waiting for the results is brutal.

Moderators

We totally understand how the waiting can be terribly stressful! You're not alone. And we wish we could answer your question. Looking forward to hearing from others.

You may find it helpful to look at these pages on understanding the pathology report: Size of breast cancer or Getting your pathology report.

In the case you meant to post this on the public forum, you could go here: Just Diagnosed

We're all here for you!

The Mods

barbara4

Hi Amacadams,

I had nipple discharge. I had a lumpectomy and I was diagnosed with 4cm of DCIS grade 1, with 1 positive margin. I had a second lumpectomy to clear the margins and DCIS were noticed in another segment so I was diagnosed with mulfocal DCIS and some LCIS. Again this time there was 1 positive margin.I underwent a mastectomy and I was diagnosed with 4mm IDC grade 1 and 6cm of DCIS grade 2 this time. I wish you the best and good luck with your results.

Barb