Not a single met...still hope right?

dlittkemann

Hi everyone

Got news today mri shows mets in whole spine throughout. Also Femur and pelvis. So went from one met to many. Pls tell me that w the immunotherapy and chemo there is still hope for me. I know you told many amazing stories and I will go back read them again. I guess wanted give an update too. Hope start treatment soon and hope have 20 more years w my 5 year old.Feels like every appt news get worse :-

Traii

dlittkemann

Sorry to hear this news but please have hope

It's hard at the beginning with mixed emotions and taking this all in but it does get easier once your plan is in place that soon becomes routine.

I for one had mets throughout bone and skeleton ...I've been on my combo sInce Jan 19 and doing well so far. Tumor markers were at high 200s and last month at 37.

I've seen many many ladies do well on this combo and tolerate extremely well. I have a 10 year old I can now keep up with most times!!

Take care, hugs to you

DivineMrsM

dlitt, what kind of treatment plans have been discussed and when do you think they are going to begin? I understand your anxiety at this point. You'll begin to feel a bit better when treatment begins.

If your anxiety is running away with you, please ask your doctor for anti anxiety meds. They help me immensely.

I think many of us project ourselves really far down the line wanting to live many more years. What I learned to do was live more in the here and now. It takes practice, but I take my eyes off the far distant future and bring my awareness to the day at hand. Make short distant plans: what you want to do on the weekend. It gives you something to look forward to. Start adding to your life a whole whole lot of what you really want to do. Small but fun activities. Get busy doing that and stay in the moment. Soak in your surroundings and the interactions you have with your loved ones.

Its also helpful to journal. Get a notebook and jot down your thoughts. It gets you in touch with your feelings and gives you focus. Posting on this forum is a great way to find support (I’ve posted thousands of times) , but journaling is more intimate, private and personal and I think we can all benefit from that kind of writing.

Take it a day at a time. Best wishes.

dlittkemann

Thanks for the replies. So chemo and immunotherapy are what they are going to do. I just can’t wrap my brain around how they said one spot and now it’s throughout my entire spine. I feel hopeless. But your messages do help. Thank you. :-

Anonymous

What Mrs. M said - Ive noticed that when I start to get high anxiety its usually because Ive been trying to work through too many what if scenarios for a longer timeline than just today, next week, or maybe three months from now. Soon as I back off from that and focus on making today the best it can be I feel a lot better. Some days are great and some days you just have to accept that well, its just a day, but tomorrow I get a new one to have a crack at making it a good one.

Unfortunately I do strategic planning and forecasting for a living so I can't really ever get away from thinking about 'what ifs', but Ive gotten a lot better at compartmentalizing that view for life vs work.

Focus on today and tomorrow. Let go of worrying about events that may not come to pass - trust that you will deal with them when they come, if they come. There is no point to doing the therapies if you aren't going to go live life and spend the time they are giving you, however long it is, to make memories with your little boy. Today is a gift, and tomorrow is a gift too. They always were, just MBC brings that into focus a bit more clearly. Enjoy that gift fully each and every day.

dlittkemann

They have never gave me a time. They say immunotherapy seems have good outcomes w TNBC. that’s what I’m holding onto esp since I have a 5 year old