Questions regarding treatment

Graceandbeauty1

I was diagnosed in May 2018 with three separate diagnisis'. Triple negative in the right breast and Her2+\HR-, and Triple positive in left breast. DCIS was found throughout entire breast on both sides. I had bilateral mastectomy in July 2018, no reconstruction due to health issues. I was 43 at diagnosis.

No other treatment has been done. Tumors were 1.12cm, 1.3cm and a .17 mm. No chemo, no radiation.

My doctor has done no scans except for a lung ct which showed 8 nodules 9-11mm last Dec. All she does a check my temp and push on my scar. The scar is a whole separate issue. She butchered me!! Didn't even attempt to make decent incision lol. I'm in and out in leas than 5 minute.

Everything I have read says how aggressive the Triple negative and Her2+ is and that standard treatment is usually some type of chemo/meds even with smaller tumors. I have taken studies in, asked questions, and asked for additional tests/scans. Nothing. No blood work. NOTHING!!

Am I right to be scared, mad, feel like a number etc!!? I'm in the damn Research Triangle and this is care I have gotten! Why?

Any help/advice would be appreciated! Thanks!

Shar2020

Is she a surgical oncologist or a general surgeon? Sounds as if you may benefit from a second opinion from an oncologist on what additional follow up is required.

MinusTwo

I agree. You need to meet with a medical oncologist. Or maybe two. Usually they are the docs who "drive the bus". Surgeons cut. MO's determine everything else. Below is a link to major NCI cancer facilities so you can find one close to you.

https://www.cancer.gov/research/infrastructure/can...

Gundersk

Yes, you should get another opinion. I agree with the others who said make sure you talk to an oncologist and a surgeon who specializes in oncology.