Liver and Stomach Mets

maitchison49

Long time follower, first time poster. Looking for some relevant information on my latest diagnosis of mets to stomach. There does not seem to be much information that I can find. Stomach mets found from a resent gastroscopy. Gastro doctor at the time of scope took biopsy and was going to sign off that is was inflammation. I went home with picture and everything. He called me yesterday to tell me that was he thought was inflammation is in fact metastatic breast cancer. He was super surprised and almost giddy because this was his first case like this...even in sickness I'm a people pleaser. Not sure if this changes my current treatment (Ibrance/Faslodex) for liver mets or not. My cancer remains lobular and I wonder if the liver and stomach mets have been hiding for a while and if there are any mets to any bones yet. I have been getting yearly ct-scans since skin mets showed up in 2013. Since liver mets showed up in August 2020, ct-scans will be every 3 months. Last scan showed the biggest tumour shrunk in half. Anyone have a similar experience with lobular breast cancer and mets to liver and stomach? Are you getting ct-scans only or PET scans? Any invites would be very welcome.

ShetlandPony

Welcome, maitchison49. I'm glad you decided to post. We have a good stage iv group here on BCOthat can provide information and support. Here are a couple threads you might want to check:

https://community.breastcancer.org/forum/8/topics/874731?page=1

"Lobular Sucks! " A stage iv ILC thread

https://community.breastcancer.org/forum/8/topics/876844?page=1#top

"ILC (Lobular) "Unusual" Mets Sites" A list of threads and resources

KBL

Hi, Maitchison49. I want to thank Shetland for reaching out to me to let me know you were searching for anyone with stomach mets. I don't have it to my liver, at least that I've been told, but most imaging does not work for me. Only MRI found the mets throughout my spine, and it's a long story that I've posted about, but my gastro found breast cancer in my stomach after I lost a lot of weight quickly and couldn't eat because I felt really full very quickly and nauseous every time I ate. That was in April and May of 2019. The long story is it was actually in my spine since 2013 but was a missed diagnosis. I haven't found anyone on here who has it in their stomach, so I would love to stay in contact. They have never found the cancer in my breast. I was Stage IV from the get go.

I am on Ibrance and Letrozole and have been since the beginning. I just had an MRI last July on my spine, and it says I've progressed a lot since 2016, but since we didn't do the MRI right away after diagnosis, I don't know if it's spread on Ibrance. I'm having another MRI next week to see if it's spread even more.

My gastro was also extremely surprised when it came back cancer. I had an endoscopy, and he said my stomach looked normal, but he biopsied anyway. I'm very thankful he did. Just so you know, mine is throughout all parts of my stomach.

KBL

If you want to read my story, you can see it here. Just jump to the top of the page

https://community.breastcancer.org/forum/8/topics/877339?page=1#idx_17

tangandchris

I was told I have some abdominal lymph nodes that lit up on a PET scan. They are too small to biopsy, but the assumption is breast cancer since it has metastasized to my mediastinal nodes.