Invasive Ductal Carcinoma with Lobular Features

Sassafrassy

Has anyone else had this type of cancer? I've tried to search for information about it and it's such a rare type of cancer, they haven't even done many studies on it. I was diagnosed with Stage Two a year and 3 months ago. They treated it with chemo, double mastectomy, and radiation... in that order. In the meantime it was metastasizing, according to a scan done in November 2019, He put me on hormone blockers, due to being estrogen and progesterone fed. Needless to say, it had already reached my spine. Nothing was done, I didn't have another scan for 5 months. It was just followed up with a Pet Scan on Monday. Yesterday I went to get the results and informed me I have Stage 4 breast cancer and he could give me pills to keep me going for a few more years. Does this even sound right?

candy-678

I wondered about your comment "it is such a rare type of cancer". Sounds like you are Stage 4-- like me and many others here. You will see posts on Threads labeled "Stage 4". Sounds like you have mets to Bone only? There is a "Bone Mets Thread" here too under Stage 4 label. If you are ER/PR+ HER 2 - then yes they treat with hormonals and usually a CDK 4/6 inhibitor. I suggest you go to the Bone Mets Thread. It is not curable, but treatable. And there are several that have bone only that live many years.

AliceBastable

I think there's also a thread on mixed-type cancers, but I haven't looked at it in a couple years. Mine was mixed ductal and lobular, and I've seen several others on here with the same. It's not really all that rare. You might want a second opinion if your doctor has never seen it before.

NorCalS

Hi.

I have triple negative breast cancer, invasive ductal with lobular features. My oncologist (MO) treats my cancer as if it is IDC. MO acknowledges that is is different from pure IDC because the cancer cells can spread out more. MO also said that the cancer is harder to detect on mammogram and ultrasound. MRI and CT/PET are better at detecting the cancer cells. I have been informed that IDC with lobular features grows more slowly, but is more likely to spread.