Anyone dealing with lung fibrosis and collapse?

cyathea

Does anyone who had radiation treatment have pulmonary fibrosis and/ or lung collapse? What do you do for the pain? Does it get better?

I had radiation on my right breast and my T11 spine. My recent CT noted fibrosis most likely due to treatment and my MRI noted bibasilar atelectasis changes in my lungs.

exbrnxgrl

So sorry that you're going through this. I had a complete pneumothorax of my right lung caused by a nick during port installation. Completely different circumstances than you have but I sympathize. Do you have a chest tube?

cyathea

Hi exbrnxgrl, the complete collapse sounds awful! Have you recovered completely?

I don’t have a chest tube. I’ve had pain for months now and my MO thought it was just muscle pain. When it persisted, he checked for bone mets progression and that’s when I found out I have a lung problem. I haven’t actually seen the doctor yet since the MRI

My oximeter readings have always been good, so I’m guessing I just have a small part of the lungs that have collapsed. Unfortunately, it’s enough of a problem to really reduce my quality of life.

exbrnxgrl

Yes, thank you I'm fine. This happened almost 10 years ago when my port was installed. Here's something that will surprise you; I had no symptoms! It was discovered as an incidental finding on an unrelated PET (which also picked up my bone met). I will not entertain youwith that whole mess, a five week ordeal, but let's just say that I've had two unmedicated childbirths that were a cake walk compared to the insertion of a chest tube in the ER. Rest up and take good care.