Just diagnosed - Sacramento Area

arabiansrock

Hi all, yet another member to the club. I was diagnosed last Thursday via biopsy results. Left breast idc moderately differentiated, approx sbr = 6, also (same biopsy) suspicious for DCIS solid type, via ultrasound tumor just under 1 cm. Right breast radial scar/sclerosing lesion, again size just under 1 cm. Still waiting for surgeon to call and give me appt.

My concern is (ok I have many but...) I already know I want a double Mast. Bye Bye Girls. I do not want to worry every year is it coming back, will the other one get it. So what if my surgeon insists on lumpectomy? What if ins will not cover a double mast when the contralateral breast does not have a diagnosed tumor? I have a very high suspicion they will find cancer on the right side with post op pathology.

There is no breast cancer in my family, even though my Dad had 3 types of cancer when he died (prostate, cancer of the bone marrow, and colon cancer), and my sister had 2 types of cancer (thyroid, pancreatic). Even tho they died of cancer i NEVER thought I would get it. Mom was a cardiac cripple, extremely bad congestive heart failure secondary to a major heart attack at 48. I always assumed that was how I would go, so have been very careful to keep on top of things like get on statins at 40, BP meds when my pressure went up just a bit, stay fit etc. But cancer, no. My dr probably saved my life because I dragged my husband in for some GI issues and Dr looked at me and said "you haven't had an annueal exam in a while, get an appt" So I did and he looked at my chart and said "you need a mammo, you are very overdue", I said fine I will go to gyn ( not intending to go immediately, maybe in a few months...), and he said "fine but I'm ordering the mammo, do it now". And the rest is history.

FWIW my entire family said immediately after they heard the diagnosis, take them off, both of them, don't even think of lumpectomy. I was quite surprised at the unanimous vote. Also weird thing, I also always thought if I did get BC, I would get a lumpectomy, but it took about 10 min of googling for me to decide for double mast. But man am I going to miss the girls.

take care everyone, and may angels guide us on this journey.

MinusTwo

If your doc won't agree to a bilateral mastectomy - find a new doc. It's your right. Insurance should cover it.

Here's a link to NCI hospitals if you want a second opinion.

https://www.cancer.gov/research/infrastructure/can...

I was diagnosed one breast only, had BMX, and they found things in the supposedly un-diagnosed breast. Good luck

Edited to add the link