It's back.

Sf2008

Two years past my initial diagnosis and its back. I was having severe back pain and an mri showed it's in my spine. Now on to the on slew of tests to see if it has spread.

I'm tired, I'm lonely and scared for my childrens future. The one without me in it.

Any tnbc stage 4s doing well out there?

moth

Hi Sf2008, mine is also about 2 yrs after initial dx. Sucks sucks sucks. Come check out the stage IV threads

"Life Does not end with a stage iv diagnosis" https://community.breastcancer.org/forum/8/topics/818931?page=105#idx_3133

you might also be inspired by this one - some 8yrs + survivors! https://community.breastcancer.org/forum/8/topics/872379?page=3#idx_89

dlittkemann

I’m here too. Last radiation was mar 2019 and Jan bone mets spine and pelvis. Scared too. Start treatments wed. New immunotherapy drug and chemo. Praying somehow I get 15 more years w my 5 year old son. Praying for you ladies too. Sending hug

Sf2008

Thanks for responding, our stories sound similar, my daughter is also 5 and I have an older son who just turned 12.

I hope everything goes well for you on Wednesday, are you rececing atezolizumab with axbrane? Will you loose or keep your hair?

I have to wait for my tumour to be tested but in the meantime I am starting palliative radiation to my spine and re scanning everywhere else.

I hope you get your 15 and many more.

dlittkemann

Just saw the reply now! I was on that combo but it was not doing much for me so now I’m on immunotherapy and an oral Xeloda. Praying this works for me. I need some positive. Really struggling since just got the news Friday that the combo isn’t working.

zfelicia

Good morning,

Thanks for sharing your journey, you are not alone. I'm stage IV TNBC (lymph notes underarm, and slight spot on my spleen) Diagnosed 05/20 I've had 4 rounds of Ac and 9 of 12 rounds of Taxol- started Keytruda yesterday. I’m a newbie to this I didn’t know anything about this at all, every group I joined were HER Positives, which I learned quickly that my diagnosis is quite different than there’s. At first I was so depressed and questioned why me and whats going to happened to my children- totally devastated. NOW I’m a fighting warrior. I’m praying for your strength and heeling I’ve you ever want to reach I please do so. ( my tumor has shrunk and I’ve had slight side affects that may last a day) I have had any scans yet - hopefully soon,

Once again Thanks for sharing

zfelicia

Good morning,

Thanks for sharing your journey, you are not alone. I'm stage IV TNBC (lymph notes underarm, and slight spot on my spleen) Diagnosed 05/20 I've had 4 rounds of Ac and 9 of 12 rounds of Taxol- started Keytruda yesterday. I’m a newbie to this I didn’t know anything about this at all, every group I joined were HER Positives, which I learned quickly that my diagnosis is quite different than there’s. At first I was so depressed and questioned why me and whats going to happened to my children- totally devastated. NOW I’m a fighting warrior. I’m praying for your strength and heeling I’ve you ever want to reach I please do so. ( my tumor has shrunk and I’ve had slight side affects that may last a day) I have had any scans yet - hopefully soon,

Once again Thanks for sharing