Question regarding DCIS reocurance.

troy64

Hi.
new to the site. I'm Waiting for test results and panicking, as we do. I view myself as fortunate in being diagnosed at DCIS stage. Treatment was Local extraction and radiation.
Question, in the event of a reoccurrence, what has been your treatment options?

Thank

Jetcat

Hi troy64- my reoccurrence was 2 years after my first diagnosis of DCIS Grade 3. The first time it was all removed during biopsy (no evidence of cancer in surgical pathology). I had radiation after lumpectomy.

When it reoccurred, mastectomy was recommended as I couldnt have radiation to that breast again. Also, second DCIS was ER/PR- and grade 3. The second diagnosis was a huge shock as I never imagined it would happen again! Obviously I was relieved to have the second one caught early as there was a tiny area of it beginning to break out of the duct. I had a SND which thankfully was negative

Jetcat

Also, wishing you well for an easy treatment and recovery. I was able to go home same day after both surgeries and tolerated radiation well- just some peeling and itchiness towards the end

ARmom4

Single mastectomy at a minimum. The rest would depend on the extent of the recurrence and the prognostic factors (Hormone receptor and Her2 status). DCIS is not likely to return but it's not unheard of for sure.

troy64

hi. Thank you for the information. Kind regards.

Lili75

Hi,

I was diagnosed at 38 years old in 2017 with an in situ breast cancer (left breast). I had a mastectomy of my left breast + 2 sentinel nodes removed which confirmed the in situ. I had no treatment after surgery, only regular mammo of my right breast.

2 years later (2019), because I had pain on my right hip, irm, scan and biopsy showed metas already spread on my bones, lungs, liver and nodes coming from the removed left breast (the right one was clean).

I read later in scientific papers that cancer cells spread way earlier than thought.

My MBC is ER+/HER2- (the most common).

After a hip surgery, my first line of treatment is Ibrance + Anastrazole + Zoleda + Xgeva. Now, only the meta on my left shoulder is active that is a good news but I also know that drugs will not be efficient for ever because metas mute and one day become resistant to drugs.

Would hormonal therapy or chemotherapy after the surgery have eradicated or delayed the spread of metas? I don’t know.

Hugs to you

Beesie

Lili, did you have LCIS or DCIS?

While a clear sentinel node biopsy after a diagnosis of an in situ cancer is good news (and is expected), it does not confirm that the cancer was in situ. There still could be a small occult invasive cancer in the breast that was missed in the pathology. That small cancer might not have resulted in nodal involvement, but it could eventually lead to a diagnosis of mets. This does happen - the development of mets without there first being an invasive localized (in the breast) recurrence - but this is extremely rare, probably just a fraction of a percent of cases. Most often when DCIS recurs, it is a localized recurrence in the breast area, usually caught while it is still DCIS (about 50% of cases) or while it is a treatable invasive cancer with a favourable prognosis.

troy, do you have any more information? Have you had a biopsy?

Lili75

Hi Beesie,

I had DCIS : in 2017, I had a first biopsy on my left breast before the mastectomy that said "in situ" BC, then 2 clear sentinel nodes. No radiation, no chemo, no hormono (they didn't analyse the cancer's molecular profile)

In 2019, metas found on bones, lungs, liver, and nodes, especially on axillary lymph nodes on left side (where I had the mastectomy). No problem with my right breast, no problem under my removed left chest.

I know it is rare but it happens...

troy64

Thanks everyone for the replies. My post may not have been clear. I was waiting on my 2nd yr post treatment MRI test results. Im in COVID lockdown and my appointment hadn’t been changed to a phone consultation, so was home alone panicking. Saw the Specialist, I’m still all clear. I do count myself as very lucky and appreciate other have a much harder road to travel.