How has the Pandemic affected you as a cancer patient/survivor

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021
  • Teedoff
    Teedoff Member Posts: 88
    edited December 2021

    Ex Bronx Girl, I too prefer apples to apples. Wish I could read the article. Restricted to subscribers. Anyway, good to know as there is no victory in the number or percentage of deaths anywhere. Considering the lack of Covid protocols in FL one would think they’d be doing so much worse. I guess that’s why I wonder. I will still do what I must do to best protect myself and others, but I just can’t summon up the rage toward those who don’t. Do I understand or condone? Of course not, but I know I can’t change minds and hearts, not in this forum or the real world

    Salamandra, revenge fantasies ok, I guess. Scary though.

  • Teedoff
    Teedoff Member Posts: 88
    edited December 2021

    Serenity, I said your screen name made me think of the prayer, not that it was your source. I believe my words were more nuanced than you are willing to give me credit for. No, your posts are not required reading but neither are mine. I do maintain the right to express my perspective and always admit I have not been designated by the universe to be right. I will post when and if I choose, and you don't have to like my opinions either. Bye.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    Chowdog - Remember that airline CEO coughing in a Senate hearing?

    Teedoff - I may not agree with what you say, but I won’t question why you need to say it. I can do a little nuance.

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2021

    Yep. I'm teed off and don't appreciate being scolded for expressing it.

    This thread is about how the pandemic is affecting us. Seems like anger is a very appropriate/rational response.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    wrenn - Are you saying you're teed off? Yes, you were.

  • Chowdog
    Chowdog Member Posts: 236
    edited December 2021

    Serenity, right. I don’t wish covid on anybody but our government needs a wake up call.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    The mayors of Montreal and Ottawa tested positive. It's a loud alarm that the virus is airborne and spreading.

    The minister of education here recently tested positive. I don't know if that will change his mind about improving the air in schools.

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2021

    That is so scary Serenity. I can't imagine dealing with this during active treatment. I don't really have to go out but many of you have no choice. The behaviour of those spouting anti vax BS is hideous given the outcomes of their behaviour.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    It was worse before the vaccines, but now it's more frustrating. We have the tools to slow the spread, but we aren't properly using them.

    This week I get my third dose and my Xgeva shot. In both places I will be asked to replace my mask with a surgical mask inside the building. Hopefully no one will give me a hard time about refusing to take my mask off. I'll put theirs on top. When at the cancer centre I just take their mask, walk away, and pocket it. I shouldn't have to worry about this on top of everything else.

  • Dancemom
    Dancemom Member Posts: 369
    edited December 2021

    so yeah, snl was sorta canceled. And 10 of 32 Broadway shows. And the off-Broadway house across the street that reopened last week just closed. And we had ONE table at our restaurant. And I learned through the grapevine that a kid on 11's school bus Thursday became symptomatic later in the day. Her positive result was released to some vlassmates today. Her dad was sick earlier in the week, but that's ok, cuz he went to work from home at their Hamptons place. I guess the school policy of fully vaccinated close contacts must quarentine and then pcr test negative on the 5th day before coming back isn't for them.

    So who thinks I get surgery in 15 days???

    Fuck the exceptional people. I sincerely hope that family has cases that were at least as strong as mine was last year.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    Dancemom - Is this another delay? I’m so sorry.


  • Chowdog
    Chowdog Member Posts: 236
    edited December 2021

    Dancemom,

    I don't understand why people send their exposed or sick kids to schools. From what I am reading on Twitter, NYC seems to be really bad now, or as bad as March 2020?

    I am realistic and understand nobody has the appetite to go into a lockdown, but I want our government to be honest about the risk rather than painting a "everything is normal" picture. At minimum, we should implement a nationwide mask mandate and rescale up vaccine/booster distribution and testing capability. I mean if 2021 is considered bad, I am not sure how bad 2022 will be if we continue living in denial. It's like we are stuck in the Walking Dead loop: you finally get to safety by killing off the big bad & a bunch zombies, next season, you face another big bad and more zombies.

  • Dancemom
    Dancemom Member Posts: 369
    edited December 2021

    Serenity i hope not. But with the rates increasing exponentially here, i am not hopeful. Manhattan has always had the lowest rates in the region, even when nyc was the "epicenter " . we have 90% adult vax rate. We went from yellow 9/100k at thansgiving to 22 early last week to 44 wed, 72 fri, and 96/100k PURPLE yesterday!!!!!! And careless people like that child on our school bus family don't seem to understand that every action counts!

    Maybe I will have a negative pcr next week and the hospital will be fully staffed. It's just so stressful.

  • Dancemom
    Dancemom Member Posts: 369
    edited December 2021

    update: just got notification from school of 12 new cases reported this weekend.

    Dh says stop worrying.

  • Chowdog
    Chowdog Member Posts: 236
    edited December 2021

    Dancemom, I am so sorry!

