Stage III and Verzenio

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  • scaredme
    scaredme Member Posts: 65
    edited June 2022

    I'm curious if others have experienced low blood counts or if it was just me..

  • NotAsCalmAsILook
    NotAsCalmAsILook Member Posts: 139
    edited September 2022

    after over a year on Verzenio, they are lowering my dose. I'm on pause while they work out prior authorization and I am not missing it!

  • KotchAJ
    KotchAJ Member Posts: 126
    edited September 2022

    Just checking in here. I'm still on my 150 mg 2X a day dose. I just had tumor marker testing done for the second time since I started Verzenio and my numbers are going down!! Woohoo! I go to see my onc again tomorrow and before my bloodwork came back, I was ready to ask for a dose reduction. THIS has given me the ooompf to continue on at the 150 mg. I know that they aren't completely accurate (tumor marker tests) and not every doctor even does the tumor markers, but to see it actually making those marker numbers go down was the best thing and I really needed a positive right now. I have a very high chance of reoccurrence due to the amount of positive lymph nodes alone.

  • Bong
    Bong Member Posts: 36
    edited September 2022

    kotchaj - congratulations!

    I’m a month into 150 mg Verzenio. Started diarrhea on day 5 which was quashed with Imodium. But on day 8, diarrhea led to me fainting and I went into er. It turns out I had a fainting episode which I’ve never had. After a 5 day pause, I went back on 150 mg Verzenio. This time I changed my diet from primarily protein and raw fruits/ veggies to more carbs/ pasta etc. so far, the diarrhea completely disappeared without the need the Imodium.

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