LVA Surgery - Unsuccessful...?

lestr0ke

I have primary lymphedema in my right leg. It first presented itself 3 years ago in my late twenties. I'm in good physical shape, get lots of exercise, eat a healthy, low sodium diet, wear compression garments, and use a Flexitouch pump. As uncomfortable as my lymphedema is, I am able to manage it by sticking to these daily practices.

I had LVA surgery one week ago and am currently at home recovering. After waking up from surgery, my surgeon informed me that my lymphatic vessels were too scarred for him to work with. He was only able to make one bypass in my knee and didn't seem too positive that it would make a difference in my swelling. I'm feeling very disappointed as I had high hopes for this surgery. Is it at all possible that one bypass could potentially improve my leg or is that hoping for a miracle?

I'm not sure what to do at this point. Should I seek a second opinion? Would another LVA surgery with a different surgeon even be an option? Or would it be futile? I know there are other surgeries that can be performed, but they seem much more invasive and risky. Any insight would be great appreciated.

MandaLynn

Hi there-

I don’t have much to add. I has liposuction for stage 3 lymphedema. So glad you are able to manage it but I know that takes a lot of effort. And, sorry thy hear the LVA want as successful as you hoped.

I think you should explore your options for other surgeries. It seems on these forums, Dr Granzow works with a lot of patients who have been unsuccessful elsewhere. But that it’s just my impression.

Good luck.