In shock

Rainbow-dash-29
Rainbow-dash-29 Member Posts: 14

So my oncologist said I am too optimistic about my cancer. My liver has progressed twice this year. I was advised to give up tafe forget about working and acccess my super and apply for disability. I am in shock. I was told within the next few years things will get complicated with my illness. My bone and lung Mets have been stable for six years

Comments

  • dutchiris
    dutchiris Member Posts: 855
    edited October 2019

    No doubt you are in shock. Hugs to you!

  • Tina2
    Tina2 Member Posts: 2,943
    edited October 2019

    Rainbow,

    Consider getting a second opinion. I would.

    Tina

  • JFL
    JFL Member Posts: 1,947
    edited October 2019

    Rainbowdash, that is a strange response from the MO. My liver has progressed so many times since diagnosed with extensive liver and bone mets in 2014 and my MO has never said anything like that or basically suggested I "give up". I still work full time and have not really had any major liver symptoms since diagnosis. In 2016, my liver was 70% mets and my left lobe was nearly entirely mets (at which time I felt great, was eating a lot with no appetite loss, running 4 miles 3 times per week and had no liver function issues). Since then, my healthy liver tissue has regenerated significantly. Although I do continue to progress after treatments that work eventually stop working on my liver, my liver has never been that bad since. Given the heavy tumor burden in my liver at the time of my original 2014 diagnosis, stats would say I had 6 months to live at the time. Also, I had severe, uncontrollable hypercalcemia (related to late stage bone mets) when diagnosed which carries a life expectancy of 1- 3 months. My point is that no one knows how long we have left, not even the medical professionals, and each of us has such a different course of disease. I agree, get a second opinion or consider switching MOs, even at your own cancer center (if possible). Your MO may be a good medical professional but not a good match for you and lacking in the bedside manner. You are in the driver's seat with how you want to spend the rest of your life. No one, including your MO, knows how long any of us have left and can tell you how you need to spend that time. There are new treatments coming out each year and I subscribe to the "conditional survival" theory - I just try to find a treatment that works until the next effective treatment comes out.

  • Rainbow-dash-29
    Rainbow-dash-29 Member Posts: 14
    edited October 2019

    thank you JFL your post makes me feel so much better I have been thinking it’s almost over for me

  • Yogatyme
    Yogatyme Member Posts: 2,349
    edited October 2019

    Rainbow, it is unbelievable that your MO would make such a statement. Without optimism we would all be “doomed”. As others have stated, no one knows how our bodies will respond to treatment and educated guesses are just that.....guesses. Take good care and listen to your body and follow your heart. Hoping for the best for you

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