Immunotherapy for triple negative

Anatje1972

Hi ladies,

I hear more and more about immunotherapy for triple negative. Anyone doing immunotherapy here?

moth

Yes, me! A number of us are. Search for tecentriq/atezolizimab, & keytruda.There's a thread for that immunotherapy. I'll update with links if I can find them

NorCalS

Moth, please let us know what you think of Tecentriq. Any side effects that would make the treatment intolerable? I’m on Xeloda now. I was supposed to go into a clinical trial for Keytruda (Pembro), but my tissue sample after lumpectomy did not have enough cells to test for PD-L1. However, a prior test on a biopsy sample showed that I had enough to qualify for Tecentriq (I was told that tecentriq and keytruda use different tests). Although I am not officially stage 4, MO and radiation oncologist seem to think it’s just a matter of time since I was late stage TNBC when diagnosed and I did not get a PCR after surgery. Immunotherapy maybe the next step for me and I would like to be prepared

moth

NorCalS, it's really hard to say. Atm (finished cycle 6 just 10 days ago)I feel like I'm hardly getting any treatment. My energy is good, I'm getting back in shape. I did lose my tastebuds and have to keep my feet warm or they hurt from early neuropathy but otherwise I feel fine. In cycle 3 I was almost bedbound, so much fatigue and pain. But we don't know what caused it. Could have been my liver mets flaring or the treatment.

Plus being on taxol and tecentriq, we never know for sure what's causing what.

Right now I'm happy to stay on it as long as it works. Cycle 7 is due to start this Thurs pending CT results

NorCalS

Moth, good luck on the CT. I hope you get good results from Tecentriq. Please keep us informed. It really helps the rest of us. Thanks

moth

thx NorCalS!

Here's the tecentriq thread

https://community.breastcancer.org/forum/162/topics/868060?page=3&post_creation=true#post_5584918

Lulabelle2020

I'll echo also on Tecentriq but I'm on Abraxane. I've found no issues with S.E. except dodge bowels which have rectified themselves I only took meds maybe twice. I don't think my eyesight is as good as it was but I had that last time with chemo alone!!

I've notice shrinkage and had a few little aches and pains which I had before. I have my first scan at the end of the month so praying for good results 🙏🏻

I take supliments and will add more as my medical team have no concerns about alternative treatments I don't think they believe in them but also don't stop me from taking them. Not sure if that helps with S.E.

zfelicia

Thanks for sharing your journey. I’m stage IV, lymph nodes, and light spot on my spleen. 4 rounds of AC/I’m on my 9 of 12 rounds of Taxol. I’ve had slight side affects, however I’m very exhausted I was anemic before my diagnosis so that contributes as well. Thanks for sharing your story it really helped me.

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moth

zfelicia are you denovo? You might want to join those threads too.

And consider updating your sigline with your dx and treatments