In shock
So my oncologist said I am too optimistic about my cancer. My liver has progressed twice this year. I was advised to give up tafe forget about working and acccess my super and apply for disability. I am in shock. I was told within the next few years things will get complicated with my illness. My bone and lung Mets have been stable for six years
Comments
-
No doubt you are in shock. Hugs to you!
-
Rainbow,
Consider getting a second opinion. I would.
Tina
-
Rainbowdash, that is a strange response from the MO. My liver has progressed so many times since diagnosed with extensive liver and bone mets in 2014 and my MO has never said anything like that or basically suggested I "give up". I still work full time and have not really had any major liver symptoms since diagnosis. In 2016, my liver was 70% mets and my left lobe was nearly entirely mets (at which time I felt great, was eating a lot with no appetite loss, running 4 miles 3 times per week and had no liver function issues). Since then, my healthy liver tissue has regenerated significantly. Although I do continue to progress after treatments that work eventually stop working on my liver, my liver has never been that bad since. Given the heavy tumor burden in my liver at the time of my original 2014 diagnosis, stats would say I had 6 months to live at the time. Also, I had severe, uncontrollable hypercalcemia (related to late stage bone mets) when diagnosed which carries a life expectancy of 1- 3 months. My point is that no one knows how long we have left, not even the medical professionals, and each of us has such a different course of disease. I agree, get a second opinion or consider switching MOs, even at your own cancer center (if possible). Your MO may be a good medical professional but not a good match for you and lacking in the bedside manner. You are in the driver's seat with how you want to spend the rest of your life. No one, including your MO, knows how long any of us have left and can tell you how you need to spend that time. There are new treatments coming out each year and I subscribe to the "conditional survival" theory - I just try to find a treatment that works until the next effective treatment comes out.
-
thank you JFL your post makes me feel so much better I have been thinking it’s almost over for me
-
Rainbow, it is unbelievable that your MO would make such a statement. Without optimism we would all be “doomed”. As others have stated, no one knows how our bodies will respond to treatment and educated guesses are just that.....guesses. Take good care and listen to your body and follow your heart. Hoping for the best for you
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team