Daughter with De Novo DX in July

MEMAStrong

Good Day Everyone,

I am returning to BC.Org after several yrs away, I was DX in 2006 with ILC, treatment Bilat etc and have been NED since 2009. I come back today for my 39 year old daughter who was just been DX with with IV, mets to bone, liver, spleen , lung. It was quite a ride to even get the BC DX as she presented with sever back pain after tuffing it out for several months, thinking she just pinched a nerve, CT's and MRI's showed many, many areas of concern, her first trip to ER she was admitted because of the pain and findings on the imaging , she spenbt over a week in the hospital , 2 biopsies attempted on a large mass on her T5, both failed without enough to confim DX, although the oncologist at this 1st hospital was 99..99999% sure she had CA. Fast forward sent home to reschedule another biopsy, in the meantime she sneezes and that was that, basicaly her spine collapsed and she was in a 14 hour surgery for T5 corpectomy with T2-T8 instrumented fusion, at this point the surgeon is able to get a good part of the T5 tumor for biopsy and a week later we have an actual DX, Ductual and again spread to Bones, her spine/hips are covered in lectic lesions , oncologist refered to her liver and spleen when showing us PET results as it looks like fireworks are going off in both. She had 5 days of rads after surgery , about 3 weeks after. As far as the surgery she is doing great, and even is finally having "some" pain relief from that. She has been taking Tomaxifen since mid August , she is one her first final week ofibrance and has Zometa infusion monthly. (2 thus far) .

She has started to feel VERY nauses and even vomiting I see Ibrance can cause both, is that anyones experience? I come seeking guidence as I found this site very helpful when I was on my journey. My daughter has 3 children, and a significent other. She is overwhelmed with all this, we all are. We know the prognosis is not good, even with the studies on the ibrance , but her mets is so wide spread she often asks is "all this worht it" esp these past days of feeling so sick. I honestly don't know what to tell her.

jhl

MEMAStrong,

I am so sorry for your daughter's struggles. She appears to have widespread disease with significant side effects. She must be on some oral pain medication, right? That can cause lots of nausea as well. What have they given her so far? Zofran (ondansetron), Phenergan (promethazine), Compazine (prochlorperazine). Ativan is also used for nausea associated with treatment. I am sure given her back surgery, her doctors do not want her bending over with vomiting. Is she or her spouse in touch with her MO? He/she would be the one to give antiemetic options.

I wish you & her all the best,

Jane

MEMAStrong

The only thing she will take for pain relief is Percocet, they have offered more/stronger, but she refuses at this time. She is a life coach at a local Rehab they are very strict on narcotics as you might giess , she insists on working as long as she can (which I understand) but if she were to take something stronger she would not be allowed to work, she is estranged from her husband 6yrs now, so I am it and a boyfriend. She has made me healthcare proxy and she does allow me to "JUMP IN" when we see Dr's but she also needs/wants that control of her health (I understand) The vomiting is just recent within the past week, and she has been on the Percocet since July when all this began to unfold.

MEMAStrong

Also I apologize for putting this in the wrong thread. I will move it to the correct one. Newbie!!!