Anyone with ADH and later diagnosed with breast cancer?

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ElsaJ
ElsaJ Member Posts: 16
edited September 2019 in High Risk for Breast Cancer

I was diagnosed with ADH in my left breast last June. Had the lumpectomy last August and am on 6-month monitoring. First check up in March went well, they didn't find anything worrisome. Just had my 2nd follow up and the radiologist saw something in my right breast that he recommended biopsy. There are 3 spots that they are monitoring since last May. Two of the spots they cannot find (or they can no longer see this time). However, there is a small mass (less than 1 cm) that he found suspicious - hypoechoic with slightly irregular shape, vague shadowing, and no longer circumscribed. I wonder if anyone with ADH diagnosed and later found to have cancer in subsequent follow up. I also wonder if something that was probably benign before can turn into cancerous in 6 months. I am tired of worrying but want to be more informed

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  • Lukesmom17
    Lukesmom17 Member Posts: 18
    edited September 2019

    I don't know the answer to your question, but I was also recently diagnosed with ADH. I'm interested to hear what other women's experiences are. I don't blame you for being tired of worrying. My surgery is Friday.

  • HopeWins
    HopeWins Member Posts: 181
    edited September 2019

    I don't know if this answers your question but I had a stereotactic biopsy which showed ADH, microcalcifications, etc but no cancer. Then, the pathology on my surgical biopsy showed DCIS. I ended up opting for bmx and the final pathology showed additional areas of ADH and a portion of the DCIS mass that remained. If my surgical biopsy confirmed ADH only, I also would have continued monitoring with MRIs. I had very dense breasts as well.

    I'm not aware that ADH can turn into cancer but I think I read that benign breast conditions like ADH increase the likelihood of being diagnosed with BC vs women who do not have these conditions.

  • Ingerp
    Ingerp Member Posts: 2,624
    edited September 2019

    I had ALH 10 years ago. The rest of my story is below.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited September 2019

    I had ALH and ADH, nearly twenty years of blue ribbon screening, and extremely dense breasts.

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