Liver & Stomach Mets

maitchison49

Long time follower, first time poster. Looking for some relevant information on my latest diagnosis of mets to stomach. There does not seem to be much information that I can find. Stomach mets found from a resent gastroscopy. Gastro doctor at the time of scope took biopsy and was going to sign off that is was inflammation. I went home with picture and everything. He called me yesterday to tell me that was he thought was inflammation is in fact metastatic breast cancer. He was super surprised and almost giddy because this was his first case like this...even in sickness I'm a people pleaser. Not sure if this changes my current treatment (Ibrance/Faslodex) for liver mets or not. My cancer remains lobular and I wonder if the liver and stomach mets have been hiding for a while and if there are any mets to any bones yet. I have been getting yearly ct-scans since skin mets showed up in 2013. Since liver mets showed up in August 2020, ct-scans will be every 3 months. Last scan showed the biggest tumour shrunk in half. Anyone have a similar experience with lobular breast cancer and mets to liver and stomach? Are you getting ct-scans only or PET scans? Any invites would be very welcome.

wallycat

I'm so sorry you are here and dealing with this. I have zero experience except for similar concerns on what to follow up and what to think is 'normal.' I just wanted to say how witty and well written your post was. Keep us updated on your situation. Sending good thoughts.

ShetlandPony

Maitchison49, I posted on your duplicate thread in the stage iv forum. You might consider deleting this one so responses from other stage iv members will be on one thread, to avoid confusion.

Hello, wallycat. Kind of you to post!

maitchison49

Thank you wallycat. I appreciate your comments. It's nice to be acknowledged!

xx

maitchison49

Thank you ShetlandPony for the tip! I am totally "winging it", as I have never posted before. I appreciate the help navigating through this posting and forum stuff!

xx