Mastectomy

Iamy
Iamy Member Posts: 1

I’m scheduled for my 7th of 8 Che is this week afterward I’m scheduled for a double mastectomy, up to this point I think I’ve handled the diagnoses as well as I can but I’m having trouble with the mastectomy I’m very scared, I’m 41 and have 2 children at home I’m worried about how I’m goi g to look and feel and the reconstruction ahead can anyone give me any insights or help processing thanks

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2020

    I had BMX with immediate recon (a one and done surgery--not everyone qualifies but I am small-breasted and wanted to stay that way which made it easier). Honestly I felt like my surgery and post surgical recovery was a non-event. I had little to no pain; the worst part was having to sleep on my back on a wedge pillow for 3 weeks to protect my PS's work. I don't even remember taking pain meds other than maybe some ibuprofen. I was in the hospital for 2 nights only.

    Claire in AZ

  • wallycat
    wallycat Member Posts: 3,227
    edited January 2020

    There's a whole area here for surgery/recon issues if you want to look through some of those threads.

    I was 49 and at time of dx, just turned 50 with surgeries...I opted for no recon because I had very large, beautiful breasts, if I say so myself, and nothing can compete with nature. Recon won't return any breast sensation if you opt for it unless you're eligible for nipple sparring surgery. The surgery was a breeze. I'd looked at enough websites to know what to expect, though emotionally, that may not prepare anyone till it actually happens. I had had a lumpectomy first because my surgeon wanted to know if the scans were accurate, so that is when I had my SNB (sentinal node biopsy). That SNB surgery took me longer to recover (a few weeks to be able to raise my arm completely over my head); the mx was nothing. We are all different and I've read that some women struggle with pain but I had nothing; no pain, no change in range of motion, etc. My breast surgeon freaked when he came to see me and saw the pain cart in the hall but I just had zero issues. Several months after, there was some cording...not painful, just looked and felt it and physical therapy massage got rid of all of it in a few appointments.

    Best to you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2020

    To add to wallycat-I had nipple-sparing, and lost all sensation. The surgeon has to "lift" (effectively cut) the nipples away from the blood supply, cutting them from nerves too. They should be biopsied for any cancer cells and if they are clear, then nipple sparing BMXs can move forward. So "nipple-sparing" only spares the cosmetic look of the finished product--and doesn't spare sensation. It was a hard price to pay since I have no sensation at all in my breasts, post-surgery.

    Claire in AZ

  • redhead403
    redhead403 Member Posts: 125
    edited January 2020

    Same here Claireinaz

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2020

    PS except it's weird; when I go outside and it's really cold (we get a lot of snow here in this part of AZ), shoveling snow hiking or running or whatever--my implants get really cold, so when I come in, it's like having cold bags on my chest. Not unpleasant, just odd :)

    Claire in AZ

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