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited December 2021

    Teedoff,

    That is weird as I am not a subscriber to the SF Chronicle! Here is the graph that accompanied the article.Sorry that I couldn't get the graph to format correctly but you can still pick out the states in question. NY still has more deaths per 100,000 but CA is well below that

    COVID-19 deaths per 100k residents

    As of Oct. 28, 2021

    Chart showing which states had the highest death rates from COVID-19. Mississippi is at the top.

    Mississippi338Alabama316New Jersey314Louisiana312New York289Arizona289Florida277Arkansas276Massachusetts275Georgia272Rhode Island272Oklahoma271South Carolina265South Dakota252Indiana247Nevada247Connecticut245Pennsylvania244West Virginia243Texas240New Mexico240Tennessee239Michigan236North Dakota230Illinois225Iowa221Kansas218Kentucky217Montana217Delaware212Ohio207Wyoming203Idaho196Missouri196California180Maryland180North Carolina171District of Columbia168Virginia162Wisconsin161Minnesota155Nebraska153Guam147Colorado141New Hampshire114Washington112Oregon103Utah99Alaska94Maine86Hawaii62Vermont55Source: CDC

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    Dancemom - I'm so sorry. It is understandably stressful for you. If your surgery gets canceled, it will be for a reason that protects you, but that doesn't make it OK.

    Seems 2 mABs won't work with omicron. Not that they were easy to get, but a loss of possible treatment options is never good.

    https://www.pbs.org/newshour/health/omicron-may-sideline-two-leading-drugs-against-covid-19


  • Jelson
    Jelson Member Posts: 1,535
    edited December 2021

    I have been hounding my daughter and son in law to get their boosters. Finally scheduled for this week. She asked me to go with her and of course I will. I hope it is in time to mitigate severe effects from Omicron considering the wave should be hitting here in January. I don't know what my DD was thinking, but I had to reassure her that the "booster" was just a third dose of what she had received before, not anything new and different. She teaches in person and has a toddler whom we sit for every day. My son has had a J&J and a Pfizer booster, I am hoping to convince him to get a second Pfizer and it will be provided without a hassle. I have been out to eat at a restaurant three times since March 2020, was looking forward to seeing a show or whatever, hard to remember what I enjoyed doing - well none of that for the foreseeable future!!


  • Teedoff
    Teedoff Member Posts: 88
    edited December 2021

    I can't figure out how to link a NY Times interactive article with an amazing compendium of Covid graphs, maps,vaccinations, etc. updated as of 12/19. I searched Covid Maps and it was among the articles that came up. Really worth searching for. When I looked at my state, I could see where hot spots were and more.

    Ex Bronx Girl: Thanks for sending the data. Very eye opening!

  • Chowdog
    Chowdog Member Posts: 236
    edited December 2021

    so my county test positivity rate just tripled from day before thanksgiving to 12/15. 80% of total population fully vaccinated, and >60% seniors boosted.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    If I ever wonder why the virus spreads so quickly here…

    image

  • Chowdog
    Chowdog Member Posts: 236
    edited December 2021

    Serenity, that's just dumb.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    At medical settings they have most people remove their masks and hand them fresh surgical ones. Today I was allowed to put the surgical mask on top of mine. At the cancer centre almost everyone has only a surgical mask. Except for the clerk who likes to wear it as an earring.

    QC announced today we’re on lockdown. It could have been avoided.

    image

  • Chowdog
    Chowdog Member Posts: 236
    edited December 2021

    Serenity,

    at least your government is trying to slow down the spread. We are not even trying anymore. The leaked biden message is going to be “blame the unvaccinated", if u think about it, that includes all kids <5. “Shift the message to omicron is so contagious, we should shift strategy to prevent severe cases rather than control infection." https://twitter.com/dianaberrent/status/1473020653410435080?s=21

    https://twitter.com/datadrivenmd/status/1473028893711888387?s=21

    People are not happy at all. At least on Twitter, on insta, everything is great

    https://twitter.com/krupali/status/1472916812169764864?s=21

    maybe when snl goes virtual again, people will finally realize how bad things are.



  • Salamandra
    Salamandra Member Posts: 1,444
    edited December 2021

    That restaurant part doesn't seem right?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2021

    I really wish Moderna was a better option than Pfizer for my third dose. The nurse at my specialty pharmacy spoiled me with excellent care when giving me Moderna. I didn't have to explain why I don’t need to meet age eligibility because of cancer. She offered immediately to inject my thigh to give my arms a break.

    At the large vaccination clinic they saw I had received 2 shots of Moderna and wanted to give me Moderna again. I had to explain to 2 people that I experienced a severe rash lasting almost 4 months from Moderna and that my oncologist said to get Pfizer. They finally gave me Pfizer in my thigh though I needed to explain why.

    At least it's done.

    Chowdog - Here the data are easier to manage because they're centralized by province. My vaccination records are accessible from anyplace that offers vaccinations within QC. I've had to pull data from different servers with different formats. It's a gigantic effort to consolidate them.

    Here I don't blame the unvaccinated. Most of them are children. I blame the leaders who caved on mandates and failed to implement standards to minimize spread of an airborne virus. Much of this is done at the provincial level.

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