10 yrs on Tamoxifen. How do you feel now that you're done?

margodae

Hey everyone...just wanting to see how you all felt and what you've experienced since getting off of Tamoxifen. I completed my 10 years in December 2019. Since I've been done I have experienced and felt weird, random things and just wondering if anyone else has had the same? Shortly after completing Tamoxifen, the skin on my fingers and toes began to peel and shed. It was bizarre and scary, as I didn't know if it would stop or spread to somewhere else. I saw a dermatologist and was prescribed an ointment. No one could tell me if it was related to coming off Tamoxifen? After two tubes of ointment it finally cleared up.

Last month, one month since coming off of Tamoxifen, I began to feel extremely bloated and my right breast has been tender (my cancer was in my left breast). I became so concerned about these feelings that I took a pregnancy test, as I wondered if I was pregnant...I'm not. I had my yearly MRI, a week ago, and that came back all clear. I have an appointment with my surgeon to go over the MRI results in a couple day, so I will visit with him more about the breast tenderness.

Anyone else with weird, random experiences? I have a feeling that this is all related to my hormones coming back from suppression and trying to find a "new normal". I'm just frustrated that my doctors never really prepared me about the things I would experience coming off Tamoxifen after 10 years.

Sorry to vent!